World Bleeding Disorders Registry
Status: Recruiting
Location: See location...
Study Type: Observational
SUMMARY
The WBDR is an international observational disease registry of patients with hemophilia. It will provide a platform for a network of hemophilia treatment centres (HTCs) around the world to collect uniform and standardized patient data and guide clinical practice. With informed consent from the patient, the WBDR stores anonymous data about the person's disease, such as hemophilia type and severity, symptoms, and treatment.
Eligibility
Participation Requirements
Sex: All
Healthy Volunteers: f
View:
• Patients of participating Hemophilia Treatment Centres with Hemophilia A or B, or von Willebrand Disease
Locations
Other Locations
Canada
World Federation of Hemophilia
RECRUITING
Montreal
Contact Information
Primary
Donna Coffin, M.Sc.
dcoffin@wfh.org
+15148757944
Backup
Emily Ayoub, Ph.D.
eayoub@wfh.org
+15148757944
Time Frame
Start Date: 2018-01-26
Estimated Completion Date: 2028-01
Participants
Target number of participants: 20000
Related Therapeutic Areas
Sponsors
Leads: World Federation of Hemophilia