The 20 Best Congenital Myasthenic Syndrome Doctors Near Me in Los Angeles, CA

Find the Top Congenital Myasthenic Syndrome Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 4 doctor with experience in Congenital Myasthenic Syndrome near Los Angeles, CA. Of these, 2 are Advanced and 2 are Experienced.

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4 providers found
    Experienced in Congenital Myasthenic Syndrome

    Dr. Leila Darki
    Neurology
    Experienced in Congenital Myasthenic Syndrome

    Dr. Leila Darki
    Neurology

    Office

    1520 San Pablo St Ste 3000, 
    Los Angeles, CA 
     (1.8 miles away)
    323-442-5710
    Languages Spoken:
    English
    See accepted insurances
    Offers Telehealth

    Leila Darki is a Neurologist practicing medicine in Los Angeles, California. Dr. Darki is rated as an Experienced provider by MediFind in the treatment of Congenital Myasthenic Syndrome. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 3, Hereditary Sensory and Autonomic Neuropathy Type 2, and Congenital Insensitivity to Pain with Anhidrosis.

    Experienced in Congenital Myasthenic Syndrome

    Dr. Said Beydoun
    Pain Medicine
    Experienced in Congenital Myasthenic Syndrome

    Dr. Said Beydoun
    Pain Medicine

    Office

    1520 San Pablo St Ste 3000, 
    Los Angeles, CA 
     (1.8 miles away)
    323-442-6870
    Languages Spoken:
    English
    See accepted insurances
    Offers Telehealth

    Said Beydoun is a Pain Medicine provider practicing medicine in Los Angeles, California. Dr. Beydoun is rated as an Experienced provider by MediFind in the treatment of Congenital Myasthenic Syndrome. He is also highly rated in 58 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal and Bulbar Muscular Atrophy, and Thymectomy.

    Advanced in Congenital Myasthenic Syndrome

    Dr. Emmanuelle Tiongson
    Neuromusculoskeletal Medicine
    Advanced in Congenital Myasthenic Syndrome

    Dr. Emmanuelle Tiongson
    Neuromusculoskeletal Medicine

    Children's Hospital Los Angeles

    4650 W Sunset Blvd, 
    Los Angeles, CA 
     (4.0 miles away)
    323-361-2471
    Languages Spoken:
    English
    See accepted insurances

    Emmanuelle Tiongson is a Neuromusculoskeletal Medicine provider practicing medicine in Los Angeles, California. Dr. Tiongson is rated as an Advanced provider by MediFind in the treatment of Congenital Myasthenic Syndrome. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Inclusion Body Myopathy 2, Myofibrillar Myopathy, Wieacker Wolff Syndrome, and Cytoplasmic Body Myopathy.

    Learn about our expert tiers
    Advanced in Congenital Myasthenic Syndrome

    Dr. Perry Shieh
    Neurology
    Advanced in Congenital Myasthenic Syndrome

    Dr. Perry Shieh
    Neurology

    Office

    300 Medical Plz Ste B-200, 
    Los Angeles, CA 
     (11.6 miles away)
    310-794-1195
    Languages Spoken:
    English
    See accepted insurances
    Offers Telehealth

    Perry Shieh is a Neurologist practicing medicine in Los Angeles, California. Dr. Shieh is rated as an Advanced provider by MediFind in the treatment of Congenital Myasthenic Syndrome. He is also highly rated in 47 other conditions, according to our data. His clinical expertise encompasses Duchenne Muscular Dystrophy, Spinal Muscular Atrophy (SMA), Becker Muscular Dystrophy, and Congenital Fiber-Type Disproportion. Dr. Shieh is board certified in Neuromuscular Medicine, American Board Of Psychiatry And Neurology, 2008, Clinical Neurophysiology, American Board Of Psychiatry And Neurology, 2007, and Neurology, American Board Of Psychiatry And Neurology, 2006.

    Showing 1-4 of 4

    Last Updated: 04/28/2026

    What is the definition of Congenital Myasthenic Syndrome?

    Congenital myasthenic syndromes are a group of conditions that are characterized by weak muscles that tire easily (myasthenia). In people with these conditions, myasthenia typically begins shortly after birth or during early childhood. The most commonly affected muscles are the muscles in the head and neck (bulbar muscles) that control chewing and swallowing, speech, and facial expressions; the muscles that move the eyes and eyelids; and the muscles in the arms and legs. However, any of the muscles used for movement (skeletal muscles) can be affected.

    When should I see a Congenital Myasthenic Syndrome doctor near Los Angeles, CA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Congenital Myasthenic Syndrome doctor near Los Angeles, CA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Congenital Myasthenic Syndrome doctor near Los Angeles, CA?

    You can find a Congenital Myasthenic Syndrome doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Congenital Myasthenic Syndrome doctors near Los Angeles, CA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Congenital Myasthenic Syndrome doctors near Los Angeles, CA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Congenital Myasthenic Syndrome doctor near Los Angeles, CA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Congenital Myasthenic Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Congenital Myasthenic Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Congenital Myasthenic Syndrome doctor near Los Angeles, CA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Congenital Myasthenic Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Congenital Myasthenic Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Congenital Myasthenic Syndrome doctors near Los Angeles, CA?

    Look for the filter feature on the left side of the Congenital Myasthenic Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Congenital Myasthenic Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Congenital Myasthenic Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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