The 20 Best Aicardi-Goutieres Syndrome Doctors in Germany

Find the Top Aicardi-Goutieres Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 119 doctor with experience in Aicardi-Goutieres Syndrome near Germany. Of these, 97 are Experienced, 21 are Advanced and 1 are Elite.

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119 providers found
    Elite in Aicardi-Goutieres Syndrome
    Elite in Aicardi-Goutieres Syndrome
    Dresden, SN, DE 

    Min Kirsch-Lee practices practicing medicine in Dresden, Germany. Kirsch-Lee is rated as an Elite expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Aicardi-Goutieres Syndrome, Perniosis, Frostbite, and Cutaneous Lupus Erythematosus (CLE).

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Kiel, SH, DE 

    Bjorn Rabe practices practicing medicine in Kiel, Germany. Mr. Rabe is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Aicardi-Goutieres Syndrome.

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Dresden, SN, DE 

    Stefanie Kretschmer practices practicing medicine in Dresden, Germany. Ms. Kretschmer is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Aicardi-Goutieres Syndrome, Perniosis, and Frostbite.

    Learn about our expert tiers
    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Dresden, SN, DE 

    Nadja Lucas practices practicing medicine in Dresden, Germany. Ms. Lucas is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Aicardi-Goutieres Syndrome, Squamous Cell Skin Carcinoma, Localized Scleroderma, and Juvenile Dermatomyositis.

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Bonn, NW, DE 

    Rayk Behrendt practices practicing medicine in Bonn, Germany. Behrendt is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Aicardi-Goutieres Syndrome, Ichthyosis Vulgaris, Systemic Lupus Erythematosus (SLE), and Oral Herpes.

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Darmstadt, HE, DE 

    Alexander Rapp practices practicing medicine in Darmstadt, Germany. Mr. Rapp is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Aicardi-Goutieres Syndrome, Schizophrenia, and Anorexia.

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Freiburg, BW, DE 

    Marco Prinz practices practicing medicine in Freiburg, Germany. Mr. Prinz is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses CACH Syndrome, Glioma, Gliomatosis Cerebri, and Astrocytoma.

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    St. Elisabeth Hospital, 
    Bochum, NW, DE 

    Katrin Neumann practices practicing medicine in Bochum, Germany. Ms. Neumann is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Hearing Loss, Aicardi-Goutieres Syndrome, Infant Hearing Loss, and Spasmodic Dysphonia.

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Heidelberg, BW, DE 

    Axel Roers practices practicing medicine in Heidelberg, Germany. Mr. Roers is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Aicardi-Goutieres Syndrome, Anaphylaxis, Ichthyosis Vulgaris, and Contact Dermatitis.

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Dresden, SN, DE 

    Christine Wolf practices practicing medicine in Dresden, Germany. Ms. Wolf is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Perniosis, Frostbite, Cutaneous Lupus Erythematosus (CLE), and Hyper IgE Syndrome.

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    BMZ Sigmund Freud Str, 
    Bonn, NW, DE 

    Hiroki Kato practices practicing medicine in Bonn, Germany. Mr. Kato is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Singleton-Merten Syndrome, Aicardi-Goutieres Syndrome, Calcinosis, and Severe Acute Respiratory Syndrome (SARS).

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Muenster, NW, DE 

    Frank Rutsch practices practicing medicine in Muenster, Germany. Mr. Rutsch is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Arterial Calcification of Infancy, Singleton-Merten Syndrome, Phenylketonuria (PKU), and Achondroplasia.

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Langenfeld, BY, DE 

    Bjorn Hiller practices practicing medicine in Langenfeld, Germany. Hiller is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Aicardi-Goutieres Syndrome, Hairy Cell Leukemia (HCL), and Squamous Cell Skin Carcinoma.

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Dresden, SN, DE 

    Victoria Tungler practices practicing medicine in Dresden, Germany. Ms. Tungler is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Perniosis, Frostbite, Aicardi-Goutieres Syndrome, and Primary Lateral Sclerosis.

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Martini Str. 52, 
    Hamburg, HH, DE 

    Annette Bley practices practicing medicine in Hamburg, Germany. Ms. Bley is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Canavan Disease, CACH Syndrome, Leukodystrophy, and Metachromatic Leukodystrophy.

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Aachen, NW, DE 

    Martin Hausler practices practicing medicine in Aachen, Germany. Mr. Hausler is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Herpes Simplex Encephalitis, Encephalitis, Lordosis, and Aicardi-Goutieres Syndrome.

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Datteln, NW, DE 

    Margarete Hogrebe-Koch practices practicing medicine in Datteln, Germany. Ms. Hogrebe-Koch is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Multiple Synostoses Syndrome 1, Aicardi-Goutieres Syndrome, Pontocerebellar Hypoplasia, and Prader-Willi Syndrome.

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Paul Ehrlich Str. 51-59, 
    Langen, NI, DE 

    Nina Fuchs practices practicing medicine in Langen, Germany. Ms. Fuchs is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Renpenning Syndrome, Aicardi-Goutieres Syndrome, Leukocyte Adhesion Deficiency Type 1, and HIV/AIDS.

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Dresden, SN, DE 

    Martin Achleitner practices practicing medicine in Dresden, Germany. Mr. Achleitner is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Aicardi-Goutieres Syndrome and Long Haul COVID.

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Dresden, SN, DE 

    Shovamayee Maharana practices practicing medicine in Dresden, Germany. Maharana is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Aicardi-Goutieres Syndrome, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Primary Lateral Sclerosis.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 119

    Last Updated: 04/28/2026

    What is the definition of Aicardi-Goutieres Syndrome?

    Aicardi-Goutières syndrome is a disorder with variable signs and symptoms, but it primarily affects the brain, the immune system, and the skin.

    When should I see an Aicardi-Goutieres Syndrome doctor in Germany?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Aicardi-Goutieres Syndrome doctor in Germany?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Aicardi-Goutieres Syndrome doctors in Germany?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Aicardi-Goutieres Syndrome doctors in Germany?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Aicardi-Goutieres Syndrome doctor in Germany?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Aicardi-Goutieres Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Aicardi-Goutieres Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Aicardi-Goutieres Syndrome doctor in Germany?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Aicardi-Goutieres Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Aicardi-Goutieres Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Aicardi-Goutieres Syndrome doctors in Germany?

    Look for the filter feature on the left side of the Aicardi-Goutieres Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Aicardi-Goutieres Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Aicardi-Goutieres Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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