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    Last Updated: 10/30/2025

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    MediFind found 25 doctor with experience in Dysferlinopathy near Kansas, US. Of these, 23 are Experienced, 1 are Advanced and 1 are Distinguished.

    Location
    LocationClose
    25 providers found
      Distinguished in Dysferlinopathy
      Distinguished in Dysferlinopathy

      Kansas University Physicians Inc

      3901 Rainbow Blvd, 
      Kansas City, KS 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jeffrey Statland is a Neurologist in Kansas City, Kansas. Dr. Statland is rated as a Distinguished provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Paramyotonia Congenita, Primary Lateral Sclerosis, and Gastrostomy. Dr. Statland is currently accepting new patients.

      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy

      Kansas University Physicians Inc

      3901 Rainbow Blvd, 
      Kansas City, KS 
      Languages Spoken:
      English, French, Greek, Spanish
      Accepting New Patients
      Offers Telehealth

      Constantine Farmakidis is a Neurologist in Kansas City, Kansas. Dr. Farmakidis is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Myasthenia Gravis, Paramyotonia Congenita, Tomaculous Neuropathy, Septic Arthritis, and Thymectomy. Dr. Farmakidis is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Stonecreek Family Physicians, Llp

      4101 Anderson Ave, 
      Manhattan, KS 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jacqi Lambert is a primary care provider, practicing in Family Medicine in Manhattan, Kansas. Dr. Lambert is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Relapsing Multiple Sclerosis (RMS), Limb-Girdle Muscular Dystrophy Type 1A, Limb-Girdle Muscular Dystrophy, and Limb-Girdle Muscular Dystrophy Type 2A. Dr. Lambert is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Dysferlinopathy
      Neurology | Hospital Medicine
      Experienced in Dysferlinopathy
      Neurology | Hospital Medicine

      Kansas University Physicians Inc

      3901 Rainbow Blvd, 
      Kansas City, KS 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Long Davalos-Loo is a Neurologist and a Hospital Medicine provider in Kansas City, Kansas. Dr. Davalos-Loo is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Miller-Fisher Syndrome, Chronic Polyradiculoneuritis, Guillain-Barre Syndrome, and Myasthenia Gravis. Dr. Davalos-Loo is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Kansas University Physicians Inc

      4000 Cambridge St, 
      Kansas City, KS 
      Languages Spoken:
      English, Arabic, French
      Offers Telehealth

      Mazen Dimachkie is a Neurologist in Kansas City, Kansas. Dr. Dimachkie is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Myositis, Inclusion Body Myositis, Myasthenia Gravis, Pompe Disease, and Thymectomy.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine
      345 N Riverview St Ste 500, 
      Wichita, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Susan Giovanni is a primary care provider, practicing in Family Medicine in Wichita, Kansas. Dr. Giovanni is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Dementia, Seasonal Affective Disorder (SAD), Chronic Obstructive Pulmonary Disease (COPD), and Hypertensive Heart Disease. Dr. Giovanni is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy
      3901 Rainbow Blvd, 4070 Delp Mail Stop 4017, 
      Kansas City, KS 
      Languages Spoken:
      English

      April Mcvey is a Neurologist in Kansas City, Kansas. Dr. Mcvey is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Inclusion Body Myositis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Myasthenia Gravis, and Primary Lateral Sclerosis.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine
      6001 Sw 6th Ave, Ste 320, 
      Topeka, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Mark Newth is a primary care provider, practicing in Family Medicine in Topeka, Kansas. Dr. Newth is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Familial Hypertension, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Hyperlipidemia Type 3. Dr. Newth is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Morris County Hospital

      604 N Washington St, 
      Council Grove, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Lora Siegle is a primary care provider, practicing in Family Medicine in Council Grove, Kansas. Dr. Siegle is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Lung Cancer, Chronic Kidney Disease, End-Stage Renal Disease (ESRD), and Familial Hypertension. Dr. Siegle is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Jayhawk Primary Care Inc

      23450 College Blvd, 
      Olathe, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Neha Sood is a primary care provider, practicing in Family Medicine in Olathe, Kansas. Dr. Sood is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Focal Dystonia, Dysferlinopathy, Nephrosclerosis, Renovascular Hypertension, and Tissue Biopsy. Dr. Sood is currently accepting new patients.

      Experienced in Dysferlinopathy
      Internal Medicine
      Experienced in Dysferlinopathy
      Internal Medicine

      Ascension Via Christi Hospital Manhattan Inc

      1823 College Ave, 
      Manhattan, KS 
      Languages Spoken:
      English, Hindi
      Accepting New Patients

      Preeti Singh is a primary care provider, practicing in Internal Medicine in Manhattan, Kansas. Dr. Singh is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Chronic Kidney Disease, Exogenous Lipoid Pneumonia, Lyme Disease, Hip Replacement, and Endoscopy. Dr. Singh is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Johnson County Neurology LLC

      12140 Nall Ave, Suite 230, 
      Leawood, KS 
      Languages Spoken:
      English
      Accepting New Patients

      David Clark is a Neurologist in Leawood, Kansas. Dr. Clark is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Trigeminal Neuralgia, Cramp-Fasciculation Syndrome, Primary Orthostatic Tremor, and Lambert-Eaton Syndrome. Dr. Clark is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Kansas Medical Center LLC

      308 E Central Ave, Andover Medical Clinic, 
      Andover, KS 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Kari Clouse is a primary care provider, practicing in Family Medicine in Andover, Kansas. Dr. Clouse is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are High Cholesterol, Vertigo, Insomnia, and Hypothyroidism. Dr. Clouse is currently accepting new patients.

      Experienced in Dysferlinopathy
      Internal Medicine
      Experienced in Dysferlinopathy
      Internal Medicine

      Pratt Regional Medical Center Corporation

      420 Country Club Rd, 
      Pratt, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Aaron Zook is a primary care provider, practicing in Internal Medicine in Pratt, Kansas. Dr. Zook is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Hypertension, Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, Endoscopy, and Hemorrhoidectomy. Dr. Zook is currently accepting new patients.

      Experienced in Dysferlinopathy
      Pediatric Neurology | Neurology
      Experienced in Dysferlinopathy
      Pediatric Neurology | Neurology

      Subhash Shah MD PA

      Wichita, KS 
      Languages Spoken:
      English, Hindi
      Accepting New Patients

      Subhash Shah is a Pediatric Neurologist and a Neurologist in Wichita, Kansas. Dr. Shah is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Cerebral Palsy, Zika Virus Disease, Microcephaly with Spastic Quadriplegia, and Microcephaly. Dr. Shah is currently accepting new patients.

      Experienced in Dysferlinopathy
      Internal Medicine
      Experienced in Dysferlinopathy
      Internal Medicine

      Legacy Healthcare Services Inc

      5901 W 107th St, 
      Overland Park, KS 
      Experience:
      43+ years
      Languages Spoken:
      English
      Accepting New Patients

      Christopher Geha is a primary care provider, practicing in Internal Medicine in Overland Park, Kansas. Dr. Geha has been practicing medicine for over 43 years and is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Necrosis, Lung Metastases, Pneumonia, Endoscopy, and Colonoscopy. Dr. Geha is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Greeley County Health Services Inc

      Tribune, KS 
      Experience:
      17+ years
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Melanie Glenn is a Neurologist in Tribune, Kansas. Dr. Glenn has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, Spinal Muscular Atrophy (SMA), and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease). Dr. Glenn is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Ness County Hospital District 2

      316 E Custer St, Ness City Medical Clinic, 
      Ness City, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Eric Easey is a primary care provider, practicing in Family Medicine in Ness City, Kansas. Dr. Easey is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Familial Hypertension, Glucocorticoid-Remediable Aldosteronism, Hypertension, and Tracheitis. Dr. Easey is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Great Plains Of Ellinwood Inc

      300 N Park Ave, 
      Ellinwood, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Christopher Brown is a primary care provider, practicing in Family Medicine in Ellinwood, Kansas. Dr. Brown is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Pneumonia, Chronic Cough, Hypothyroidism, and Maturity Onset Diabetes of the Young. Dr. Brown is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy
      3740 Sw Springcreek Ln, 
      Topeka, KS 
      Languages Spoken:
      English
      Accepting New Patients

      Joseph Sankoorikal is a Physiatrist in Topeka, Kansas. Dr. Sankoorikal is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Stroke, Rhabdomyolysis, Volkmann Contracture, and Chronic Subdural Hematoma. Dr. Sankoorikal is currently accepting new patients.

      Showing 1-20 of 25

      Last Updated: 10/30/2025

      What is the definition of Dysferlinopathy?

      The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

      When should I see a Dysferlinopathy doctor in Kansas, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dysferlinopathy doctor in Kansas, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dysferlinopathy doctors in Kansas, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dysferlinopathy doctors in Kansas, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dysferlinopathy doctor in Kansas, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

      Why is it important to get a second opinion from a different Dysferlinopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dysferlinopathy doctor in Kansas, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dysferlinopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dysferlinopathy doctors in Kansas, US?

      Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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