The 20 Best Dysferlinopathy Doctors Near Me in Chicago, IL

Find the Top Dysferlinopathy Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 27 doctor with experience in Dysferlinopathy near Chicago, IL. Of these, 21 are Experienced and 6 are Advanced.

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27 providers found
    Experienced in Dysferlinopathy
    Family Medicine
    Experienced in Dysferlinopathy
    Family Medicine

    Advocate Medical Group Primary Care

    Chicago, IL 
     (4.4 miles away)
    Languages Spoken:
    English

    Sam Fatoorehchi is a primary care provider, practicing in Family Medicine in Chicago, Illinois. Dr. Fatoorehchi is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Walker-Warburg Syndrome, Distal Myopathy 2, Delta-Sarcoglycanopathy, and Emery-Dreifuss Muscular Dystrophy. Dr. Fatoorehchi is board certified in American Board Of Family Medicine.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    University Of Illinois Chicago Physician Group (Uicpg)

    1801 W Taylor St, 
    Chicago, IL 
     (2.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Diana Mnatsakanova is a Neurologist practicing medicine in Chicago, Illinois. Dr. Mnatsakanova is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Myasthenia Gravis, Multifocal Motor Neuropathy, Primary Lateral Sclerosis, and Chronic Inflammatory Demyelinating Polyneuropathy.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    Shirley Ryan Ability Lab

    355 E Erie St, 
    Chicago, IL 
     (1.0 miles away)
    Languages Spoken:
    English

    Leslie Rydberg is a Physiatrist practicing medicine in Chicago, Illinois. Dr. Rydberg is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Paraplegia, Guillain-Barre Syndrome, Miller-Fisher Syndrome, and Cerebral Palsy.

    Learn about our expert tiers
    Advanced in Dysferlinopathy
    Neuromusculoskeletal Medicine
    Advanced in Dysferlinopathy
    Neuromusculoskeletal Medicine

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    Languages Spoken:
    English

    Abigail Schwaede is a Neuromusculoskeletal Medicine provider practicing medicine in Chicago, Illinois. Dr. Schwaede is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 30 other conditions, according to our data. Her clinical expertise encompasses Spinal Muscular Atrophy Type 2, Dysferlinopathy, X-Linked Infantile Spinal Muscular Atrophy, and Spinal Muscular Atrophy with Arthrogryposis.

    Advanced in Dysferlinopathy
    Neuromusculoskeletal Medicine
    Advanced in Dysferlinopathy
    Neuromusculoskeletal Medicine

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    Languages Spoken:
    English

    Vamshi Rao is a Neuromusculoskeletal Medicine provider practicing medicine in Chicago, Illinois. Dr. Rao is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Spinal Muscular Atrophy (SMA), Spinal Muscular Atrophy Type 1, and Thymectomy.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy

    University Of Illinois Chicago Physician Group (Uicpg)

    1801 W Taylor St, 
    Chicago, IL 
     (2.2 miles away)
    Languages Spoken:
    English

    Charles Abrams is a Neurologist practicing medicine in Chicago, Illinois. Dr. Abrams is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 24 other conditions, according to our data. His clinical expertise encompasses Hereditary Spastic Paraparesis, Charcot-Marie-Tooth Disease, Monomelic Amyotrophy, and Pelizaeus-Merzbacher Disease.

    Advanced in Dysferlinopathy
    Pediatric Neurology
    Advanced in Dysferlinopathy
    Pediatric Neurology

    Office

    1725 W Harrison St Ste 718, 
    Chicago, IL 
     (2.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Peter Heydemann is a Pediatric Neurologist practicing medicine in Chicago, Illinois. Dr. Heydemann is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Rett Syndrome, Congenital Toxoplasmosis, Primary Amebic Meningoencephalitis, and Duchenne Muscular Dystrophy.

    Advanced in Dysferlinopathy
    Neurology
    Advanced in Dysferlinopathy
    Neurology

    Office

    1725 W Harrison St Ste 1118, 
    Chicago, IL 
     (2.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Rabia Malik is a Neurologist practicing medicine in Chicago, Illinois. Dr. Malik is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 29 other conditions, according to our data. Her clinical expertise encompasses Myasthenia Gravis, Peripheral Neuropathy, Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy Type 3.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    Northwestern Memorial Hospital

    251 E Huron St, 
    Chicago, IL 
     (0.9 miles away)
    Languages Spoken:
    English

    Jason Katz is a primary care provider, practicing in Internal Medicine in Chicago, Illinois. Dr. Katz is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His clinical expertise encompasses Miyoshi Myopathy, Dysferlinopathy, Cardiac Tamponade, and Rhabdomyolysis.

    Experienced in Dysferlinopathy
    Physiatry
    Experienced in Dysferlinopathy
    Physiatry

    Shirley Ryan Ability Lab

    355 E Erie St, 
    Chicago, IL 
     (1.0 miles away)
    Languages Spoken:
    English

    James Sliwa is a Physiatrist practicing medicine in Chicago, Illinois. Dr. Sliwa is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Relapsing Multiple Sclerosis (RMS), Post Polio Syndrome, Poliomyelitis, and Foot Drop.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    Shirley Ryan Ability Lab

    355 E Erie St, 
    Chicago, IL 
     (1.0 miles away)
    Languages Spoken:
    English

    Khushboo Doshi is a Physiatrist practicing medicine in Chicago, Illinois. Dr. Doshi is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Hemiplegia, Focal Dystonia, and Spastic Diplegia Infantile Type.

    Experienced in Dysferlinopathy
    Sleep Medicine
    Experienced in Dysferlinopathy
    Sleep Medicine

    Ann & Robert H. Lurie Children's Hospital Of Chicago

    225 E Chicago Ave, 
    Chicago, IL 
     (1.1 miles away)
    Languages Spoken:
    English

    Ilya Khaytin is a Sleep Medicine provider practicing medicine in Chicago, Illinois. Dr. Khaytin is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Obstructive Sleep Apnea, Insomnia, Neural Crest Tumor, and Down Syndrome.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    Rush MD Anderson Cancer Center Urgent Care

    1520 W Harrison St Fl 7, 
    Chicago, IL 
     (1.1 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Ryan Jacobson is a Neurologist practicing medicine in Chicago, Illinois. Dr. Jacobson is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, Primary Lateral Sclerosis, and Gastrostomy.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    Office

    540 N Dearborn St Unit 10161, 
    Chicago, IL 
     (1.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Jason Freeman is a Physiatrist practicing medicine in Chicago, Illinois. Dr. Freeman is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Poliomyelitis, Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, and Spinal Muscular Atrophy (SMA).

    Experienced in Dysferlinopathy
    Neurology
    Experienced in Dysferlinopathy
    Neurology

    Office

    1725 W Harrison St Ste 1106, 
    Chicago, IL 
     (2.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Madhu Soni is a Neurologist practicing medicine in Chicago, Illinois. Dr. Soni is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Peripheral Neuropathy, Myasthenia Gravis, Spinal Muscular Atrophy Type 3, and Spinal and Bulbar Muscular Atrophy.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    Office

    1725 W Harrison St Ste 118, 
    Chicago, IL 
     (2.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Daniel Bunzol is a Physiatrist practicing medicine in Chicago, Illinois. Dr. Bunzol is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Paraplegia, Spinal and Bulbar Muscular Atrophy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Spinal Muscular Atrophy Type 3.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    Ascension Medical Group-Primary Care

    331 W Surf St Ste 711, 
    Chicago, IL 
     (4.0 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Alam Khan is a primary care provider, practicing in Internal Medicine in Chicago, Illinois. Dr. Khan is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses End-Stage Renal Disease (ESRD), Generalized Tonic-Clonic Seizure, Type 2 Diabetes (T2D), Gastrostomy, and Ureteroscopy.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    University Of Chicago Medical Center

    5841 S Maryland Ave, 
    Chicago, IL 
     (6.7 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Helene Rubeiz is a Neurologist practicing medicine in Chicago, Illinois. Dr. Rubeiz is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Acute Flaccid Myelitis (AFM), Headache, Peripheral Neuropathy, and Migraine.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy

    Shriners Hospitals For Children-Chicago

    2211 N Oak Park Ave, 
    Chicago, IL 
     (8.7 miles away)
    Languages Spoken:
    English

    Shubhra Mukherjee is a Pediatrics provider practicing medicine in Chicago, Illinois. Dr. Mukherjee is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 22 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Spastic Diplegia Infantile Type, Moebius Syndrome, HNRNPH2-Related Disorder, and Lithotripsy.

    Experienced in Dysferlinopathy
    Neurology | Community Health Worker
    Experienced in Dysferlinopathy
    Neurology | Community Health Worker

    Endeavor Health Medical Group

    1000 Central St., Suite 880, 
    Evanston, IL 
     (12.8 miles away)
    Languages Spoken:
    English, Arabic, French

    Afif Hentati, MD, a neurologist at Endeavor Health, specializes in diagnosing and managing complex neurological conditions, with a focus on multiple sclerosis. He blends deep clinical experience with ongoing research to improve patient outcomes and expand treatment options. Dr. Hentati values careful listening, clear communication and personalized care, helping patients feel confident and supported throughout their journey. Dr. Hentati is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Migraine, and Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease. Dr. Hentati is board certified in American Board Of Psychiatry And Neurology.

    Showing 1-20 of 27

    Last Updated: 04/28/2026

    What is the definition of Dysferlinopathy?

    The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

    When should I see a Dysferlinopathy doctor near Chicago, IL?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Dysferlinopathy doctor near Chicago, IL?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Dysferlinopathy doctors near Chicago, IL?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Dysferlinopathy doctors near Chicago, IL?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Dysferlinopathy doctor near Chicago, IL?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

    Why is it important to get a second opinion from a different Dysferlinopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Dysferlinopathy doctor near Chicago, IL?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Dysferlinopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Dysferlinopathy doctors near Chicago, IL?

    Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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