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    Last Updated: 10/30/2025

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    MediFind found 27 doctor with experience in Dysferlinopathy near New Jersey, US. Of these, 27 are Experienced.

    Location
    LocationClose
    27 providers found
      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Hackensack Meridian Health Medical Group - Complex Care PC

      516 Lawrie St, Suite 1, 
      Perth Amboy, NJ 
      Languages Spoken:
      English
      Accepting New Patients

      Michelle Sirak is a Physiatrist in Perth Amboy, New Jersey. Dr. Sirak is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Cerebral Palsy, Myotonia Congenita, Moebius Syndrome, and Dysferlinopathy. Dr. Sirak is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      New Jersey Pediatric Neuroscience Institute

      385 Prospect Avenue 2nd Floor, 
      Hackensack, NJ 
      Languages Spoken:
      English, Arabic, French
      Accepting New Patients

      Nizar Souayah is a Neurologist in Hackensack, New Jersey. Dr. Souayah is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Chronic Inflammatory Demyelinating Polyneuropathy, Guillain-Barre Syndrome, Myasthenia Gravis, and Chronic Polyradiculoneuritis. Dr. Souayah is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      University Physician Associates Of New Jersey Inc

      30 Bergen St, Rm 1205, 
      Newark, NJ 
      Languages Spoken:
      English

      John Bach is a Physiatrist in Newark, New Jersey. Dr. Bach is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Primary Lateral Sclerosis, Duchenne Muscular Dystrophy, Spinal Muscular Atrophy (SMA), Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Gastrostomy.

      Learn about our expert tiers
      Experienced in Dysferlinopathy
      Neurology
      Experienced in Dysferlinopathy
      Neurology

      St Josephs Medical Group PC

      703 Main St, 
      Paterson, NJ 
      Languages Spoken:
      English
      Offers Telehealth

      Beth Stein is a Neurologist in Paterson, New Jersey. Dr. Stein is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Miller-Fisher Syndrome, Guillain-Barre Syndrome, Autosomal Dominant Partial Epilepsy with Auditory Features, Stroke, and Osteotomy.

      Experienced in Dysferlinopathy
      Family Medicine | Geriatrics
      Experienced in Dysferlinopathy
      Family Medicine | Geriatrics

      Ennoble Hc Nj PC

      2 University Plz, Suite 204, 
      Hackensack, NJ 
      Languages Spoken:
      English

      Thomas Lee is a primary care provider, practicing in Family Medicine and Geriatrics in Hackensack, New Jersey. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Peptic Ulcer, Hypertensive Heart Disease, Enlarged Liver, and Necrosis.

      Experienced in Dysferlinopathy
      Neuromusculoskeletal Medicine | Neurology
      Experienced in Dysferlinopathy
      Neuromusculoskeletal Medicine | Neurology

      Hackensack Meridian Health Medical Group - Specialty Care PC

      1 Riverview Plz, 
      Red Bank, NJ 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mary Sedarous is a Neuromusculoskeletal Medicine specialist and a Neurologist in Red Bank, New Jersey. Dr. Sedarous is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Spinal Muscular Atrophy (SMA). Dr. Sedarous is currently accepting new patients.

      Experienced in Dysferlinopathy
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Dysferlinopathy
      Pediatric Neurology | Pediatrics | Neurology
      140 Bergen St, Level C, 
      Newark, NJ 
      Languages Spoken:
      English

      Caroline Hayes is a Pediatric Neurologist and a Pediatrics provider in Newark, New Jersey. Dr. Hayes is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Neurofibromatosis, Neurofibromatosis Type 1 (NF1), Developmental Dysphasia Familial, and Developmental Expressive Language Disorder.

      Experienced in Dysferlinopathy
      Internal Medicine
      Experienced in Dysferlinopathy
      Internal Medicine

      Virtua Medical Group, PA

      401 Young Ave, Suite 380a, 
      Moorestown, NJ 
      Experience:
      16+ years
      Languages Spoken:
      English
      Offers Telehealth

      Liesl Miles is a primary care provider, practicing in Internal Medicine in Moorestown, New Jersey. Dr. Miles has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Adrenal Cancer, Adrenocortical Carcinoma, Neuroblastoma, and Hereditary Neuroblastoma.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine
      777 Route 70 E, Suite G103, 
      Marlton, NJ 
      Languages Spoken:
      English

      Robert Grife is a primary care provider, practicing in Family Medicine in Marlton, New Jersey. Dr. Grife is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Insomnia, Generalized Anxiety Disorder (GAD), Cholangitis, and Sclerosing Cholangitis.

      Experienced in Dysferlinopathy
      Internal Medicine
      Experienced in Dysferlinopathy
      Internal Medicine

      Hackensack Meridian Health Medical Group - Primary Care PC

      385 Prospect Ave, Suite 204, 
      Hackensack, NJ 
      Languages Spoken:
      English
      Offers Telehealth

      Yildiz Zorba is a primary care provider, practicing in Internal Medicine in Hackensack, New Jersey. Dr. Zorba is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Bronchitis, Emery-Dreifuss Muscular Dystrophy, Delta-Sarcoglycanopathy, and Miyoshi Myopathy.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy
      340 E Northfield Rd, Suite 1b, 
      Livingston, NJ 
      Languages Spoken:
      English, Amharic, Arabic, Bengali
      Accepting New Patients
      Offers Telehealth

      Guha Venkatraman is a Neurologist in Livingston, New Jersey. Dr. Venkatraman is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Cerebellar Degeneration, Headache, Familial Porencephaly, and Choroid Plexus Cyst. Dr. Venkatraman is currently accepting new patients.

      Experienced in Dysferlinopathy
      Geriatrics | Internal Medicine
      Experienced in Dysferlinopathy
      Geriatrics | Internal Medicine

      Tapestry Telehealth PLLC

      115 Dutch Lane Rd, 
      Freehold, NJ 
      Languages Spoken:
      English, Castilian, Spanish
      Accepting New Patients
      Offers Telehealth

      David Chess is a primary care provider, practicing in Geriatrics and Internal Medicine in Freehold, New Jersey. Dr. Chess is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Familial Hypertension, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Heart Failure. Dr. Chess is currently accepting new patients.

      Experienced in Dysferlinopathy
      Pediatric Neurology | Neurology
      Experienced in Dysferlinopathy
      Pediatric Neurology | Neurology
      30 Prospect Ave, 
      Hackensack, NJ 
      Languages Spoken:
      English

      Sara Rubenstein is a Pediatric Neurologist and a Neurologist in Hackensack, New Jersey. Dr. Rubenstein is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Krabbe Disease, GAPO Syndrome, Myotonia Congenita, Aphantasia, and Thrombectomy.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Practice Associates Medical Group

      100 Madison Ave, 
      Morristown, NJ 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Andrew Tarulli is a Neurologist in Morristown, New Jersey. Dr. Tarulli is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Myasthenia Gravis, Chronic Inflammatory Demyelinating Polyneuropathy, Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy Type 3. Dr. Tarulli is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Rehabilitation Specialists Of New Jersey LLC

      120 Eagle Rock Ave, Suite 154, 
      East Hanover, NJ 
      Languages Spoken:
      English
      Accepting New Patients

      Cristin Mckenna is a Physiatrist in East Hanover, New Jersey. Dr. Mckenna is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Rhabdomyolysis, Muscle Atrophy, Paraplegia, and Protein Deficiency. Dr. Mckenna is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Visiting Nurse Association Of Central Jersey, Community Health Center,

      1301 Main St, 
      Asbury Park, NJ 
      Languages Spoken:
      English

      Susanne Zimmermann is a primary care provider, practicing in Family Medicine in Asbury Park, New Jersey. Dr. Zimmermann is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are High Cholesterol, Type 2 Diabetes (T2D), Familial Hypertension, and Glucocorticoid-Remediable Aldosteronism.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy
      30 Prospect Ave, 
      Hackensack, NJ 
      Languages Spoken:
      English

      Carly Rothman is a Physiatrist in Hackensack, New Jersey. Dr. Rothman is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Cerebral Palsy, Myotonia Congenita, Moebius Syndrome, and Spasticity.

      Experienced in Dysferlinopathy
      Pediatric Neurology | Neurology
      Experienced in Dysferlinopathy
      Pediatric Neurology | Neurology
      400 Center St., 
      Garwood, NJ 
      Languages Spoken:
      English

      Romana Kulikova is a Pediatric Neurologist and a Neurologist in Garwood, New Jersey. Dr. Kulikova is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Neurofibromatosis, CAPOS Syndrome, and Aphantasia.

      Experienced in Dysferlinopathy
      Pediatrics | Internal Medicine
      Experienced in Dysferlinopathy
      Pediatrics | Internal Medicine

      Practice Associates Medical Group

      100 Madison Ave, 
      Morristown, NJ 
      Languages Spoken:
      English, German
      Accepting New Patients
      Offers Telehealth

      Ina Kelemen is a primary care provider, practicing in Pediatrics and Internal Medicine in Morristown, New Jersey. Dr. Kelemen is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Anal Cancer, Chronic Obstructive Pulmonary Disease (COPD), High Cholesterol, and Cervical Myelopathy. Dr. Kelemen is currently accepting new patients.

      Experienced in Dysferlinopathy
      Internal Medicine
      Experienced in Dysferlinopathy
      Internal Medicine

      Integrated Hospital Medicine LLC

      400 W Blackwell St, 
      Dover, NJ 
      Languages Spoken:
      English

      William Grella is a primary care provider, practicing in Internal Medicine in Dover, New Jersey. Dr. Grella is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Pneumonia, Necrosis, Painful Swallowing, Gastrostomy, and Endoscopy.

      Showing 1-20 of 27

      Last Updated: 10/30/2025

      What is the definition of Dysferlinopathy?

      The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

      When should I see a Dysferlinopathy doctor in New Jersey, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dysferlinopathy doctor in New Jersey, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dysferlinopathy doctors in New Jersey, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dysferlinopathy doctors in New Jersey, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dysferlinopathy doctor in New Jersey, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

      Why is it important to get a second opinion from a different Dysferlinopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dysferlinopathy doctor in New Jersey, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dysferlinopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dysferlinopathy doctors in New Jersey, US?

      Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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