The 20 Best CACH Syndrome Doctors Near Me in Rochester, MN

Find the Top CACH Syndrome Experts and Specialists

The 20 Best CACH Syndrome Doctors near Rochester, MN

Last Updated: 02/22/2026

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MediFind found 30 doctor with experience in CACH Syndrome near Rochester, MN. Of these, 22 are Experienced, 7 are Advanced and 1 are Distinguished.

Location
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30 providers found
    Distinguished in CACH Syndrome
    Distinguished in CACH Syndrome

    MN - Neuro MS

    200 1st St SW, 
    Rochester, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Sean Pittock is a Neurologist in Rochester, Minnesota. Dr. Pittock is rated as a Distinguished provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Optic Neuritis, Transverse Myelitis, Neuromyelitis Optica, and Encephalitis.

    Experienced in CACH Syndrome
    Experienced in CACH Syndrome

    MN - Neuro

    200 1st St SW, 
    Rochester, MN 
     (0.4 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Jennifer Martinez is a Neurologist in Rochester, Minnesota. Dr. Martinez is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, Primary Lateral Sclerosis, and Gastrostomy.

    Advanced in CACH Syndrome
    Pediatric Neurology
    Advanced in CACH Syndrome
    Pediatric Neurology

    MN - Neuro Pediatric

    200 1st St SW, 
    Rochester, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Marc Patterson is a Pediatric Neurologist in Rochester, Minnesota. Dr. Patterson is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Niemann-Pick Disease, Polycystic Lipomembranous Osteodysplasia with Sclerosing Leukoencephalopathy, Leukodystrophy, and CACH Syndrome.

    Learn about our expert tiers
    Advanced in CACH Syndrome
    Pediatric Neurology
    Advanced in CACH Syndrome
    Pediatric Neurology

    MN - Neuro Pediatric

    200 1st St SW, 
    Rochester, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Deborah Renaud is a Pediatric Neurologist in Rochester, Minnesota. Dr. Renaud is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Beta-Mannosidosis, Leukodystrophy, CACH Syndrome, and Alpha Mannosidosis.

    Advanced in CACH Syndrome
    Advanced in CACH Syndrome
    200 1st St Sw, 
    Rochester, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Clifford Jack is a Radiologist in Rochester, Minnesota. Dr. Jack is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Hydrocephalus, Normal Pressure Hydrocephalus, Siderosis, CACH Syndrome, and Hormone Replacement Therapy (HRT).

    Advanced in CACH Syndrome
    Pediatric Neurology
    Advanced in CACH Syndrome
    Pediatric Neurology

    MN - Neuro

    200 1st St SW, 
    Rochester, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Jan-mendelt Tillema is a Pediatric Neurologist in Rochester, Minnesota. Dr. Tillema is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, Multiple Sclerosis (MS), Encephalitis, and Optic Neuritis.

    Advanced in CACH Syndrome
    Advanced in CACH Syndrome

    Mayo Clinic

    200 1st St Sw, 
    Rochester, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Patrick Luetmer is a Radiologist in Rochester, Minnesota. Dr. Luetmer is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Cerebrospinal Fluid Leak, Calvarial Hyperostosis, CACH Syndrome, Subdural Effusion, and Vertebroplasty.

    Advanced in CACH Syndrome
    Advanced in CACH Syndrome
    200 1st St Sw, 
    Rochester, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    David Kallmes is a Radiologist in Rochester, Minnesota. Dr. Kallmes is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Brain Aneurysm, Fractured Spine, Pseudotumor Cerebri Syndrome, Thrombectomy, and Vertebroplasty.

    Advanced in CACH Syndrome
    Advanced in CACH Syndrome
    200 1st St Sw, 
    Rochester, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Nabeela Nathoo is a Neurologist in Rochester, Minnesota. Dr. Nathoo is rated as an Advanced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Multiple Sclerosis (MS), Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, Encephalitis, and Anti-NMDA Receptor Encephalitis.

    Experienced in CACH Syndrome
    Medical Genetics | Neurology | Pediatric Neurology
    Experienced in CACH Syndrome
    Medical Genetics | Neurology | Pediatric Neurology

    Mayo Clinic

    200 1st St Sw, 
    Rochester, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Radhika Dhamija is a Medical Genetics specialist and a Neurologist in Rochester, Minnesota. Dr. Dhamija is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Cowden Syndrome, Lhermitte-Duclos Disease, Bannayan-Riley-Ruvalcaba Syndrome, and Retinal Vasculopathy with Cerebral Leukodystrophy.

    Experienced in CACH Syndrome
    Internal Medicine
    Experienced in CACH Syndrome
    Internal Medicine
    200 1st St Sw, 
    Rochester, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Gregory Heller is a primary care provider, practicing in Internal Medicine in Rochester, Minnesota. Dr. Heller is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top area of expertise is CACH Syndrome.

    Experienced in CACH Syndrome
    Experienced in CACH Syndrome

    Mayo Clinic

    200 1st St Sw, 
    Rochester, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    John Port is a Radiologist in Rochester, Minnesota. Dr. Port is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Radiation Induced Meningioma, Pseudotumor Cerebri Syndrome, Meningioma, Tissue Biopsy, and Laminectomy.

    Experienced in CACH Syndrome
    Radiology | Neuroradiology
    Experienced in CACH Syndrome
    Radiology | Neuroradiology

    Mayo Clinic

    200 1st St Sw, 
    Rochester, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    John Benson is a Radiologist and a Neuroradiologist in Rochester, Minnesota. Dr. Benson is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Cerebrospinal Fluid Leak, Stroke, Neuroendocrine Tumor, Thrombectomy, and Vertebroplasty.

    Experienced in CACH Syndrome
    Experienced in CACH Syndrome

    Mayo Clinic-Rochester

    200 1st St SW, 
    Rochester, MN 
     (0.4 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Andrew Mckeon is a Neurologist in Rochester, Minnesota. Dr. Mckeon is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Encephalitis, Stiff Person Syndrome, Opsoclonus-Myoclonus Syndrome, and Transverse Myelitis.

    Experienced in CACH Syndrome
    Experienced in CACH Syndrome

    Mayo Clinic

    200 1st St Sw, 
    Rochester, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Laura Cacciaguerra is a Neurologist in Rochester, Minnesota. Dr. Cacciaguerra is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Transverse Myelitis, Neuromyelitis Optica, Optic Neuritis, and Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease.

    Experienced in CACH Syndrome
    Experienced in CACH Syndrome

    Mayo Clinic

    200 1st St Sw, 
    Rochester, MN 
     (0.4 miles away)
    Experience:
    6+ years
    Languages Spoken:
    English

    Nanthaya Tisavipat is a Neurologist in Rochester, Minnesota. Dr. Tisavipat has been practicing medicine for over 6 years and is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. Her top areas of expertise are Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, Optic Neuritis, Transverse Myelitis, Neuromyelitis Optica, and Osteotomy.

    Experienced in CACH Syndrome
    Experienced in CACH Syndrome

    Mayo Clinic

    200 1st St Sw, 
    Rochester, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    Karl Krecke is a Radiologist in Rochester, Minnesota. Dr. Krecke is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Hydrocephalus, Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease, Calvarial Hyperostosis, and Arachnoiditis.

    Experienced in CACH Syndrome
    Experienced in CACH Syndrome

    MN - Neuro MS

    200 1st St SW, 
    Rochester, MN 
     (0.4 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Orhun Kantarci is a Neurologist in Rochester, Minnesota. Dr. Kantarci is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Tumefactive Multiple Sclerosis, and Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease.

    Experienced in CACH Syndrome
    Experienced in CACH Syndrome

    MN - Neuro MS

    200 1st St SW, 
    Rochester, MN 
     (0.4 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Eoin Flanagan is a Neurologist in Rochester, Minnesota. Dr. Flanagan is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Encephalitis, Rasmussen Encephalitis, Anti-NMDA Receptor Encephalitis, and Neuromyelitis Optica.

    Experienced in CACH Syndrome
    Experienced in CACH Syndrome

    MN - Neuro MS

    200 1st St SW, 
    Rochester, MN 
     (0.4 miles away)
    Languages Spoken:
    English

    William Tobin is a Neurologist in Rochester, Minnesota. Dr. Tobin is rated as an Experienced provider by MediFind in the treatment of CACH Syndrome. His top areas of expertise are Tumefactive Multiple Sclerosis, Cerebelloparenchymal Disorder 3, Multiple Sclerosis (MS), and Erdheim-Chester Disease.

    Showing 1-20 of 30

    Last Updated: 02/22/2026

    What is the definition of CACH Syndrome?

    Leukoencephalopathy with vanishing white matter is a progressive disorder that mainly affects the brain and spinal cord (central nervous system). This disorder causes deterioration of the central nervous system's white matter, which consists of nerve fibers covered by myelin. Myelin is the fatty substance that insulates and protects nerves.

    When should I see a CACH Syndrome doctor near Rochester, MN?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a CACH Syndrome doctor near Rochester, MN?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank CACH Syndrome doctors near Rochester, MN?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by CACH Syndrome doctors near Rochester, MN?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a CACH Syndrome doctor near Rochester, MN?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the CACH Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different CACH Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a CACH Syndrome doctor near Rochester, MN?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my CACH Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my CACH Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female CACH Syndrome doctors near Rochester, MN?

    Look for the filter feature on the left side of the CACH Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a CACH Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the CACH Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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