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    Last Updated: 10/30/2025

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    MediFind found 10 doctor with experience in Dysferlinopathy near Utah, US. Of these, 7 are Experienced and 3 are Advanced.

    Location
    LocationClose
    10 providers found
      Advanced in Dysferlinopathy
      Pediatric Neurology | Pediatrics | Neurology
      Advanced in Dysferlinopathy
      Pediatric Neurology | Pediatrics | Neurology

      University Of Utah Adult Services

      50 N Medical Dr, 
      Salt Lake City, UT 
      Languages Spoken:
      English, Greek
      Accepting New Patients
      Offers Telehealth

      Russell Butterfield is a Pediatric Neurologist and a Pediatrics provider in Salt Lake City, Utah. Dr. Butterfield is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Duchenne Muscular Dystrophy, Becker Muscular Dystrophy, Facioscapulohumeral Muscular Dystrophy (FSHD), and Spinal Muscular Atrophy (SMA). Dr. Butterfield is currently accepting new patients.

      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy

      University Of Utah Adult Services

      50 N Medical Dr, 
      Salt Lake City, UT 
      Experience:
      43+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mark Bromberg is a Neurologist in Salt Lake City, Utah. Dr. Bromberg has been practicing medicine for over 43 years and is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), Gastrostomy, and Thymectomy. Dr. Bromberg is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy

      University Of Utah Adult Services

      50 N Medical Dr, 
      Salt Lake City, UT 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Summer Gibson is a Neurologist in Salt Lake City, Utah. Dr. Gibson is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Primary Lateral Sclerosis, Spinal Muscular Atrophy (SMA), and Spinal Muscular Atrophy Type 3. Dr. Gibson is currently accepting new patients.

      Learn about our expert tiers
      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      University Of Utah Adult Services

      50 N Medical Dr, 
      Salt Lake City, UT 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kyle Mahoney is a Neurologist in Salt Lake City, Utah. Dr. Mahoney is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Cramp-Fasciculation Syndrome, Peripheral Neuropathy, Congenital Insensitivity to Pain with Anhidrosis, and Infantile Axonal Neuropathy. Dr. Mahoney is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Ma Bo Inc

      Salt Lake City, UT 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Mark Cacciamani is a primary care provider, practicing in Family Medicine in Salt Lake City, Utah. Dr. Cacciamani is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Cerebral Palsy, Insomnia, Attention Deficit Hyperactivity Disorder (ADHD), and Fetal Alcohol Syndrome (FAS). Dr. Cacciamani is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine
      Vernal, UT 
      Languages Spoken:
      English
      Accepting New Patients

      Kirk Woodward is a primary care provider, practicing in Family Medicine in Vernal, Utah. Dr. Woodward is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Hygroma Cervical, Cavernous Lymphangioma, Cystic Hygroma, and Abdominal Cystic Lymphangioma. Dr. Woodward is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Canyon View Medical Group LLC

      Springville, UT 
      Languages Spoken:
      English
      Accepting New Patients

      Marc Penrod is a primary care provider, practicing in Family Medicine in Springville, Utah. Dr. Penrod is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Attention Deficit Hyperactivity Disorder (ADHD), Hereditary Resistance to Anti-Vitamin K, Protein S Deficiency, and Congenital Antithrombin 3 Deficiency. Dr. Penrod is currently accepting new patients.

      Experienced in Dysferlinopathy
      Internal Medicine
      Experienced in Dysferlinopathy
      Internal Medicine
      822 E Golden Pheasant Dr, 
      Draper, UT 
      Languages Spoken:
      English
      Accepting New Patients

      Garth Muir is a primary care provider, practicing in Internal Medicine in Draper, Utah. Dr. Muir is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Dementia, Alzheimer's Disease, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension. Dr. Muir is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Ogden Clinic PC

      4650 Harrison Blvd, 
      Ogden, UT 
      Languages Spoken:
      English, German
      Accepting New Patients

      James Mathews is a primary care provider, practicing in Family Medicine in Ogden, Utah. Dr. Mathews is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Bronchitis, Attention Deficit Hyperactivity Disorder (ADHD), Familial Combined Hyperlipidemia, and Xanthoma. Dr. Mathews is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Jordan Landing Family Medicine LLC

      West Jordan, UT 
      Languages Spoken:
      English, Spanish
      Accepting New Patients
      Offers Telehealth

      Brenten Pugh is a primary care provider, practicing in Family Medicine in West Jordan, Utah. Dr. Pugh is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Generalized Anxiety Disorder (GAD), Seasonal Affective Disorder (SAD), Cirrhosis, and Familial Combined Hyperlipidemia. Dr. Pugh is currently accepting new patients.

      Showing 1-10 of 10

      Last Updated: 10/30/2025

      What is the definition of Dysferlinopathy?

      The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

      When should I see a Dysferlinopathy doctor in Utah, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dysferlinopathy doctor in Utah, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dysferlinopathy doctors in Utah, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dysferlinopathy doctors in Utah, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dysferlinopathy doctor in Utah, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

      Why is it important to get a second opinion from a different Dysferlinopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dysferlinopathy doctor in Utah, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dysferlinopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dysferlinopathy doctors in Utah, US?

      Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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