The 20 Best Aicardi-Goutieres Syndrome Doctors in France

Find the Top Aicardi-Goutieres Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 175 doctor with experience in Aicardi-Goutieres Syndrome near France. Of these, 105 are Experienced, 59 are Advanced and 11 are Distinguished.

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175 providers found
    Distinguished in Aicardi-Goutieres Syndrome
    Distinguished in Aicardi-Goutieres Syndrome
    Paris, FR 

    Odile Tanguy-Boespflug practices practicing medicine in Paris, France. Ms. Tanguy-Boespflug is rated as a Distinguished expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Leukodystrophy, Spastic Paraplegia Type 2, Spinal Muscular Atrophy (SMA), and Pelizaeus-Merzbacher Disease.

    Distinguished in Aicardi-Goutieres Syndrome
    Distinguished in Aicardi-Goutieres Syndrome
    Paris, FR 

    Brigitte Meunier-Bader practices practicing medicine in Paris, France. Ms. Meunier-Bader is rated as a Distinguished expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. She is also highly rated in 25 other conditions, according to our data. Her clinical expertise encompasses Juvenile Dermatomyositis, Dermatomyositis, Polymyositis, Bone Marrow Aspiration, and Bone Marrow Transplant.

    Distinguished in Aicardi-Goutieres Syndrome
    Distinguished in Aicardi-Goutieres Syndrome
    Paris, FR 

    Marie Hully practices practicing medicine in Paris, France. Ms. Hully is rated as a Distinguished expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Aicardi-Goutieres Syndrome, Myoclonic Epilepsy, Infantile Axonal Neuropathy, Gastrostomy, and Deep Brain Stimulation.

    Learn about our expert tiers
    Distinguished in Aicardi-Goutieres Syndrome
    Distinguished in Aicardi-Goutieres Syndrome
    Paris, FR 

    Luis Seabra practices practicing medicine in Paris, France. Mr. Seabra is rated as a Distinguished expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Aicardi-Goutieres Syndrome, Singleton-Merten Syndrome, Rheumatic Fever, and CACH Syndrome.

    Distinguished in Aicardi-Goutieres Syndrome
    Distinguished in Aicardi-Goutieres Syndrome
    Paris, FR 

    Marie-louise Fremond practices practicing medicine in Paris, France. Ms. Fremond is rated as a Distinguished expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Aicardi-Goutieres Syndrome, Juvenile Dermatomyositis, Rheumatic Fever, Dermatomyositis, and Bone Marrow Transplant.

    Distinguished in Aicardi-Goutieres Syndrome
    Distinguished in Aicardi-Goutieres Syndrome
    Paris, FR 

    Isabelle Desguerre practices practicing medicine in Paris, France. Ms. Desguerre is rated as a Distinguished expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. She is also highly rated in 43 other conditions, according to our data. Her clinical expertise encompasses Spinal Muscular Atrophy Type 3, Spinal Muscular Atrophy Type 2, Becker Muscular Dystrophy, Gastrostomy, and Spinal Fusion.

    Distinguished in Aicardi-Goutieres Syndrome
    Distinguished in Aicardi-Goutieres Syndrome
    Groupement Hospitalier Est, 
    Lyon, FR 

    Alexandre Belot practices practicing medicine in Lyon, France. Mr. Belot is rated as a Distinguished expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. He is also highly rated in 35 other conditions, according to our data. His clinical expertise encompasses Multisystem Inflammatory Syndrome in Children (MIS-C), Juvenile Idiopathic Arthritis (JIA), Systemic Lupus Erythematosus (SLE), and Aicardi-Goutieres Syndrome.

    Distinguished in Aicardi-Goutieres Syndrome
    Distinguished in Aicardi-Goutieres Syndrome
    Paris, FR 

    Isabelle Melki practices practicing medicine in Paris, France. Ms. Melki is rated as a Distinguished expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. She is also highly rated in 14 other conditions, according to our data. Her clinical expertise encompasses Juvenile Dermatomyositis, Aicardi-Goutieres Syndrome, Dermatomyositis, and Polymyositis.

    Distinguished in Aicardi-Goutieres Syndrome
    Distinguished in Aicardi-Goutieres Syndrome
    Paris, FR 

    Florence Renaldo practices practicing medicine in Paris, France. Ms. Renaldo is rated as a Distinguished expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Aicardi-Goutieres Syndrome, Leukodystrophy, Primary Lateral Sclerosis, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).

    Distinguished in Aicardi-Goutieres Syndrome
    Distinguished in Aicardi-Goutieres Syndrome
    Paris, FR 

    Darragh Duffy practices practicing medicine in Paris, France. Duffy is rated as a Distinguished expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. They are also highly rated in 9 other conditions, according to our data. Their clinical expertise encompasses Juvenile Dermatomyositis, Aicardi-Goutieres Syndrome, Dermatomyositis, and Polymyositis.

    Distinguished in Aicardi-Goutieres Syndrome
    Distinguished in Aicardi-Goutieres Syndrome
    Montpellier, FR 

    Agathe Roubertie practices practicing medicine in Montpellier, France. Ms. Roubertie is rated as a Distinguished expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. She is also highly rated in 26 other conditions, according to our data. Her clinical expertise encompasses Chorea, Drug Induced Dyskinesia, West Syndrome, Aicardi-Goutieres Syndrome, and Deep Brain Stimulation.

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Bordeaux, FR 

    Pascal Pillet practices practicing medicine in Bordeaux, France. Mr. Pillet is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. He is also highly rated in 15 other conditions, according to our data. His clinical expertise encompasses PFAPA, Mevalonate Kinase Deficiency, Muckle-Wells Syndrome, and Familial Cold Autoinflammatory Syndrome.

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Paris, FR 

    Diane Doummar practices practicing medicine in Paris, France. Ms. Doummar is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Chorea, Drug Induced Dyskinesia, Aicardi-Goutieres Syndrome, Movement Disorders, and Deep Brain Stimulation.

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Paris, FR 

    Alice Lepelley practices practicing medicine in Paris, France. Ms. Lepelley is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Aicardi-Goutieres Syndrome, Spondyloenchondrodysplasia, Perniosis, and Frostbite.

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Paris, FR 

    Pierre Lebon practices practicing medicine in Paris, France. Mr. Lebon is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Subacute Sclerosing Panencephalitis, Spondyloenchondrodysplasia, Aicardi-Goutieres Syndrome, and Measles.

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Paris, FR 

    Stephane Blanche practices practicing medicine in Paris, France. Mr. Blanche is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Chronic Granulomatous Disease, Severe Combined Immunodeficiency (SCID), Primary Immunodeficiency (PID), Bone Marrow Transplant, and Kidney Transplant.

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Paris, FR 

    Nathalie Boddaert practices practicing medicine in Paris, France. Ms. Boddaert is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. She is also highly rated in 63 other conditions, according to our data. Her clinical expertise encompasses Cortical Dysplasia, Achalasia Microcephaly Syndrome, Microcephaly, Polymicrogyria, and Hormone Replacement Therapy (HRT).

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Angers, FR 

    Magalie Barth practices practicing medicine in Angers, France. Ms. Barth is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. She is also highly rated in 11 other conditions, according to our data. Her clinical expertise encompasses Behr Syndrome, Aicardi-Goutieres Syndrome, Mitochondrial Complex 1 Deficiency, and Primary Carnitine Deficiency.

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Creteil, FR 

    Flore Rozenberg practices practicing medicine in Creteil, France. Ms. Rozenberg is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Herpes Simplex Encephalitis, Encephalitis, Oral Herpes, and Aicardi-Goutieres Syndrome.

    Advanced in Aicardi-Goutieres Syndrome
    Advanced in Aicardi-Goutieres Syndrome
    Montpellier, FR 

    Yea-lih Lin practices practicing medicine in Montpellier, France. Lin is rated as an Advanced expert by MediFind in the treatment of Aicardi-Goutieres Syndrome. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Aicardi-Goutieres Syndrome, Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Multiple Myeloma.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 175

    Last Updated: 04/28/2026

    What is the definition of Aicardi-Goutieres Syndrome?

    Aicardi-Goutières syndrome is a disorder with variable signs and symptoms, but it primarily affects the brain, the immune system, and the skin.

    When should I see an Aicardi-Goutieres Syndrome doctor in France?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Aicardi-Goutieres Syndrome doctor in France?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Aicardi-Goutieres Syndrome doctors in France?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Aicardi-Goutieres Syndrome doctors in France?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Aicardi-Goutieres Syndrome doctor in France?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Aicardi-Goutieres Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Aicardi-Goutieres Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Aicardi-Goutieres Syndrome doctor in France?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Aicardi-Goutieres Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Aicardi-Goutieres Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Aicardi-Goutieres Syndrome doctors in France?

    Look for the filter feature on the left side of the Aicardi-Goutieres Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Aicardi-Goutieres Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Aicardi-Goutieres Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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