Jessie Nance
Advanced in Dysferlinopathy

Dr. Jessie Nance

Neuromusculoskeletal Medicine | Pediatric Neurology
Johns Hopkins Medicine
Johns Hopkins Outpatient Center
601 North Caroline Street, Floor 5, Floor 5, 
Baltimore, MD 

Advanced in Dysferlinopathy
Johns Hopkins Medicine
Johns Hopkins Outpatient Center
601 North Caroline Street, Floor 5, Floor 5, 
Baltimore, MD 
OverviewInsuranceLocationsClinical ResearchSimilar Doctors

Overview

Dr. Jessica Nance, treats pediatric patients with neuromuscular disorders, muscular dystrophies, congenital and metabolic myopathies, Charcot-Marie-Tooth (CMT) disease, peripheral neuropathy, spinal muscular atrophy, pediatric brachial plexus and hypotonia. She has cultivated expertise in the diagnosis and management of inherited neuromuscular diseases through her experience at he National Institutes of Health with Dr. Carsten Bonnemann and in the Johns Hopkins Pediatric Neuromuscular Clinic with Dr. Tom Crawford. After completing a fellowship in neuromuscular disorders at Johns Hopkins, she is now a part of the Johns Hopkins Division of Pediatric Neurology where she will continue working in the Pediatric Neuromuscular Clinic with Dr. Crawford. She received her medical degree from Indiana University School of Medicine and completed residency training in Pediatrics and Child Neurology at Children’s National Medical Center in Washington, D.C.

Dr. Nance is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Duchenne Muscular Dystrophy, Dysferlinopathy, Cytoplasmic Body Myopathy, and Cramp-Fasciculation Syndrome.

Her clinical research consists of co-authoring 11 peer reviewed articles and participating in 2 clinical trials. MediFind looks at clinical research from the past 15 years.

Residency
Children's National Medical Center, Pediatric Neurology, 2012
Specialties
Neuromusculoskeletal Medicine
Pediatric Neurology
Licenses
Neurology with Special Qualifications in Neurology in DC
Board Certifications
American Board Of Psychiatry And Neurology
Fellowships
Johns Hopkins University School of Medicine, Neuromuscular Medicine, 2014
Hospital Affiliations
The Johns Hopkins Hospital
Johns Hopkins Bayview Medical Center
Languages Spoken
English
German
Gender
Female

Insurance

Accepted insurance can change. Please verify directly with the provider.

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Accepted insurance plans:

Aetna
  • EPO
  • HMO
  • POS
  • PPO
Blue Cross Blue Shield
  • EPO
  • HMO
  • POS
  • PPO
CareFirst
  • HMO
  • POS
  • PPO
Cigna
  • EPO
  • HMO
  • PPO
First Health
  • INSURANCE PLAN
  • MEDICARE PDP
  • PPO
Gateway Health Plan
  • INSURANCE PLAN
  • MANAGED MEDICAID PLAN
  • MEDICARE SNP
  • OTHER MEDICARE PART D
Geisinger
  • HMO
  • POS
  • PPO
Johns Hopkins Healthcare
  • HMO
  • MANAGED MEDICAID PLAN
  • MEDICARE MAPD
  • MEDICARE-MEDICAID PLAN
Medicaid
  • OTHER MEDICAID
  • STATE MEDICAID
Medicare
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  • MEDICARE PDP
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  • MEDICARE-MEDICAID PLAN
  • OTHER MEDICARE PART D
Sentara Healthcare
  • INSURANCE PLAN
  • MANAGED MEDICAID PLAN
  • MEDICARE ASSISTANCE PROGRAM
  • MEDICARE MAPD
  • MEDICARE SNP
  • OTHER COMMERCIAL
  • OTHER MEDICARE
  • OTHER MEDICARE PART D
UnitedHealthcare
  • EPO
  • HMO
  • POS
  • PPO
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Locations

Johns Hopkins Outpatient Center
601 North Caroline Street, Floor 5, Floor 5, Baltimore, MD 21287
Call: 410-955-4259

Additional Areas of Focus

Dr. Nance has provided the following conditions as areas of focus. Please note that we may not have enough data to validate their experience in some of these conditions.

Neurofibromatosis Type 1 (NF1)

Clinical Research

Clinical research consists of overseeing clinical studies of patients undergoing new treatments and therapies, and publishing articles in peer reviewed medical journals. Providers who actively participate in clinical research are generally at the forefront of the fields and aware of the most up-to-date advances in treatments for their patients.


2 Clinical Trials

A Phase 3 Multinational, Randomized, Double-Blind, Placebo-Controlled Systemic Gene Delivery Study to Evaluate the Safety and Efficacy of SRP-9001 in Subjects With Duchenne Muscular Dystrophy (EMBARK)
A Phase 3 Multinational, Randomized, Double-Blind, Placebo-Controlled Systemic Gene Delivery Study to Evaluate the Safety and Efficacy of SRP-9001 in Subjects With Duchenne Muscular Dystrophy (EMBARK)
Enrollment Status: Completed
Publish Date: July 08, 2025
Intervention Type: Genetic
Study Phase: Phase 3
A Randomized, Double-Blind, Placebo-Controlled, Global Phase 3 Study of Edasalonexent in Pediatric Patients With Duchenne Muscular Dystrophy
A Randomized, Double-Blind, Placebo-Controlled, Global Phase 3 Study of Edasalonexent in Pediatric Patients With Duchenne Muscular Dystrophy
Enrollment Status: Completed
Publish Date: June 21, 2022
Intervention Type: Drug
Study Phase: Phase 3
View 1 Less Clinical Trial

11 Total Publications

The Historical Case for a Strong and Diverse Neurology Clerkship Leadership Team.
The Historical Case for a Strong and Diverse Neurology Clerkship Leadership Team.
Journal: Neurology. Education
Published: January 08, 2024
View All 11 Publications
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Ricardo Roda
Experienced in Dysferlinopathy
Dr. Ricardo Roda
Neuromusculoskeletal Medicine
Experienced in Dysferlinopathy
Dr. Ricardo Roda
Neuromusculoskeletal Medicine

Johns Hopkins Outpatient Center

Baltimore, MD 
 (1.2 miles away)
410-955-9441
Languages Spoken:
English, French, Spanish
See accepted insurances
Offers Telehealth

Dr. Ricardo Roda earned a combined MD/PhD degree from University of Rochester and completed an adult neurology residency, followed by a clinical neuromuscular fellowship at Johns Hopkins University School of Medicine. During residency, Dr. Roda developed a special interest in both auto-immune disorders and genetic disorders. Following residency, he spent three years in neurogenetics branch of National Institute of Neurological Disorders and Stroke (NINDS) working with Dr. Craig Blackstone, focusing on the use of the newer DNA sequencing techniques in genetic diagnosis, and in establishing genotype/phenotype correlations neuromuscular disorders. His current clinical interests include developing testing strategies for undiagnosed genetic disorders and myasthenia gravis. Dr. Roda is rated as a Distinguished provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Spastic Paraplegia Type 7, Hereditary Spastic Paraparesis, Myasthenia Gravis, and Spastic Paraplegia Type 2.

Thomas O. Crawford
Experienced in Dysferlinopathy
Dr. Thomas O. Crawford
Neurology | Pediatric Neurology
Experienced in Dysferlinopathy
Dr. Thomas O. Crawford
Neurology | Pediatric Neurology

Johns Hopkins Outpatient Center

601 North Caroline Street, Floor 5, Floor 5, 
Baltimore, MD 
 (1.2 miles away)
410-955-4259
Languages Spoken:
English
See accepted insurances

Dr. Tom Crawford has been a member of the Department of Neurology since 1987. He is co-director of the MDA clinic for Neuromuscular Disorders and Neurologist for the Ataxia Telangiectasia Clinical Center at Johns Hopkins. His practice involves general child neurology with a principal interest in caring for children with neuromuscular, neuromotor, and ataxic disorders. Primary research interests involve the basic science and clinical characterization of two important neurologic disorders that affect children: Spinal Muscular Atrophy and Ataxia Telangiectasia. He is also actively involved in the Biology of neurofilaments by characterization of transgenic animal models. He is on the Medical and Scientific Advisory Boards of Families of Spinal Muscular Atrophy, and the Medical Advisory Committee for the Muscular Dystrophy Association. He is the Neurologist for the Ataxia Telangiectasia Clinical Center at Johns Hopkins, which has evaluated almost half of the known patients with this disorder in the United States. Additional specific clinical interests include evaluation and treatment of children with brachial plexus palsies. Dr. Crawford received his medical degree from the University of Southern California. He completed a pediatric internship and residency at the Pediatric Pavilion of the Los Angeles County / University of Southern California Medical Center, followed by a pediatric chief residency. He completed his training in Neurology with Special Qualification in Child Neurology at the Los Angeles Childrens Hospital. He then traveled east to the laboratory of Dr John Griffin at Johns Hopkins for a fellowship in Neuromuscular Disorders. Prior to medical training and Neurology residency, he majored in Psychology and Religion at Yale College. Dr. Crawford has published extensively and presented nationally and internationally. He has an active role in teaching medical students and residents in neurology. In addition, Dr. Crawford has special interest and experience in EMG studies of children and adults. Dr. Crawford is rated as a Distinguished provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Ataxia-Telangiectasia, and Spinal Muscular Atrophy Type 2.

Matt J. Elrick
Experienced in Dysferlinopathy
Dr. Matt J. Elrick
Emergency Medicine | Neurology | Pediatric Neurology
Experienced in Dysferlinopathy
Dr. Matt J. Elrick
Emergency Medicine | Neurology | Pediatric Neurology

Johns Hopkins Outpatient Center

601 North Caroline Street, Floor 5, Floor 5, 
Baltimore, MD 
 (1.2 miles away)
410-955-4259
Languages Spoken:
English
See accepted insurances

Dr. Elrick specializes in the care of children with neuromuscular disorders, and EMG studies in children and adults. He has special interests in genetic neuromuscular and neurodegenerative disorders and Acute Flaccid Myelitis. Dr. Elrick earned his M.D. and Ph.D. in Neuroscience at the University of Michigan Medical School, studying inherited neurodegenerative disorders of childhood. He completed residency training in Pediatrics and Child Neurology, followed by a fellowship in Neuromuscular Medicine and Johns Hopkins before joining the faculty in 2019. Dr. Elrick's laboratory research interest is in understanding mechanisms of neurodegenerative disease, especially those affecting motor neurons. He studies disorders caused by genetic mutations in the nuclear pore complex, the main pathway for transport of material in and out of the nucleus of the cell, including Triple A Syndrome. He also participates in clinical research on Acute Flaccid Myelitis (AFM), aimed at understanding susceptibility to AFM in children, and defining clinical and EMG characteristics of illness and recovery in AFM. Dr. Elrick is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Cramp-Fasciculation Syndrome, Acute Flaccid Myelitis (AFM), Dysferlinopathy, and Duchenne Muscular Dystrophy.

VIEW MORE DYSFERLINOPATHY DOCTORS

Areas of Expertise

MediFind evaluates expertise by pulling from factors such as number of articles a doctor has published in medical journals, participation in clinical trials, speaking at industry conferences, prescribing and referral patterns, and strength of connections with other experts in their field.

Learn more about MediFind’s expert tiers

Find Dr. Nance's expertise for a condition
ConditionClose
      • Advanced
      • Duchenne Muscular Dystrophy
        Dr. Nance is
        Advanced
        . Learn about Duchenne Muscular Dystrophy.
        See more Duchenne Muscular Dystrophy experts
      • Dysferlinopathy
        Dr. Nance is
        Advanced
        . Learn about Dysferlinopathy.
        See more Dysferlinopathy experts
      • Experienced
      • Acute Flaccid Myelitis (AFM)
        Dr. Nance is
        Experienced
        . Learn about Acute Flaccid Myelitis (AFM).
        See more Acute Flaccid Myelitis (AFM) experts
      • Becker Muscular Dystrophy
        Dr. Nance is
        Experienced
        . Learn about Becker Muscular Dystrophy.
        See more Becker Muscular Dystrophy experts
      • Brain Stem Cancer
        Dr. Nance is
        Experienced
        . Learn about Brain Stem Cancer.
        See more Brain Stem Cancer experts
      • Congenital Fiber-Type Disproportion
        Dr. Nance is
        Experienced
        . Learn about Congenital Fiber-Type Disproportion.
        See more Congenital Fiber-Type Disproportion experts
      • Cramp-Fasciculation Syndrome
        Dr. Nance is
        Experienced
        . Learn about Cramp-Fasciculation Syndrome.
        See more Cramp-Fasciculation Syndrome experts
      • Cytoplasmic Body Myopathy
        Dr. Nance is
        Experienced
        . Learn about Cytoplasmic Body Myopathy.
        See more Cytoplasmic Body Myopathy experts
      View All 20 Experienced Conditions
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