MediFind found 4029 doctor with experience in Aicardi-Goutieres Syndrome. Of these, 3249 are Experienced, 678 are Advanced, 94 are Distinguished and 8 are Elite.
Simona Orcesi practices in Pavia, Italy. Ms. Orcesi is rated as an Elite expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Aicardi Syndrome, Premature Infant, and CACH Syndrome.
Yanick Crow practices in Edinburgh, United Kingdom. Ms. Crow is rated as an Elite expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Perniosis, Spondyloenchondrodysplasia, and Frostbite.
Childrens Health Care Associates Inc
Adeline Vanderver is a Pediatric Neurologist and a Neurologist in Philadelphia, Pennsylvania. Dr. Vanderver is rated as an Elite provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Leukodystrophy, CACH Syndrome, Pol 3-Related Leukodystrophy, and Gastrostomy.
Elisa Fazzi practices in Brescia, Italy. Ms. Fazzi is rated as an Elite expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Cerebral Palsy, Spastic Diplegia Infantile Type, and Ataxia-Telangiectasia.
Laura Adang is a Child and Adolescent Psychiatrist and a Neurologist in Philadelphia, Pennsylvania. Dr. Adang is rated as an Elite provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, and Gastrostomy.
Min Kirsch-Lee practices in Dresden, Germany. Kirsch-Lee is rated as an Elite expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Their top areas of expertise are Aicardi-Goutieres Syndrome, Perniosis, Frostbite, and Cutaneous Lupus Erythematosus (CLE).
Gillian Rice practices in Manchester, United Kingdom. Ms. Rice is rated as an Elite expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Singleton-Merten Syndrome, Spondyloenchondrodysplasia, and Perniosis.
Jessica Garau practices in Pavia, Italy. Ms. Garau is rated as an Elite expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, and Septo-Optic Dysplasia.
Odile Tanguy-Boespflug practices in Paris, France. Ms. Tanguy-Boespflug is rated as a Distinguished expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Leukodystrophy, Spastic Paraplegia Type 2, CACH Syndrome, and Pelizaeus-Merzbacher Disease.
Rhode Island Hospital
Chuang-kuo Wu is a Neurologist in Providence, Rhode Island. Dr. Wu is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Alzheimer's Disease, Dementia, Cerebellar Degeneration, and Memory Loss.
University Of Cincinnati Physicians Company LLC
Rhonna Shatz is a Neurologist in Cincinnati, Ohio. Dr. Shatz has been practicing medicine for over 43 years and is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Lewy Body Dementia (LBD), Cerebellar Degeneration, Frontotemporal Dementia, and Primary Progressive Aphasia. Dr. Shatz is currently accepting new patients.
Quantum Radiology PC
Kenneth Lynch is a Radiologist in Austell, Georgia. Dr. Lynch is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Subarachnoid Hemorrhage, CAPOS Syndrome, Headache, and Vertigo. Dr. Lynch is currently accepting new patients.
Roper Saint Francis Physicians Network
John Rowe is a primary care provider, practicing in Family Medicine in Mount Pleasant, South Carolina. Dr. Rowe is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Infant Hyperglycemia, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Hypertension. Dr. Rowe is currently accepting new patients.
University Of Connecticut Health Center
Bernardo Rodrigues is a Neurologist in Farmington, Connecticut. Dr. Rodrigues is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Movement Disorders, Parkinson's Disease, Drug Induced Dyskinesia, and Hereditary Ataxia.
Virtual Neurology LLC
Andrew Rose-Innes is a Neurologist in Portland, Oregon. Dr. Rose-Innes is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Spinocerebellar Ataxia Type 3, Episodic Ataxia with Nystagmus, Spinocerebellar Ataxia Type 7, and Spinocerebellar Ataxia Type 11. Dr. Rose-Innes is currently accepting new patients.
Lafayette Clinic - Neurology
Dr. Macchi is originally from northwest Kansas. He graduated from the University of Kansas in Lawrence with a Bachelor of Science in Biology. He earned his Doctor of Medicine from the University of Kansas School of Medicine in Kansas City. Dr. Macchi completed an internal medicine internship, a neurology residency, a behavioral neurology and neuropsychiatry fellowship, and a palliative care and aging research fellowship with the University of Colorado Anschutz in Aurora. Dr. Macchi spent six years teaching as an assistant professor at the University of Colorado School of Medicine in Aurora. Dr. Macchi�s clinical interests include neurodegenerative conditions, like Alzheimer's disease, Parkinson's disease, and frontotemporal dementia, with a specific interest in managing neuropsychiatric symptoms from these and other neurologic illnesses. Dr. Macchi's approach to care borrows from those in palliative medicine, addressing issues that extend beyond symptom management, such as quality of life, caregiver/family support, and psychosocial needs.�I will work cooperatively with you to understand how your disease affects your life and develop strategies for mitigating the burdens of disease.�When not working, Dr. Macchi enjoys downhill skiing, attending live music events, backpacking, and trail running. Dr. Macchi is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Cerebellar Degeneration, Movement Disorders, Neuronal Intranuclear Inclusion Disease (NIID), and Parkinson's Disease.
Wk Bossier Internal Medicine
Kennedy Lim is a primary care provider, practicing in Internal Medicine in Bossier City, Louisiana. Dr. Lim is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Cholecystitis, Childhood Iron Deficiency Anemia, Lung Metastases, Small Bowel Resection, and Hip Replacement. Dr. Lim is currently accepting new patients.
Roper Saint Francis Physicians Network
Scott Evans is a primary care provider, practicing in Family Medicine and Geriatrics in Mount Pleasant, South Carolina. Dr. Evans is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Sitosterolemia, Familial Hypertension, Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Evans is currently accepting new patients.
Rhode Island Hospital
Jonathan Drake is a Neurologist in Providence, Rhode Island. Dr. Drake is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Dementia, Alzheimer's Disease, Cerebellar Degeneration, and Delirium.
University Of Virginia Physicians Group
Renzo Figari-Jordan is a Neurologist in Charlottesville, Virginia. Dr. Figari-Jordan is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Parkinson's Disease, Movement Disorders, Essential Tremor, and Opsoclonus-Myoclonus Syndrome. Dr. Figari-Jordan is currently accepting new patients.
Last Updated: 10/30/2025

