The 20 Best CACH Syndrome Doctors Near Me in Minnesota, US

Find the Top CACH Syndrome Experts and Specialists

The 20 Best CACH Syndrome Doctors in Minnesota, US

Last Updated: 02/22/2026

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MediFind found 58 doctor with experience in CACH Syndrome near Minnesota, US. Of these, 44 are Experienced, 12 are Advanced, 1 are Distinguished and 1 are Elite.

Location
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58 providers found
    Elite in CACH Syndrome
    Neuroradiology
    Elite in CACH Syndrome
    Neuroradiology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    David Nascene is a Neuroradiologist in Minneapolis, Minnesota. Dr. Nascene is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are CACH Syndrome, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy with Arthrogryposis, Posterior Fossa Decompression, and Osteotomy.

    Distinguished in CACH Syndrome
    Distinguished in CACH Syndrome

    MN - Neuro MS

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Sean Pittock is a Neurologist in Rochester, Minnesota. Dr. Pittock is rated as a Distinguished provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Optic Neuritis, Transverse Myelitis, Neuromyelitis Optica, and Encephalitis.

    Advanced in CACH Syndrome
    Radiology
    Advanced in CACH Syndrome
    Radiology

    Suburban Imaging LLC

    2355 Highway 36 W Ste 100, 
    Roseville, MN 
    Languages Spoken:
    English

    Daniel Loes is a Radiologist in Roseville, Minnesota. Dr. Loes is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Headache, CACH Syndrome, Aseptic and Alopecic Nodules of Scalp (AANS), and CAPOS Syndrome.

    Learn about our expert tiers
    Advanced in CACH Syndrome
    Advanced in CACH Syndrome

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Experience:
    18+ years
    Languages Spoken:
    English

    Yasemin Koksel is a Radiologist in Minneapolis, Minnesota. Dr. Koksel has been practicing medicine for over 18 years and is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are CACH Syndrome, Vasoconstriction, and Urea Cycle Disorders (UCD).

    Advanced in CACH Syndrome
    Neuroradiology
    Advanced in CACH Syndrome
    Neuroradiology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Experience:
    18+ years
    Languages Spoken:
    English

    Can Ozutemiz is a Neuroradiologist in Minneapolis, Minnesota. Dr. Ozutemiz has been practicing medicine for over 18 years and is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Lymphofollicular Hyperplasia, CACH Syndrome, Hereditary Retinoblastoma, and Myxoid Liposarcoma.

    Advanced in CACH Syndrome
    Neuroradiology
    Advanced in CACH Syndrome
    Neuroradiology

    Office

    14500 99th Ave N Ste 100, 
    Maple Grove, MN 
    Languages Spoken:
    English

    Jeffrey Rykken is a Neuroradiologist in Maple Grove, Minnesota. Dr. Rykken is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Optic Glioma, Spinal Tumor, CACH Syndrome, and Subarachnoid Hemorrhage.

    Experienced in CACH Syndrome
    Experienced in CACH Syndrome

    Virtual Radiologic Professionals

    11995 Singletree Lane, Suite 500, 
    Eden Prairie, MN 
    Languages Spoken:
    English
    Accepting New Patients

    Jahinover Mazo is a Radiologist in Eden Prairie, Minnesota. Dr. Mazo is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Pulmonary Arteriovenous Malformation (PAVM), CACH Syndrome, and Arteriovenous Malformation. Dr. Mazo is currently accepting new patients.

    Experienced in CACH Syndrome
    Neuroradiology
    Experienced in CACH Syndrome
    Neuroradiology

    Suburban Imaging LLC

    2355 Highway 36 W Ste 100, 
    Roseville, MN 
    Experience:
    18+ years
    Languages Spoken:
    English

    Mehmet Gencturk is a Neuroradiologist in Roseville, Minnesota. Dr. Gencturk has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Stroke, CAPOS Syndrome, Relapsing Multiple Sclerosis (RMS), and Pelvic Lipomatosis.

    Experienced in CACH Syndrome
    Radiology
    Experienced in CACH Syndrome
    Radiology

    Essentia Health-St. Joseph's Medical Center (Brainerd)

    523 N 3rd St, 
    Brainerd, MN 
    Languages Spoken:
    English

    Neil Kroll is a Radiologist in Brainerd, Minnesota. Dr. Kroll is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top area of expertise is CACH Syndrome.

    Experienced in CACH Syndrome
    Neuroradiology
    Experienced in CACH Syndrome
    Neuroradiology

    Hennepin Healthcare

    701 Park Ave, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Mark Oswood is a Neuroradiologist in Minneapolis, Minnesota. Dr. Oswood is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Subarachnoid Hemorrhage, Stroke, Cerebral Arteriovenous Malformation, and Vertebral Artery Dissection.

    Experienced in CACH Syndrome
    Neuroradiology
    Experienced in CACH Syndrome
    Neuroradiology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Frederick Ott is a Neuroradiologist in Minneapolis, Minnesota. Dr. Ott is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are CAPOS Syndrome, Cerebellar Multiple System Atrophy, Hepatocerebral Degeneration, and Prolactinoma.

    Experienced in CACH Syndrome
    Pediatric Radiology
    Experienced in CACH Syndrome
    Pediatric Radiology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Michael Murati is a Pediatric Radiologist in Minneapolis, Minnesota. Dr. Murati is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Hepatic Hemangioma, Trophoblastic Tumor Placental Site, CACH Syndrome, and Melorheostosis with Osteopoikilosis.

    Experienced in CACH Syndrome
    Neuroradiology
    Experienced in CACH Syndrome
    Neuroradiology

    Pine Villa NH

    11 5th Ave NW, 
    Melrose, MN 
    Languages Spoken:
    English

    Jonathan Masur is a Neuroradiologist in Melrose, Minnesota. Dr. Masur is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Radiation Induced Meningioma, Herniated Disk, Meningioma, and Cerebellar Multiple System Atrophy.

    Experienced in CACH Syndrome
    Experienced in CACH Syndrome

    MN - Neuro

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English
    Offers Telehealth

    Jennifer Martinez is a Neurologist in Rochester, Minnesota. Dr. Martinez is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, Primary Lateral Sclerosis, and Gastrostomy.

    Experienced in CACH Syndrome
    Neuroradiology
    Experienced in CACH Syndrome
    Neuroradiology

    Office

    2021 6th St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    Zuzan Cayci is a Neuroradiologist in Minneapolis, Minnesota. Dr. Cayci is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Gastroenteropancreatic Neuroendocrine Tumor (GEP-NET), Neuroendocrine Tumor, Primary Lymphoma of the Brain, Mast Cell Activation Syndrome (MCAS), and Tissue Biopsy.

    Advanced in CACH Syndrome
    Pediatric Neurology
    Advanced in CACH Syndrome
    Pediatric Neurology

    MN - Neuro Pediatric

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Marc Patterson is a Pediatric Neurologist in Rochester, Minnesota. Dr. Patterson is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Niemann-Pick Disease, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Leukodystrophy, and CACH Syndrome.

    Advanced in CACH Syndrome
    Pediatric Neurology
    Advanced in CACH Syndrome
    Pediatric Neurology

    MN - Neuro Pediatric

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Deborah Renaud is a Pediatric Neurologist in Rochester, Minnesota. Dr. Renaud is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Beta-Mannosidosis, Leukodystrophy, CACH Syndrome, and Alpha Mannosidosis.

    Advanced in CACH Syndrome
    Advanced in CACH Syndrome
    200 1st St Sw, 
    Rochester, MN 
    Languages Spoken:
    English

    Clifford Jack is a Radiologist in Rochester, Minnesota. Dr. Jack is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Hydrocephalus, Normal Pressure Hydrocephalus, Siderosis, CACH Syndrome, and Hormone Replacement Therapy (HRT).

    Advanced in CACH Syndrome
    Pediatric Neurology
    Advanced in CACH Syndrome
    Pediatric Neurology

    MN - Neuro

    200 1st St SW, 
    Rochester, MN 
    Languages Spoken:
    English

    Jan-mendelt Tillema is a Pediatric Neurologist in Rochester, Minnesota. Dr. Tillema is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, Multiple Sclerosis (MS), Encephalitis, and Optic Neuritis.

    Advanced in CACH Syndrome
    Advanced in CACH Syndrome

    Gillette Children's-Maple Grove Clinic

    9550 Upland Ln N, 
    Maple Grove, MN 
    Languages Spoken:
    English

    Nicole Williams is a Neurologist in Maple Grove, Minnesota. Dr. Williams is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Lennox-Gastaut Syndrome (LGS), Moebius Syndrome, Hydranencephaly, and Orofaciodigital Syndrome 6.

    Showing 1-20 of 58

    Last Updated: 02/22/2026

    What is the definition of CACH Syndrome?

    Leukoencephalopathy with vanishing white matter is a progressive disorder that mainly affects the brain and spinal cord (central nervous system). This disorder causes deterioration of the central nervous system's white matter, which consists of nerve fibers covered by myelin. Myelin is the fatty substance that insulates and protects nerves.

    When should I see a CACH Syndrome doctor in Minnesota, US?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a CACH Syndrome doctor in Minnesota, US?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank CACH Syndrome doctors in Minnesota, US?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by CACH Syndrome doctors in Minnesota, US?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a CACH Syndrome doctor in Minnesota, US?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CACH Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different CACH Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a CACH Syndrome doctor in Minnesota, US?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my CACH Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my CACH Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female CACH Syndrome doctors in Minnesota, US?

    Look for the filter feature on the left side of the CACH Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a CACH Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the CACH Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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