Thomas O. Crawford
Experienced in Dysferlinopathy

Dr. Thomas O. Crawford

Neurology | Pediatric Neurology
Johns Hopkins Medicine
Johns Hopkins Outpatient Center
601 North Caroline Street, Floor 5, Floor 5, 
Baltimore, MD 

Experienced in Dysferlinopathy
Johns Hopkins Medicine
Johns Hopkins Outpatient Center
601 North Caroline Street, Floor 5, Floor 5, 
Baltimore, MD 
OverviewInsuranceLocationsClinical ResearchSimilar Doctors

Overview

Dr. Tom Crawford has been a member of the Department of Neurology since 1987. He is co-director of the MDA clinic for Neuromuscular Disorders and Neurologist for the Ataxia Telangiectasia Clinical Center at Johns Hopkins. His practice involves general child neurology with a principal interest in caring for children with neuromuscular, neuromotor, and ataxic disorders. Primary research interests involve the basic science and clinical characterization of two important neurologic disorders that affect children: Spinal Muscular Atrophy and Ataxia Telangiectasia. He is also actively involved in the Biology of neurofilaments by characterization of transgenic animal models. He is on the Medical and Scientific Advisory Boards of Families of Spinal Muscular Atrophy, and the Medical Advisory Committee for the Muscular Dystrophy Association. He is the Neurologist for the Ataxia Telangiectasia Clinical Center at Johns Hopkins, which has evaluated almost half of the known patients with this disorder in the United States. Additional specific clinical interests include evaluation and treatment of children with brachial plexus palsies. Dr. Crawford received his medical degree from the University of Southern California. He completed a pediatric internship and residency at the Pediatric Pavilion of the Los Angeles County / University of Southern California Medical Center, followed by a pediatric chief residency. He completed his training in Neurology with Special Qualification in Child Neurology at the Los Angeles Childrens Hospital. He then traveled east to the laboratory of Dr John Griffin at Johns Hopkins for a fellowship in Neuromuscular Disorders. Prior to medical training and Neurology residency, he majored in Psychology and Religion at Yale College. Dr. Crawford has published extensively and presented nationally and internationally. He has an active role in teaching medical students and residents in neurology. In addition, Dr. Crawford has special interest and experience in EMG studies of children and adults.

Dr. Crawford is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Ataxia-Telangiectasia, and Spinal Muscular Atrophy Type 2.

His clinical research consists of co-authoring 83 peer reviewed articles and participating in 5 clinical trials. MediFind looks at clinical research from the past 15 years.

Residency
Keck School of Medicine of the University of Southern California, Child Neurology, 1987
Specialties
Neurology
Pediatric Neurology
Licenses
Psychiatry & Neurology in MD
Board Certifications
American Board Of Psychiatry And Neurology
American Board Of Pediatrics
Fellowships
Johns Hopkins University School of Medicine, Neurology, 1988
Hospital Affiliations
The Johns Hopkins Hospital
Languages Spoken
English
Gender
Male

Insurance

Accepted insurance can change. Please verify directly with the provider.

Find your insurance
Find your insuranceClose

Accepted insurance plans:

Aetna
  • EPO
  • HMO
  • POS
  • PPO
Blue Cross Blue Shield
  • EPO
  • HMO
  • POS
  • PPO
CareFirst
  • HMO
  • POS
  • PPO
Cigna
  • EPO
  • HMO
  • PPO
First Health
  • INSURANCE PLAN
  • MEDICARE PDP
  • PPO
Geisinger
  • HMO
  • POS
  • PPO
Humana
  • HMO
  • INDEMNITY
  • POS
  • PPO
Johns Hopkins Healthcare
  • HMO
  • MANAGED MEDICAID PLAN
  • MEDICARE MAPD
  • MEDICARE-MEDICAID PLAN
Kaiser Permanente
  • HMO
  • INSURANCE PLAN
  • MANAGED MEDICAID PLAN
  • MEDICARE MAPD
  • MEDICARE PDP
  • OTHER MEDICARE
  • POS
  • PPO
Medicaid
  • OTHER MEDICAID
  • STATE MEDICAID
Meridian Choice
  • HMO
  • INSURANCE PLAN
  • MANAGED MEDICAID PLAN
  • MEDICARE MAPD
  • MEDICARE SNP
  • MEDICARE-MEDICAID PLAN
  • OTHER COMMERCIAL
  • OTHER MEDICARE
  • OTHER MEDICARE PART D
UnitedHealthcare
  • EPO
  • HMO
  • POS
  • PPO
View 7 Less Insurance Carriers -

Locations

Johns Hopkins Outpatient Center
601 North Caroline Street, Floor 5, Floor 5, Baltimore, MD 21287
Call: 410-955-4259
Other Locations
Johns Hopkins Health Care & Surgery Center - Green Spring Station, Lutherville
10753 Falls Road, Pavilion II STE 115, Lutherville, MD 21093
Call: 410-955-9441

Clinical Research

Clinical research consists of overseeing clinical studies of patients undergoing new treatments and therapies, and publishing articles in peer reviewed medical journals. Providers who actively participate in clinical research are generally at the forefront of the fields and aware of the most up-to-date advances in treatments for their patients.


5 Clinical Trials

Escalating Dose and Randomized, Controlled Study of Nusinersen (BIIB058) in Participants With Spinal Muscular Atrophy
Escalating Dose and Randomized, Controlled Study of Nusinersen (BIIB058) in Participants With Spinal Muscular Atrophy
Enrollment Status: Completed
Publish Date: June 05, 2025
Intervention Type: Drug
Study Drug: Nusinersen
Study Phase: Phase 3
A Prospective, Multi-center, Observational Study of the Safety, Tolerability and Effectiveness of SPINRAZA® (Nusinersen) in Adult Patients With Spinal Muscular Atrophy
A Prospective, Multi-center, Observational Study of the Safety, Tolerability and Effectiveness of SPINRAZA® (Nusinersen) in Adult Patients With Spinal Muscular Atrophy
Enrollment Status: Active_not_recruiting
Publish Date: November 20, 2024
Intervention Type: Other, Drug
A Phase III Double-blind, Randomized, Placebo-Controlled Study Assessing the Efficacy, Safety and Tolerability of Idebenone in Patients With Duchenne Muscular Dystrophy Receiving Glucocorticoid Steroids
A Phase III Double-blind, Randomized, Placebo-Controlled Study Assessing the Efficacy, Safety and Tolerability of Idebenone in Patients With Duchenne Muscular Dystrophy Receiving Glucocorticoid Steroids
Enrollment Status: Terminated
Publish Date: December 03, 2021
Intervention Type: Drug
Study Drug: Idebenone
Study Phase: Phase 3
A Phase III Open-Label Extension Study to Assess the Long-Term Safety and Efficacy of Idebenone in Patients With Duchenne Muscular Dystrophy (DMD) Who Completed the SIDEROS Study
A Phase III Open-Label Extension Study to Assess the Long-Term Safety and Efficacy of Idebenone in Patients With Duchenne Muscular Dystrophy (DMD) Who Completed the SIDEROS Study
Enrollment Status: Terminated
Publish Date: December 03, 2021
Intervention Type: Drug
Study Drug: Idebenone
Study Phase: Phase 3
A Phase 3, Double-blind, Outpatient Crossover Study to Evaluate the Efficacy and Safety of Amifampridine Phosphate (3,4 Diaminopyridine Phosphate) in Patients With Congenital Myasthenic Syndromes (CMS)
A Phase 3, Double-blind, Outpatient Crossover Study to Evaluate the Efficacy and Safety of Amifampridine Phosphate (3,4 Diaminopyridine Phosphate) in Patients With Congenital Myasthenic Syndromes (CMS)
Enrollment Status: Completed
Publish Date: April 02, 2021
Intervention Type: Drug
Study Phase: Phase 3
View 4 Less Clinical Trials

83 Total Publications

Microvascular pathology in the spinal cord of severe spinal muscular atrophy patients.
Microvascular pathology in the spinal cord of severe spinal muscular atrophy patients.
Journal: Research square
Published: December 11, 2025
View All 83 Publications
Similar Doctors
Doris G. Leung
Distinguished in Dysferlinopathy
Dr. Doris G. Leung
Neurology
Distinguished in Dysferlinopathy
Dr. Doris G. Leung
Neurology

Kennedy Krieger Institute

1741 Ashland Avenue, Room 847, Room 847, 
Baltimore, MD 
 (1.6 miles away)
443-923-9525
Languages Spoken:
English
See accepted insurances

Dr. Leung obtained her undergraduate degree in biochemical sciences from Harvard University. While attending medical school at Duke University, she completed a year-long research fellowship studying genetic markers of late-onset Alzheimer’s disease at the National Institute on Aging as part of the NIH Clinical Research Training Program. She completed her neurology residency and clinical neurophysiology fellowship at Stanford University Medical Center, and is currently a Ph.D. candidate in the graduate training program in clinical investigation at the Johns Hopkins Bloomberg School of Public Health. Dr. Leung joined the Center for Genetic Muscle Disorders at the Kennedy Krieger Institute as a translational research fellow in 2010 and was appointed to the faculty in 2014. Her clinic specializes in electromyography and the diagnosis and treatment of hereditary muscle diseases. Dr. Leung’s research focuses on the development of imaging biomarkers and outcome measures for muscle diseases. She is the principal investigator for a longitudinal cohort study of whole-body MRI in facioscapulohumeral muscular dystrophy. Dr. Leung is also a site principal investigator for the Ionis-DMPKRx trial, a phase Ib/IIa clinical trial of a novel RNA-based therapy for myotonic muscular dystrophy. Dr. Leung is rated as an Elite provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Dysferlinopathy, Limb-Girdle Muscular Dystrophy Type 2I, and Limb-Girdle Muscular Dystrophy.

Advanced in Dysferlinopathy
Dr. Kathryn R. Wagner
Neurology
Advanced in Dysferlinopathy
Dr. Kathryn R. Wagner
Neurology
600 N Wolfe St, 
Baltimore, MD 
 (0.2 miles away)
410-955-9441
Languages Spoken:
English

Kathryn Wagner is a Neurologist in Baltimore, Maryland. Dr. Wagner is rated as a Distinguished provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Limb-Girdle Muscular Dystrophy, Limb-Girdle Muscular Dystrophy Type 1B, Limb-Girdle Muscular Dystrophy Type 1A, and Limb-Girdle Muscular Dystrophy Type 2I.

Jessie Nance
Advanced in Dysferlinopathy
Dr. Jessie Nance
Neuromusculoskeletal Medicine | Pediatric Neurology
Advanced in Dysferlinopathy
Dr. Jessie Nance
Neuromusculoskeletal Medicine | Pediatric Neurology

Johns Hopkins Outpatient Center

601 North Caroline Street, Floor 5, Floor 5, 
Baltimore, MD 
 (1.1 miles away)
410-955-4259
Languages Spoken:
English, German
See accepted insurances

Dr. Jessica Nance, treats pediatric patients with neuromuscular disorders, muscular dystrophies, congenital and metabolic myopathies, Charcot-Marie-Tooth (CMT) disease, peripheral neuropathy, spinal muscular atrophy, pediatric brachial plexus and hypotonia. She has cultivated expertise in the diagnosis and management of inherited neuromuscular diseases through her experience at he National Institutes of Health with Dr. Carsten Bonnemann and in the Johns Hopkins Pediatric Neuromuscular Clinic with Dr. Tom Crawford. After completing a fellowship in neuromuscular disorders at Johns Hopkins, she is now a part of the Johns Hopkins Division of Pediatric Neurology where she will continue working in the Pediatric Neuromuscular Clinic with Dr. Crawford. She received her medical degree from Indiana University School of Medicine and completed residency training in Pediatrics and Child Neurology at Children’s National Medical Center in Washington, D.C. Dr. Nance is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Duchenne Muscular Dystrophy, Dysferlinopathy, Cytoplasmic Body Myopathy, and Cramp-Fasciculation Syndrome.

VIEW MORE DYSFERLINOPATHY DOCTORS

Areas of Expertise

MediFind evaluates expertise by pulling from factors such as number of articles a doctor has published in medical journals, participation in clinical trials, speaking at industry conferences, prescribing and referral patterns, and strength of connections with other experts in their field.

Learn more about MediFind’s expert tiers

Find Dr. Crawford's expertise for a condition
ConditionClose
  • Elite
  • Ataxia-Telangiectasia
    Dr. Crawford is
    Elite
    . Learn about Ataxia-Telangiectasia.
    See more Ataxia-Telangiectasia experts
  • Primary Lateral Sclerosis
    Dr. Crawford is
    Elite
    . Learn about Primary Lateral Sclerosis.
    See more Primary Lateral Sclerosis experts
  • Spinal Muscular Atrophy (SMA)
    Dr. Crawford is
    Elite
    . Learn about Spinal Muscular Atrophy (SMA).
    See more Spinal Muscular Atrophy (SMA) experts
  • Distinguished
  • Muscle Atrophy
    Dr. Crawford is
    Distinguished
    . Learn about Muscle Atrophy.
    See more Muscle Atrophy experts
  • Spinal Muscular Atrophy Type 2
    Dr. Crawford is
    Distinguished
    . Learn about Spinal Muscular Atrophy Type 2.
    See more Spinal Muscular Atrophy Type 2 experts
  • Spinal Muscular Atrophy Type 3
    Dr. Crawford is
    Distinguished
    . Learn about Spinal Muscular Atrophy Type 3.
    See more Spinal Muscular Atrophy Type 3 experts
  • Advanced
  • Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease)
    Dr. Crawford is
    Advanced
    . Learn about Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease).
    See more Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease) experts
  • Cramp-Fasciculation Syndrome
    Dr. Crawford is
    Advanced
    . Learn about Cramp-Fasciculation Syndrome.
    See more Cramp-Fasciculation Syndrome experts
  • Drug Induced Dyskinesia
    Dr. Crawford is
    Advanced
    . Learn about Drug Induced Dyskinesia.
    See more Drug Induced Dyskinesia experts
  • Duchenne Muscular Dystrophy
    Dr. Crawford is
    Advanced
    . Learn about Duchenne Muscular Dystrophy.
    See more Duchenne Muscular Dystrophy experts
  • Nijmegen Breakage Syndrome
    Dr. Crawford is
    Advanced
    . Learn about Nijmegen Breakage Syndrome.
    See more Nijmegen Breakage Syndrome experts
  • Spinal Muscular Atrophy Type 1
    Dr. Crawford is
    Advanced
    . Learn about Spinal Muscular Atrophy Type 1.
    See more Spinal Muscular Atrophy Type 1 experts
View All 8 Advanced Conditions
  • Experienced
  • Acute Flaccid Myelitis (AFM)
    Dr. Crawford is
    Experienced
    . Learn about Acute Flaccid Myelitis (AFM).
    See more Acute Flaccid Myelitis (AFM) experts
  • Adult Polyglucosan Body Disease
    Dr. Crawford is
    Experienced
    . Learn about Adult Polyglucosan Body Disease.
    See more Adult Polyglucosan Body Disease experts
  • Atelosteogenesis Type 1
    Dr. Crawford is
    Experienced
    . Learn about Atelosteogenesis Type 1.
    See more Atelosteogenesis Type 1 experts
  • Becker Muscular Dystrophy
    Dr. Crawford is
    Experienced
    . Learn about Becker Muscular Dystrophy.
    See more Becker Muscular Dystrophy experts
  • Benign Autosomal Dominant Myopathy
    Dr. Crawford is
    Experienced
    . Learn about Benign Autosomal Dominant Myopathy.
    See more Benign Autosomal Dominant Myopathy experts
  • Central Core Disease
    Dr. Crawford is
    Experienced
    . Learn about Central Core Disease.
    See more Central Core Disease experts
View All 33 Experienced Conditions
Want to save this doctor for later?
Sign Up
Is this your doctor?
Find A Second Opinion
Not sure about your diagnosis?
Check Your Symptoms
 
 
 
 
Learn about our expert tiers
Learn More
Are you the provider on this profile?
Claim Profile
For Patients
  • Our Story
  • How MediFind Works
  • Conditions A-Z
  • Doctor Directory
  • Symptoms Directory
  • Procedures Directory
  • Treatment Directory
  • Drug Directory
  • Infusion Center Finder
  • FAQ
  • Contact Us
For Providers and Practices
  • Claim Your Profile
  • Newsroom
Business Solutions
  • Provider
  • Network Solutions
Additional Resources
  • Consumer Health Data Privacy Policy
  • Privacy Policy
  • Terms of Use
  • Advertising Policy
  • Content Policy
Subscribe to our newsletter

Sign up to stay informed about MediFind and get wellness sent your way.

Close

    By subscribing, I agree to MediFind's Terms of Use, Privacy Policy and Consumer Health Data Privacy Policy, as applicable.

    Bullet PinMediFind
    Follow us on
    This information is not intended as a substitute for informed medical advice. You should work with a licensed professional to diagnose and treat health conditions. We let the data speak for itself, MediFind does not endorse any healthcare providers.
    © 2026 All Rights Reserved

    Request an Appointment

    If you are experiencing a medical emergency, call 9-1-1.

    MediFind will contact the provider for your appointment request. You’ll receive status updates by email. Your provider or MediFind will reach out to you directly by phone or email to schedule your appointment or request additional information.

    Patient Details

    This information is for the patient who will be seen at the appointment.

      Close

      Returning patient? Use your address on file with the provider.

      Insurance Details

      Please provide information of the primary insurance holder as the practice may require this information to schedule.

      Insurance Provider *
      Insurance ProviderClose

      Appointments Details

      Let’s get more information about your appointment.

              0 / 1000
              0 / 1000
              By pressing the Submit button you are agreeing to MediFind’s Terms of Use, Privacy Policy and Consumer Health Data Privacy Policy, as applicable.