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    Last Updated: 10/30/2025

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    MediFind found 20 doctor with experience in Dysferlinopathy near Phoenix, AZ. Of these, 17 are Experienced, 2 are Advanced and 1 are Distinguished.

    Location
    LocationClose
    20 providers found
      Distinguished in Dysferlinopathy
      Distinguished in Dysferlinopathy

      Sjhmc Physician Services

      500 W Thomas Rd, 680 Dhmg St Joseph's Pelvi, 
      Phoenix, AZ 
       (2.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Erik Ortega is a Neurologist in Phoenix, Arizona. Dr. Ortega is rated as a Distinguished provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Myasthenia Gravis, Chronic Polyradiculoneuritis, Dysferlinopathy, and Guillain-Barre Syndrome. Dr. Ortega is currently accepting new patients.

      Advanced in Dysferlinopathy
      Pediatric Neurology | Pediatrics | Neurology
      Advanced in Dysferlinopathy
      Pediatric Neurology | Pediatrics | Neurology

      Phoenix Children's Hospital

      1919 E Thomas Rd, 
      Phoenix, AZ 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Saunder Bernes is a Pediatric Neurologist and a Pediatrics provider in Phoenix, Arizona. Dr. Bernes is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Duchenne Muscular Dystrophy, Dysferlinopathy, Spinal Muscular Atrophy Type 2, Aphantasia, and Thymectomy. Dr. Bernes is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      M Zuhdi Jasser MD PC

      1010 E Mcdowell Rd, Suite 300, 
      Phoenix, AZ 
       (1.4 miles away)
      Languages Spoken:
      English, Farsi
      Accepting New Patients
      Offers Telehealth

      Omid Dilmaghanian is a primary care provider, practicing in Family Medicine in Phoenix, Arizona. Dr. Dilmaghanian is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Multisystem Inflammatory Syndrome in Children (MIS-C), COVID-19, Pneumonia, Swallowing Difficulty, and Gastrostomy. Dr. Dilmaghanian is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Sjhmc Physician Services

      500 W Thomas Rd, 680 Dhmg St Joseph's Pelvi, 
      Phoenix, AZ 
       (2.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Shafeeq Ladha is a Neurologist in Phoenix, Arizona. Dr. Ladha is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Pompe Disease, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, and Spinal Muscular Atrophy (SMA). Dr. Ladha is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Sjhmc Physician Services

      500 W Thomas Rd, 680 Dhmg St Joseph's Pelvi, 
      Phoenix, AZ 
       (2.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kerry Knievel is a Neurologist in Phoenix, Arizona. Dr. Knievel is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Migraine, Headache, Neuralgia, Meningitis, and Gastrostomy. Dr. Knievel is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Sjhmc Physician Services

      500 W Thomas Rd, 680 Dhmg St Joseph's Pelvi, 
      Phoenix, AZ 
       (2.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Timothy Fullam is a Neurologist in Phoenix, Arizona. Dr. Fullam is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Potassium-Aggravated Myotonia, Myotonic Dystrophy, and Gastrostomy. Dr. Fullam is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Livi Medical Services LLC

      3030 N Central Ave, Suite 1200, 
      Phoenix, AZ 
       (2.3 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jordi Livi is a primary care provider, practicing in Family Medicine in Phoenix, Arizona. Dr. Livi is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Hypertension, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Dementia. Dr. Livi is currently accepting new patients.

      Experienced in Dysferlinopathy
      Internal Medicine
      Experienced in Dysferlinopathy
      Internal Medicine

      Donald E Paxton MD LLC

      202 E Earll Dr, Suite 450, 
      Phoenix, AZ 
       (2.5 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Donald Paxton is a primary care provider, practicing in Internal Medicine in Phoenix, Arizona. Dr. Paxton is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Epidural Lipomatosis, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Hypertension. Dr. Paxton is currently accepting new patients.

      Experienced in Dysferlinopathy
      Physiatry | Pediatrics
      Experienced in Dysferlinopathy
      Physiatry | Pediatrics
      1919 E Thomas Rd, 
      Phoenix, AZ 
       (2.8 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Laura Wilner is a Physiatrist and a Pediatrics provider in Phoenix, Arizona. Dr. Wilner is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Cerebral Palsy, Focal Dystonia, Moebius Syndrome, and Spastic Diplegia Infantile Type. Dr. Wilner is currently accepting new patients.

      Experienced in Dysferlinopathy
      Pediatric Neurology | Neurology
      Experienced in Dysferlinopathy
      Pediatric Neurology | Neurology

      Phoenix Children's Hospital

      1919 E Thomas Rd, 
      Phoenix, AZ 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Clara Chow-Haws is a Pediatric Neurologist and a Neurologist in Phoenix, Arizona. Dr. Chow-Haws is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Duchenne Muscular Dystrophy, Dysferlinopathy, Athetosis, and GAPO Syndrome. Dr. Chow-Haws is currently accepting new patients.

      Experienced in Dysferlinopathy
      Pediatric Neurology | Neurology
      Experienced in Dysferlinopathy
      Pediatric Neurology | Neurology
      1919 E Thomas Rd, 
      Phoenix, AZ 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Stephanie Manberg is a Pediatric Neurologist and a Neurologist in Phoenix, Arizona. Dr. Manberg is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Primary Lateral Sclerosis, Spastic Paraplegia-Epilepsy-Intellectual Disability Syndrome, Spastic Paraplegia Type 5A, and Spastic Paraplegia Type 7. Dr. Manberg is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Phoenix Children's Hospital

      1919 E Thomas Rd, 
      Phoenix, AZ 
       (2.8 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Ray Stanford is a Physiatrist in Phoenix, Arizona. Dr. Stanford is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Cerebral Palsy, Moebius Syndrome, Spastic Diplegia Infantile Type, and Focal Dystonia. Dr. Stanford is currently accepting new patients.

      Todd D. Levine
      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      HonorHealth Neurology - Bob Bové Neuroscience Institute

      7242 E. Osborn Rd, Suite 400, 
      Scottsdale, AZ 
       (9.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Todd Levine is a Neurologist in Scottsdale, Arizona. Dr. Levine is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Dermatomyositis. Dr. Levine is currently accepting new patients.

      Experienced in Dysferlinopathy
      Internal Medicine
      Experienced in Dysferlinopathy
      Internal Medicine
      2737 W Baseline Rd, Suite 24, 
      Tempe, AZ 
       (7.4 miles away)
      Languages Spoken:
      English, Hindi, Punjabi, Spanish, Urdu
      Accepting New Patients
      Offers Telehealth

      Rashda Kaif is a primary care provider, practicing in Internal Medicine in Tempe, Arizona. Dr. Kaif is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Type 2 Diabetes (T2D), Osteomyelitis in Children, High Cholesterol, and Nasal Flaring. Dr. Kaif is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Nextcare Arizona I Jv LLC

      914 N Scottsdale Rd, Suite 104, 
      Tempe, AZ 
       (9.7 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Kim Miller is a primary care provider, practicing in Family Medicine in Tempe, Arizona. Dr. Miller is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Viral Gastroenteritis, Tracheitis, Colitis, and Acute Cystitis.

      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy

      Bhsm Rehabilitation LLC

      5605 W Eugie Ave, Suite 212and215, 
      Glendale, AZ 
       (12.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kumaraswamy Sivakumar is a Neurologist in Glendale, Arizona. Dr. Sivakumar is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Inclusion Body Myositis, Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, and Pompe Disease. Dr. Sivakumar is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine
      18404 N Tatum Blvd Ste 101, 
      Phoenix, AZ 
       (12.9 miles away)
      Languages Spoken:
      English, Farsi, Spanish
      Accepting New Patients
      Offers Telehealth

      Ghazal Ali is a primary care provider, practicing in Family Medicine in Phoenix, Arizona. Dr. Ali is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Alzheimer's Disease, Hypertension, Familial Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Ali is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine
      10117 N 92nd St Ste 101, 
      Scottsdale, AZ 
       (13.0 miles away)
      Languages Spoken:
      English

      Joseph Rotella is a primary care provider, practicing in Family Medicine in Scottsdale, Arizona. Dr. Rotella is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Opisthotonos, Muscle Spasms, Obesity in Children, and Hypothyroidism.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Phoenix Neurological Institute, Inc

      1343 N Alma School Rd, Suite 125 135 295, 
      Chandler, AZ 
       (15.0 miles away)
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Brandon Woods is a Neurologist in Chandler, Arizona. Dr. Woods is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Migraine, Memory Loss, Epilepsy, and Seizures. Dr. Woods is currently accepting new patients.

      Experienced in Dysferlinopathy
      Internal Medicine
      Experienced in Dysferlinopathy
      Internal Medicine

      Phoenician Medical Center Inc

      1343 N Alma School Rd, Suite 205, 
      Chandler, AZ 
       (15.0 miles away)
      Languages Spoken:
      English, Malayalam, Spanish
      Accepting New Patients
      Offers Telehealth

      Mathew Benjamin is a primary care provider, practicing in Internal Medicine in Chandler, Arizona. Dr. Benjamin is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are High Cholesterol, Insomnia, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension. Dr. Benjamin is currently accepting new patients.

      Showing 1-20 of 20

      Last Updated: 10/30/2025

      What is the definition of Dysferlinopathy?

      The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

      When should I see a Dysferlinopathy doctor near Phoenix, AZ?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dysferlinopathy doctor near Phoenix, AZ?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dysferlinopathy doctors near Phoenix, AZ?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dysferlinopathy doctors near Phoenix, AZ?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dysferlinopathy doctor near Phoenix, AZ?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

      Why is it important to get a second opinion from a different Dysferlinopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dysferlinopathy doctor near Phoenix, AZ?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dysferlinopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dysferlinopathy doctors near Phoenix, AZ?

      Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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