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    Last Updated: 10/30/2025

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    MediFind found 28 doctor with experience in Dysferlinopathy near Chicago, IL. Of these, 21 are Experienced and 7 are Advanced.

    Location
    LocationClose
    28 providers found
      Sam Fatoorehchi
      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Advocate Medical Group Primary Care

      Chicago, IL 
       (4.4 miles away)
      Languages Spoken:
      English

      Sam Fatoorehchi is a primary care provider, practicing in Family Medicine in Chicago, Illinois. Dr. Fatoorehchi is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Miyoshi Myopathy, Distal Myopathy 2, Oculopharyngeal Muscular Dystrophy, and Emery-Dreifuss Muscular Dystrophy.

      Leslie K. Rydberg
      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Medical Services Ric

      355 E Erie St, 
      Chicago, IL 
       (1.0 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Leslie Rydberg is a Physiatrist in Chicago, Illinois. Dr. Rydberg is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Paraplegia, Guillain-Barre Syndrome, Miller-Fisher Syndrome, and Cerebral Palsy.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Dysferlinopathy
      Pediatric Neurology | Neurology
      Advanced in Dysferlinopathy
      Pediatric Neurology | Neurology
      225 E Chicago Ave # 51, 
      Chicago, IL 
       (1.0 miles away)
      Languages Spoken:
      English

      Nancy Kuntz is a Pediatric Neurologist and a Neurologist in Chicago, Illinois. Dr. Kuntz is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Spinal Muscular Atrophy (SMA), Duchenne Muscular Dystrophy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Thymectomy.

      Learn about our expert tiers
      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy
      225 E Chicago Ave, 
      Chicago, IL 
       (1.1 miles away)
      Languages Spoken:
      English

      Abigail Schwaede is a Neurologist in Chicago, Illinois. Dr. Schwaede is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Spinal Muscular Atrophy Type 2, Dysferlinopathy, Spinal Muscular Atrophy with Arthrogryposis, and X-Linked Infantile Spinal Muscular Atrophy.

      Advanced in Dysferlinopathy
      Pediatric Neurology | Neurology
      Advanced in Dysferlinopathy
      Pediatric Neurology | Neurology
      225 E Chicago Ave, 
      Chicago, IL 
       (1.1 miles away)
      Languages Spoken:
      English

      Vamshi Rao is a Pediatric Neurologist and a Neurologist in Chicago, Illinois. Dr. Rao is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 1, and Thymectomy.

      Advanced in Dysferlinopathy
      Pediatric Neurology | Pediatrics | Neurology
      Advanced in Dysferlinopathy
      Pediatric Neurology | Pediatrics | Neurology

      Lurie Children's Medical Group Inc.

      225 E Chicago Ave, 
      Chicago, IL 
       (1.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Peter Heydemann is a Pediatric Neurologist and a Pediatrics provider in Chicago, Illinois. Dr. Heydemann is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Rett Syndrome, Congenital Toxoplasmosis, Primary Amebic Meningoencephalitis, and Duchenne Muscular Dystrophy. Dr. Heydemann is currently accepting new patients in some locations.

      Advanced in Dysferlinopathy
      Neurology
      Advanced in Dysferlinopathy
      Neurology

      Rush University Medical Group

      1700 W Van Buren St, 
      Chicago, IL 
       (2.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Rabia Malik is a Neurologist in Chicago, Illinois. Dr. Malik is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Myasthenia Gravis, Peripheral Neuropathy, Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy Type 3. Dr. Malik is currently accepting new patients.

      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy

      The Board Of Trustees Of The University Of Illinois

      912 S Wood St, 
      Chicago, IL 
       (2.2 miles away)
      Languages Spoken:
      English

      Charles Abrams is a Neurologist in Chicago, Illinois. Dr. Abrams is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Hereditary Spastic Paraparesis, Charcot-Marie-Tooth Disease, Monomelic Amyotrophy, and Pelizaeus-Merzbacher Disease.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy
      540 N Dearborn St, Unit 10161, 
      Chicago, IL 
       (0.6 miles away)
      Languages Spoken:
      English, Spanish
      Offers Telehealth

      Jason Freeman is a Physiatrist in Chicago, Illinois. Dr. Freeman is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Poliomyelitis, Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, and Spinal Muscular Atrophy (SMA).

      Experienced in Dysferlinopathy
      Internal Medicine
      Experienced in Dysferlinopathy
      Internal Medicine
      251 E Huron St, 
      Chicago, IL 
       (0.9 miles away)
      Languages Spoken:
      English

      Jason Katz is a primary care provider, practicing in Internal Medicine in Chicago, Illinois. Dr. Katz is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Miyoshi Myopathy, Dysferlinopathy, Cardiac Tamponade, and Status Epilepticus.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Medical Services Ric

      355 E Erie St, 
      Chicago, IL 
       (1.0 miles away)
      Languages Spoken:
      English

      James Sliwa is a Physiatrist in Chicago, Illinois. Dr. Sliwa is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Relapsing Multiple Sclerosis (RMS), Post Polio Syndrome, Poliomyelitis, and Foot Drop.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Medical Services Ric

      355 E Erie St, 
      Chicago, IL 
       (1.0 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Khushboo Doshi is a Physiatrist in Chicago, Illinois. Dr. Doshi is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Cerebral Palsy, Hemiplegia, Focal Dystonia, and Spastic Diplegia Infantile Type. Dr. Doshi is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Rush Medical Group

      Chicago, IL 
       (1.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Octavia Kincaid is a Neurologist in Chicago, Illinois. Dr. Kincaid is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Familial Dysautonomia, Myasthenia Gravis, Peripheral Neuropathy, and Spinal Muscular Atrophy (SMA). Dr. Kincaid is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Rush University Medical Group

      1620 W Harrison St, 
      Chicago, IL 
       (1.9 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Daniel Bunzol is a Physiatrist in Chicago, Illinois. Dr. Bunzol is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Paraplegia, Spinal and Bulbar Muscular Atrophy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Spinal Muscular Atrophy Type 3. Dr. Bunzol is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Rush University Medical Group

      1700 W Van Buren St, 
      Chicago, IL 
       (2.0 miles away)
      Languages Spoken:
      English, Hindi
      Accepting New Patients
      Offers Telehealth

      Madhu Soni is a Neurologist in Chicago, Illinois. Dr. Soni is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Peripheral Neuropathy, Myasthenia Gravis, Spinal Muscular Atrophy Type 3, and Spinal and Bulbar Muscular Atrophy. Dr. Soni is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Rush University Medical Group

      1653 W Congress Pkwy, 
      Chicago, IL 
       (2.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Ryan Jacobson is a Neurologist in Chicago, Illinois. Dr. Jacobson is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, Primary Lateral Sclerosis, and Gastrostomy. Dr. Jacobson is currently accepting new patients in some locations.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      The Board Of Trustees Of The University Of Illinois

      1801 W Taylor St, Suite 2, 
      Chicago, IL 
       (2.2 miles away)
      Languages Spoken:
      English

      Diana Mnatsakanova is a Neurologist in Chicago, Illinois. Dr. Mnatsakanova is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Myasthenia Gravis, Multifocal Motor Neuropathy, Primary Lateral Sclerosis, and Chronic Inflammatory Demyelinating Polyneuropathy.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Medplus, S.C.

      2233 W Division St, 
      Chicago, IL 
       (3.0 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Amado Rueda is a primary care provider, practicing in Family Medicine in Chicago, Illinois. Dr. Rueda is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Maturity Onset Diabetes of the Young, Type 2 Diabetes (T2D), Erectile Dysfunction (ED), and Persistent Genital Arousal Disorder. Dr. Rueda is currently accepting new patients.

      Experienced in Dysferlinopathy
      Internal Medicine
      Experienced in Dysferlinopathy
      Internal Medicine

      Presence Healthcare Services

      2900 N Lake Shore Dr, 
      Chicago, IL 
       (3.5 miles away)
      Languages Spoken:
      English, Filipino, Spanish, Urdu
      Accepting New Patients
      Offers Telehealth

      Alam Khan is a primary care provider, practicing in Internal Medicine in Chicago, Illinois. Dr. Khan is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are End-Stage Renal Disease (ESRD), Generalized Tonic-Clonic Seizure, Type 2 Diabetes (T2D), Gastrostomy, and Ureteroscopy. Dr. Khan is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      The University Of Chicago

      5841 S Maryland Ave, 
      Chicago, IL 
       (6.7 miles away)
      Languages Spoken:
      English, Filipino
      Accepting New Patients
      Offers Telehealth

      Betty Soliven is a Neurologist in Chicago, Illinois. Dr. Soliven is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Myasthenia Gravis, Spinal Muscular Atrophy (SMA), Chronic Inflammatory Demyelinating Polyneuropathy, Thymectomy, and Gastrostomy. Dr. Soliven is currently accepting new patients.

      Showing 1-20 of 28

      Last Updated: 10/30/2025

      What is the definition of Dysferlinopathy?

      The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

      When should I see a Dysferlinopathy doctor near Chicago, IL?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dysferlinopathy doctor near Chicago, IL?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dysferlinopathy doctors near Chicago, IL?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dysferlinopathy doctors near Chicago, IL?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dysferlinopathy doctor near Chicago, IL?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

      Why is it important to get a second opinion from a different Dysferlinopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dysferlinopathy doctor near Chicago, IL?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dysferlinopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dysferlinopathy doctors near Chicago, IL?

      Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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