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    Last Updated: 10/30/2025

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    MediFind found 48 doctor with experience in Dysferlinopathy near Wisconsin, US. Of these, 43 are Experienced and 5 are Advanced.

    Location
    LocationClose
    48 providers found
      Brian Demaster
      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Aurora Family Medicine

      313 S Main St, 
      Cedar Grove, WI 
      Languages Spoken:
      English

      Brian Demaster is a primary care provider, practicing in Family Medicine in Cedar Grove, Wisconsin. Dr. Demaster is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Limb-Girdle Muscular Dystrophy Type 2C, Limb-Girdle Muscular Dystrophy, Limb-Girdle Muscular Dystrophy Type 2A, and Dystrophinopathy.

      Experienced in Dysferlinopathy
      Internal Medicine
      Experienced in Dysferlinopathy
      Internal Medicine

      University Of Wisconsin Medical Foundation Inc

      451 Junction Rd, 
      Madison, WI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Erin Fouch is a primary care provider, practicing in Internal Medicine in Madison, Wisconsin. Dr. Fouch is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Sciatica, Scoliosis, Vertigo, and Glucocorticoid-Remediable Aldosteronism. Dr. Fouch is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Dysferlinopathy
      Neurology
      Advanced in Dysferlinopathy
      Neurology

      The Medical College Of Wisconsin Inc

      8701 Watertown Plank Rd, Room 4041 Mfrc, 
      Milwaukee, WI 
      Languages Spoken:
      English
      Offers Telehealth

      Dominic Fee is a Neurologist in Milwaukee, Wisconsin. Dr. Fee is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, and Spinal Muscular Atrophy (SMA).

      Learn about our expert tiers
      Advanced in Dysferlinopathy
      Neurology | Pediatric Neurology
      Advanced in Dysferlinopathy
      Neurology | Pediatric Neurology
      600 Highland Ave, 
      Madison, WI 
      Languages Spoken:
      English, Polish
      Accepting New Patients

      Andrew Waclawik is a Neurologist and a Pediatric Neurologist in Madison, Wisconsin. Dr. Waclawik is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Myasthenia Gravis, Guillain-Barre Syndrome, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Mitochondrial Complex 3 Deficiency. Dr. Waclawik is currently accepting new patients.

      Advanced in Dysferlinopathy
      Neurology | Pediatric Neurology
      Advanced in Dysferlinopathy
      Neurology | Pediatric Neurology

      University Of Wisconsin Medical Foundation Inc

      600 Highland Ave, 
      Madison, WI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Michael Hansen is a Neurologist and a Pediatric Neurologist in Madison, Wisconsin. Dr. Hansen is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Dysferlinopathy, Spinal Muscular Atrophy Type 3, and Hereditary Neuralgic Amyotrophy. Dr. Hansen is currently accepting new patients.

      Advanced in Dysferlinopathy
      Family Medicine
      Advanced in Dysferlinopathy
      Family Medicine
      333 N Green Bay Rd, 
      Neenah, WI 
      Languages Spoken:
      English
      Accepting New Patients

      Scott Davis is a primary care provider, practicing in Family Medicine in Neenah, Wisconsin. Dr. Davis is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Dysferlinopathy, Duchenne Muscular Dystrophy, High Cholesterol, and Febrile Neutropenia. Dr. Davis is currently accepting new patients.

      Advanced in Dysferlinopathy
      Advanced in Dysferlinopathy

      University Of Wisconsin Medical Foundation Inc

      600 Highland Ave, 
      Madison, WI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Stephanie Gardon is a Neurologist in Madison, Wisconsin. Dr. Gardon is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Myasthenia Gravis, Multifocal Motor Neuropathy, Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy Type 3. Dr. Gardon is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      The Medical College Of Wisconsin Inc

      8701 Watertown Plank Rd, Room 4041 Mfrc, 
      Milwaukee, WI 
      Languages Spoken:
      English
      Accepting New Patients

      Michael Collins is a Neurologist in Milwaukee, Wisconsin. Dr. Collins is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Inclusion Body Myositis, Mononeuritis Multiplex, Multiple Mononeuropathy, and Myotonic Dystrophy. Dr. Collins is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Columbia St Marys Hospital Milwaukee Inc

      1121 E N Ave, 
      Milwaukee, WI 
      Languages Spoken:
      English
      Accepting New Patients

      Valerie Nelson is a primary care provider, practicing in Family Medicine in Milwaukee, Wisconsin. Dr. Nelson is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Myofibrillar Myopathy, Wieacker Wolff Syndrome, Cytoplasmic Body Myopathy, and Inclusion Body Myopathy 2. Dr. Nelson is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      The Medical College Of Wisconsin Inc

      8701 Watertown Plank Rd, Room 4041 Mfrc, 
      Milwaukee, WI 
      Languages Spoken:
      English, Spanish
      Accepting New Patients

      Juan Figueroa is a Neurologist in Milwaukee, Wisconsin. Dr. Figueroa is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Inclusion Body Myositis, Isaacs' Syndrome, Continuous Muscle Fiber Activity Hereditary, Potassium-Aggravated Myotonia, and Nerve Decompression. Dr. Figueroa is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      The Medical College Of Wisconsin Inc

      8701 Watertown Plank Rd, Room 4041 Mfrc, 
      Milwaukee, WI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      David Shirilla is a Neurologist in Milwaukee, Wisconsin. Dr. Shirilla is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Spinal Muscular Atrophy (SMA), Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease). Dr. Shirilla is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Mayo Clinic Health System-Southwest Wisconsin Region Inc

      800 W Ave S, 
      La Crosse, WI 
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Anderson is a Neurologist in La Crosse, Wisconsin. Dr. Anderson is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Peripheral Neuropathy, Diabetic Neuropathy, Parkinson's Disease, and Movement Disorders. Dr. Anderson is currently accepting new patients.

      Experienced in Dysferlinopathy
      Experienced in Dysferlinopathy

      Beloit Health System Inc

      1905 E Huebbe Pkwy, 
      Beloit, WI 
      Languages Spoken:
      English, Polish
      Accepting New Patients

      Krzysztof Goetzen is a Neurologist in Beloit, Wisconsin. Dr. Goetzen is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Headache, Epilepsy, Memory Loss, and Distal Median Nerve Dysfunction. Dr. Goetzen is currently accepting new patients.

      Experienced in Dysferlinopathy
      Internal Medicine
      Experienced in Dysferlinopathy
      Internal Medicine

      University Of Wisconsin Medical Foundation Inc

      20 S Park St, 
      Madison, WI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Victoria Cheung is a primary care provider, practicing in Internal Medicine in Madison, Wisconsin. Dr. Cheung is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Pulmonary Hypertension, Pulmonary Veno-Occlusive Disease, Esophageal Perforation, and Glucocorticoid-Remediable Aldosteronism. Dr. Cheung is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Richland Hospital

      333 E 2nd St, 
      Richland Center, WI 
      Languages Spoken:
      English
      Accepting New Patients

      James Dickman is a primary care provider, practicing in Family Medicine in Richland Center, Wisconsin. Dr. Dickman is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Enlarged Prostate (BPH), Type 2 Diabetes (T2D), Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Dickman is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Oconto Hospital And Medical Center Inc

      107 E Highland Dr, 
      Oconto Falls, WI 
      Languages Spoken:
      English
      Accepting New Patients

      James Gast is a primary care provider, practicing in Family Medicine in Oconto Falls, Wisconsin. Dr. Gast is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are High Cholesterol, Type 2 Diabetes (T2D), Hypertension, Familial Hypertension, and Intrauterine Device Insertion. Dr. Gast is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine
      Experienced in Dysferlinopathy
      Family Medicine

      Aspirus Stanley Hospital And Clinics Inc

      704 S Clark St, 
      Thorp, WI 
      Languages Spoken:
      English
      Accepting New Patients

      Johnathon Justice is a primary care provider, practicing in Family Medicine in Thorp, Wisconsin. Dr. Justice is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Facioscapulohumeral Muscular Dystrophy (FSHD), Maturity Onset Diabetes of the Young, Type 2 Diabetes (T2D), and Shingles. Dr. Justice is currently accepting new patients.

      Experienced in Dysferlinopathy
      Family Medicine | Geriatrics
      Experienced in Dysferlinopathy
      Family Medicine | Geriatrics

      Oconto Hospital And Medical Center Inc

      218 S Hwy 141, 
      Crivitz, WI 
      Languages Spoken:
      English, Hindi, Punjabi, Urdu
      Accepting New Patients

      Pawneet Singh is a primary care provider, practicing in Family Medicine and Geriatrics in Crivitz, Wisconsin. Dr. Singh is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are High Cholesterol, Type 2 Diabetes (T2D), Heart Failure with Preserved Ejection Fraction (HFpEF), and Hypertension. Dr. Singh is currently accepting new patients.

      Experienced in Dysferlinopathy
      Internal Medicine
      Experienced in Dysferlinopathy
      Internal Medicine

      University Of Wisconsin Medical Foundation Inc

      20 S Park St, 
      Madison, WI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Randy Heidel is a primary care provider, practicing in Internal Medicine in Madison, Wisconsin. Dr. Heidel is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His top areas of expertise are Type 2 Diabetes (T2D), Facioscapulohumeral Muscular Dystrophy (FSHD), Hypertension, and Glucocorticoid-Remediable Aldosteronism. Dr. Heidel is currently accepting new patients.

      Experienced in Dysferlinopathy
      Internal Medicine
      Experienced in Dysferlinopathy
      Internal Medicine

      University Of Wisconsin Medical Foundation Inc

      5618 Odana Rd, 
      Madison, WI 
      Languages Spoken:
      English
      Offers Telehealth

      Gina Utrie is a primary care provider, practicing in Internal Medicine in Madison, Wisconsin. Dr. Utrie is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. Her top areas of expertise are Idiopathic Edema, Sitosterolemia, Diabetic Nephropathy, and Monoclonal Gammopathy of Undetermined Significance (MGUS).

      Showing 1-20 of 48

      Last Updated: 10/30/2025

      What is the definition of Dysferlinopathy?

      The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

      When should I see a Dysferlinopathy doctor in Wisconsin, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dysferlinopathy doctor in Wisconsin, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dysferlinopathy doctors in Wisconsin, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dysferlinopathy doctors in Wisconsin, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dysferlinopathy doctor in Wisconsin, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

      Why is it important to get a second opinion from a different Dysferlinopathy doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dysferlinopathy doctor in Wisconsin, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dysferlinopathy doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dysferlinopathy doctors in Wisconsin, US?

      Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

      Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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