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A Phase 3, Double-Blind, Randomized, Placebo-Controlled, Multicenter Study Evaluating the Efficacy, Pharmacokinetics, and Safety of Mitapivat in Pediatric Subjects With α- or β- Transfusion-Dependent Thalassemia

Status: Recruiting
Location: See all (3) locations...
Intervention Type: Drug
Study Type: Interventional
Study Phase: Phase 3
SUMMARY

The primary objective of this study is to compare the effect of mitapivat versus placebo on transfusion burden in pediatric participants with α- or β-transfusion-dependent thalassemia.

Eligibility
Participation Requirements
Sex: All
Minimum Age: 1
Maximum Age: 17
Healthy Volunteers: f
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• Written informed consent/assent from the participant (or their legally authorized representative, parent(s), or legal guardian) must be obtained before any study-related procedures are conducted and participants must be willing to comply with all study procedures for the duration of the study.

• Aged 1 to \<18 years and weighing at least 7 kilograms (kg) at the time of providing informed consent/assent.

• Documented diagnosis of thalassemia (β-thalassemia with or without α-globin gene mutations, hemoglobin E (HbE)/β-thalassemia, or α-thalassemia/hemoglobin H (HbH) disease) based on Hemoglobin (Hb) electrophoresis, Hb high-performance liquid chromatography, and/or DNA analysis from the participant's medical record. If this information is not available from the participant's medical record, the test(s) can be performed by a local laboratory during the Screening Period. If a local laboratory is unable to perform the test(s), results from the comprehensive α- and β-globin genotyping performed by the study central laboratory can be used.

• Transfusion dependent, defined as 6 to 20 transfusion episodes (also referred to as transfusion events) and a ≤6-week transfusion-free period during the 24-week period before randomization.

• If taking hydroxyurea, the hydroxyurea dose must be stable for ≥16 weeks before randomization.

• Female participants who have attained menarche must be abstinent of sexual activities that may induce pregnancy as part of their usual lifestyle, or agree to use 2 forms of contraception, 1 of which must be considered highly effective, from the time of informed consent/assent, throughout the study, and for 28 days after the last dose of study drug. The second form of contraception can include an acceptable barrier method.

Locations
United States
New York
Weill Cornell Medical College/ New York Presbyterian
RECRUITING
New York
Pennsylvania
Children's Hospital of Philadelphia
RECRUITING
Philadelphia
Texas
University of Texas Southwestern Medical Center
RECRUITING
Dallas
Contact Information
Primary
Agios Medical Affairs
medinfo@agios.com
833-228-8474
Time Frame
Start Date: 2026-09
Estimated Completion Date: 2032-06
Participants
Target number of participants: 54
Treatments
Experimental: Mitapivat
Participants will receive oral mitapivat twice daily (BID), with dose determined by age and weight, for 48 weeks during the double blind (DB) period. Enrollment is conducted sequentially by age cohort, beginning with the oldest cohort.~Cohort 1: 12 to \<18 years~Cohort 2: 6 to \<12 years~Cohort 3: 1 to \<6 years~Participants who complete the DB period may continue receiving mitapivat in the open label extension (OLE) period for up to 144 weeks.
Placebo_comparator: Placebo
Participants will receive oral placebo matching mitapivat, administered BID, with dosing based on age and weight, for 48 weeks during the DB period. Enrollment is conducted sequentially by age cohort, beginning with the oldest cohort.~Cohort 1: 12 to \<18 years~Cohort 2: 6 to \<12 years~Cohort 3: 1 to \<6 years~Participants who complete the DB period may transition to receive mitapivat in the OLE period for up to 144 weeks.
Sponsors
Leads: Agios Pharmaceuticals, Inc.

This content was sourced from clinicaltrials.gov