The 20 Best Dysferlinopathy Doctors Near Me in Phoenix, AZ

Find the Top Dysferlinopathy Experts and Specialists

The 20 Best Dysferlinopathy Doctors near Phoenix, AZ

Last Updated: 02/22/2026

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MediFind found 16 doctor with experience in Dysferlinopathy near Phoenix, AZ. Of these, 13 are Experienced, 2 are Advanced and 1 are Distinguished.

Location
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16 providers found
    Erik L. Ortega
    Distinguished in Dysferlinopathy
    Neuromusculoskeletal Medicine | Neurology
    Distinguished in Dysferlinopathy
    Neuromusculoskeletal Medicine | Neurology

    Barrow Neuromuscular, MS, MDA, Neuro Ophthalmology

    240 W Thomas Rd, Ste 400, 
    Phoenix, AZ 
     (2.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    My mission, along with the St. Joseph Medical Group, is to focus on innovative clinical care and the pursuit of excellence through scholarly activities. This allows me to provide patients with state-of-the-art patient services and exceptional patient experiences. Dr. Ortega is rated as a Distinguished provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Myasthenia Gravis, Chronic Polyradiculoneuritis, Dysferlinopathy, and Guillain-Barre Syndrome.

    Shafeeq S. Ladha
    Experienced in Dysferlinopathy
    Neuromusculoskeletal Medicine | Neurology
    Experienced in Dysferlinopathy
    Neuromusculoskeletal Medicine | Neurology

    Barrow Neuromuscular, MS, MDA, Neuro Ophthalmology

    240 W Thomas Rd, Ste 400, 
    Phoenix, AZ 
     (2.3 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    My mission, along with the St. Joseph Medical Group, is to focus on innovative clinical care and the pursuit of excellence through scholarly activities. This allows me to provide patients with state-of-the-art patient services and exceptional patient experiences. Dr. Ladha is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Pompe Disease, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, and Spinal Muscular Atrophy (SMA).

    Kerry L. Knievel
    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    Lewis Headache Center

    240 West Thomas Rd, Suite 400, 
    Phoenix, AZ 
     (4.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    My mission, along with the St. Joseph Medical Group, is to focus on innovative clinical care and the pursuit of excellence through scholarly activities. This allows me to provide patients with state-of-the-art patient services and exceptional patient experiences. Dr. Knievel is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Migraine, Headache, Neuralgia, Meningitis, and Gastrostomy.

    Learn about our expert tiers
    Advanced in Dysferlinopathy
    Pediatric Neurology
    Advanced in Dysferlinopathy
    Pediatric Neurology

    Phoenix Children's

    1919 E Thomas Rd, 
    Phoenix, AZ 
     (2.8 miles away)
    Languages Spoken:
    English

    Saunder Bernes is a Pediatric Neurologist in Phoenix, Arizona. Dr. Bernes is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Duchenne Muscular Dystrophy, Dysferlinopathy, Spinal Muscular Atrophy Type 2, and Aphantasia.

    Experienced in Dysferlinopathy
    Pediatric Neurology
    Experienced in Dysferlinopathy
    Pediatric Neurology

    Phoenix Children's

    1919 E Thomas Rd, 
    Phoenix, AZ 
     (2.8 miles away)
    Languages Spoken:
    English

    Clara Chow is a Pediatric Neurologist in Phoenix, Arizona. Dr. Chow is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Duchenne Muscular Dystrophy, Dysferlinopathy, Athetosis, and GAPO Syndrome.

    Experienced in Dysferlinopathy
    Pediatrics
    Experienced in Dysferlinopathy
    Pediatrics

    Phoenix Children's

    1919 E Thomas Rd, 
    Phoenix, AZ 
     (2.8 miles away)
    Languages Spoken:
    English

    Ray Stanford is a Pediatrics provider in Phoenix, Arizona. Dr. Stanford is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Cerebral Palsy, Moebius Syndrome, Spastic Diplegia Infantile Type, and Focal Dystonia.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    Donald E Paxton MD LLC

    202 E Earll Dr Ste 450, 
    Phoenix, AZ 
     (4.1 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Donald Paxton is a primary care provider, practicing in Internal Medicine in Phoenix, Arizona. Dr. Paxton is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Epidural Lipomatosis, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension.

    Kumaraswamy Sivakumar
    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy

    Neuromuscular Research Center

    4545 E Shea Blvd, Ste 175, 
    Phoenix, AZ 
     (10.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Kumaraswamy Sivakumar is a Neurologist in Phoenix, Arizona. Dr. Sivakumar is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Inclusion Body Myositis, Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, and Pompe Disease. Dr. Sivakumar is currently accepting new patients.

    Experienced in Dysferlinopathy
    Neurology
    Experienced in Dysferlinopathy
    Neurology

    Scottsdale Clinic PLLC

    7242 E Osborn Rd, 
    Scottsdale, AZ 
     (9.4 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Todd Levine is a Neurologist in Scottsdale, Arizona. Dr. Levine is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Dermatomyositis.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    Im Specialists

    2737 W Baseline Rd Ste 24, 
    Tempe, AZ 
     (10.0 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Rashda Kaif is a primary care provider, practicing in Internal Medicine in Tempe, Arizona. Dr. Kaif is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Type 2 Diabetes (T2D), Osteomyelitis in Children, High Cholesterol, and Nasal Flaring. Dr. Kaif is currently accepting new patients.

    Experienced in Dysferlinopathy
    Neurology
    Experienced in Dysferlinopathy
    Neurology

    East Valley Medical Associates PLC

    2201 W Fairview St Ste 1, 
    Chandler, AZ 
     (14.1 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Andrea An is a Neurologist in Chandler, Arizona. Dr. An is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Memory Loss, Migraine, Generalized Tonic-Clonic Seizure, and Seizures.

    Experienced in Dysferlinopathy
    Family Medicine
    Experienced in Dysferlinopathy
    Family Medicine

    HonorHealth Medical Group LLC

    18404 N Tatum Blvd Ste 101, 
    Phoenix, AZ 
     (12.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Ghazal Mostajabian is a primary care provider, practicing in Family Medicine in Phoenix, Arizona. Dr. Mostajabian is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Alzheimer's Disease, Glucocorticoid-Remediable Aldosteronism, Hypertension, and Familial Hypertension.

    Experienced in Dysferlinopathy
    Family Medicine
    Experienced in Dysferlinopathy
    Family Medicine

    Office

    10117 N 92nd St Ste 101, 
    Scottsdale, AZ 
     (13.0 miles away)
    Languages Spoken:
    English

    Joseph Rotella is a primary care provider, practicing in Family Medicine in Scottsdale, Arizona. Dr. Rotella is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Opisthotonos, Muscle Spasms, Obesity in Children, and Hypothyroidism.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    Westview Family Medicine

    13065 W McDowell Rd Ste A105, 
    Avondale, AZ 
     (13.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Maria Asuncion is a primary care provider, practicing in Internal Medicine in Avondale, Arizona. Dr. Asuncion is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are COVID-19, Multisystem Inflammatory Syndrome in Children (MIS-C), High Cholesterol, and Familial Combined Hyperlipidemia. Dr. Asuncion is currently accepting new patients.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy

    Phoenix Neurological Institute

    40 S Kyrene Rd Ste 3, 
    Chandler, AZ 
     (14.0 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Brandon Woods is a Neurologist in Chandler, Arizona. Dr. Woods is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Migraine, Memory Loss, Epilepsy, and Seizures.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    East Valley Family Medical

    1343 N Alma School Rd Ste 205, 
    Chandler, AZ 
     (14.1 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Mathew Benjamin is a primary care provider, practicing in Internal Medicine in Chandler, Arizona. Dr. Benjamin is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are High Cholesterol, Insomnia, Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Benjamin is currently accepting new patients.

    Showing 1-16 of 16

    Last Updated: 02/22/2026

    What is the definition of Dysferlinopathy?

    The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

    When should I see a Dysferlinopathy doctor near Phoenix, AZ?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Dysferlinopathy doctor near Phoenix, AZ?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Dysferlinopathy doctors near Phoenix, AZ?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Dysferlinopathy doctors near Phoenix, AZ?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Dysferlinopathy doctor near Phoenix, AZ?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

    Why is it important to get a second opinion from a different Dysferlinopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Dysferlinopathy doctor near Phoenix, AZ?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Dysferlinopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Dysferlinopathy doctors near Phoenix, AZ?

    Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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