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    Last Updated: 10/30/2025

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    MediFind found 97 doctor with experience in Cystinosis near The United States. Of these, 65 are Experienced, 24 are Advanced, 6 are Distinguished and 2 are Elite.

    Location
    LocationClose
    97 providers found
      Elite in Cystinosis
      Pediatric Nephrology
      Elite in Cystinosis
      Pediatric Nephrology
      225 E Chicago Ave, Mail Stop #37, 
      Chicago, IL 
      Languages Spoken:
      English, French, Italian

      Craig Langman is a Pediatric Nephrologist in Chicago, Illinois. Dr. Langman is rated as an Elite provider by MediFind in the treatment of Cystinosis. His top areas of expertise are Cystinosis, Fanconi Syndrome, Fanconi Bickel Syndrome, Atypical Hemolytic Uremic Syndrome (aHUS), and Kidney Transplant.

      Elite in Cystinosis
      Pediatric Nephrology | Pediatrics | Nephrology
      Elite in Cystinosis
      Pediatric Nephrology | Pediatrics | Nephrology

      Lpch Medical Group Div Of Lucile

      725 Welch Rd, 
      Palo Alto, CA 
      Languages Spoken:
      English

      Paul Grimm is a Pediatric Nephrologist and a Pediatrics provider in Palo Alto, California. Dr. Grimm is rated as an Elite provider by MediFind in the treatment of Cystinosis. His top areas of expertise are Cystinosis, Potter Syndrome, Autosomal Recessive Polycystic Kidney Disease, Kidney Transplant, and Nephrectomy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Megan V. Yanik
      Experienced in Cystinosis
      Pediatric Nephrology | Pediatrics
      Experienced in Cystinosis
      Pediatric Nephrology | Pediatrics

      Atrium Health Levine Children's Nephrology

      1001 Blythe Blvd., Suite C, 
      Charlotte, NC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Megan Yanik is a Pediatric Nephrologist and a Pediatrics provider in Charlotte, North Carolina. Dr. Yanik is rated as an Experienced provider by MediFind in the treatment of Cystinosis. Her top areas of expertise are Cystinosis, Posterior Urethral Valves, Feingold Syndrome, Chronic Kidney Disease, and Kidney Transplant. Dr. Yanik is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Cystinosis
      Pediatric Nephrology | Pediatrics | Nephrology
      Experienced in Cystinosis
      Pediatric Nephrology | Pediatrics | Nephrology

      University Medical Associates Of The Medical University Of South Carol

      171 Ashley Ave, 
      Charleston, SC 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Katherine Twombley is a Pediatric Nephrologist and a Pediatrics provider in Charleston, South Carolina. Dr. Twombley is rated as an Experienced provider by MediFind in the treatment of Cystinosis. Her top areas of expertise are Focal Segmental Glomerulosclerosis, Minimal Change Disease, Nephrotic Syndrome, Kidney Transplant, and Thymectomy. Dr. Twombley is currently accepting new patients.

      Distinguished in Cystinosis
      Pediatric Nephrology | Pediatrics | Nephrology
      Distinguished in Cystinosis
      Pediatric Nephrology | Pediatrics | Nephrology

      Texas Childrens Physician Group

      6701 Fannin St, 
      Houston, TX 
      Languages Spoken:
      English
      Accepting New Patients

      Ewa Elenberg is a Pediatric Nephrologist and a Pediatrics provider in Houston, Texas. Dr. Elenberg is rated as a Distinguished provider by MediFind in the treatment of Cystinosis. Her top areas of expertise are Cystinosis, Fanconi Bickel Syndrome, Fanconi Syndrome, Congenital Nephrotic Syndrome, and Kidney Transplant. Dr. Elenberg is currently accepting new patients.

      Distinguished in Cystinosis
      Pediatric Nephrology | Pediatrics | Nephrology
      Distinguished in Cystinosis
      Pediatric Nephrology | Pediatrics | Nephrology

      Choa Multispecialty, LLC

      1365 Clifton Rd Ne, 
      Atlanta, GA 
      Languages Spoken:
      English
      Offers Telehealth

      Laurence Greenbaum is a Pediatric Nephrologist and a Pediatrics provider in Atlanta, Georgia. Dr. Greenbaum is rated as a Distinguished provider by MediFind in the treatment of Cystinosis. His top areas of expertise are Cystinosis, Proximal Renal Tubular Acidosis, Primary Tubular Proximal Acidosis, and Renal Tubular Acidosis.

      Distinguished in Cystinosis
      Pediatric Nephrology | Pediatrics | Nephrology
      Distinguished in Cystinosis
      Pediatric Nephrology | Pediatrics | Nephrology

      The Association Of Chrmc And University Physicians

      4800 Sand Point Way Ne, 
      Seattle, WA 
      Languages Spoken:
      English, French, German, Russian, Spanish, Ukrainian
      Accepting New Patients
      Offers Telehealth

      Daryl Okamura is a Pediatric Nephrologist and a Pediatrics provider in Seattle, Washington. Dr. Okamura is rated as a Distinguished provider by MediFind in the treatment of Cystinosis. His top areas of expertise are Cystinosis, End-Stage Renal Disease (ESRD), Lupus Nephritis, and Fanconi Bickel Syndrome. Dr. Okamura is currently accepting new patients.

      Distinguished in Cystinosis
      Pediatric Nephrology | Nephrology
      Distinguished in Cystinosis
      Pediatric Nephrology | Nephrology
      8001 Frost St, Entrance 10, 
      San Diego, CA 
      Languages Spoken:
      English

      Robert Mak is a Pediatric Nephrologist and a Nephrologist in San Diego, California. Dr. Mak is rated as a Distinguished provider by MediFind in the treatment of Cystinosis. His top areas of expertise are Cystinosis, Hydronephrosis, High Blood Pressure in Infants, Posterior Urethral Valves, and Nephrectomy.

      Distinguished in Cystinosis
      Pediatric Nephrology | Pediatrics
      Distinguished in Cystinosis
      Pediatric Nephrology | Pediatrics

      The Association Of Chrmc And University Physicians

      4800 Sand Point Way Ne, 
      Seattle, WA 
      Languages Spoken:
      English, Castilian, French, Russian, Spanish
      Accepting New Patients
      Offers Telehealth

      Jodi Smith is a Pediatric Nephrologist and a Pediatrics provider in Seattle, Washington. Dr. Smith is rated as a Distinguished provider by MediFind in the treatment of Cystinosis. Her top areas of expertise are Cystinosis, End-Stage Renal Disease (ESRD), Autosomal Recessive Polycystic Kidney Disease, Kidney Transplant, and Lithotripsy. Dr. Smith is currently accepting new patients.

      Distinguished in Cystinosis
      Pediatric Nephrology | Nephrology | Pediatrics
      Distinguished in Cystinosis
      Pediatric Nephrology | Nephrology | Pediatrics

      The Childrens Mercy Hospital

      3243 E Murdock St, Childrens Mercy Kansas Cit, 
      Wichita, KS 
      Experience:
      46+ years
      Languages Spoken:
      English
      Accepting New Patients

      Bradley Warady is a Pediatric Nephrologist and a Nephrologist in Wichita, Kansas. Dr. Warady has been practicing medicine for over 46 years and is rated as a Distinguished provider by MediFind in the treatment of Cystinosis. His top areas of expertise are Secondary Peritonitis, Chronic Kidney Disease, Alport Syndrome, Kidney Transplant, and Gastrostomy. Dr. Warady is currently accepting new patients.

      Priya S. Verghese
      Advanced in Cystinosis
      Pediatrics | Nephrology | Pediatric Nephrology
      Advanced in Cystinosis
      Pediatrics | Nephrology | Pediatric Nephrology

      Lurie Children's Medical Group Inc.

      225 E Chicago Ave, Box 118, 
      Chicago, IL 
      Languages Spoken:
      English

      Priya Verghese is a Pediatrics specialist and a Nephrologist in Chicago, Illinois. Dr. Verghese is rated as an Advanced provider by MediFind in the treatment of Cystinosis. Her top areas of expertise are Nephrotic Syndrome, Glomerulonephritis, Feingold Syndrome, Kidney Transplant, and Nephrectomy.

      Reeti Kumar
      Advanced in Cystinosis
      Pediatrics
      Advanced in Cystinosis
      Pediatrics

      Duke Children's Health Center Kidney Transplant Clinic

      2301 Erwin Rd, 
      Durham, NC 
      Experience:
      12+ years
      Languages Spoken:
      English, Hindi

      I take care of children with disorders affecting the kidney and urinary tract, including high blood pressure, inherited kidney diseases, kidney stones, urinary tract infections, and abnormalities in the urine, such as blood and protein. I also take care of children with kidney failure requiring dialysis and transplant. It is important to me to not only treat a child’s disease but maximize their quality of life. I find it rewarding to be an advocate, educator, and source of support for my patients and their families throughout their medical journey. Dr. Kumar is rated as an Advanced provider by MediFind in the treatment of Cystinosis. Her top areas of expertise are Cystinosis, Glomerulonephritis, Hypertension, and IgA Nephropathy.

      Frederick J. Kaskel
      Advanced in Cystinosis
      Pediatric Nephrology | Nephrology | Pediatrics
      Advanced in Cystinosis
      Pediatric Nephrology | Nephrology | Pediatrics

      Montefiore Medical Center

      111 E 210th St, 
      Bronx, NY 
      Languages Spoken:
      English

      Frederick Kaskel is a Pediatric Nephrologist and a Nephrologist in Bronx, New York. Dr. Kaskel is rated as an Advanced provider by MediFind in the treatment of Cystinosis. His top areas of expertise are Nephrotic Syndrome, Focal Segmental Glomerulosclerosis, Minimal Change Disease, Metabolic Acidosis, and Kidney Transplant.

      Brooke A. Blazius
      Advanced in Cystinosis
      Pediatric Nephrology
      Advanced in Cystinosis
      Pediatric Nephrology

      Corewell Health William Beaumont University Hospital Pediatric Nephrology

      3535 West 13 Mile Road, Suite 707, 
      Royal Oak, MI 
      Experience:
      9+ years
      Languages Spoken:
      English
      Accepting New Patients

      Brooke Blazius is a Pediatric Nephrologist in Royal Oak, Michigan. Dr. Blazius has been practicing medicine for over 9 years and is rated as an Advanced provider by MediFind in the treatment of Cystinosis. Her top areas of expertise are Glomerulonephritis, Potter Syndrome, Autosomal Recessive Polycystic Kidney Disease, Henoch-Schonlein Purpura, and Kidney Transplant. Dr. Blazius is currently accepting new patients.

      Advanced in Cystinosis
      Pediatric Nephrology | Pediatrics | Nephrology
      Advanced in Cystinosis
      Pediatric Nephrology | Pediatrics | Nephrology

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Deborah Stein is a Pediatric Nephrologist and a Pediatrics provider in Boston, Massachusetts. Dr. Stein is rated as an Advanced provider by MediFind in the treatment of Cystinosis. Her top areas of expertise are Posterior Urethral Valves, Nephrotic Syndrome, Nephrocalcinosis, and Cystinosis. Dr. Stein is currently accepting new patients.

      Advanced in Cystinosis
      Pediatric Nephrology
      Advanced in Cystinosis
      Pediatric Nephrology
      219 Bryant St, 
      Buffalo, NY 
      Languages Spoken:
      English

      James Springate is a Pediatric Nephrologist in Buffalo, New York. Dr. Springate is rated as an Advanced provider by MediFind in the treatment of Cystinosis. His top areas of expertise are Fanconi Syndrome, Fanconi Bickel Syndrome, Aminoaciduria, and Cystinosis.

      Advanced in Cystinosis
      Pediatric Nephrology | Pediatrics | Nephrology
      Advanced in Cystinosis
      Pediatric Nephrology | Pediatrics | Nephrology

      Ucsf Dept Of Surgery

      505 Parnassus Ave, 
      San Francisco, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Minnie Sarwal is a Pediatric Nephrologist and a Pediatrics provider in San Francisco, California. Dr. Sarwal is rated as an Advanced provider by MediFind in the treatment of Cystinosis. Her top areas of expertise are Cystinosis, Focal Segmental Glomerulosclerosis, Cytomegalic Inclusion Disease, Cytomegalovirus Infection, and Kidney Transplant.

      Advanced in Cystinosis
      Pediatric Nephrology | Pediatrics | Nephrology
      Advanced in Cystinosis
      Pediatric Nephrology | Pediatrics | Nephrology

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients

      Clare Lindner is a Pediatric Nephrologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Lindner has been practicing medicine for over 16 years and is rated as an Advanced provider by MediFind in the treatment of Cystinosis. Her top areas of expertise are Lysinuric Protein Intolerance, Fanconi Syndrome, Fanconi Bickel Syndrome, and Posterior Urethral Valves. Dr. Lindner is currently accepting new patients.

      Advanced in Cystinosis
      Pediatric Nephrology | Pediatrics | Nephrology
      Advanced in Cystinosis
      Pediatric Nephrology | Pediatrics | Nephrology

      Albany Medical College

      23 Hackett Blvd, 
      Albany, NY 
      Languages Spoken:
      English

      James Listman is a Pediatric Nephrologist and a Pediatrics provider in Albany, New York. Dr. Listman is rated as an Advanced provider by MediFind in the treatment of Cystinosis. His top areas of expertise are Focal Segmental Glomerulosclerosis, Feingold Syndrome, Nephrotic Syndrome, and Congenital Nephrotic Syndrome.

      Advanced in Cystinosis
      Pediatric Nephrology | Pediatrics
      Advanced in Cystinosis
      Pediatric Nephrology | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      David Kershaw is a Pediatric Nephrologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Kershaw is rated as an Advanced provider by MediFind in the treatment of Cystinosis. His top areas of expertise are Posterior Urethral Valves, Alport Syndrome, Autosomal Recessive Polycystic Kidney Disease, Potter Syndrome, and Kidney Transplant. Dr. Kershaw is currently accepting new patients.

      Showing 1-20 of 97

      Last Updated: 10/30/2025

      What is the definition of Cystinosis?

      Cystinosis is a condition characterized by accumulation of the amino acid cystine (a building block of proteins) within cells. Excess cystine damages cells and often forms crystals that can build up and cause problems in many organs and tissues. The kidneys and eyes are especially vulnerable to damage; the muscles, thyroid, pancreas, and testes may also be affected.

      When should I see a Cystinosis doctor in The United States?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Cystinosis doctor in The United States?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Cystinosis doctors in The United States?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Cystinosis doctors in The United States?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Cystinosis doctor in The United States?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Cystinosis doctor search results page. 

      Why is it important to get a second opinion from a different Cystinosis doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Cystinosis doctor in The United States?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Cystinosis doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Cystinosis doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Cystinosis doctors in The United States?

      Look for the filter feature on the left side of the Cystinosis doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Cystinosis doctor that offers video calls?

      Look for the filter feature on the left-side of the Cystinosis doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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