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    Last Updated: 01/09/2026

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    MediFind found 11 doctor with experience in Dysferlinopathy near Poitou-Charentes, FR. Of these, 8 are Experienced, 2 are Advanced and 1 are Distinguished.

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    11 providers found
      Distinguished in Dysferlinopathy
      Distinguished in Dysferlinopathy
      Marseille, FR 

      Nicolas Levy practices in Marseille, France. Mr. Levy is rated as a Distinguished expert by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Progeria, Miyoshi Myopathy, Mandibuloacral Dysplasia, Acrorenal Mandibular Syndrome, and Gamma Knife Radiosurgery.

      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy
      Marseille, FR 

      Sebastien Courrier practices in Marseille, France. Mr. Courrier is rated as an Advanced expert by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Dysferlinopathy, Limb-Girdle Muscular Dystrophy, and Duchenne Muscular Dystrophy.

      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy
      Marseille, FR 

      Svetlana Gorokhova practices in Marseille, France. Ms. Gorokhova is rated as an Advanced expert by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Coffin-Siris Syndrome, Micrognathia, Limb-Girdle Muscular Dystrophy, and Miller Syndrome.

      Learn about our expert tiers
      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy
      Marseille, FR 

      David Bendahan practices in Marseille, France. Mr. Bendahan is rated as an Experienced expert by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Nemaline Myopathy, Cramp-Fasciculation Syndrome, Tubular Aggregate Myopathy, and X-Linked Myotubular Myopathy.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy
      Marseille, FR 

      Shahram Attarian practices in Marseille, France. Mr. Attarian is rated as an Experienced expert by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Pompe Disease, Primary Lateral Sclerosis, Guillain-Barre Syndrome, Bone Marrow Aspiration, and Heart Transplant.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy
      Marseille, FR 

      Christophe Pecheux practices in Marseille, France. Mr. Pecheux is rated as an Experienced expert by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Limb-Girdle Muscular Dystrophy and Dysferlinopathy.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy
      Marseille, FR 

      Theo Charnay practices in Marseille, France. Charnay is rated as an Experienced expert by MediFind in the treatment of Dysferlinopathy. Their top areas of expertise are Metastatic Insulinoma, Isolated ACTH Deficiency, Dysferlinopathy, and Carney Complex.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy
      Toulon, FR 

      Florence Riccardi practices in Toulon, France. Ms. Riccardi is rated as an Experienced expert by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Early Infantile Epileptic Encephalopathy, West Syndrome, KBG Syndrome, and Epilepsy in Children.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy
      Marseille, FR 

      Nathalie Palot-Bonello practices in Marseille, France. Ms. Palot-Bonello is rated as an Experienced expert by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Hereditary Sensory Neuropathy Type 1 (HSN1), Anhidrosis, Hereditary Sensory and Autonomic Neuropathy Type 2, and Hajdu-Cheney Syndrome.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy
      Marseille, FR 

      Karine Nguyen practices in Marseille, France. Ms. Nguyen is rated as an Experienced expert by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Bosma Arhinia Microphthalmia Syndrome, Choanal Atresia, Familial Hypertrophic Cardiomyopathy, and Heart Transplant.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy
      Marseille, FR 

      Yann Le Fur practices in Marseille, France. Mr. Le Fur is rated as an Experienced expert by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Nemaline Myopathy, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Congenital Fiber-Type Disproportion.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-11 of 11

      Last Updated: 01/09/2026

      What is the definition of Dysferlinopathy?

      The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

      When should I see a Dysferlinopathy doctor in Poitou-Charentes, FR?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dysferlinopathy doctor in Poitou-Charentes, FR?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dysferlinopathy doctors in Poitou-Charentes, FR?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dysferlinopathy doctors in Poitou-Charentes, FR?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dysferlinopathy doctor in Poitou-Charentes, FR?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

      Why is it important to get a second opinion from a different Dysferlinopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dysferlinopathy doctor in Poitou-Charentes, FR?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dysferlinopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dysferlinopathy doctors in Poitou-Charentes, FR?

      Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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