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    Last Updated: 01/09/2026

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    MediFind found 72 doctor with experience in Dravet Syndrome near Chicago, IL. Of these, 58 are Experienced, 13 are Advanced and 1 are Distinguished.

    Location
    LocationClose
    72 providers found
      Alan G. Shepard
      Experienced in Dravet Syndrome
      Experienced in Dravet Syndrome
      259 E Erie St Ste 2200, Lavin Family Pavilion, 
      Chicago, IL 
       (0.9 miles away)
      Experience:
      38+ years
      Languages Spoken:
      English
      Offers Telehealth

      Alan Shepard is a Neurologist in Chicago, Illinois. Dr. Shepard has been practicing medicine for over 38 years and is rated as an Experienced provider by MediFind in the treatment of Dravet Syndrome. His top areas of expertise are Trigeminal Neuralgia, Peripheral Neuropathy, Memory Loss, and Neuralgia.

      Micheal P. Macken
      Experienced in Dravet Syndrome
      Experienced in Dravet Syndrome
      259 E Erie St Ste 1900, Lavin Family Pavilion, 
      Chicago, IL 
       (1.3 miles away)
      Experience:
      36+ years
      Languages Spoken:
      English
      Offers Telehealth

      Micheal Macken is a Neurologist in Chicago, Illinois. Dr. Macken has been practicing medicine for over 36 years and is rated as an Experienced provider by MediFind in the treatment of Dravet Syndrome. His top areas of expertise are Seizures, Susac Syndrome, Partial Familial Epilepsy, and Continuous Spike-Wave During Slow Sleep Syndrome.

      Stephan U. Schuele
      Experienced in Dravet Syndrome
      Experienced in Dravet Syndrome
      259 E Erie St Ste 1900, Lavin Family Pavilion, 
      Chicago, IL 
       (1.3 miles away)
      Experience:
      30+ years
      Languages Spoken:
      English
      Offers Telehealth

      Stephan Schuele is a Neurologist in Chicago, Illinois. Dr. Schuele has been practicing medicine for over 30 years and is rated as an Experienced provider by MediFind in the treatment of Dravet Syndrome. His top areas of expertise are Seizures, Epilepsy, Generalized Tonic-Clonic Seizure, Awake Craniotomy, and Deep Brain Stimulation.

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      Stephen A. Vanhaerents
      Experienced in Dravet Syndrome
      Experienced in Dravet Syndrome
      259 E Erie St Ste 1900, Lavin Family Pavilion, 
      Chicago, IL 
       (1.3 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English
      Offers Telehealth

      Stephen Vanhaerents is a Neurologist in Chicago, Illinois. Dr. Vanhaerents has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Dravet Syndrome. His top areas of expertise are Encephalitis, Seizures, Anti-NMDA Receptor Encephalitis, and Rasmussen Encephalitis.

      Experienced in Dravet Syndrome
      Experienced in Dravet Syndrome
      259 E Erie St Ste 1900, Lavin Family Pavilion, 
      Chicago, IL 
       (1.3 miles away)
      Experience:
      23+ years
      Languages Spoken:
      English
      Offers Telehealth

      Elizabeth Gerard is a Neurologist in Chicago, Illinois. Dr. Gerard has been practicing medicine for over 23 years and is rated as an Experienced provider by MediFind in the treatment of Dravet Syndrome. Her top areas of expertise are Epilepsy, Seizures, Status Epilepticus, and Susac Syndrome.

      Experienced in Dravet Syndrome
      Experienced in Dravet Syndrome
      259 E Erie St Ste 1900, Lavin Family Pavilion, 
      Chicago, IL 
       (1.3 miles away)
      Experience:
      11+ years
      Languages Spoken:
      English
      Offers Telehealth

      Alexa King is a Neurologist in Chicago, Illinois. Dr. King has been practicing medicine for over 11 years and is rated as an Experienced provider by MediFind in the treatment of Dravet Syndrome. Her top areas of expertise are Susac Syndrome, Partial Familial Epilepsy, Partial Seizure, and Seizures.

      Advanced in Dravet Syndrome
      Pediatric Neurology | Neurology
      Advanced in Dravet Syndrome
      Pediatric Neurology | Neurology

      Lurie Children's Medical Group Inc.

      225 E Chicago Ave, 
      Chicago, IL 
       (1.1 miles away)
      Languages Spoken:
      English

      Alma Bicknese is a Pediatric Neurologist and a Neurologist in Chicago, Illinois. Dr. Bicknese is rated as an Advanced provider by MediFind in the treatment of Dravet Syndrome. Her top areas of expertise are Progressive Myoclonic Epilepsy, Lafora Disease, Unverricht-Lundborg Syndrome, and Migraine.

      Advanced in Dravet Syndrome
      Pediatric Neurology | Neurology
      Advanced in Dravet Syndrome
      Pediatric Neurology | Neurology
      225 E Chicago Ave, 
      Chicago, IL 
       (1.1 miles away)
      Languages Spoken:
      English

      Tracy Gertler is a Pediatric Neurologist and a Neurologist in Chicago, Illinois. Dr. Gertler is rated as an Advanced provider by MediFind in the treatment of Dravet Syndrome. Her top areas of expertise are Seizures, Athetosis, Myoclonic Epilepsy, and Epilepsy in Children.

      Advanced in Dravet Syndrome
      Advanced in Dravet Syndrome

      Ann & Robert H. Lurie Children's Hospital Of Chicago

      225 E Chicago Ave, 
      Chicago, IL 
       (1.1 miles away)
      Languages Spoken:
      English

      David Bieber is a Neurologist in Chicago, Illinois. Dr. Bieber is rated as an Advanced provider by MediFind in the treatment of Dravet Syndrome. His top areas of expertise are Memory Loss, Partial Seizure, Athetosis, and Seizures.

      Advanced in Dravet Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Advanced in Dravet Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      Lurie Children's Medical Group Inc.

      225 E Chicago Ave, Box 118, 
      Chicago, IL 
       (1.1 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Charles Marcuccilli is a Pediatric Neurologist and a Pediatrics provider in Chicago, Illinois. Dr. Marcuccilli is rated as an Advanced provider by MediFind in the treatment of Dravet Syndrome. His top areas of expertise are Seizures, Epilepsy, Susac Syndrome, and Fetal Thalidomide Syndrome. Dr. Marcuccilli is currently accepting new patients.

      Advanced in Dravet Syndrome
      Neurology | Physiatry
      Advanced in Dravet Syndrome
      Neurology | Physiatry

      The Board Of Trustees Of The University Of Illinois

      1801 W Taylor St, 
      Chicago, IL 
       (2.2 miles away)
      Languages Spoken:
      English

      Steven Brint is a Neurologist and a Physiatrist in Chicago, Illinois. Dr. Brint is rated as an Advanced provider by MediFind in the treatment of Dravet Syndrome. His top areas of expertise are Landau-Kleffner Syndrome, Headache, Seizures, and Memory Loss.

      Advanced in Dravet Syndrome
      General Practice | Internal Medicine
      Advanced in Dravet Syndrome
      General Practice | Internal Medicine

      Vivek Gupta, M.D., S.C.

      2720 W Division St, 
      Chicago, IL 
       (3.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Queen Aghaji is a primary care provider, practicing in General Practice and Internal Medicine in Chicago, Illinois. Dr. Aghaji is rated as an Advanced provider by MediFind in the treatment of Dravet Syndrome. Her top areas of expertise are Dravet Syndrome, Memory Loss, Chronic Idiopathic Constipation (CIC), and Heart Failure. Dr. Aghaji is currently accepting new patients.

      Advanced in Dravet Syndrome
      Neurology
      Advanced in Dravet Syndrome
      Neurology

      Northshore Neurological Institute-Swedish Hospital Chicago Brain & Spine Institute

      5115 N Francisco Ave, 
      Chicago, IL 
       (7.2 miles away)
      Languages Spoken:
      English

      Danny Park is a Neurologist in Chicago, Illinois. Dr. Park is rated as an Advanced provider by MediFind in the treatment of Dravet Syndrome. His top areas of expertise are Generalized Tonic-Clonic Seizure, Seizures, Chronic Inflammatory Demyelinating Polyneuropathy, and Stroke.

      Distinguished in Dravet Syndrome
      Distinguished in Dravet Syndrome

      Loyola University Medical Center

      2160 S 1st Ave, 
      Maywood, IL 
       (10.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Jorge Asconape is a Neurologist in Maywood, Illinois. Dr. Asconape is rated as a Distinguished provider by MediFind in the treatment of Dravet Syndrome. His top areas of expertise are Partial Seizure, Partial Familial Epilepsy, Seizures, Memory Loss, and Gastrostomy.

      Experienced in Dravet Syndrome
      Experienced in Dravet Syndrome
      355 E Erie St, 
      Chicago, IL 
       (1.0 miles away)
      Languages Spoken:
      English

      Sheng Tang is a Neurologist in Chicago, Illinois. Dr. Tang is rated as an Experienced provider by MediFind in the treatment of Dravet Syndrome. His top areas of expertise are West Syndrome, Spasmus Nutans, Rett Syndrome, and Absence Seizure.

      Experienced in Dravet Syndrome
      Pediatric Neurology | Neurology
      Experienced in Dravet Syndrome
      Pediatric Neurology | Neurology
      225 E Chicago Ave # 51, 
      Chicago, IL 
       (1.0 miles away)
      Languages Spoken:
      English, Spanish

      Andrea Pardo is a Pediatric Neurologist and a Neurologist in Chicago, Illinois. Dr. Pardo is rated as an Experienced provider by MediFind in the treatment of Dravet Syndrome. Her top areas of expertise are Corpus Callosum Agenesis, Seizures, Agyria Pachygyria Polymicrogyria, and Focal or Multifocal Malformations in Neuronal Migration.

      Experienced in Dravet Syndrome
      Pediatric Neurology | Neurology
      Experienced in Dravet Syndrome
      Pediatric Neurology | Neurology
      225 E Chicago Ave, 
      Chicago, IL 
       (1.1 miles away)
      Languages Spoken:
      English

      Divya Desai is a Pediatric Neurologist and a Neurologist in Chicago, Illinois. Dr. Desai is rated as an Experienced provider by MediFind in the treatment of Dravet Syndrome. Her top areas of expertise are Athetosis, Photosensitive Epilepsy, Landau-Kleffner Syndrome, and Partial Seizure.

      Experienced in Dravet Syndrome
      Nurse Practitioner | Neurology
      Experienced in Dravet Syndrome
      Nurse Practitioner | Neurology
      225 E Chicago Ave, 
      Chicago, IL 
       (1.1 miles away)
      Languages Spoken:
      English

      Danielle Dorgan is a Nurse Practitioner specialist and a Neurologist in Chicago, Illinois. Ms. Dorgan is rated as an Experienced provider by MediFind in the treatment of Dravet Syndrome. Her top areas of expertise are Tension Headache, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Absence Seizure, and Migraine.

      Experienced in Dravet Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Dravet Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      Lurie Children's Medical Group Inc.

      225 E Chicago Ave, 
      Chicago, IL 
       (1.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Peter Heydemann is a Pediatric Neurologist and a Pediatrics provider in Chicago, Illinois. Dr. Heydemann is rated as an Experienced provider by MediFind in the treatment of Dravet Syndrome. His top areas of expertise are Rett Syndrome, Congenital Toxoplasmosis, Primary Amebic Meningoencephalitis, and Duchenne Muscular Dystrophy. Dr. Heydemann is currently accepting new patients in some locations.

      Experienced in Dravet Syndrome
      Pediatric Neurology | Neurology
      Experienced in Dravet Syndrome
      Pediatric Neurology | Neurology
      225 E Chicago Ave, Box 51, 
      Chicago, IL 
       (1.1 miles away)
      Languages Spoken:
      English

      Joanna Blackburn is a Pediatric Neurologist and a Neurologist in Chicago, Illinois. Dr. Blackburn is rated as an Experienced provider by MediFind in the treatment of Dravet Syndrome. Her top areas of expertise are Chorea, Tourette Syndrome, Transient Tic Disorder, and Stereotypic Movement Disorder.

      Showing 1-20 of 72

      Last Updated: 01/09/2026

      What is the definition of Dravet Syndrome?

      Dravet syndrome is the most severe of a group of conditions known as SCN1A-related seizure disorders. Symptoms include seizures which first occur in infancy that are often triggered by high temperatures (febrile seizures). In childhood, many types of seizures may occur and they may increase in frequency. Seizures may be difficult to treat. Other symptoms include loss of motor skills, intellectual disability, speech impairment, and difficulty with movement. Most cases of Dravet syndrome occur when the SCN1A gene is not working correctly. It can be inherited in an autosomal dominant pattern, but most people with Dravet syndrome do not have a family history of the condition. Diagnosis is based on a clinical exam, medical history, and the results of genetic testing.

      When should I see a Dravet Syndrome doctor near Chicago, IL?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dravet Syndrome doctor near Chicago, IL?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dravet Syndrome doctors near Chicago, IL?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dravet Syndrome doctors near Chicago, IL?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dravet Syndrome doctor near Chicago, IL?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dravet Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Dravet Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dravet Syndrome doctor near Chicago, IL?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dravet Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dravet Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dravet Syndrome doctors near Chicago, IL?

      Look for the filter feature on the left side of the Dravet Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dravet Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Dravet Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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