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    Last Updated: 01/09/2026

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    MediFind found 1718 doctor with experience in CACH Syndrome near The United States. Of these, 1435 are Experienced, 221 are Advanced, 44 are Distinguished and 18 are Elite.

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    LocationClose
    1,718 providers found
      Igor J. Koralnik
      Elite in CACH Syndrome
      Elite in CACH Syndrome

      Regenstein Center For Neurological Care - Lavin Family Pavilion

      259 E Erie St, Ste 1900, 
      Chicago, IL 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Igor Koralnik is a Neurologist in Chicago, Illinois. Dr. Koralnik is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Progressive Multifocal Leukoencephalopathy, CACH Syndrome, Encephalitis, Thrombectomy, and Endovascular Embolization. Dr. Koralnik is currently accepting new patients.

      Elite in CACH Syndrome
      Elite in CACH Syndrome

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Florian Eichler is a Neurologist in Boston, Massachusetts. Dr. Eichler is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, Tay-Sachs Disease, Gangliosidosis, and Gastrostomy. Dr. Eichler is currently accepting new patients.

      Elite in CACH Syndrome
      Pediatric Neurology | Neurology
      Elite in CACH Syndrome
      Pediatric Neurology | Neurology

      Childrens Health Care Associates Inc

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Adeline Vanderver is a Pediatric Neurologist and a Neurologist in Philadelphia, Pennsylvania. Dr. Vanderver is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Aicardi-Goutieres Syndrome, Leukodystrophy, CACH Syndrome, Pol 3-Related Leukodystrophy, and Gastrostomy.

      Learn about our expert tiers
      Elite in CACH Syndrome
      Pediatric Neurology
      Elite in CACH Syndrome
      Pediatric Neurology

      Primary Children's Neurology Clinic - Salt Lake City

      81 North Mario Capecchi Drive, 
      Salt Lake City, UT 
      Experience:
      28+ years
      Languages Spoken:
      English, German
      Accepting New Patients
      Offers Telehealth

      Joshua Bonkowsky is a Pediatric Neurologist in Salt Lake City, Utah. Dr. Bonkowsky has been practicing medicine for over 28 years and is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are CACH Syndrome, Adrenoleukodystrophy (ALD), Leukodystrophy, Krabbe Disease, and Gastrostomy. Dr. Bonkowsky is currently accepting new patients.

      Elite in CACH Syndrome
      Pediatrics | Medical Genetics
      Elite in CACH Syndrome
      Pediatrics | Medical Genetics

      Rubenstein Child Health Building

      Baltimore, MD 
      Languages Spoken:
      English

      Dr. Gerald Raymond is a clinical geneticist and neurologist at Johns Hopkins where he is also a professor of genetic medicine and neurology. He obtained his MD at the University of Connecticut and was trained in Pediatrics at Johns Hopkins Hospital and Neurology at the Mass. General Hospital. He received additional training in developmental neuropathology at the Universite Catholique de Louvain in Belgium and clinical genetics at the Harvard Program. Dr. Raymond’s research has been at the overlap of genetics and neurology with specific focus on peroxisomal disorders including adrenoleukodystrophy. He has been actively involved in newborn screening for ALD and in developing clinical follow-up programs. He has extensive experience in clinical management of neurogenetic issues including peroxisomal and lysosomal disorders. He presently serves as the Director of the Lysosomal Storage Disease program in the department of Genetic Medicine. Dr. Raymond is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, Zellweger Syndrome, and Leukodystrophy.

      Elite in CACH Syndrome
      Elite in CACH Syndrome
      725 Welch Rd, 
      Palo Alto, CA 
      Languages Spoken:
      English

      Lawrence Steinman is a Neurologist in Palo Alto, California. Dr. Steinman is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are CACH Syndrome, Relapsing Multiple Sclerosis (RMS), Multiple Sclerosis (MS), and Transverse Myelitis.

      Elite in CACH Syndrome
      Radiology | Neurology | Neuroradiology
      Elite in CACH Syndrome
      Radiology | Neurology | Neuroradiology
      600 N Wolfe St, Phipps B-112, Neuroradiology, 
      Baltimore, MD 
      Languages Spoken:
      English

      Daniel Reich is a Radiologist and a Neurologist in Baltimore, Maryland. Dr. Reich is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Multiple Sclerosis (MS), CACH Syndrome, Progressive Multifocal Leukoencephalopathy, and Encephalitis.

      Elite in CACH Syndrome
      Elite in CACH Syndrome
      600 N Wolfe St, Room 5b12, 
      Baltimore, MD 
      Languages Spoken:
      English

      Irene Cortese is a Neurologist in Baltimore, Maryland. Dr. Cortese is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Progressive Multifocal Leukoencephalopathy, CACH Syndrome, Encephalitis, and Multiple Sclerosis (MS).

      Elite in CACH Syndrome
      Neurology | Pediatrics
      Elite in CACH Syndrome
      Neurology | Pediatrics

      Massachusetts General Physicians Organization Inc

      55 Fruit St, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Patricia Musolino is a Neurologist and a Pediatrics provider in Boston, Massachusetts. Dr. Musolino is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Adrenoleukodystrophy (ALD), CACH Syndrome, Stroke, Thrombectomy, and Embolectomy. Dr. Musolino is currently accepting new patients.

      Elite in CACH Syndrome
      Elite in CACH Syndrome

      Fairview Clinics

      14500 99th Ave N, Suite 100, 
      Maple Grove, MN 
      Languages Spoken:
      English

      David Nascene is a Radiologist in Maple Grove, Minnesota. Dr. Nascene is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are CACH Syndrome, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy with Arthrogryposis, Posterior Fossa Decompression, and Osteotomy.

      Elite in CACH Syndrome
      Elite in CACH Syndrome

      The Regents Of The University Of California

      150 Medical Plz, 
      Los Angeles, CA 
      Languages Spoken:
      English

      Rhonda Voskuhl is a Neurologist in Los Angeles, California. Dr. Voskuhl is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are CACH Syndrome, Multiple Sclerosis (MS), Menopause, Relapsing Multiple Sclerosis (RMS), and Hormone Replacement Therapy (HRT).

      Elite in CACH Syndrome
      Internal Medicine
      Elite in CACH Syndrome
      Internal Medicine
      150 Saint Paul St Apt 301, 
      Brookline, MA 
      Languages Spoken:
      English

      Sandra Richman is a primary care provider, practicing in Internal Medicine in Brookline, Massachusetts. Dr. Richman is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Progressive Multifocal Leukoencephalopathy, CACH Syndrome, Encephalitis, and Relapsing Multiple Sclerosis (RMS).

      Elite in CACH Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Elite in CACH Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      3401 Civic Center Blvd, Children's Hospital Of Philadelphia - Neurology, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Amy Waldman is a Pediatric Neurologist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Waldman is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are CACH Syndrome, Multiple Sclerosis (MS), Leukodystrophy, Optic Neuritis, and Gastrostomy.

      Elite in CACH Syndrome
      Elite in CACH Syndrome

      Johns Hopkins University

      600 N Wolf St, 
      Baltimore, MD 
      Languages Spoken:
      English

      Peter Calabresi is a Neurologist in Baltimore, Maryland. Dr. Calabresi is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Multiple Sclerosis (MS), Optic Neuritis, Relapsing Multiple Sclerosis (RMS), and CACH Syndrome.

      Elite in CACH Syndrome
      Neurology
      Elite in CACH Syndrome
      Neurology

      Penn Neuroscience Center - Neurology

      3400 Civic Center Boulevard, South Pavilion, 2nd Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Amit Bar is a Neurologist in Philadelphia, Pennsylvania. Dr. Bar is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), CACH Syndrome, and Encephalitis. Dr. Bar is currently accepting new patients.

      Elite in CACH Syndrome
      Elite in CACH Syndrome

      Osu Neuroscience Center, LLC

      395 W 12th Ave, 
      Columbus, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Benjamin Segal is a Neurologist in Columbus, Ohio. Dr. Segal is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are CACH Syndrome, Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), and Encephalitis. Dr. Segal is currently accepting new patients.

      Elite in CACH Syndrome
      Elite in CACH Syndrome

      Brigham And Womens Physicians Organization Inc

      75 Francis St, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Tanuja Chitnis is a Neurologist in Boston, Massachusetts. Dr. Chitnis is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Multiple Sclerosis (MS), Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, Relapsing Multiple Sclerosis (RMS), Optic Neuritis, and Hormone Replacement Therapy (HRT). Dr. Chitnis is currently accepting new patients.

      Elite in CACH Syndrome
      Neurology
      Elite in CACH Syndrome
      Neurology
      5323 Harry Hines Blvd, 
      Dallas, TX 
      Languages Spoken:
      English

      Olaf Stuve is a Neurologist in Dallas, Texas. Dr. Stuve is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Multiple Sclerosis (MS), CACH Syndrome, Relapsing Multiple Sclerosis (RMS), and Encephalitis.

      Advanced in CACH Syndrome
      Advanced in CACH Syndrome

      New York University

      111 Broadway, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Lauren Krupp is a Neurologist in New York, New York. Dr. Krupp is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Optic Neuritis, and CACH Syndrome.

      Advanced in CACH Syndrome
      Advanced in CACH Syndrome

      University Of Virginia Physicians Group

      1221 Lee St, 
      Charlottesville, VA 
      Languages Spoken:
      English, Hebrew
      Accepting New Patients
      Offers Telehealth

      Brian Weinshenker is a Neurologist in Charlottesville, Virginia. Dr. Weinshenker is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Transverse Myelitis, Neuromyelitis Optica, Optic Neuritis, and Multiple Sclerosis (MS). Dr. Weinshenker is currently accepting new patients.

      Showing 1-20 of 1,718

      Last Updated: 01/09/2026

      What is the definition of CACH Syndrome?

      Leukoencephalopathy with vanishing white matter is a progressive disorder that mainly affects the brain and spinal cord (central nervous system). This disorder causes deterioration of the central nervous system's white matter, which consists of nerve fibers covered by myelin. Myelin is the fatty substance that insulates and protects nerves.

      When should I see a CACH Syndrome doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a CACH Syndrome doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank CACH Syndrome doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by CACH Syndrome doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a CACH Syndrome doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CACH Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different CACH Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a CACH Syndrome doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my CACH Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my CACH Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female CACH Syndrome doctors in The United States?

      Look for the filter feature on the left side of the CACH Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a CACH Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the CACH Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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