The 20 Best Alpha Mannosidosis Doctors Near Me in Minneapolis, MN

Find the Top Alpha Mannosidosis Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 9 doctor with experience in Alpha Mannosidosis near Minneapolis, MN. Of these, 4 are Experienced, 3 are Advanced and 2 are Distinguished.

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9 providers found
    Distinguished in Alpha Mannosidosis
    Pediatrics | Pediatric Hematology Oncology
    Distinguished in Alpha Mannosidosis
    Pediatrics | Pediatric Hematology Oncology
    Referral may be required

    M Health Fairview Journey Pediatric Specialty Clinic

    2450 Riverside Avenue, Building 9 EAST, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Troy Lund is a Pediatrics specialist and a Pediatric Hematologist Oncology provider practicing medicine in Minneapolis, Minnesota. Dr. Lund is rated as a Distinguished provider by MediFind in the treatment of Alpha Mannosidosis. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), Alpha Mannosidosis, Aspartylglucosaminuria, Glucose-6-Phosphate Dehydrogenase Deficiency, and Bone Marrow Transplant. Dr. Lund is board certified in Pediatric Hematology-Oncology: American Board Of Pediatrics, 2011 and Pediatrics: American Board Of Pediatrics, 2007. Dr. Lund is currently accepting new patients.

    Distinguished in Alpha Mannosidosis
    Transplant Surgery | Pediatrics | Pediatric Hematology Oncology
    Distinguished in Alpha Mannosidosis
    Transplant Surgery | Pediatrics | Pediatric Hematology Oncology
    Referral may be required

    M Health Fairview Center For Pediatric Blood And Marrow Transplant And Celluar Therapy

    Journey Clinic Riverside East 9th, Floor 2450 Riverside Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Paul Orchard is a Pediatrics specialist and a Pediatric Hematologist Oncology provider practicing medicine in Minneapolis, Minnesota. Dr. Orchard is rated as a Distinguished provider by MediFind in the treatment of Alpha Mannosidosis. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), Adrenal Insufficiency Pediatric, Metachromatic Leukodystrophy, Bone Marrow Transplant, and Osteotomy. Dr. Orchard is currently accepting new patients.

    Experienced in Alpha Mannosidosis
    Neuroradiology | Pediatric Radiology | Radiology
    Experienced in Alpha Mannosidosis
    Neuroradiology | Pediatric Radiology | Radiology
    Referral may be required

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    David Nascene is a Pediatric Radiologist and a Radiologist practicing medicine in Minneapolis, Minnesota. Dr. Nascene is rated as an Experienced provider by MediFind in the treatment of Alpha Mannosidosis. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses CACH Syndrome, Spinal Muscular Atrophy Type 2, X-Linked Infantile Spinal Muscular Atrophy, Posterior Fossa Decompression, and Osteotomy. Dr. Nascene is board certified in Neuroradiology: American Board Of Radiology, 2013 and Diagnostic Radiology: American Board Of Radiology, 2008.

    Learn about our expert tiers
    Advanced in Alpha Mannosidosis
    Pediatric Neurology
    Advanced in Alpha Mannosidosis
    Pediatric Neurology
    Referral may be required

    MN - Neuro Pediatric

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Deborah Renaud is a Pediatric Neurologist practicing medicine in Rochester, Minnesota. Dr. Renaud is rated as an Advanced provider by MediFind in the treatment of Alpha Mannosidosis. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Beta-Mannosidosis, Leukodystrophy, CACH Syndrome, and Alpha Mannosidosis.

    Advanced in Alpha Mannosidosis
    Nurse Practitioner
    Advanced in Alpha Mannosidosis
    Nurse Practitioner
    Referral may be required

    Office

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Kristen Nanke is a Nurse Practitioner practicing medicine in Rochester, Minnesota. Nanke, NP is rated as an Advanced provider by MediFind in the treatment of Alpha Mannosidosis. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Beta-Mannosidosis, Aspartylglucosaminuria, Schindler Disease, and Alpha Mannosidosis.

    Advanced in Alpha Mannosidosis
    Pediatric Orthopedics
    Advanced in Alpha Mannosidosis
    Pediatric Orthopedics
    Referral may be required

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English

    Kevin Walker is a Pediatric Orthopedics provider practicing medicine in Saint Paul, Minnesota. Dr. Walker is rated as an Advanced provider by MediFind in the treatment of Alpha Mannosidosis. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Mucopolysaccharidosis Type 1 (MPS I, Hurler Syndrome), Mucopolysaccharidoses (MPS), Beukes Familial Hip Dysplasia, Alpha Mannosidosis, and Osteotomy.

    Experienced in Alpha Mannosidosis
    Pediatrics | Pediatric Pulmonology
    Experienced in Alpha Mannosidosis
    Pediatrics | Pediatric Pulmonology
    Referral may be required

    M Health Fairview Discovery Pediatric Specialty Clinic

    2512 South 7th Street, Floor 3, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Helena Ramirez is a Pediatrics specialist and a Pediatric Pulmonologist practicing medicine in Minneapolis, Minnesota. Dr. Ramirez is rated as an Experienced provider by MediFind in the treatment of Alpha Mannosidosis. Her clinical expertise encompasses Congenital Unilateral Pulmonary Hypoplasia, Cerebral Hypoxia, Mucopolysaccharidoses (MPS), Obstructive Sleep Apnea, and Adenoidectomy. Dr. Ramirez is board certified in Sleep Medicine: American Board Of Pediatrics, 2015, Pediatric Pulmonology: American Board Of Pediatrics, 2014, and Pediatrics: American Board Of Pediatrics, 2009.

    Experienced in Alpha Mannosidosis
    Pediatric Neurology
    Experienced in Alpha Mannosidosis
    Pediatric Neurology
    Referral may be required

    MN - Neuro Pediatric

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Marc Patterson is a Pediatric Neurologist practicing medicine in Rochester, Minnesota. Dr. Patterson is rated as an Experienced provider by MediFind in the treatment of Alpha Mannosidosis. He is also highly rated in 20 other conditions, according to our data. His clinical expertise encompasses Niemann-Pick Disease, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Leukodystrophy, and CACH Syndrome.

    Experienced in Alpha Mannosidosis
    Hematology | Oncology
    Experienced in Alpha Mannosidosis
    Hematology | Oncology
    Referral may be required

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Jakub Tolar is a Hematologist and an Oncologist practicing medicine in Minneapolis, Minnesota. Dr. Tolar is rated as an Experienced provider by MediFind in the treatment of Alpha Mannosidosis. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Dyskeratosis Congenita, Fanconi Anemia, Congenital Aplastic Anemia, Bone Marrow Transplant, and Osteotomy.

    Showing 1-9 of 9

    Last Updated: 06/30/2026

    What is the definition of Alpha Mannosidosis?

    Alpha-mannosidosis is a rare inherited disorder that causes problems in many organs and tissues of the body. Affected individuals may have intellectual disability, distinctive facial features, and skeletal abnormalities. Characteristic facial features can include a large head, prominent forehead, low hairline, rounded eyebrows, large ears, flattened bridge of the nose, protruding jaw, widely spaced teeth, overgrown gums, and large tongue. The skeletal abnormalities that can occur in this disorder include reduced bone density (osteopenia), thickening of the bones at the top of the skull (calvaria), deformations of the bones in the spine (vertebrae), knock knees, and deterioration of the bones and joints.

    When should I see an Alpha Mannosidosis doctor near Minneapolis, MN?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Alpha Mannosidosis doctor near Minneapolis, MN?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Alpha Mannosidosis doctors near Minneapolis, MN?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Alpha Mannosidosis doctors near Minneapolis, MN?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Alpha Mannosidosis doctor near Minneapolis, MN?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Alpha Mannosidosis doctor search results page. 

    Why is it important to get a second opinion from a different Alpha Mannosidosis doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Alpha Mannosidosis doctor near Minneapolis, MN?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Alpha Mannosidosis doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Alpha Mannosidosis doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Alpha Mannosidosis doctors near Minneapolis, MN?

    Look for the filter feature on the left side of the Alpha Mannosidosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Alpha Mannosidosis doctor that offers video calls?

    Look for the filter feature on the left-side of the Alpha Mannosidosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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