The 20 Best CACH Syndrome Doctors Near Me in Minnesota, US

Find the Top CACH Syndrome Experts and Specialists

Last Updated: 09/19/2026

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MediFind found 47 doctor with experience in CACH Syndrome near Minnesota, US. Of these, 36 are Experienced, 10 are Advanced and 1 are Elite.

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47 providers found
    Elite in CACH Syndrome
    Neuroradiology | Pediatric Radiology | Radiology
    Elite in CACH Syndrome
    Neuroradiology | Pediatric Radiology | Radiology
    Referral may be required

    Fairview Clinics

    14500 99th Ave N, Suite 100, 
    Maple Grove, MN 
    Languages Spoken:
    English
    Accepting New Patients

    David Nascene is a Neuroradiologist and a Pediatric Radiologist practicing medicine in Maple Grove, Minnesota. Dr. Nascene is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses CACH Syndrome, Spinal Muscular Atrophy Type 2, X-Linked Infantile Spinal Muscular Atrophy, Posterior Fossa Decompression, and Osteotomy. Dr. Nascene is board certified in Diagnostic Radiology: American Board Of Radiology, 2008 and Neuroradiology: American Board Of Radiology, 2013. Dr. Nascene is currently accepting new patients.

    Advanced in CACH Syndrome
    Advanced in CACH Syndrome
    Referral may be required

    Fairview Clinics

    14500 99th Ave N, Suite 100, 
    Maple Grove, MN 
    Experience:
    18+ years
    Languages Spoken:
    English, Spanish, Turkish
    Accepting New Patients

    Can Ozutemiz is a Radiologist practicing medicine in Maple Grove, Minnesota. He has been practicing medicine for over 18 years. Dr. Ozutemiz is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Lymphofollicular Hyperplasia, CACH Syndrome, Hereditary Retinoblastoma, and Myxoid Liposarcoma. Dr. Ozutemiz is board certified in Diagnostic Radiology: American Board Of Radiology, 2021 and Neuroradiology: American Board Of Radiology, 2022. Dr. Ozutemiz is currently accepting new patients.

    Advanced in CACH Syndrome
    Advanced in CACH Syndrome
    Referral may be required

    MN - Neuro MS

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Sean Pittock is a Neurologist practicing medicine in Rochester, Minnesota. Dr. Pittock is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Transverse Myelitis, Optic Neuritis, Neuromyelitis Optica, and Encephalitis. Dr. Pittock is currently accepting new patients.

    Learn about our expert tiers
    Advanced in CACH Syndrome
    Pediatric Neurology
    Advanced in CACH Syndrome
    Pediatric Neurology
    Referral may be required

    MN - Neuro Pediatric

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Marc Patterson is a Pediatric Neurologist practicing medicine in Rochester, Minnesota. Dr. Patterson is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Leukodystrophy, CACH Syndrome, and Metachromatic Leukodystrophy. Dr. Patterson is currently accepting new patients.

    Advanced in CACH Syndrome
    Advanced in CACH Syndrome
    Referral may be required

    Fairview Health Services

    2512 S 7th St, 
    Minneapolis,, MN 
    Experience:
    17+ years
    Languages Spoken:
    English
    Accepting New Patients

    Daniel Kenney-Jung is a Neurologist practicing medicine in Minneapolis,, Minnesota. He has been practicing medicine for over 17 years. Dr. Kenney-Jung is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 6 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), Cardiofaciocutaneous Syndrome, CACH Syndrome, Seizures, and Thrombectomy. Dr. Kenney-Jung is currently accepting new patients.

    Advanced in CACH Syndrome
    Advanced in CACH Syndrome
    Referral may be required

    Suburban Imaging LLC

    2355 Highway 36 W Ste 100, 
    Roseville, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Daniel Loes is a Radiologist practicing medicine in Roseville, Minnesota. Dr. Loes is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses CACH Syndrome, Headache, Aseptic and Alopecic Nodules of Scalp (AANS), and CAPOS Syndrome. Dr. Loes is currently accepting new patients.

    Advanced in CACH Syndrome
    Pediatric Neurology
    Advanced in CACH Syndrome
    Pediatric Neurology
    Referral may be required

    MN - Neuro Pediatric

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Deborah Renaud is a Pediatric Neurologist practicing medicine in Rochester, Minnesota. Dr. Renaud is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Beta-Mannosidosis, Leukodystrophy, CACH Syndrome, and Alpha Mannosidosis. Dr. Renaud is currently accepting new patients.

    Advanced in CACH Syndrome
    Advanced in CACH Syndrome
    Referral may be required

    Gillette Children's-Maple Grove Clinic

    9550 Upland Ln N, 
    Maple Grove, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Nicole Williams-Doonan is a Neurologist practicing medicine in Maple Grove, Minnesota. Dr. Williams-Doonan is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. She is also highly rated in 142 other conditions, according to our data. Her clinical expertise encompasses Lennox-Gastaut Syndrome (LGS), Moebius Syndrome, Hydranencephaly, and Polymicrogyria. Dr. Williams-Doonan is currently accepting new patients.

    Advanced in CACH Syndrome
    Pediatric Neurology
    Advanced in CACH Syndrome
    Pediatric Neurology
    Referral may be required

    MN - Neuro

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Jan-mendelt Tillema is a Pediatric Neurologist practicing medicine in Rochester, Minnesota. Dr. Tillema is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, CACH Syndrome, West Syndrome, Tumefactive Multiple Sclerosis, and Adenoidectomy. Dr. Tillema is currently accepting new patients.

    Advanced in CACH Syndrome
    Advanced in CACH Syndrome
    Referral may be required

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Experience:
    18+ years
    Languages Spoken:
    English
    Accepting New Patients

    Yasemin Koksel is a Radiologist practicing medicine in Minneapolis, Minnesota. She has been practicing medicine for over 18 years. Dr. Koksel is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses CACH Syndrome, Vasoconstriction, and Urea Cycle Disorders (UCD). Dr. Koksel is currently accepting new patients.

    Advanced in CACH Syndrome
    Advanced in CACH Syndrome
    Referral may be required
    200 1st St Sw, 
    Rochester, MN 
    Languages Spoken:
    English

    Nabeela Nathoo is a Neurologist practicing medicine in Rochester, Minnesota. Dr. Nathoo is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Multiple Sclerosis (MS), Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, Anti-NMDA Receptor Encephalitis, and Encephalitis.

    Experienced in CACH Syndrome
    Neuroradiology | Radiology
    Experienced in CACH Syndrome
    Neuroradiology | Radiology
    Referral may be required

    Fairview Express Care

    1700 University Ave W, 
    Saint Paul, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Jeffrey Rykken is a Neuroradiologist and a Radiologist practicing medicine in Saint Paul, Minnesota. Dr. Rykken is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Optic Glioma, CACH Syndrome, Spinal Tumor, and Subarachnoid Hemorrhage. Dr. Rykken is board certified in Diagnostic Radiology: American Board Of Radiology, 2011 and Neuroradiology: American Board Of Radiology, 2014. Dr. Rykken is currently accepting new patients.

    Experienced in CACH Syndrome
    Pediatrics | Neurology | Medical Genetics
    Experienced in CACH Syndrome
    Pediatrics | Neurology | Medical Genetics
    Referral may be required

    M Health Fairview Explorer Pediatric Specialty Clinic

    2450 Riverside Avenue, Floor 12, 
    Minneapolis, MN 
    Experience:
    48+ years
    Languages Spoken:
    English
    Accepting New Patients

    William Dobyns is a Pediatrics specialist and a Neurologist practicing medicine in Minneapolis, Minnesota. He has been practicing medicine for over 48 years. Dr. Dobyns is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 52 other conditions, according to our data. His clinical expertise encompasses Increased Head Circumference, Lissencephaly, Cerebellar Hypoplasia, and Cortical Dysplasia. Dr. Dobyns is board certified in Clinical Genetics And Genomics: American Board Of Medical Genetics And Genomics, 1987. Dr. Dobyns is currently accepting new patients.

    Experienced in CACH Syndrome
    Experienced in CACH Syndrome
    Referral may be required

    Virtual Radiologic Professionals, LLC

    11995 Singletree Lane, Suite 500, 
    Eden Prairie, MN 
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Jahinover Mazo is a Radiologist practicing medicine in Eden Prairie, Minnesota. Dr. Mazo is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His clinical expertise encompasses Pulmonary Arteriovenous Malformation (PAVM), CACH Syndrome, and Arteriovenous Malformation. Dr. Mazo is board certified in American Board Of Radiology - Diagnostic Radiology. Dr. Mazo is currently accepting new patients.

    Experienced in CACH Syndrome
    Experienced in CACH Syndrome
    Referral may be required

    M Health Fairview Multiple Sclerosis Clinic Minneapolis

    909 Fulton Street Southeast, Suite 318, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Adam Carpenter is a Neurologist practicing medicine in Minneapolis, Minnesota. Dr. Carpenter is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Relapsing Multiple Sclerosis (RMS), Multiple Sclerosis (MS), Stiff Person Syndrome, and Transverse Myelitis. Dr. Carpenter is board certified in Neurology: American Board Of Psychiatry And Neurology, 2008. Dr. Carpenter is currently accepting new patients.

    Experienced in CACH Syndrome
    Pediatric Radiology | Radiology
    Experienced in CACH Syndrome
    Pediatric Radiology | Radiology
    Referral may be required

    Fairview Express Care

    500 Harvard St Se, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Michael Murati is a Pediatric Radiologist and a Radiologist practicing medicine in Minneapolis, Minnesota. Dr. Murati is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His clinical expertise encompasses Hepatic Hemangioma, Trophoblastic Tumor Placental Site, CACH Syndrome, and Melorheostosis with Osteopoikilosis. Dr. Murati is board certified in Diagnostic Radiology: American Board Of Radiology, 2011 and Pediatric Radiology: American Board Of Radiology, 2014. Dr. Murati is currently accepting new patients.

    Experienced in CACH Syndrome
    Experienced in CACH Syndrome
    Referral may be required

    HealthPartners Neuroscience Center - Nonsurgical Spine

    295 Phalen Blvd, 
    Saint Paul, MN 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Bret Haake is a Neurologist practicing medicine in Saint Paul, Minnesota. Dr. Haake is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His clinical expertise encompasses CACH Syndrome, Relapsing Multiple Sclerosis (RMS), Multiple Sclerosis (MS), and Memory Loss. Dr. Haake is board certified in American Board Of Psych & Neuro-Neurology. Dr. Haake is currently accepting new patients.

    Experienced in CACH Syndrome
    Neuroradiology | Radiology
    Experienced in CACH Syndrome
    Neuroradiology | Radiology
    Referral may be required

    University Of Minnesota Physicians

    720 Washington Ave Se, 
    Minneapolis, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Frederick Ott is a Neuroradiologist and a Radiologist practicing medicine in Minneapolis, Minnesota. Dr. Ott is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses CAPOS Syndrome, Stroke, Cerebellar Multiple System Atrophy, and Hepatocerebral Degeneration. Dr. Ott is board certified in Diagnostic Radiology: American Board Of Radiology, 2004 and Neuroradiology: American Board Of Radiology, 2006. Dr. Ott is currently accepting new patients.

    Experienced in CACH Syndrome
    Neuroradiology | Radiology | Nuclear Medicine
    Experienced in CACH Syndrome
    Neuroradiology | Radiology | Nuclear Medicine
    Referral may be required

    University Of Minnesota Health Clinics And Surgery Center Inc

    909 Fulton St Se, 
    Minneapolis, MN 
    Languages Spoken:
    English, Turkish
    Accepting New Patients

    Zuzan Cayci is a Neuroradiologist and a Radiologist practicing medicine in Minneapolis, Minnesota. Dr. Cayci is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Gastroenteropancreatic Neuroendocrine Tumor (GEP-NET), Primary Lymphoma of the Brain, Neuroendocrine Tumor, Mast Cell Activation Syndrome (MCAS), and Tissue Biopsy. Dr. Cayci is board certified in Nuclear Medicine: American Board Of Nuclear Medicine, 2009, Diagnostic Radiology: American Board Of Radiology, 2008, and Neuroradiology: American Board Of Radiology, 2013. Dr. Cayci is currently accepting new patients.

    Experienced in CACH Syndrome
    Experienced in CACH Syndrome
    Referral may be required

    Gillette Children's

    200 University Ave E, 
    Saint Paul, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Galen Breningstall is a Neurologist practicing medicine in Saint Paul, Minnesota. Dr. Breningstall is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 30 other conditions, according to our data. His clinical expertise encompasses Epilepsy, Seizures, Orofaciodigital Syndrome 6, and Bilateral Perisylvian Polymicrogyria. Dr. Breningstall is currently accepting new patients.

    Showing 1-20 of 47

    Last Updated: 09/19/2026

    What is the definition of CACH Syndrome?

    Leukoencephalopathy with vanishing white matter is a progressive disorder that mainly affects the brain and spinal cord (central nervous system). This disorder causes deterioration of the central nervous system's white matter, which consists of nerve fibers covered by myelin. Myelin is the fatty substance that insulates and protects nerves.

    When should I see a CACH Syndrome doctor in Minnesota, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a CACH Syndrome doctor in Minnesota, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank CACH Syndrome doctors in Minnesota, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by CACH Syndrome doctors in Minnesota, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a CACH Syndrome doctor in Minnesota, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CACH Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different CACH Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a CACH Syndrome doctor in Minnesota, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my CACH Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my CACH Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female CACH Syndrome doctors in Minnesota, US?

    Look for the filter feature on the left side of the CACH Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a CACH Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the CACH Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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