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    Last Updated: 01/09/2026

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    MediFind found 119 doctor with experience in Aicardi-Goutieres Syndrome near Germany. Of these, 97 are Experienced, 21 are Advanced and 1 are Elite.

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    119 providers found
      Elite in Aicardi-Goutieres Syndrome
      Elite in Aicardi-Goutieres Syndrome
      Dresden, SN, DE 

      Min Kirsch-Lee practices in Dresden, Germany. Kirsch-Lee is rated as an Elite expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Their top areas of expertise are Aicardi-Goutieres Syndrome, Perniosis, Frostbite, and Cutaneous Lupus Erythematosus (CLE).

      Advanced in Aicardi-Goutieres Syndrome
      Advanced in Aicardi-Goutieres Syndrome
      Kiel, SH, DE 

      Bjorn Rabe practices in Kiel, Germany. Mr. Rabe is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top area of expertise is Aicardi-Goutieres Syndrome.

      Advanced in Aicardi-Goutieres Syndrome
      Advanced in Aicardi-Goutieres Syndrome
      Dresden, SN, DE 

      Stefanie Kretschmer practices in Dresden, Germany. Ms. Kretschmer is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Perniosis, and Frostbite.

      Learn about our expert tiers
      Advanced in Aicardi-Goutieres Syndrome
      Advanced in Aicardi-Goutieres Syndrome
      Dresden, SN, DE 

      Nadja Lucas practices in Dresden, Germany. Ms. Lucas is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Squamous Cell Skin Carcinoma, Localized Scleroderma, and Juvenile Dermatomyositis.

      Advanced in Aicardi-Goutieres Syndrome
      Advanced in Aicardi-Goutieres Syndrome
      Bonn, NW, DE 

      Rayk Behrendt practices in Bonn, Germany. Behrendt is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Their top areas of expertise are Aicardi-Goutieres Syndrome, Ichthyosis Vulgaris, Systemic Lupus Erythematosus (SLE), and Vasculitis.

      Advanced in Aicardi-Goutieres Syndrome
      Advanced in Aicardi-Goutieres Syndrome
      Darmstadt, HE, DE 

      Alexander Rapp practices in Darmstadt, Germany. Mr. Rapp is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Aicardi-Goutieres Syndrome, Schizophrenia, and Anorexia.

      Advanced in Aicardi-Goutieres Syndrome
      Advanced in Aicardi-Goutieres Syndrome
      Heidelberg, BW, DE 

      Axel Roers practices in Heidelberg, Germany. Mr. Roers is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Aicardi-Goutieres Syndrome, Anaphylaxis, Ichthyosis Vulgaris, and Mast Cell Activation Syndrome (MCAS).

      Advanced in Aicardi-Goutieres Syndrome
      Advanced in Aicardi-Goutieres Syndrome
      Dresden, SN, DE 

      Christine Wolf practices in Dresden, Germany. Ms. Wolf is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Perniosis, Frostbite, Cutaneous Lupus Erythematosus (CLE), and Aicardi-Goutieres Syndrome.

      Advanced in Aicardi-Goutieres Syndrome
      Advanced in Aicardi-Goutieres Syndrome
      St. Elisabeth Hospital, 
      Bochum, NW, DE 

      Katrin Neumann practices in Bochum, Germany. Ms. Neumann is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Infant Hearing Loss, Aicardi-Goutieres Syndrome, Hearing Loss, and Spasmodic Dysphonia.

      Advanced in Aicardi-Goutieres Syndrome
      Advanced in Aicardi-Goutieres Syndrome
      Freiburg, BW, DE 

      Marco Prinz practices in Freiburg, Germany. Mr. Prinz is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are CACH Syndrome, Astrocytoma, Glioma, and Brain Tumor.

      Advanced in Aicardi-Goutieres Syndrome
      Advanced in Aicardi-Goutieres Syndrome
      BMZ Sigmund Freud Str, 
      Bonn, NW, DE 

      Hiroki Kato practices in Bonn, Germany. Mr. Kato is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Gorham's Disease, Lymphangiomatosis, Skeletal-Extraskeletal Angiomatosis, Endoscopy, and Stent Placement.

      Advanced in Aicardi-Goutieres Syndrome
      Advanced in Aicardi-Goutieres Syndrome
      Muenster, NW, DE 

      Frank Rutsch practices in Muenster, Germany. Mr. Rutsch is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Arterial Calcification of Infancy, Achondroplasia, Singleton-Merten Syndrome, and Phenylketonuria (PKU).

      Advanced in Aicardi-Goutieres Syndrome
      Advanced in Aicardi-Goutieres Syndrome
      Dresden, SN, DE 

      Victoria Tungler practices in Dresden, Germany. Ms. Tungler is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Perniosis, Frostbite, Aicardi-Goutieres Syndrome, and Primary Lateral Sclerosis.

      Advanced in Aicardi-Goutieres Syndrome
      Advanced in Aicardi-Goutieres Syndrome

      LMU Munich

      Munich, BY, DE 

      Bjorn Hiller practices in Munich, Germany. Hiller is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Their top areas of expertise are Aicardi-Goutieres Syndrome, Hairy Cell Leukemia (HCL), and Squamous Cell Skin Carcinoma.

      Advanced in Aicardi-Goutieres Syndrome
      Advanced in Aicardi-Goutieres Syndrome
      Martini Str. 52, 
      Hamburg, HH, DE 

      Annette Bley practices in Hamburg, Germany. Ms. Bley is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Canavan Disease, CACH Syndrome, Leukodystrophy, and Metachromatic Leukodystrophy.

      Advanced in Aicardi-Goutieres Syndrome
      Advanced in Aicardi-Goutieres Syndrome
      Aachen, NW, DE 

      Martin Hausler practices in Aachen, Germany. Mr. Hausler is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Herpes Simplex Encephalitis, Encephalitis, Lordosis, and Aicardi-Goutieres Syndrome.

      Advanced in Aicardi-Goutieres Syndrome
      Advanced in Aicardi-Goutieres Syndrome
      Datteln, NW, DE 

      Margarete Hogrebe-Koch practices in Datteln, Germany. Ms. Hogrebe-Koch is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Multiple Synostoses Syndrome 1, Aicardi-Goutieres Syndrome, Pontocerebellar Hypoplasia, and Prader-Willi Syndrome.

      Advanced in Aicardi-Goutieres Syndrome
      Advanced in Aicardi-Goutieres Syndrome
      Paul Ehrlich Str. 51-59, 
      Langen, NI, DE 

      Nina Fuchs practices in Langen, Germany. Ms. Fuchs is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Her top areas of expertise are Renpenning Syndrome, Aicardi-Goutieres Syndrome, Leukocyte Adhesion Deficiency Type 1, and HIV/AIDS.

      Advanced in Aicardi-Goutieres Syndrome
      Advanced in Aicardi-Goutieres Syndrome
      Dresden, SN, DE 

      Martin Achleitner practices in Dresden, Germany. Mr. Achleitner is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. His top areas of expertise are Aicardi-Goutieres Syndrome and Long Haul COVID.

      Advanced in Aicardi-Goutieres Syndrome
      Advanced in Aicardi-Goutieres Syndrome
      Dresden, SN, DE 

      Shovamayee Maharana practices in Dresden, Germany. Maharana is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. Their top areas of expertise are Aicardi-Goutieres Syndrome, Primary Lateral Sclerosis, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 119

      Last Updated: 01/09/2026

      What is the definition of Aicardi-Goutieres Syndrome?

      Aicardi-Goutières syndrome is a disorder with variable signs and symptoms, but it primarily affects the brain, the immune system, and the skin.

      When should I see an Aicardi-Goutieres Syndrome doctor in Germany?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Aicardi-Goutieres Syndrome doctor in Germany?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Aicardi-Goutieres Syndrome doctors in Germany?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Aicardi-Goutieres Syndrome doctors in Germany?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Aicardi-Goutieres Syndrome doctor in Germany?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Aicardi-Goutieres Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Aicardi-Goutieres Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Aicardi-Goutieres Syndrome doctor in Germany?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Aicardi-Goutieres Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Aicardi-Goutieres Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Aicardi-Goutieres Syndrome doctors in Germany?

      Look for the filter feature on the left side of the Aicardi-Goutieres Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Aicardi-Goutieres Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Aicardi-Goutieres Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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