The 20 Best Dysferlinopathy Doctors in France

Find the Top Dysferlinopathy Experts and Specialists

Last Updated: 11/08/2026

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MediFind found 54 doctor with experience in Dysferlinopathy near France. Of these, 46 are Experienced, 6 are Advanced and 2 are Distinguished.

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54 providers found
    Distinguished in Dysferlinopathy
    Distinguished in Dysferlinopathy
    Referral may be required
    Centre De Référence Maladies Neuromusculaires Paris Est, 
    Paris, FR 

    Tanya Stojkovic practices practicing medicine in Paris, France. Ms. Stojkovic is rated as a Distinguished expert by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 52 other conditions, according to our data. Her clinical expertise encompasses Dilated Cardiomyopathy with Hypergonadotropic Hypogonadism, Limb-Girdle Muscular Dystrophy, Pica, Bone Marrow Aspiration, and Heart Transplant.

    Distinguished in Dysferlinopathy
    Distinguished in Dysferlinopathy
    Referral may be required
    Saclay, FR 

    Nicolas Levy practices practicing medicine in Saclay, France. Mr. Levy is rated as a Distinguished expert by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Progeria, Miyoshi Myopathy, Mandibuloacral Dysplasia, Acrorenal Mandibular Syndrome, and Gamma Knife Radiosurgery.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy
    Referral may be required
    Paris, FR 

    Vincent Mouly practices practicing medicine in Paris, France. Mr. Mouly is rated as an Advanced expert by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Oculopharyngeal Muscular Dystrophy, and Limb-Girdle Muscular Dystrophy.

    Learn about our expert tiers
    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy
    Referral may be required
    Paris, FR 

    Harmen Reyngoudt practices practicing medicine in Paris, France. Reyngoudt is rated as an Advanced expert by MediFind in the treatment of Dysferlinopathy. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Dysferlinopathy, Limb-Girdle Muscular Dystrophy, Duchenne Muscular Dystrophy, and Becker Muscular Dystrophy.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy
    Referral may be required
    Marseille, FR 

    Sebastien Courrier practices practicing medicine in Marseille, France. Mr. Courrier is rated as an Advanced expert by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Dysferlinopathy, Limb-Girdle Muscular Dystrophy, and Duchenne Muscular Dystrophy.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy
    Referral may be required
    Paris, FR 

    Ericky Araujo-Almeida practices practicing medicine in Paris, France. Araujo-Almeida is rated as an Advanced expert by MediFind in the treatment of Dysferlinopathy. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Dysferlinopathy, Limb-Girdle Muscular Dystrophy, and Inclusion Body Myositis.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy
    Referral may be required
    Marseille, FR 

    Svetlana Gorokhova practices practicing medicine in Marseille, France. Ms. Gorokhova is rated as an Advanced expert by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Limb-Girdle Muscular Dystrophy, Coffin-Siris Syndrome, Micrognathia, and Miller Syndrome.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy
    Referral may be required
    Paris, FR 

    Anne Bigot practices practicing medicine in Paris, France. Ms. Bigot is rated as an Advanced expert by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 7 other conditions, according to our data. Her clinical expertise encompasses Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Limb-Girdle Muscular Dystrophy, and Oculopharyngeal Muscular Dystrophy.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required
    Paris, FR 

    France Leturcq practices practicing medicine in Paris, France. Leturcq is rated as an Experienced expert by MediFind in the treatment of Dysferlinopathy. They are also highly rated in 10 other conditions, according to our data. Their clinical expertise encompasses Limb-Girdle Muscular Dystrophy, Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Spinal Fusion, and Heart Transplant.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required
    Paris, FR 

    Juliette Nectoux practices practicing medicine in Paris, France. Ms. Nectoux is rated as an Experienced expert by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Limb-Girdle Muscular Dystrophy, Rett Syndrome, Lethal Congenital Contracture Syndrome, and Mosaicism.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required
    Creteil, FR 

    Francois Authier practices practicing medicine in Creteil, France. Mr. Authier is rated as an Experienced expert by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Macrophagic Myofasciitis, Limb-Girdle Muscular Dystrophy, Myositis, and Dysferlinopathy.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required
    Marseille, FR 

    David Bendahan practices practicing medicine in Marseille, France. Mr. Bendahan is rated as an Experienced expert by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Nemaline Myopathy, Cramp-Fasciculation Syndrome, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required
    Paris, FR 

    Teresinha Evangelista practices practicing medicine in Paris, France. Evangelista is rated as an Experienced expert by MediFind in the treatment of Dysferlinopathy. They are also highly rated in 12 other conditions, according to our data. Their clinical expertise encompasses Cramp-Fasciculation Syndrome, Facioscapulohumeral Muscular Dystrophy (FSHD), Congenital Myasthenic Syndrome, Limb-Girdle Muscular Dystrophy, and Bone Marrow Aspiration.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required
    Paris, FR 

    Jean-marc Boisserie practices practicing medicine in Paris, France. Mr. Boisserie is rated as an Experienced expert by MediFind in the treatment of Dysferlinopathy. His clinical expertise encompasses Lactate Dehydrogenase Deficiency, Dysferlinopathy, Limb-Girdle Muscular Dystrophy, and Cramp-Fasciculation Syndrome.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required
    Paris, FR 

    Jon Urtizberea practices practicing medicine in Paris, France. Mr. Urtizberea is rated as an Experienced expert by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Limb-Girdle Muscular Dystrophy, Amyotonia Congenita, Myotonia Congenita, and Paramyotonia Congenita.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required
    Paris, FR 

    Julien Le Louer practices practicing medicine in Paris, France. Mr. Le Louer is rated as an Experienced expert by MediFind in the treatment of Dysferlinopathy. His clinical expertise encompasses Dysferlinopathy, Limb-Girdle Muscular Dystrophy, Cramp-Fasciculation Syndrome, and Duchenne Muscular Dystrophy.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required
    Evry, FR 

    Isabelle Richard practices practicing medicine in Evry, France. Ms. Richard is rated as an Experienced expert by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Limb-Girdle Muscular Dystrophy, Limb-Girdle Muscular Dystrophy Type 2I, Delta-Sarcoglycanopathy, and Duchenne Muscular Dystrophy.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required
    Paris, FR 

    Gillian Browne-Butler practices practicing medicine in Paris, France. Ms. Browne-Butler is rated as an Experienced expert by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Oculopharyngeal Muscular Dystrophy, Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, and Myositis.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required
    Marseille, FR 

    Shahram Attarian practices practicing medicine in Marseille, France. Mr. Attarian is rated as an Experienced expert by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Pompe Disease, Primary Lateral Sclerosis, Cramp-Fasciculation Syndrome, Guillain-Barre Syndrome, and Bone Marrow Aspiration.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required
    Paris, FR 

    Christophe Lamaze practices practicing medicine in Paris, France. Mr. Lamaze is rated as an Experienced expert by MediFind in the treatment of Dysferlinopathy. His clinical expertise encompasses Dysferlinopathy, Limb-Girdle Muscular Dystrophy, and Niemann-Pick Disease.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 54

    Last Updated: 11/08/2026

    What is the definition of Dysferlinopathy?

    The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

    When should I see a Dysferlinopathy doctor in France?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Dysferlinopathy doctor in France?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Dysferlinopathy doctor in France?

    You can find a Dysferlinopathy doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Dysferlinopathy doctors in France?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Dysferlinopathy doctors in France?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Dysferlinopathy doctor in France?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

    Why is it important to get a second opinion from a different Dysferlinopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Dysferlinopathy doctor in France?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Dysferlinopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Dysferlinopathy doctors in France?

    Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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