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    Last Updated: 10/30/2025

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    MediFind found 4029 doctor with experience in Aicardi-Goutieres Syndrome. Of these, 3249 are Experienced, 678 are Advanced, 94 are Distinguished and 8 are Elite.

    Location
    LocationClose
    4,029 providers found
      Simona Orcesi
      Elite in Aicardi-Goutieres Syndrome
      Elite in Aicardi-Goutieres Syndrome
      Pavia, IT 

      Simona Orcesi practices in Pavia, Italy. Ms. Orcesi is rated as an Elite expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Aicardi Syndrome, Premature Infant, and CACH Syndrome.

      Elite in Aicardi-Goutieres Syndrome
      Elite in Aicardi-Goutieres Syndrome
      Edinburgh, SCT, GB 

      Yanick Crow practices in Edinburgh, United Kingdom. Ms. Crow is rated as an Elite expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Perniosis, Spondyloenchondrodysplasia, and Frostbite.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in Aicardi-Goutieres Syndrome
      Pediatric Neurology | Neurology
      Elite in Aicardi-Goutieres Syndrome
      Pediatric Neurology | Neurology

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Adeline Vanderver is a Pediatric Neurologist and a Neurologist in Philadelphia, Pennsylvania. Dr. Vanderver is rated as an Elite provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Leukodystrophy, CACH Syndrome, Pol 3-Related Leukodystrophy, and Gastrostomy.

      Learn about our expert tiers
      Elite in Aicardi-Goutieres Syndrome
      Elite in Aicardi-Goutieres Syndrome
      Brescia, IT 

      Elisa Fazzi practices in Brescia, Italy. Ms. Fazzi is rated as an Elite expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Cerebral Palsy, Spastic Diplegia Infantile Type, and Ataxia-Telangiectasia.

      Elite in Aicardi-Goutieres Syndrome
      Child and Adolescent Psychiatry | Neurology
      Elite in Aicardi-Goutieres Syndrome
      Child and Adolescent Psychiatry | Neurology
      3401 Civic Center Blvd, Chca Nuerology, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Laura Adang is a Child and Adolescent Psychiatrist and a Neurologist in Philadelphia, Pennsylvania. Dr. Adang is rated as an Elite provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Metachromatic Leukodystrophy, Leukodystrophy, CACH Syndrome, and Gastrostomy.

      Elite in Aicardi-Goutieres Syndrome
      Elite in Aicardi-Goutieres Syndrome
      Dresden, SN, DE 

      Min Kirsch-Lee practices in Dresden, Germany. Kirsch-Lee is rated as an Elite expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Their top areas of expertise are Aicardi-Goutieres Syndrome, Perniosis, Frostbite, and Cutaneous Lupus Erythematosus (CLE).

      Elite in Aicardi-Goutieres Syndrome
      Elite in Aicardi-Goutieres Syndrome
      St Mary's Hospital, Health Innovation Manchester, 
      Manchester, ENG, GB 

      Gillian Rice practices in Manchester, United Kingdom. Ms. Rice is rated as an Elite expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Singleton-Merten Syndrome, Spondyloenchondrodysplasia, and Perniosis.

      Elite in Aicardi-Goutieres Syndrome
      Elite in Aicardi-Goutieres Syndrome
      Pavia, IT 

      Jessica Garau practices in Pavia, Italy. Ms. Garau is rated as an Elite expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, and Septo-Optic Dysplasia.

      Odile Tanguy-Boespflug
      Distinguished in Aicardi-Goutieres Syndrome
      Distinguished in Aicardi-Goutieres Syndrome
      Paris, FR 

      Odile Tanguy-Boespflug practices in Paris, France. Ms. Tanguy-Boespflug is rated as a Distinguished expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Leukodystrophy, Spastic Paraplegia Type 2, CACH Syndrome, and Pelizaeus-Merzbacher Disease.

      Experienced in Aicardi-Goutieres Syndrome
      Experienced in Aicardi-Goutieres Syndrome

      Rhode Island Hospital

      593 Eddy St, 
      Providence, RI 
      Languages Spoken:
      English

      Chuang-kuo Wu is a Neurologist in Providence, Rhode Island. Dr. Wu is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Alzheimer's Disease, Dementia, Cerebellar Degeneration, and Memory Loss.

      Experienced in Aicardi-Goutieres Syndrome
      Experienced in Aicardi-Goutieres Syndrome

      University Of Cincinnati Physicians Company LLC

      2123 Auburn Ave, 
      Cincinnati, OH 
      Experience:
      43+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Rhonna Shatz is a Neurologist in Cincinnati, Ohio. Dr. Shatz has been practicing medicine for over 43 years and is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Lewy Body Dementia (LBD), Cerebellar Degeneration, Frontotemporal Dementia, and Primary Progressive Aphasia. Dr. Shatz is currently accepting new patients.

      Experienced in Aicardi-Goutieres Syndrome
      Experienced in Aicardi-Goutieres Syndrome

      Quantum Radiology PC

      3950 Austell Rd, 
      Austell, GA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kenneth Lynch is a Radiologist in Austell, Georgia. Dr. Lynch is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Subarachnoid Hemorrhage, CAPOS Syndrome, Headache, and Vertigo. Dr. Lynch is currently accepting new patients.

      Experienced in Aicardi-Goutieres Syndrome
      Family Medicine
      Experienced in Aicardi-Goutieres Syndrome
      Family Medicine

      Roper Saint Francis Physicians Network

      180 Wingo Way, Suite 207, 
      Mount Pleasant, SC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      John Rowe is a primary care provider, practicing in Family Medicine in Mount Pleasant, South Carolina. Dr. Rowe is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Infant Hyperglycemia, Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, and Hypertension. Dr. Rowe is currently accepting new patients.

      Experienced in Aicardi-Goutieres Syndrome
      Experienced in Aicardi-Goutieres Syndrome

      University Of Connecticut Health Center

      263 Farmington Ave, 
      Farmington, CT 
      Languages Spoken:
      English

      Bernardo Rodrigues is a Neurologist in Farmington, Connecticut. Dr. Rodrigues is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Movement Disorders, Parkinson's Disease, Drug Induced Dyskinesia, and Hereditary Ataxia.

      Experienced in Aicardi-Goutieres Syndrome
      Experienced in Aicardi-Goutieres Syndrome

      Virtual Neurology LLC

      2015 Ne 51st Ave, 
      Portland, OR 
      Languages Spoken:
      English, Korean
      Accepting New Patients
      Offers Telehealth

      Andrew Rose-Innes is a Neurologist in Portland, Oregon. Dr. Rose-Innes is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Spinocerebellar Ataxia Type 3, Episodic Ataxia with Nystagmus, Spinocerebellar Ataxia Type 7, and Spinocerebellar Ataxia Type 11. Dr. Rose-Innes is currently accepting new patients.

      Experienced in Aicardi-Goutieres Syndrome
      Experienced in Aicardi-Goutieres Syndrome

      Lafayette Clinic - Neurology

      300 Exempla Circle, Suite 300, 
      Lafayette, CO 
      Experience:
      10+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Dr. Macchi is originally from northwest Kansas. He graduated from the University of Kansas in Lawrence with a Bachelor of Science in Biology. He earned his Doctor of Medicine from the University of Kansas School of Medicine in Kansas City. Dr. Macchi completed an internal medicine internship, a neurology residency, a behavioral neurology and neuropsychiatry fellowship, and a palliative care and aging research fellowship with the University of Colorado Anschutz in Aurora. Dr. Macchi spent six years teaching as an assistant professor at the University of Colorado School of Medicine in Aurora. Dr. Macchi�s clinical interests include neurodegenerative conditions, like Alzheimer's disease, Parkinson's disease, and frontotemporal dementia, with a specific interest in managing neuropsychiatric symptoms from these and other neurologic illnesses. Dr. Macchi's approach to care borrows from those in palliative medicine, addressing issues that extend beyond symptom management, such as quality of life, caregiver/family support, and psychosocial needs.�I will work cooperatively with you to understand how your disease affects your life and develop strategies for mitigating the burdens of disease.�When not working, Dr. Macchi enjoys downhill skiing, attending live music events, backpacking, and trail running. Dr. Macchi is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Cerebellar Degeneration, Movement Disorders, Neuronal Intranuclear Inclusion Disease (NIID), and Parkinson's Disease.

      Experienced in Aicardi-Goutieres Syndrome
      Internal Medicine
      Experienced in Aicardi-Goutieres Syndrome
      Internal Medicine

      Wk Bossier Internal Medicine

      2400 Hospital Dr, Suite 420, 
      Bossier City, LA 
      Languages Spoken:
      English
      Accepting New Patients

      Kennedy Lim is a primary care provider, practicing in Internal Medicine in Bossier City, Louisiana. Dr. Lim is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Cholecystitis, Childhood Iron Deficiency Anemia, Lung Metastases, Small Bowel Resection, and Hip Replacement. Dr. Lim is currently accepting new patients.

      Experienced in Aicardi-Goutieres Syndrome
      Family Medicine | Geriatrics
      Experienced in Aicardi-Goutieres Syndrome
      Family Medicine | Geriatrics

      Roper Saint Francis Physicians Network

      180 Wingo Way, Suite 207, 
      Mount Pleasant, SC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Scott Evans is a primary care provider, practicing in Family Medicine and Geriatrics in Mount Pleasant, South Carolina. Dr. Evans is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Sitosterolemia, Familial Hypertension, Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Evans is currently accepting new patients.

      Experienced in Aicardi-Goutieres Syndrome
      Experienced in Aicardi-Goutieres Syndrome

      Rhode Island Hospital

      593 Eddy St, 
      Providence, RI 
      Languages Spoken:
      English

      Jonathan Drake is a Neurologist in Providence, Rhode Island. Dr. Drake is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Dementia, Alzheimer's Disease, Cerebellar Degeneration, and Delirium.

      Experienced in Aicardi-Goutieres Syndrome
      Experienced in Aicardi-Goutieres Syndrome

      University Of Virginia Physicians Group

      1221 Lee St, 
      Charlottesville, VA 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Renzo Figari-Jordan is a Neurologist in Charlottesville, Virginia. Dr. Figari-Jordan is rated as an Experienced provider by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Parkinson's Disease, Movement Disorders, Essential Tremor, and Opsoclonus-Myoclonus Syndrome. Dr. Figari-Jordan is currently accepting new patients.

      Showing 1-20 of 4,029

      Last Updated: 10/30/2025

      What is the definition of Aicardi-Goutieres Syndrome?

      Aicardi-Goutières syndrome is a disorder with variable signs and symptoms, but it primarily affects the brain, the immune system, and the skin.

      When should I see an Aicardi-Goutieres Syndrome doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Aicardi-Goutieres Syndrome doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Aicardi-Goutieres Syndrome doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Aicardi-Goutieres Syndrome doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Aicardi-Goutieres Syndrome doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Aicardi-Goutieres Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Aicardi-Goutieres Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Aicardi-Goutieres Syndrome doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Aicardi-Goutieres Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Aicardi-Goutieres Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Aicardi-Goutieres Syndrome doctors near me?

      Look for the filter feature on the left side of the Aicardi-Goutieres Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Aicardi-Goutieres Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Aicardi-Goutieres Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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