The 20 Best AEC Syndrome Doctors in Germany

Find the Top AEC Syndrome Experts and Specialists

Last Updated: 11/08/2026

Save doctors for later
Sign Up
Not sure about your diagnosis?
Check Your Symptoms
Already have a doctor?
Find A Second Opinion

MediFind found 7 doctor with experience in AEC Syndrome near Germany. Of these, 5 are Advanced and 2 are Distinguished.

Location
LocationClose
7 providers found
    Distinguished in AEC Syndrome
    Distinguished in AEC Syndrome
    Referral may be required
    Frankfurt Am Main, HE, DE 

    Christian Osterburg practices practicing medicine in Frankfurt Am Main, Germany. Mr. Osterburg is rated as a Distinguished expert by MediFind in the treatment of AEC Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses AEC Syndrome, Split Hand Foot Malformation, Ectodermal Dysplasias, and Clouston Syndrome.

    Distinguished in AEC Syndrome
    Distinguished in AEC Syndrome
    Referral may be required
    Max Von Laue Str. 7, 
    Frankfurt Am Main, HE, DE 

    Volker Dotsch practices practicing medicine in Frankfurt Am Main, Germany. Mr. Dotsch is rated as a Distinguished expert by MediFind in the treatment of AEC Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses AEC Syndrome, Ectodermal Dysplasias, Clouston Syndrome, and Aplasia Cutis Congenita.

    Advanced in AEC Syndrome
    Advanced in AEC Syndrome
    Referral may be required
    Erlangen, BY, DE 

    Sigrun Wohlfart practices practicing medicine in Erlangen, Germany. Ms. Wohlfart is rated as an Advanced expert by MediFind in the treatment of AEC Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Hypohidrotic Ectodermal Dysplasia, Clouston Syndrome, Ectodermal Dysplasias, and Aplasia Cutis Congenita.

    Learn about our expert tiers
    Advanced in AEC Syndrome
    Advanced in AEC Syndrome
    Referral may be required
    Frankfurt Am Main, HE, DE 

    Birgit Schafer practices practicing medicine in Frankfurt Am Main, Germany. Ms. Schafer is rated as an Advanced expert by MediFind in the treatment of AEC Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses AEC Syndrome.

    Advanced in AEC Syndrome
    Advanced in AEC Syndrome
    Referral may be required
    Max Von Laue Str, 
    Frankfurt Am Main, HE, DE 

    Peter Guntert practices practicing medicine in Frankfurt Am Main, Germany. Mr. Guntert is rated as an Advanced expert by MediFind in the treatment of AEC Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses AEC Syndrome.

    Advanced in AEC Syndrome
    Advanced in AEC Syndrome
    Referral may be required
    Frankfurt Am Main, HE, DE 

    Sebastian Kehrloesser practices practicing medicine in Frankfurt Am Main, Germany. Mr. Kehrloesser is rated as an Advanced expert by MediFind in the treatment of AEC Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses AEC Syndrome.

    Advanced in AEC Syndrome
    Advanced in AEC Syndrome
    Referral may be required
    Erlangen, BY, DE 

    Holm Schneider practices practicing medicine in Erlangen, Germany. Schneider is rated as an Advanced expert by MediFind in the treatment of AEC Syndrome. They are also highly rated in 15 other conditions, according to our data. Their clinical expertise encompasses Hypohidrotic Ectodermal Dysplasia, Clouston Syndrome, Aplasia Cutis Congenita, and Ectodermal Dysplasias.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-7 of 7

    Last Updated: 11/08/2026

    What is the definition of AEC Syndrome?

    Ankyloblepharon-ectodermal defects-cleft lip/palate syndrome (AEC syndrome) is a form of ectodermal dysplasia, a group of conditions characterized by abnormal development of ectodermal tissues including the skin, hair, nails, teeth, and sweat glands. The most common feature is missing patches of skin (erosions) on the scalp, neck, hands, and feet. The skin erosions can lead to infection, scarring, and hair loss. Other features include changes in skin coloring; misshapen or absent fingernails and toenails; malformed or missing teeth; increased sensitivity to heat; hearing loss; cleft lip and/or palate; and other facial abnormalities. This condition is caused by genetic changes in the TP63 gene and is inherited in an autosomal dominant fashion. Rapp-Hodgkin syndrome was classified as a separate disorder until it was discovered that it result from genetic changes in the same part of the TP63 gene. Rapp-Hodgkin syndrome and AEC syndrome are considered to be part of the same disease spectrum.

    When should I see an AEC Syndrome doctor in Germany?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an AEC Syndrome doctor in Germany?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best AEC Syndrome doctor in Germany?

    You can find an AEC Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

    AEC Syndrome doctor near New York, NY
    AEC Syndrome doctor near Los Angeles, CA
    AEC Syndrome doctor near Chicago, IL
    AEC Syndrome doctor near Houston, TX
    AEC Syndrome doctor near Phoenix, AZ
    AEC Syndrome doctor near Philadelphia, PA
    AEC Syndrome doctor near Atlanta, GA
    AEC Syndrome doctor near Boston, MA
    AEC Syndrome doctor near Dallas, TX
    AEC Syndrome doctor near San Jose, CA

    How does MediFind rank AEC Syndrome doctors in Germany?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by AEC Syndrome doctors in Germany?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an AEC Syndrome doctor in Germany?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the AEC Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different AEC Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an AEC Syndrome doctor in Germany?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my AEC Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my AEC Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female AEC Syndrome doctors in Germany?

    Look for the filter feature on the left side of the AEC Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an AEC Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the AEC Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

    Read more about our Content Policy. 

    Recommended has been selected.