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    Last Updated: 10/30/2025

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    MediFind found 32 doctor with experience in AEC Syndrome near California, US. Of these, 26 are Experienced and 6 are Advanced.

    Location
    LocationClose
    32 providers found
      Rahat Saied
      Advanced in AEC Syndrome
      Pediatrics
      Advanced in AEC Syndrome
      Pediatrics
      9727 Elk Grove Florin Rd., Suite 250, 
      Elk Grove, CA 
      Languages Spoken:
      English
      Accepting New Patients

      Rahat Saied is a Pediatrics provider in Elk Grove, California. Dr. Saied is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Obesity in Children, Autism Spectrum Disorder, Viral Gastroenteritis, and Developmental Dysphasia Familial. Dr. Saied is currently accepting new patients.

      Advanced in AEC Syndrome
      Medical Genetics | Pediatrics
      Advanced in AEC Syndrome
      Medical Genetics | Pediatrics

      Community Health Partners

      45 E River Park Pl W, Suite 507, 
      Fresno, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Cynthia Curry is a Medical Genetics specialist and a Pediatrics provider in Fresno, California. Dr. Curry is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. Her top areas of expertise are EEC Syndrome, AEC Syndrome, Naegeli-Franceschetti-Jadassohn Syndrome, and Ectodermal Dysplasias.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in AEC Syndrome
      Advanced in AEC Syndrome
      505 Parnassus Ave, 
      San Francisco, CA 
      Languages Spoken:
      English

      Glenn Rosenbluth is a Pediatrics provider in San Francisco, California. Dr. Rosenbluth is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Naegeli-Franceschetti-Jadassohn Syndrome, Ectodermal Dysplasias, Zlotogora-Ogur Syndrome, Clouston Syndrome, and Osteotomy.

      Learn about our expert tiers
      Advanced in AEC Syndrome
      Obstetrics and Gynecology
      Advanced in AEC Syndrome
      Obstetrics and Gynecology
      1801 Colorado Ave, Suite 210, 
      Turlock, CA 
      Languages Spoken:
      English

      Fatemeh Pazouki is an Obstetrics and Gynecologist in Turlock, California. Dr. Pazouki is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. Her top areas of expertise are Menorrhagia, Neuralgia, EEC Syndrome, Intrauterine Device Insertion, and Hormone Replacement Therapy (HRT).

      Advanced in AEC Syndrome
      Dermatology
      Advanced in AEC Syndrome
      Dermatology
      1310 W Stewart Dr, Suite 507, 
      Orange, CA 
      Languages Spoken:
      English

      Heidi Goodarzi is a Dermatologist in Orange, California. Dr. Goodarzi is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. Her top areas of expertise are Hypomelanotic Disorder, Dyschromatosis Symmetrica Hereditaria, Griscelli Syndrome, and Dyschromatosis Universalis Hereditaria.

      Advanced in AEC Syndrome
      Family Medicine
      Advanced in AEC Syndrome
      Family Medicine
      1501 Trousdale Dr, 4th Floor, 
      Burlingame, CA 
      Languages Spoken:
      English

      Hao Huang is a primary care provider, practicing in Family Medicine in Burlingame, California. Dr. Huang is rated as an Advanced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Livedo Reticularis, Infertility, Polycystic Ovary Syndrome, Thrombectomy, and Hepatectomy.

      Experienced in AEC Syndrome
      Experienced in AEC Syndrome
      4647 Zion Ave, 
      San Diego, CA 
      Languages Spoken:
      English

      James Moseman is a Pediatrics provider in San Diego, California. Dr. Moseman is rated as an Experienced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Obesity in Children, Autism Spectrum Disorder, Developmental Dysphasia Familial, and Zlotogora-Ogur Syndrome.

      Experienced in AEC Syndrome
      Pediatrics
      Experienced in AEC Syndrome
      Pediatrics
      275 W Macarthur Blvd, 
      Oakland, CA 
      Languages Spoken:
      English

      Mengyou Wu is a Pediatrics provider in Oakland, California. Dr. Wu is rated as an Experienced provider by MediFind in the treatment of AEC Syndrome. Her top areas of expertise are EEC Syndrome, Clouston Syndrome, Naegeli-Franceschetti-Jadassohn Syndrome, and AEC Syndrome.

      Experienced in AEC Syndrome
      Family Medicine | Sports Medicine
      Experienced in AEC Syndrome
      Family Medicine | Sports Medicine

      Torrance Health Association Inc

      2900 Lomita Blvd, 
      Torrance, CA 
      Languages Spoken:
      English

      Shintau Lin is a Sports Medicine provider in Torrance, California. Dr. Lin is rated as an Experienced provider by MediFind in the treatment of AEC Syndrome. Her top areas of expertise are Zlotogora-Ogur Syndrome, Naegeli-Franceschetti-Jadassohn Syndrome, AEC Syndrome, and EEC Syndrome.

      Experienced in AEC Syndrome
      General Surgery
      Experienced in AEC Syndrome
      General Surgery

      Acute Care Surgery Medical Group Inc

      414 G St, Suite 120, 
      Marysville, CA 
      Languages Spoken:
      English

      James Gonzales is a General Surgeon in Marysville, California. Dr. Gonzales is rated as an Experienced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Ogilvie Syndrome, Hernia, Gallbladder Disease, Endoscopy, and Hernia Surgery.

      Experienced in AEC Syndrome
      Pediatrics | Medical Genetics
      Experienced in AEC Syndrome
      Pediatrics | Medical Genetics
      33608 Ortega Hwy, 
      San Juan Capistrano, CA 
      Languages Spoken:
      English

      Charles Strom is a Pediatrics specialist and a Medical Genetics provider in San Juan Capistrano, California. Dr. Strom is rated as an Experienced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Mosaicism, Chromosome 13q Deletion, Congenital Hemidysplasia with Ichthyosiform Erythroderma and Limbs Defects, and Woodhouse-Sakati Syndrome.

      Experienced in AEC Syndrome
      Pediatrics | Dermatology
      Experienced in AEC Syndrome
      Pediatrics | Dermatology

      University Of California San Francisco

      2330 Post St, 
      San Francisco, CA 
      Languages Spoken:
      English

      Ilona Frieden is a Pediatrics specialist and a Dermatologist in San Francisco, California. Dr. Frieden is rated as an Experienced provider by MediFind in the treatment of AEC Syndrome. Her top areas of expertise are PHACE Syndrome, Hemangioma, Clouston Syndrome, and Ectodermal Dysplasias.

      Experienced in AEC Syndrome
      Experienced in AEC Syndrome

      Permanente Medical Group Inc

      901 Nevin Ave, 
      Richmond, CA 
      Languages Spoken:
      English

      Keith Quirino is a Psychiatrist in Richmond, California. Dr. Quirino is rated as an Experienced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are AEC Syndrome, Zlotogora-Ogur Syndrome, EEC Syndrome, and Naegeli-Franceschetti-Jadassohn Syndrome.

      Experienced in AEC Syndrome
      Experienced in AEC Syndrome
      4650 West Sunset Boulevard, 
      Los Angeles, CA 
      Languages Spoken:
      English
      Accepting New Patients

      Meagan Hughes is a Pediatrics provider in Los Angeles, California. Dr. Hughes is rated as an Experienced provider by MediFind in the treatment of AEC Syndrome. Her top areas of expertise are Stork Bite, Vascular Birthmark, Congenital Athymia, and Clouston Syndrome. Dr. Hughes is currently accepting new patients.

      Experienced in AEC Syndrome
      Plastic Surgery | Undersea and Hyperbaric Medicine
      Experienced in AEC Syndrome
      Plastic Surgery | Undersea and Hyperbaric Medicine

      Stanford Health Care

      420 Broadway St, 
      Redwood City, CA 
      Languages Spoken:
      English

      Derrick Wan is a Plastic Surgeon and an Undersea and Hyperbaric Medicine provider in Redwood City, California. Dr. Wan is rated as an Experienced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Micrognathia, Pierre Robin Sequence, Acrofacial Dysostosis Rodriguez Type, Osteotomy, and Bone Graft.

      Experienced in AEC Syndrome
      Dermatology
      Experienced in AEC Syndrome
      Dermatology

      Descanso Dermatology Medical Group

      1346 Foothill Blvd, Suite 203, 
      La Canada, CA 
      Languages Spoken:
      English

      Linda Wong is a Dermatologist in La Canada, California. Dr. Wong is rated as an Experienced provider by MediFind in the treatment of AEC Syndrome. Her top areas of expertise are Clouston Syndrome, Naegeli-Franceschetti-Jadassohn Syndrome, AEC Syndrome, and EEC Syndrome.

      Experienced in AEC Syndrome
      Medical Genetics | Pediatrics
      Experienced in AEC Syndrome
      Medical Genetics | Pediatrics

      Riverside Medical Center

      10800 Magnolia Avenue, 
      Riverside, CA 
      Languages Spoken:
      English
      Accepting New Patients

      Syed Ahmed is a Medical Genetics specialist and a Pediatrics provider in Riverside, California. Dr. Ahmed is rated as an Experienced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Chromosome 10q Deletion, Chromosome 13q Duplication, Autism Spectrum Disorder, and Neurofibromatosis Type 1 (NF1). Dr. Ahmed is currently accepting new patients.

      Experienced in AEC Syndrome
      Medical Genetics | Pediatrics
      Experienced in AEC Syndrome
      Medical Genetics | Pediatrics
      533 Parnassus Ave, 
      San Francisco, CA 
      Languages Spoken:
      English

      Joseph Shieh is a Medical Genetics specialist and a Pediatrics provider in San Francisco, California. Dr. Shieh is rated as an Experienced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Neurofibromatosis Type 1 (NF1), Myhre Syndrome, Neurofibromatosis, and Clouston Syndrome.

      Experienced in AEC Syndrome
      Pediatric Otolaryngology | Otolaryngology
      Experienced in AEC Syndrome
      Pediatric Otolaryngology | Otolaryngology

      Tahoe Forest Hospital District

      10051 Lake Ave, Suite 3, 
      Truckee, CA 
      Languages Spoken:
      English

      Stephen Hoff is a Pediatric Otolaryngologist and an Otolaryngologist in Truckee, California. Dr. Hoff is rated as an Experienced provider by MediFind in the treatment of AEC Syndrome. His top areas of expertise are Hearing Loss, Microtia, Cholesteatoma, Infant Hearing Loss, and Endoscopy.

      Experienced in AEC Syndrome
      Experienced in AEC Syndrome
      3109 Coffee Rd, Ste A, 
      Modesto, CA 
      Languages Spoken:
      English

      Ann Truscello is a Pediatrics provider in Modesto, California. Dr. Truscello is rated as an Experienced provider by MediFind in the treatment of AEC Syndrome. Her top areas of expertise are Obesity in Children, Zlotogora-Ogur Syndrome, Ectodermal Dysplasias, and EEC Syndrome.

      Showing 1-20 of 32

      Last Updated: 10/30/2025

      What is the definition of AEC Syndrome?

      Ankyloblepharon-ectodermal defects-cleft lip/palate syndrome (AEC syndrome) is a form of ectodermal dysplasia, a group of conditions characterized by abnormal development of ectodermal tissues including the skin, hair, nails, teeth, and sweat glands. The most common feature is missing patches of skin (erosions) on the scalp, neck, hands, and feet. The skin erosions can lead to infection, scarring, and hair loss. Other features include changes in skin coloring; misshapen or absent fingernails and toenails; malformed or missing teeth; increased sensitivity to heat; hearing loss; cleft lip and/or palate; and other facial abnormalities. This condition is caused by genetic changes in the TP63 gene and is inherited in an autosomal dominant fashion. Rapp-Hodgkin syndrome was classified as a separate disorder until it was discovered that it result from genetic changes in the same part of the TP63 gene. Rapp-Hodgkin syndrome and AEC syndrome are considered to be part of the same disease spectrum.

      When should I see an AEC Syndrome doctor in California, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an AEC Syndrome doctor in California, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank AEC Syndrome doctors in California, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by AEC Syndrome doctors in California, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an AEC Syndrome doctor in California, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the AEC Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different AEC Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an AEC Syndrome doctor in California, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my AEC Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my AEC Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female AEC Syndrome doctors in California, US?

      Look for the filter feature on the left side of the AEC Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an AEC Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the AEC Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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