The 20 Best Dysferlinopathy Doctors Near Me in madison, WI

Find the Top Dysferlinopathy Experts and Specialists

Last Updated: 09/26/2026

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MediFind found 12 doctor with experience in Dysferlinopathy near madison, WI. Of these, 9 are Experienced and 3 are Advanced.

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12 providers found
    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    Junction Rd Medical Center Internal Medicine Clinic

    451 Junction Rd, 
    Madison, WI 
     (6.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Erin Fouch is a primary care provider, practicing in Internal Medicine in Madison, Wisconsin. Dr. Fouch is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Sciatica, Scoliosis, Vertigo, and Hypertension. Dr. Fouch is board certified in Internal Medicine. Dr. Fouch is currently accepting new patients.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy
    Referral may be required

    University Hospital Neuromuscular Disorders Clinic

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Michael Hansen is a Neurologist practicing medicine in Madison, Wisconsin. Dr. Hansen is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Facioscapulohumeral Muscular Dystrophy (FSHD), Dysferlinopathy, Spinal Muscular Atrophy Type 3, and Hereditary Neuralgic Amyotrophy. Dr. Hansen is board certified in Neurology and Neuromuscular Medicine. Dr. Hansen is currently accepting new patients.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy
    Referral may be required

    University Hospital Neuromuscular Disorders Clinic

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Stephanie Gardon is a Neurologist practicing medicine in Madison, Wisconsin. Dr. Gardon is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 35 other conditions, according to our data. Her clinical expertise encompasses Myasthenia Gravis, Multifocal Motor Neuropathy, Spinal and Bulbar Muscular Atrophy, and Spinal Muscular Atrophy Type 3. Dr. Gardon is board certified in Neurology and Neuromuscular Medicine. Dr. Gardon is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Dysferlinopathy
    Physiatry | Pain Medicine
    Experienced in Dysferlinopathy
    Physiatry | Pain Medicine
    Referral may be required

    Madison Surgery Center Interventional Pain Program

    1 S Park St, 
    Madison, WI 
     (0.3 miles away)
    Experience:
    17+ years
    Languages Spoken:
    English, Spanish
    Accepting New Patients
    Offers Telehealth

    Michelle Poliak-Tunis is a Physiatrist and a Pain Medicine provider practicing medicine in Madison, Wisconsin. She has been practicing medicine for over 17 years. Dr. Poliak-Tunis is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Facet Joint Syndrome, Chronic Pain, Shingles, and Complex Regional Pain Syndrome. Dr. Poliak-Tunis is board certified in Physical Medicine & Rehabilitation and Pain Medicine. Dr. Poliak-Tunis is currently accepting new patients.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    20 S Park Clinic Internal Medicine Clinic

    20 S Park St, 
    Madison, WI 
     (0.4 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Randy Heidel is a primary care provider, practicing in Internal Medicine in Madison, Wisconsin. Dr. Heidel is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. His clinical expertise encompasses Type 2 Diabetes (T2D), Facioscapulohumeral Muscular Dystrophy (FSHD), Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension. Dr. Heidel is board certified in Internal Medicine. Dr. Heidel is currently accepting new patients.

    Advanced in Dysferlinopathy
    Advanced in Dysferlinopathy
    Referral may be required

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Experience:
    44+ years
    Languages Spoken:
    English, Polish
    Accepting New Patients

    Andrew Waclawik is a Neurologist practicing medicine in Madison, Wisconsin. He has been practicing medicine for over 44 years. Dr. Waclawik is rated as an Advanced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 52 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Guillain-Barre Syndrome, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), and Mitochondrial Complex 1 Deficiency. Dr. Waclawik is currently accepting new patients.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    University Hospital Movement Disorders Clinic (Neurology)

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Jessica Baker is a Neurologist practicing medicine in Madison, Wisconsin. Dr. Baker is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 6 other conditions, according to our data. Her clinical expertise encompasses Parkinson's Disease, Movement Disorders, Mcleod Neuroacanthocytosis Syndrome, and Huntington Disease. Dr. Baker is board certified in Neurology. Dr. Baker is currently accepting new patients.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    University Hospital Inpatient Unit

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English

    Andrew Schaefer is a primary care provider, practicing in Internal Medicine in Madison, Wisconsin. He has been practicing medicine for over 10 years. Dr. Schaefer is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Progressive External Ophthalmoplegia, Cytochrome C Oxidase Deficiency, MELAS Syndrome, Mitochondrial Complex V Deficiency, and Endoscopy. Dr. Schaefer is board certified in Internal Medicine.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    University Hospital Neuromuscular Disorders Clinic

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Nassima Fertikh is a Neurologist practicing medicine in Madison, Wisconsin. Dr. Fertikh is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 8 other conditions, according to our data. Her clinical expertise encompasses Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy Type 3, Spinal Muscular Atrophy (SMA), and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease). Dr. Fertikh is board certified in Neurology. Dr. Fertikh is currently accepting new patients.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    Odana Rd Clinic Internal Medicine Clinic

    5618 Odana Rd, 
    Madison, WI 
     (4.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Gina Utrie is a primary care provider, practicing in Internal Medicine in Madison, Wisconsin. Dr. Utrie is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 10 other conditions, according to our data. Her clinical expertise encompasses Idiopathic Edema, Sitosterolemia, Diabetic Nephropathy, and Schnitzler Syndrome. Dr. Utrie is board certified in Internal Medicine.

    Experienced in Dysferlinopathy
    Experienced in Dysferlinopathy
    Referral may be required

    University Hospital

    600 Highland Ave, 
    Madison, WI 
     (1.6 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Collin Kreple is a Neurologist practicing medicine in Madison, Wisconsin. Dr. Kreple is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Spinal and Bulbar Muscular Atrophy, Spinal Muscular Atrophy (SMA), and Spinal Muscular Atrophy Type 3. Dr. Kreple is currently accepting new patients.

    Experienced in Dysferlinopathy
    Internal Medicine
    Experienced in Dysferlinopathy
    Internal Medicine

    E Terrace Dr Medical Center Internal Medicine Clinic

    5249 E Terrace Dr, 
    Madison, WI 
     (5.7 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Victoria Cheung is a primary care provider, practicing in Internal Medicine in Madison, Wisconsin. Dr. Cheung is rated as an Experienced provider by MediFind in the treatment of Dysferlinopathy. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Pulmonary Hypertension, Pulmonary Veno-Occlusive Disease, Esophageal Perforation, and Hypertension. Dr. Cheung is board certified in Internal Medicine. Dr. Cheung is currently accepting new patients.

    Showing 1-12 of 12

    Last Updated: 09/26/2026

    What is the definition of Dysferlinopathy?

    The diseases in the group are: All dysferlinopathies are caused by pathogenic variations in the DYSF gene which result in a deficiency of the protein dysferlin (hence, the name), important for the efficient repair of muscle fibers. Inheritance is autosomal recessive.

    When should I see a Dysferlinopathy doctor near madison, WI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Dysferlinopathy doctor near madison, WI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Dysferlinopathy doctors near madison, WI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Dysferlinopathy doctors near madison, WI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Dysferlinopathy doctor near madison, WI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dysferlinopathy doctor search results page. 

    Why is it important to get a second opinion from a different Dysferlinopathy doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Dysferlinopathy doctor near madison, WI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Dysferlinopathy doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Dysferlinopathy doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Dysferlinopathy doctors near madison, WI?

    Look for the filter feature on the left side of the Dysferlinopathy doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Dysferlinopathy doctor that offers video calls?

    Look for the filter feature on the left-side of the Dysferlinopathy doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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