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    Last Updated: 10/30/2025

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    MediFind found 15 doctor with experience in Dysferlinopathy near Nebraska, US. Of these, 13 are Experienced and 2 are Advanced.

    Location
    LocationClose
    15 providers found
      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy

      Bryan Physician Network

      2300 S 16th St, Bryan Medical Center, 
      Lincoln, NE 
      Languages Spoken:
      English, American Sign Language
      Accepting New Patients
      Offers Telehealth

      Gary Pattee is a Neurologist in Lincoln, Nebraska. Dr. Pattee is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Paramyotonia Congenita, Myotonic Dystrophy Type 2, and Gastrostomy. Dr. Pattee is currently accepting new patients.

      Advanced in Dysferlinopathy
      Internal Medicine
      Advanced in Dysferlinopathy
      Internal Medicine

      Theoria Medical

      1500 14th Ave, 
      Nebraska City, NE 
      Languages Spoken:
      English
      Accepting New Patients

      Drew Packey is a primary care provider, practicing in Internal Medicine in Nebraska City, Nebraska. Dr. Packey is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Dementia, Hospital-Acquired Pneumonia, Atypical Pneumonia, and Heart Failure. Dr. Packey is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Unmc Physicians

      987400 Nebraska Medical Ctr, Unmc Physicians Nebraska M, 
      Omaha, NE 
      Languages Spoken:
      English, American Sign Language, Thai
      Accepting New Patients

      Pariwat Thaisetthawatkul is a Neurologist in Omaha, Nebraska. Dr. Thaisetthawatkul is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Stiff Person Syndrome, Chronic Inflammatory Demyelinating Polyneuropathy, Myasthenia Gravis, and Inclusion Body Myositis. Dr. Thaisetthawatkul is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Dysferlinopathy
      Pediatric Neurology | Neurology
      Experienced in Dysferlinopathy
      Pediatric Neurology | Neurology
      14080 Boys Town Hospital Rd, 
      Boys Town, NE 
      Languages Spoken:
      English
      Accepting New Patients

      Isabella Herman is a Pediatric Neurologist and a Neurologist in Boys Town, Nebraska. Dr. Herman is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Microcephaly with Spastic Quadriplegia, Hereditary Sensory Neuropathy Type 1 (HSN1), Spasticity, and Lissencephaly. Dr. Herman is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Unmc Physicians

      Emile 42nd St, 
      Omaha, NE 
      Languages Spoken:
      English, American Sign Language
      Accepting New Patients
      Offers Telehealth

      Ezequiel Piccione is a Neurologist in Omaha, Nebraska. Dr. Piccione is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal Muscular Atrophy Type 3, Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy (SMA), and Gastrostomy. Dr. Piccione is currently accepting new patients.

      Experienced in Dysferlinopathy
      Pediatric Neurology | Neurology | Pediatrics
      Experienced in Dysferlinopathy
      Pediatric Neurology | Neurology | Pediatrics
      982167 Nebraska Medical Ctr, 
      Omaha, NE 
      Languages Spoken:
      English, American Sign Language, Hindi
      Accepting New Patients
      Offers Telehealth

      Geetanjali Rathore is a Pediatric Neurologist and a Neurologist in Omaha, Nebraska. Dr. Rathore is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Encephalitis, Seizures, Primary Lateral Sclerosis, and Duchenne Muscular Dystrophy. Dr. Rathore is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Alegent Creighton Clinic

      5045 S 153rd St, 
      Omaha, NE 
      Languages Spoken:
      English
      Accepting New Patients

      Elizabeth Wooster-Pierson is a primary care provider, practicing in Family Medicine in Omaha, Nebraska. Dr. Wooster-Pierson is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Dysferlinopathy, Hypothyroidism, and Stiff Person Syndrome. Dr. Wooster-Pierson is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Unmc Physicians

      Emile 42nd St, 
      Omaha, NE 
      Languages Spoken:
      English, American Sign Language
      Accepting New Patients

      Joseph Fernandes is a Neurologist in Omaha, Nebraska. Dr. Fernandes is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, and Gastrostomy. Dr. Fernandes is currently accepting new patients.

      Experienced in Dysferlinopathy
      Pediatric Neurology | Neurology
      Experienced in Dysferlinopathy
      Pediatric Neurology | Neurology

      Alegent Creighton Clinic

      6901 N 72nd St, Suite 2400, 
      Omaha, NE 
      Languages Spoken:
      English
      Accepting New Patients

      James Collins is a Pediatric Neurologist and a Neurologist in Omaha, Nebraska. Dr. Collins is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Collagen VI-Related Myopathy, Horizontal Gaze Palsy with Progressive Scoliosis, Tubular Aggregate Myopathy, X-Linked Myotubular Myopathy, and Endoscopy. Dr. Collins is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine
      8613 N 30th St, 
      Omaha, NE 
      Languages Spoken:
      English
      Accepting New Patients

      Charles Mcminn is a primary care provider, practicing in Family Medicine in Omaha, Nebraska. Dr. Mcminn is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Acute Kidney Failure, Chronic Lymphocytic Leukemia (CLL), Chronic B-Cell Leukemia (CBCL), and Richter Syndrome. Dr. Mcminn is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      York Medical Clinic, P.C.

      2114 N Lincoln Ave, Suite A, 
      York, NE 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Kristi Kohl is a primary care provider, practicing in Family Medicine in York, Nebraska. Dr. Kohl is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Vertigo, Lymphangitis, Empyema, Tubal Ligation, and Hormone Replacement Therapy (HRT). Dr. Kohl is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      York Medical Clinic, P.C.

      2114 N Lincoln Ave, Suite A, 
      York, NE 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Gregory Woods is a primary care provider, practicing in Family Medicine in York, Nebraska. Dr. Woods is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Vertigo, Lymphangitis, Urinary Tract Infection (UTI), Urinary Tract Infection in Children, and Hormone Replacement Therapy (HRT). Dr. Woods is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Alegent Creighton Clinic

      7710 Mercy Rd, Suite 3000, 
      Omaha, NE 
      Experience:
      16+ years
      Languages Spoken:
      English
      Accepting New Patients

      Yu-ting Chen is a Neurologist in Omaha, Nebraska. Dr. Chen has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Chronic Polyradiculoneuritis, Peripheral Neuropathy, Myasthenia Gravis, and Miller-Fisher Syndrome. Dr. Chen is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Physicians Clinic Inc

      16120 W Dodge Rd, 
      Omaha, NE 
      Languages Spoken:
      English
      Accepting New Patients

      Virginia Ripley is a primary care provider, practicing in Family Medicine in Omaha, Nebraska. Dr. Ripley is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Sitosterolemia, Premature Ovarian Failure, Hypothyroidism, High Cholesterol, and Intrauterine Device Insertion. Dr. Ripley is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Crete Area Medical Center

      2910 Betten Dr, 
      Crete, NE 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Russell Ebke is a primary care provider, practicing in Family Medicine in Crete, Nebraska. Dr. Ebke is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Atherosclerosis, Coronary Heart Disease, Lung Cancer, and Type 2 Diabetes (T2D). Dr. Ebke is currently accepting new patients.

      Showing 1-15 of 15

      Last Updated: 10/30/2025

      What is the definition of Dysferlinopathy?

      The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

      When should I see a Dysferlinopathy doctor in Nebraska, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dysferlinopathy doctor in Nebraska, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dysferlinopathy doctors in Nebraska, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dysferlinopathy doctors in Nebraska, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dysferlinopathy doctor in Nebraska, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

      Why is it important to get a second opinion from a different Dysferlinopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dysferlinopathy doctor in Nebraska, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dysferlinopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dysferlinopathy doctors in Nebraska, US?

      Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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