The 20 Best Cystinosis Doctors in The United States

Craig Langman is a Pediatric Nephrologist practicing medicine in Chicago, Illinois. Dr. Langman is rated as an Elite provider by MediFind in the treatment of Cystinosis. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Cystinosis, Fanconi Syndrome, Fanconi Bickel Syndrome, Atypical Hemolytic Uremic Syndrome (aHUS), and Kidney Transplant.

Paul Grimm is a Pediatric Nephrologist practicing medicine in Palo Alto, California. Dr. Grimm is rated as an Elite provider by MediFind in the treatment of Cystinosis. He is also highly rated in 25 other conditions, according to our data. His clinical expertise encompasses Cystinosis, Potter Syndrome, Autosomal Recessive Polycystic Kidney Disease, Kidney Transplant, and Nephrectomy.

Megan Yanik is a Pediatric Nephrologist and a Pediatrics provider practicing medicine in Charlotte, North Carolina. Dr. Yanik is rated as an Experienced provider by MediFind in the treatment of Cystinosis. Her clinical expertise encompasses Cystinosis, Posterior Urethral Valves, Feingold Syndrome, Congenital Nephrotic Syndrome, and Kidney Transplant. Dr. Yanik is board certified in American Board Of Pediatrics. Dr. Yanik is currently accepting new patients.

I take care of children with disorders affecting the kidney and urinary tract, including high blood pressure, inherited kidney diseases, kidney stones, urinary tract infections, and abnormalities in the urine, such as blood and protein. I also take care of children with kidney failure requiring dialysis and transplant. It is important to me to not only treat a child’s disease but maximize their quality of life. I find it rewarding to be an advocate, educator, and source of support for my patients and their families throughout their medical journey. Dr. Kumar is rated as an Advanced provider by MediFind in the treatment of Cystinosis. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Cystinosis, Glomerulonephritis, Hypertension, and IgA Nephropathy. Dr. Kumar is board certified in American Board Of Pediatrics, General Pediatrics and American Board Of Pediatrics, Pediatric Nephrology.

Frederick J. Kaskel, MD, PhD, is involved in basic and clinical investigations into the mechanisms of the major kidney disorders in pediatrics. He is particularly interested in the physiology and pathophysiology of normal and abnormal development and function of the kidneys throughout the critical periods of growth and maturation extending into adolescence and young adulthood. He is actively involved in a clinical trial funded by the National Institutes of Health (NIH) to find the most efficacious therapy for focal segmental glomerulosclerosis, one of the major causes of progressive glomerular disease, while investigating the molecular etiologies for its expression. Another NIH-supported study involves chronic kidney disease in children and how it affects their growth and neurocognitive development, and the risk factors for cardiovascular disease and renal progression. Dr. Kaskel is rated as an Advanced provider by MediFind in the treatment of Cystinosis. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Nephrotic Syndrome, Focal Segmental Glomerulosclerosis, Minimal Change Disease, Metabolic Acidosis, and Kidney Transplant. Dr. Kaskel is board certified in American Board Of Pediatrics.

Brooke Blazius is a Pediatric Nephrologist practicing medicine in Royal Oak, Michigan. She has been practicing medicine for over 10 years. Dr. Blazius is rated as an Advanced provider by MediFind in the treatment of Cystinosis. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Glomerulonephritis, Autosomal Recessive Polycystic Kidney Disease, Potter Syndrome, Nephrotic Syndrome, and Kidney Transplant. Dr. Blazius is board certified in American Board Of Pediatrics and American Board Of Pediatrics. Dr. Blazius is currently accepting new patients.

Robert Gillespie is a Pediatric Nephrologist and a Pediatrics provider practicing medicine in Fort Worth, Texas. Dr. Gillespie is rated as an Advanced provider by MediFind in the treatment of Cystinosis. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses End-Stage Renal Disease (ESRD), Cystinosis, Congenital Nephrotic Syndrome, and Nephrotic Syndrome.

. Dr. Mongia is rated as an Experienced provider by MediFind in the treatment of Cystinosis. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Focal Segmental Glomerulosclerosis, Nephrotic Syndrome, Syndrome of Inappropriate Antidiuretic Hormone Secretion (SIADH), and Glomerulonephritis. Dr. Mongia is board certified in American Board Of Pediatrics.

Laurence Greenbaum is a Pediatric Nephrologist practicing medicine in Atlanta, Georgia. Dr. Greenbaum is rated as a Distinguished provider by MediFind in the treatment of Cystinosis. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Cystinosis, Renal Tubular Acidosis, Proximal Renal Tubular Acidosis, and Primary Tubular Proximal Acidosis.

Ewa Elenberg is a Pediatric Nephrologist practicing medicine in Houston, Texas. Dr. Elenberg is rated as a Distinguished provider by MediFind in the treatment of Cystinosis. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Cystinosis, Fanconi Syndrome, Fanconi Bickel Syndrome, Nephrotic Syndrome, and Kidney Transplant.

Daryl Okamura is a Pediatric Nephrologist practicing medicine in Seattle, Washington. Dr. Okamura is rated as a Distinguished provider by MediFind in the treatment of Cystinosis. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Cystinosis, End-Stage Renal Disease (ESRD), Lupus Nephritis, and Fanconi Syndrome.

Robert Kwong is a Pediatric Nephrologist practicing medicine in La Jolla, California. Dr. Kwong is rated as a Distinguished provider by MediFind in the treatment of Cystinosis. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Cystinosis, Hydronephrosis, High Blood Pressure in Infants, Posterior Urethral Valves, and Nephrectomy.

Bradley Warady is a Pediatric Nephrologist practicing medicine in Kansas City, Missouri. Dr. Warady is rated as a Distinguished provider by MediFind in the treatment of Cystinosis. He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Secondary Peritonitis, Chronic Kidney Disease, Alport Syndrome, Kidney Transplant, and Gastrostomy.

Mark Joseph is a Pediatric Nephrologist and a Pediatrics provider practicing medicine in Phoenix, Arizona. Dr. Joseph is rated as an Advanced provider by MediFind in the treatment of Cystinosis. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Cystinosis, Renal Coloboma Syndrome, Chronic Kidney Disease, and End-Stage Renal Disease (ESRD). Dr. Joseph is board certified in Pediatrics (Sub: Pediatric Nephrology). Dr. Joseph is currently accepting new patients.

Dr. Alicia M. Neu is a professor of pediatrics at the Johns Hopkins University School of Medicine. Her areas of clinical expertise include pediatric chronic kidney disease and pediatric nephrology. Dr. Neu is currently Chief of the Division of Pediatric Nephrology. She has been medical director of Pediatric Kidney Transplantation since 2001. She received her undergraduate degree in engineering from Marquette University. She earned her M.D. from the University of Virginia School of Medicine. She completed her residency in pediatrics and performed a fellowship in pediatric nephrology at Johns Hopkins. Dr. Neu joined the Johns Hopkins faculty in 1994. Dr. Neu's research interests include clinical outcomes in children with chronic kidney disease including those who require dialysis and kidney transplantation. She serves as President of the North American Pediatric Renal Trials and Collaborative Study (NAPRTCS). She leads the Standardizing Care to Improve Outcomes in Pediatric End Stage in Renal Disease (SCOPE) project, which is part of the Children’s Hospital Association’s Quality Transformation Network. Dr. Neu serves as co-Medical Editor for the American Board of Pediatrics’ Nephrology Subboard. She previously served on the Council for the American Society of Pediatric Nephrology, the International Society of Pediatric Nephrology, the executive committee of the American Academy of Pediatrics’ Section on Pediatric Nephrology, and as chair of the American Society of Transplantation’s Pediatric Community of Practice Executive Committee. Dr. Neu is a member of several professional organizations, including the American Pediatric Society, the International Society of Nephrology and the American Society of Nephrology. Dr. Neu is rated as an Experienced provider by MediFind in the treatment of Cystinosis. Her clinical expertise encompasses Potter Syndrome, Cystinosis, Focal Segmental Glomerulosclerosis, Minimal Change Disease, and Kidney Transplant. Dr. Neu is board certified in American Board Of Pediatrics.

Rachel Bishop, M.D., M.P.H., is an ophthalmologist specializing in comprehensive eye care at the Wilmer Eye Institute’s locations in Frederick and Bethesda, Maryland. Before studying medicine, Dr. Bishop was an officer in the U.S. Army, serving as a medical evacuation platoon leader and executive officer in South Korea and as a hospital administrator at Letterman Army Hospital in San Francisco. She then pursued her medical degree at the University of Pennsylvania and, as a medical officer in the Army, completed ophthalmology residency training at the Walter Reed Army Medical Center in Washington, D.C. Following her residency, Dr. Bishop served as chief of ophthalmology at the Darnall Army Medical Center at Fort Hood in Texas. There she performed refractive surgery for thousands of soldiers before their deployment to Iraq and Afghanistan, and provided eye care for active duty military personnel, their families and retirees. In 2006, Dr. Bishop transferred to the U.S. Public Health Service (USPHS) and joined the National Eye Institute (NEI), where as chief of the consult service, she cared for people participating in clinical trials throughout the many institutes and centers of the National Institutes of Health (NIH). In this role, Dr. Bishop monitored medication and treatment side effects, managed eye conditions related to NIH protocols, and provided comprehensive eye care for adults and children treated at NIH. As a key NEI spokesperson, Dr. Bishop promoted eye health through a variety of media outlets, including TV and radio, print, and internet forums, and she helped produce educational videos and print materials for NEI. Continuing a career-long interest in medical ethics, she served as a member of NIH’s clinical bioethics committee for 12 years. In her final year at NEI, she led a strategic planning panel focused on low vision solutions and quality of life. She is interested in international public health, health economics and optimizing access to eye care through technology. In 2019, Dr. Bishop retired from the USPHS, where she had been deputy commander of a 130-member rapid deployment force that provided medical care for people displaced during natural disasters. Videos Meet Dr. Rachel Bishop Recent News Articles and Media Coverage Army Veteran Bishop Reflects on Service, Johns Hopkins Medicine (11/02/2021). Dr. Bishop is rated as an Experienced provider by MediFind in the treatment of Cystinosis. Her clinical expertise encompasses Uveitis, Iridocorneal Endothelial Syndrome, Cogan-Reese Syndrome, and Chandler's Syndrome. Dr. Bishop is board certified in American Board Of Ophthalmology.

Clare Lindner is a Pediatric Nephrologist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Lindner is rated as an Advanced provider by MediFind in the treatment of Cystinosis. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Lysinuric Protein Intolerance, Fanconi Syndrome, Fanconi Bickel Syndrome, and Posterior Urethral Valves. Dr. Lindner is board certified in Pediatrics and Pediatric Nephrology.

David Kershaw is a Pediatric Nephrologist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Kershaw is rated as an Advanced provider by MediFind in the treatment of Cystinosis. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Posterior Urethral Valves, Potter Syndrome, Autosomal Recessive Polycystic Kidney Disease, Alport Syndrome, and Kidney Transplant.

Priya Verghese is a Pediatric Nephrologist practicing medicine in Chicago, Illinois. Dr. Verghese is rated as an Advanced provider by MediFind in the treatment of Cystinosis. She is also highly rated in 16 other conditions, according to our data. Her clinical expertise encompasses Nephrotic Syndrome, Focal Segmental Glomerulosclerosis, Glomerulonephritis, Kidney Transplant, and Nephrectomy.

Matthias Wolf is a Pediatric Nephrologist and a Pediatrics provider practicing medicine in Ann Arbor, Michigan. Dr. Wolf is rated as an Advanced provider by MediFind in the treatment of Cystinosis. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Fetal Thalidomide Syndrome, Liddle Syndrome, Pseudohypoaldosteronism Type 2, and Cystinosis. Dr. Wolf is board certified in Pediatric Nephrology and Pediatrics.