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    Last Updated: 10/30/2025

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    MediFind found 39 doctor with experience in Dysferlinopathy near Missouri, US. Of these, 34 are Experienced, 3 are Advanced and 2 are Distinguished.

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    LocationClose
    39 providers found
      Alan Pestronk
      Distinguished in Dysferlinopathy
      Distinguished in Dysferlinopathy

      Center For Advanced Medicine

      4921 Parkview Place, Suite 6C, 
      Saint Louis, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Alan Pestronk is a Neurologist in Saint Louis, Missouri. Dr. Pestronk is rated as a Distinguished provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Dysferlinopathy, Miyoshi Myopathy, Pompe Disease, and Myasthenia Gravis. Dr. Pestronk is currently accepting new patients.

      Erik R. Ensrud
      Distinguished in Dysferlinopathy
      Neurology | Physiatry
      Distinguished in Dysferlinopathy
      Neurology | Physiatry

      University Of Missouri Health Care

      1020 Hitt St, 
      Columbia, MO 
      Languages Spoken:
      English, Mandarin, Spanish
      Accepting New Patients

      Erik Ensrud is a Neurologist and a Physiatrist in Columbia, Missouri. Dr. Ensrud is rated as a Distinguished provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Dysferlinopathy, Inclusion Body Myositis, Duchenne Muscular Dystrophy, and Hereditary Neuralgic Amyotrophy. Dr. Ensrud is currently accepting new patients.

      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy

      The Curators Of The University Of Missouri

      315 Business Loop 70, 
      Columbia, MO 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Vovanti Jones is a Physiatrist in Columbia, Missouri. Dr. Jones is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Dysferlinopathy, Duchenne Muscular Dystrophy, and Charcot-Marie-Tooth Disease. Dr. Jones is currently accepting new patients.

      Learn about our expert tiers
      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy

      Bothwell Regional Health Center

      601 E 14th St, Bothwell Regional Health C, 
      Sedalia, MO 
      Experience:
      17+ years
      Languages Spoken:
      English
      Accepting New Patients

      Jonathan Beary is a Neurologist in Sedalia, Missouri. Dr. Beary has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Headache, Epilepsy, Stroke, and Seizures. Dr. Beary is currently accepting new patients.

      Advanced in Dysferlinopathy
      Internal Medicine
      Advanced in Dysferlinopathy
      Internal Medicine

      Hannibal Regional Healthcare System Inc

      1611 S Baltimore St, 
      Kirksville, MO 
      Languages Spoken:
      English

      Maura Gerdes is a primary care provider, practicing in Internal Medicine in Kirksville, Missouri. Dr. Gerdes is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Memory Loss, Maturity Onset Diabetes of the Young, Familial Hypertension, and Glucocorticoid-Remediable Aldosteronism.

      Conrad C. Weihl
      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Washington University

      4921 Parkview Pl, Suite 6c, 
      Saint Louis, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Conrad Weihl is a Neurologist in Saint Louis, Missouri. Dr. Weihl is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Limb-Girdle Muscular Dystrophy, Inclusion Body Myositis, Myositis, and Cytoplasmic Body Myopathy. Dr. Weihl is currently accepting new patients.

      Richard J. Barohn
      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      The Curators Of The University Of Missouri

      1020 Hitt St, Neurology Clinic Univ Of M, 
      Columbia, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Richard Barohn is a Neurologist in Columbia, Missouri. Dr. Barohn is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Inclusion Body Myositis, Myasthenia Gravis, Myositis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Thymectomy. Dr. Barohn is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Washington University

      4921 Parkview Pl, Suite 6c, 
      Saint Louis, MO 
      Languages Spoken:
      English, Arabic
      Accepting New Patients

      Muhammad Al-Lozi is a Neurologist in Saint Louis, Missouri. Dr. Al-Lozi is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Myotonia Congenita, Myasthenia Gravis, Peripheral Neuropathy, Spinal and Bulbar Muscular Atrophy, and Gastrostomy. Dr. Al-Lozi is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Select Physical Therapy Holdings Inc

      2301 S Missouri 291 Hwy, Select Physical Therapy, 
      Independence, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Leland Scott is a Neurologist in Independence, Missouri. Dr. Scott is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Chronic Inflammatory Demyelinating Polyneuropathy, Polymyositis, Lambert-Eaton Syndrome, and Stiff Person Syndrome. Dr. Scott is currently accepting new patients.

      Experienced in Dysferlinopathy
      Pediatric Neurology | Neurology
      Experienced in Dysferlinopathy
      Pediatric Neurology | Neurology

      Washington University

      4455 Duncan Ave, 
      Saint Louis, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Craig Zaidman is a Pediatric Neurologist and a Neurologist in Saint Louis, Missouri. Dr. Zaidman is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Becker Muscular Dystrophy, Duchenne Muscular Dystrophy, Spinal Muscular Atrophy (SMA), and Primary Lateral Sclerosis. Dr. Zaidman is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Washington University

      4921 Parkview Pl, Suite 6c, 
      Saint Louis, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Andrew Findlay is a Neurologist in Saint Louis, Missouri. Dr. Findlay is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Limb-Girdle Muscular Dystrophy, Dystrophinopathy, Facioscapulohumeral Muscular Dystrophy (FSHD), and Becker Muscular Dystrophy. Dr. Findlay is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Mercy Clinic Springfield Communities

      448 State Hwy 248, Suite 150, 
      Branson, MO 
      Languages Spoken:
      English, Mandarin
      Accepting New Patients
      Offers Telehealth

      Jenifer Zhai is a Neurologist in Branson, Missouri. Dr. Zhai is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Migraine, Relapsing Multiple Sclerosis (RMS), Multiple Sclerosis (MS), and Spinocerebellar Ataxia. Dr. Zhai is currently accepting new patients.

      Experienced in Dysferlinopathy
      Pediatrics | Neurology
      Experienced in Dysferlinopathy
      Pediatrics | Neurology
      1 Childrens Pl # 3s34, 
      Saint Louis, MO 
      Languages Spoken:
      English

      Alexander Fay is a Pediatrics specialist and a Neurologist in Saint Louis, Missouri. Dr. Fay is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Andersen-Tawil Syndrome, Canavan Disease, CACH Syndrome, and Charcot-Marie-Tooth Disease.

      Experienced in Dysferlinopathy
      Physiatry | Pediatrics
      Experienced in Dysferlinopathy
      Physiatry | Pediatrics

      The Curators Of The University Of Missouri

      315 Business Loop 70, 
      Columbia, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Jane Emerson is a Physiatrist and a Pediatrics provider in Columbia, Missouri. Dr. Emerson is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Cerebral Palsy, Dysferlinopathy, Autonomic Dysreflexia, and Moebius Syndrome. Dr. Emerson is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Washington University

      1 Barnes Jewish Hospital Plz, 
      Saint Louis, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Robert Bucelli is a Neurologist in Saint Louis, Missouri. Dr. Bucelli is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Encephalitis, Creutzfeldt-Jakob Disease, Anti-NMDA Receptor Encephalitis, and Gastrostomy. Dr. Bucelli is currently accepting new patients.

      Experienced in Dysferlinopathy
      Internal Medicine
      Experienced in Dysferlinopathy
      Internal Medicine

      John Fitzgibbon Memorial Hospital Inc.

      2305 S Hwy 65, Marshall Sugical Associate, 
      Marshall, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Jack Uhrig is a primary care provider, practicing in Internal Medicine in Marshall, Missouri. Dr. Uhrig is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, Hypertension, Familial Neurocardiogenic Syncope, and Pacemaker Implantation. Dr. Uhrig is currently accepting new patients.

      Experienced in Dysferlinopathy
      Neurology | Sleep Medicine
      Experienced in Dysferlinopathy
      Neurology | Sleep Medicine

      Washington University

      1600 S Brentwood Blvd, Suite 600, 
      Saint Louis, MO 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Luqi Chi is a Neurologist and a Sleep Medicine provider in Saint Louis, Missouri. Dr. Chi is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Obstructive Sleep Apnea, Spinal Muscular Atrophy (SMA), and Spinal and Bulbar Muscular Atrophy. Dr. Chi is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Hannibal Regional Healthcare System Inc

      6500 Hospital Dr, 
      Hannibal, MO 
      Languages Spoken:
      English
      Accepting New Patients

      Austin Hake is a Neurologist in Hannibal, Missouri. Dr. Hake is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Memory Loss, Seizures, Movement Disorders, and Parkinson's Disease. Dr. Hake is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Mercy Clinic East Communities

      2050 1st Capitol Dr, 
      Saint Charles, MO 
      Experience:
      10+ years
      Languages Spoken:
      English
      Accepting New Patients

      Ann Lottes is a primary care provider, practicing in Family Medicine in Saint Charles, Missouri. Dr. Lottes has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, and Hypertension. Dr. Lottes is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine
      1 Hospital Dr, 
      Doniphan, MO 
      Languages Spoken:
      English

      Richard Musser is a primary care provider, practicing in Family Medicine in Doniphan, Missouri. Dr. Musser is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Limb-Girdle Muscular Dystrophy Type 2A, Limb-Girdle Muscular Dystrophy, Limb-Girdle Muscular Dystrophy Type 2I, and Limb-Girdle Muscular Dystrophy Type 2C.

      Showing 1-20 of 39

      Last Updated: 10/30/2025

      What is the definition of Dysferlinopathy?

      The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

      When should I see a Dysferlinopathy doctor in Missouri, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dysferlinopathy doctor in Missouri, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dysferlinopathy doctors in Missouri, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dysferlinopathy doctors in Missouri, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dysferlinopathy doctor in Missouri, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

      Why is it important to get a second opinion from a different Dysferlinopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dysferlinopathy doctor in Missouri, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dysferlinopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dysferlinopathy doctors in Missouri, US?

      Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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