The 20 Best CACH Syndrome Doctors in The United States

Find the Top CACH Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 1726 doctor with experience in CACH Syndrome near The United States. Of these, 1436 are Experienced, 227 are Advanced, 47 are Distinguished and 16 are Elite.

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1,726 providers found
    Elite in CACH Syndrome
    Elite in CACH Syndrome

    Pediatric Nephrology - University Of Utah Hospital

    50 N Medical Dr, 
    Salt Lake City, UT 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Joshua Bonkowsky is a Neurologist practicing medicine in Salt Lake City, Utah. Dr. Bonkowsky is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses CACH Syndrome, Adrenoleukodystrophy (ALD), Leukodystrophy, Krabbe Disease, and Gastrostomy. Dr. Bonkowsky is board certified in American Board Of Psychiatry And Neurology. Dr. Bonkowsky is currently accepting new patients.

    Elite in CACH Syndrome
    Elite in CACH Syndrome

    Regenstein Center For Neurological Care - Lavin Family Pavilion

    259 E Erie St, Ste 1900, 
    Chicago, IL 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Igor Koralnik is a Neurologist practicing medicine in Chicago, Illinois. Dr. Koralnik is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Progressive Multifocal Leukoencephalopathy, CACH Syndrome, Encephalitis, Thrombectomy, and Endovascular Embolization. Dr. Koralnik is board certified in American Board Of Psychiatry And Neurology - Neurology (Certified). Dr. Koralnik is currently accepting new patients.

    Elite in CACH Syndrome
    Elite in CACH Syndrome

    Brigham And Women's Hospital, Neurosciences Center

    60 Fenwood Road, 1st Floor Hale Building For Transformative Medicine, 
    Boston, MA 
    Languages Spoken:
    English

    Howard Weiner is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Weiner is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), Tuberous Sclerosis Complex, Tuberous Sclerosis, Cortical Dysplasia, and Endoscopy. Dr. Weiner is board certified in Neurology.

    Learn about our expert tiers
    Elite in CACH Syndrome
    Neuroradiology
    Elite in CACH Syndrome
    Neuroradiology

    University Of Minnesota Masonic Children's Hospital

    420 Delaware St SE, 
    Minneapolis, MN 
    Languages Spoken:
    English

    David Nascene is a Neuroradiologist practicing medicine in Minneapolis, Minnesota. Dr. Nascene is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses CACH Syndrome, Spinal Muscular Atrophy Type 2, Spinal Muscular Atrophy with Arthrogryposis, Posterior Fossa Decompression, and Osteotomy.

    Elite in CACH Syndrome
    Elite in CACH Syndrome

    Johns Hopkins University

    600 N Wolf St, 
    Baltimore, MD 
    Languages Spoken:
    English

    Peter Calabresi is a Neurologist practicing medicine in Baltimore, Maryland. Dr. Calabresi is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), Optic Neuritis, Relapsing Multiple Sclerosis (RMS), and CACH Syndrome.

    Elite in CACH Syndrome
    Neurology
    Elite in CACH Syndrome
    Neurology

    Penn Neuroscience Center - Neurology

    3400 Civic Center Boulevard, South Pavilion, 2nd Floor, 
    Philadelphia, PA 
    Languages Spoken:
    English
    Accepting New Patients

    Amit Bar is a Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Bar is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), CACH Syndrome, and Encephalitis. Dr. Bar is board certified in Neurology, 1998. Dr. Bar is currently accepting new patients.

    Elite in CACH Syndrome
    Pediatric Neurology
    Elite in CACH Syndrome
    Pediatric Neurology

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English

    Florian Eichler is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Eichler is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Adrenoleukodystrophy (ALD), CACH Syndrome, Tay-Sachs Disease, Gangliosidosis, and Gastrostomy.

    Elite in CACH Syndrome
    Pediatric Neurology | Neurology
    Elite in CACH Syndrome
    Pediatric Neurology | Neurology

    Childrens Health Care Associates Inc

    3401 Civic Ctr Blvd, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Adeline Vanderver is a Pediatric Neurologist and a Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Vanderver is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. She is also highly rated in 24 other conditions, according to our data. Her clinical expertise encompasses Aicardi-Goutieres Syndrome, Leukodystrophy, CACH Syndrome, Pol 3-Related Leukodystrophy, and Gastrostomy.

    Elite in CACH Syndrome
    Elite in CACH Syndrome

    Office

    279 Campus Dr, 
    Stanford, CA 
    Languages Spoken:
    English

    Lawrence Steinman is a Neurologist practicing medicine in Stanford, California. Dr. Steinman is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses CACH Syndrome, Relapsing Multiple Sclerosis (RMS), Multiple Sclerosis (MS), and Transverse Myelitis.

    Elite in CACH Syndrome
    Elite in CACH Syndrome

    Office

    600 N Wolfe St Rm 5B12, 
    Baltimore, MD 
    Languages Spoken:
    English

    Irene Cortese is a Neurologist practicing medicine in Baltimore, Maryland. Dr. Cortese is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Progressive Multifocal Leukoencephalopathy, CACH Syndrome, Encephalitis, and Multiple Sclerosis (MS).

    Elite in CACH Syndrome
    Pediatric Neurology
    Elite in CACH Syndrome
    Pediatric Neurology

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English

    Patricia Musolino is a Pediatric Neurologist practicing medicine in Boston, Massachusetts. Dr. Musolino is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Adrenoleukodystrophy (ALD), CACH Syndrome, Stroke, Thrombectomy, and Embolectomy.

    Elite in CACH Syndrome
    Neurology
    Elite in CACH Syndrome
    Neurology

    Rocky Mountain Ms Clinic

    3300 N 1200 W Ste 350, 
    Lehi, UT 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    John Foley is a Neurologist practicing medicine in Lehi, Utah. Dr. Foley is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), CACH Syndrome, Relapsing Multiple Sclerosis (RMS), and Progressive Multifocal Leukoencephalopathy. Dr. Foley is board certified in American Board Of Psychiatry And Neurology. Dr. Foley is currently accepting new patients.

    Elite in CACH Syndrome
    Elite in CACH Syndrome

    Office

    300 Medical Plz, 
    Los Angeles, CA 
    Languages Spoken:
    English

    Rhonda Voskuhl is a Neurologist practicing medicine in Los Angeles, California. Dr. Voskuhl is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses CACH Syndrome, Multiple Sclerosis (MS), Menopause, Relapsing Multiple Sclerosis (RMS), and Hormone Replacement Therapy (HRT).

    Elite in CACH Syndrome
    Pediatric Neurology
    Elite in CACH Syndrome
    Pediatric Neurology

    Office

    3401 Civic Center Blvd, 
    Philadelphia, PA 
    Languages Spoken:
    English

    Amy Waldman is a Pediatric Neurologist practicing medicine in Philadelphia, Pennsylvania. Dr. Waldman is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. She is also highly rated in 15 other conditions, according to our data. Her clinical expertise encompasses CACH Syndrome, Leukodystrophy, Multiple Sclerosis (MS), Optic Neuritis, and Gastrostomy.

    Elite in CACH Syndrome
    Elite in CACH Syndrome

    Massachusetts General Hospital

    55 Fruit St, 
    Boston, MA 
    Languages Spoken:
    English

    Tanuja Chitnis is a Neurologist practicing medicine in Boston, Massachusetts. Dr. Chitnis is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Multiple Sclerosis (MS), Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, Relapsing Multiple Sclerosis (RMS), CACH Syndrome, and Hormone Replacement Therapy (HRT).

    Elite in CACH Syndrome
    Elite in CACH Syndrome

    Ohio State Martha Morehouse Outpatient Care

    2050 Kenny Rd, 
    Columbus, OH 
    Languages Spoken:
    English

    Benjamin Segal is a Neurologist practicing medicine in Columbus, Ohio. Dr. Segal is rated as an Elite provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses CACH Syndrome, Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), and Encephalitis.

    Advanced in CACH Syndrome
    Advanced in CACH Syndrome

    Vanderbilt Medical Group- Teleneurology

    1161 21st Ave South, A-0118 Medical Center North, 
    Nashville, TN 
    Languages Spoken:
    English
    Offers Telehealth

    . Dr. Brown is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. She is also highly rated in 36 other conditions, according to our data. Her clinical expertise encompasses Movement Disorders, Parkinson's Disease, Huntington Disease, and Hereditary Ataxia. Dr. Brown is board certified in  .

    Experienced in CACH Syndrome
    Experienced in CACH Syndrome

    Atrium Health Neurology Specialty Care

    1225 Harding Place, Suite 4200, 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Donna Graves is a Neurologist practicing medicine in Charlotte, North Carolina. Dr. Graves is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Neuromyelitis Optica, and Optic Neuritis. Dr. Graves is board certified in American Board Of Psychiatry And Neurology. Dr. Graves is currently accepting new patients.

    Experienced in CACH Syndrome
    Pediatrics | Pediatric Neurology
    Experienced in CACH Syndrome
    Pediatrics | Pediatric Neurology

    Atrium Health Levine Children's Neurology

    1001 Blythe Blvd., Suite 4151, 
    Charlotte, NC 
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Daniel Bonthius is a Pediatrics specialist and a Pediatric Neurologist practicing medicine in Charlotte, North Carolina. Dr. Bonthius is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Cerebellar Hypoplasia, Subacute Sclerosing Panencephalitis, Fetal Alcohol Syndrome (FAS), and Myoclonic Epilepsy. Dr. Bonthius is board certified in American Board Of Pediatrics. Dr. Bonthius is currently accepting new patients.

    Experienced in CACH Syndrome
    Experienced in CACH Syndrome

    Advocate Medical Group Neurology

    11824 Southwest Hwy, Ste 100, 
    Palos Heights, IL 
    Languages Spoken:
    English
    Offers Telehealth

    Melvin Wichter is a Neurologist practicing medicine in Palos Heights, Illinois. Dr. Wichter is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), Parkinson's Disease, Epilepsy, and Memory Loss. Dr. Wichter is board certified in American Board Of Psychiatry & Neurology.

    Showing 1-20 of 1,726

    Last Updated: 04/28/2026

    What is the definition of CACH Syndrome?

    Leukoencephalopathy with vanishing white matter is a progressive disorder that mainly affects the brain and spinal cord (central nervous system). This disorder causes deterioration of the central nervous system's white matter, which consists of nerve fibers covered by myelin. Myelin is the fatty substance that insulates and protects nerves.

    When should I see a CACH Syndrome doctor in The United States?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a CACH Syndrome doctor in The United States?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank CACH Syndrome doctors in The United States?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by CACH Syndrome doctors in The United States?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a CACH Syndrome doctor in The United States?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CACH Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different CACH Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a CACH Syndrome doctor in The United States?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my CACH Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my CACH Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female CACH Syndrome doctors in The United States?

    Look for the filter feature on the left side of the CACH Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a CACH Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the CACH Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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