The 20 Best Dysferlinopathy Doctors Near Me in evanston, IL

Find the Top Dysferlinopathy Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 21 doctor with experience in Dysferlinopathy near evanston, IL. Of these, 19 are Experienced and 2 are Advanced.

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21 providers found
    Experienced in Dysferlinopathy
    Family Medicine
    Experienced in Dysferlinopathy
    Family Medicine

    Advocate Medical Group Primary Care

    Chicago, IL 
     (9.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Sam Fatoorehchi is a primary care provider, practicing in Family Medicine in Chicago, Illinois. Dr. Fatoorehchi is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Walker-Warburg Syndrome, Fukuyama Type Muscular Dystrophy, Oculopharyngeal Muscular Dystrophy, and X-Linked Dominant Scapuloperoneal Myopathy. Dr. Fatoorehchi is board certified in American Board Of Family Medicine. Dr. Fatoorehchi is currently accepting new patients.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required
    2701 Patriot Blvd, 
    Glenview, IL 
     (7.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Charulatha Nagar is a Neurologist practicing medicine in Glenview, Illinois. Dr. Nagar is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 18 other conditions, according to our data. Her clinical expertise encompasses Glycogen Storage Disease Type 13, Glycogen Storage Disease Type 7, Adult Polyglucosan Body Disease, and Andersen Disease. Dr. Nagar is board certified in American Board Of Psychiatry And Neurology - Neurology (Certified). Dr. Nagar is currently accepting new patients.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    Endeavor Health Medical Group

    1000 Central St., Suite 880, 
    Evanston, IL 
     (0.5 miles away)
    Languages Spoken:
    English, Arabic, French, Louisiana Creole French
    Accepting New Patients
    Offers Telehealth

    Afif Hentati is a Neurologist practicing medicine in Evanston, Illinois. Dr. Hentati is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 43 other conditions, according to our data. His clinical expertise encompasses Multiple Sclerosis (MS), Relapsing Multiple Sclerosis (RMS), Migraine, and Myelin Oligodendrocyte Glycoprotein Antibody-Associated Disease. Dr. Hentati is board certified in American Board Of Psychiatry And Neurology. Dr. Hentati is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    Forward Focus Concierge Medicine

    1622 Willow Rd., Suite 101, 
    Northfield, IL 
     (4.9 miles away)
    Languages Spoken:
    English

    Steven Wolfman is a primary care provider, practicing in Internal Medicine in Northfield, Illinois. Dr. Wolfman is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Hypertrophic Cardiomyopathy (HCM), Subvalvular Aortic Stenosis, Type 2 Diabetes (T2D), and Glucocorticoid-Remediable Aldosteronism. Dr. Wolfman is board certified in American Board Of Internal Medicine.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    Northshore Integrated Pain Center-Evanston

    1000 Central St Ste 880, 
    Evanston, IL 
     (0.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Megan Shanks is a Neurologist practicing medicine in Evanston, Illinois. Dr. Shanks is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 27 other conditions, according to our data. Her clinical expertise encompasses Peripheral Neuropathy, Foot Drop, Dysgraphia, and Myasthenia Gravis. Dr. Shanks is currently accepting new patients.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    Northshore Integrated Pain Center-Evanston

    1000 Central St Ste 880, 
    Evanston, IL 
     (0.5 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Octavia Kincaid is a Neurologist practicing medicine in Evanston, Illinois. Dr. Kincaid is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 40 other conditions, according to our data. Her clinical expertise encompasses Familial Dysautonomia, Myasthenia Gravis, Peripheral Neuropathy, and Spinal Muscular Atrophy (SMA). Dr. Kincaid is currently accepting new patients.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    Northshore Integrated Pain Center-Evanston

    1000 Central St Ste 880, 
    Evanston,, IL 
     (0.5 miles away)
    Languages Spoken:
    English, Romanian
    Accepting New Patients
    Offers Telehealth

    Alexandru Barboi is a Neurologist practicing medicine in Evanston,, Illinois. Dr. Barboi is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 57 other conditions, according to our data. His clinical expertise encompasses Orthostatic Hypotension, Peripheral Neuropathy, Low Blood Pressure, Multiple System Atrophy, and Thymectomy. Dr. Barboi is currently accepting new patients.

    Experienced in Dysferlinopathy
    Family Medicine
    Experienced in Dysferlinopathy
    Family Medicine

    Endeavor Health Medical Group

    2400 Chestnut Ave., Suite A, 
    Glenview, IL 
     (7.0 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Leslie Temple is a primary care provider, practicing in Family Medicine in Glenview, Illinois. Dr. Temple is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Fibromyalgia, Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Non-Hodgkin Lymphoma, and Ehlers-Danlos Syndrome (EDS). Dr. Temple is board certified in American Board Of Family Medicine.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    Ascension Resurrection

    7435 W Talcott Ave, 
    Chicago, IL 
     (8.1 miles away)
    Languages Spoken:
    English, Hindi, Konkani, Polish, Russian, Spanish, Ukrainian
    Accepting New Patients
    Offers Telehealth

    Godwin D'souza is a primary care provider, practicing in Internal Medicine in Chicago, Illinois. Dr. D'souza is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 95 other conditions, according to our data. His clinical expertise encompasses Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, Hypertension, Gastrostomy, and Hemorrhoidectomy. Dr. D'souza is currently accepting new patients.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    Ascension Medical Group Illinois - Primary Care Chicago

    331 W Surf St, Ste 711, 
    Chicago, IL 
     (8.9 miles away)
    Languages Spoken:
    English, Filipino, Spanish, Urdu
    Accepting New Patients
    Offers Telehealth

    Alam Khan is a primary care provider, practicing in Internal Medicine in Chicago, Illinois. Dr. Khan is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses End-Stage Renal Disease (ESRD), Generalized Tonic-Clonic Seizure, Type 2 Diabetes (T2D), Gastrostomy, and Ureteroscopy. Dr. Khan is board certified in The American Board Of Internal Medicine - Internal Medicine. Dr. Khan is currently accepting new patients.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    Office

    900 Skokie Blvd Ste 175, 
    Northbrook, IL 
     (9.4 miles away)
    Languages Spoken:
    English

    Susan Keeshin is a Physiatrist practicing medicine in Northbrook, Illinois. Dr. Keeshin is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 13 other conditions, according to our data. Her clinical expertise encompasses Hemiplegia, Foot Drop, Poliomyelitis, and Post Polio Syndrome.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    Shirley Ryan Ability Lab

    355 E Erie St, 
    Chicago, IL 
     (11.8 miles away)
    Languages Spoken:
    English

    Leslie Rydberg is a Physiatrist practicing medicine in Chicago, Illinois. Dr. Rydberg is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Paraplegia, Guillain-Barre Syndrome, Miller-Fisher Syndrome, and Cerebral Palsy.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy
    Referral may be required

    Office

    1725 W Harrison St Ste 1118, 
    Chicago, IL 
     (12.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Rabia Malik is a Neurologist practicing medicine in Chicago, Illinois. Dr. Malik is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 29 other conditions, according to our data. Her clinical expertise encompasses Myasthenia Gravis, Peripheral Neuropathy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Spinal and Bulbar Muscular Atrophy. Dr. Malik is currently accepting new patients.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy
    Referral may be required

    University Of Illinois At Chicago

    912 S Wood St, 
    Chicago, IL 
     (12.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Charles Abrams is a Neurologist practicing medicine in Chicago, Illinois. Dr. Abrams is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 26 other conditions, according to our data. His clinical expertise encompasses Hereditary Spastic Paraparesis, Charcot-Marie-Tooth Disease, Monomelic Amyotrophy, and Pelizaeus-Merzbacher Disease.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    Prairie State Rehab LLC

    540 N Dearborn St, Unit 10161, 
    Chicago, IL 
     (11.8 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Jason Freeman is a Physiatrist practicing medicine in Chicago, Illinois. Dr. Freeman is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Poliomyelitis, Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, and Spinal Muscular Atrophy (SMA). Dr. Freeman is board certified in The American Board Of Physical Medicine And Rehabilitation - Physical Medicine And Rehabilitation. Dr. Freeman is currently accepting new patients.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    Shirley Ryan Ability Lab

    355 E Erie St, 
    Chicago, IL 
     (11.8 miles away)
    Languages Spoken:
    English

    James Sliwa is a Physiatrist practicing medicine in Chicago, Illinois. Dr. Sliwa is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Relapsing Multiple Sclerosis (RMS), Post Polio Syndrome, Poliomyelitis, and Foot Drop.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    Shirley Ryan Ability Lab

    355 E Erie St, 
    Chicago, IL 
     (11.8 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Khushboo Doshi is a Physiatrist practicing medicine in Chicago, Illinois. Dr. Doshi is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Cerebral Palsy, Hemiplegia, Focal Dystonia, and Spastic Diplegia Infantile Type. Dr. Doshi is currently accepting new patients.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    Office

    1725 W Harrison St Ste 1106, 
    Chicago, IL 
     (12.2 miles away)
    Languages Spoken:
    English, Hindi
    Accepting New Patients
    Offers Telehealth

    Madhu Soni is a Neurologist practicing medicine in Chicago, Illinois. Dr. Soni is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Peripheral Neuropathy, Myasthenia Gravis, Spinal Muscular Atrophy Type 3, and Spinal and Bulbar Muscular Atrophy. Dr. Soni is currently accepting new patients.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    Office

    1725 W Harrison St Ste 118, 
    Chicago, IL 
     (12.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Daniel Bunzol is a Physiatrist practicing medicine in Chicago, Illinois. Dr. Bunzol is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Paraplegia, Spinal and Bulbar Muscular Atrophy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Spinal Muscular Atrophy Type 3. Dr. Bunzol is currently accepting new patients.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    Rush MD Anderson Cancer Center Urgent Care

    1520 W Harrison St Fl 7, 
    Chicago, IL 
     (12.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Ryan Jacobson is a Neurologist practicing medicine in Chicago, Illinois. Dr. Jacobson is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 22 other conditions, according to our data. His clinical expertise encompasses Spinal and Bulbar Muscular Atrophy, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy Type 3, Primary Lateral Sclerosis, and Gastrostomy. Dr. Jacobson is currently accepting new patients in some locations.

    Showing 1-20 of 21

    Last Updated: 09/26/2026

    What is the definition of Dysferlinopathy?

    The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

    When should I see a Dysferlinopathy doctor near evanston, IL?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Dysferlinopathy doctor near evanston, IL?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Dysferlinopathy doctors near evanston, IL?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Dysferlinopathy doctors near evanston, IL?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Dysferlinopathy doctor near evanston, IL?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

    Why is it important to get a second opinion from a different Dysferlinopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Dysferlinopathy doctor near evanston, IL?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Dysferlinopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Dysferlinopathy doctors near evanston, IL?

    Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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