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    Last Updated: 01/09/2026

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    MediFind found 3651 doctor with experience in Dyskeratosis Congenita. Of these, 3222 are Experienced, 333 are Advanced, 58 are Distinguished and 13 are Elite.

    Location
    LocationClose
    3,651 providers found
      Marina Bravin
      Advanced in Dyskeratosis Congenita
      Dermatology
      Advanced in Dyskeratosis Congenita
      Dermatology

      Bassett Oneonta Specialty Services

      1 Associate Drive, 
      Oneonta, NY 
      Languages Spoken:
      English

      . Dr. Bravin is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Actinic Keratosis, Melanoma, Warts, and Psoriasis.

      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      10 Center Drive, National Institutes Of Health Clinical Center, 
      Bethesda, MD 
      Languages Spoken:
      English

      Sharon Savage is a Pediatric Hematologist Oncology provider in Bethesda, Maryland. Dr. Savage is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Dyskeratosis Congenita, Aplastic Anemia, Aase Syndrome, Bone Marrow Transplant, and Hormone Replacement Therapy (HRT).

      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      9609 Medical Center Dr, Room 6e452, 
      Rockville, MD 
      Languages Spoken:
      English

      Blanche Alter is a Pediatric Hematologist Oncology provider in Rockville, Maryland. Dr. Alter is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Aase Syndrome, Dyskeratosis Congenita, Aplastic Anemia, Bone Marrow Transplant, and Hormone Replacement Therapy (HRT).

      Learn about our expert tiers
      Elite in Dyskeratosis Congenita
      Elite in Dyskeratosis Congenita
      Aachen, NW, DE 

      Fabian Beier practices in Aachen, Germany. Mr. Beier is rated as an Elite expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Dyskeratosis Congenita, Aplastic Anemia, Acquired Amegakaryocytic Thrombocytopenia, Anemia, and Bone Marrow Transplant.

      Elite in Dyskeratosis Congenita
      Elite in Dyskeratosis Congenita
      Aachen, NW, DE 

      Tim Brummendorf practices in Aachen, Germany. Mr. Brummendorf is rated as an Elite expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Chronic Myelogenous Leukemia (CML), Dyskeratosis Congenita, Leukemia, Myeloproliferative Neoplasms (MPN), and Bone Marrow Transplant.

      Elite in Dyskeratosis Congenita
      Elite in Dyskeratosis Congenita
      London, ENG, GB 

      Inderjeet Dokal practices in London, United Kingdom. Dokal is rated as an Elite expert by MediFind in the treatment of Dyskeratosis Congenita. Their top areas of expertise are Dyskeratosis Congenita, Hoyeraal Hreidarsson Syndrome, Aplastic Anemia, and Anemia.

      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      1600 7th Ave S, 
      Birmingham, AL 
      Languages Spoken:
      English

      Frederick Goldman is a Pediatric Hematologist Oncology provider in Birmingham, Alabama. Dr. Goldman is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Dyskeratosis Congenita, Severe Combined Immunodeficiency (SCID), Aase Syndrome, Wiskott-Aldrich Syndrome, and Bone Marrow Transplant.

      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      262 Danny Thomas Pl, 
      Memphis, TN 
      Languages Spoken:
      English

      Marcin Wlodarski is a Pediatric Hematologist Oncology provider in Memphis, Tennessee. Dr. Wlodarski is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Aase Syndrome, Pure Red Cell Aplasia, Dyskeratosis Congenita, Bone Marrow Transplant, and Splenectomy.

      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      9609 Medical Center Dr, 6e526, Msc 9772, 
      Rockville, MD 
      Languages Spoken:
      English

      Neelam Giri is a Pediatric Hematologist Oncology provider in Rockville, Maryland. Dr. Giri is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Dyskeratosis Congenita, Aase Syndrome, Aplastic Anemia, Congenital Aplastic Anemia, and Hormone Replacement Therapy (HRT).

      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      300 Longwood Ave, Children's Hospital, 
      Boston, MA 
      Languages Spoken:
      English

      Suneet Agarwal is a Pediatric Hematologist Oncology provider in Boston, Massachusetts. Dr. Agarwal is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Dyskeratosis Congenita, Aase Syndrome, Rathke Cleft Cyst, Aplastic Anemia, and Bone Marrow Transplant.

      Elite in Dyskeratosis Congenita
      Elite in Dyskeratosis Congenita
      Aachen, NW, DE 

      Steffen Koschmieder practices in Aachen, Germany. Mr. Koschmieder is rated as an Elite expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Myeloproliferative Neoplasms (MPN), Myelofibrosis, Polycythemia Vera, Essential Thrombocythemia, and Bone Marrow Transplant.

      Elite in Dyskeratosis Congenita
      Elite in Dyskeratosis Congenita
      Newark Street, 
      London, ENG, GB 

      Hemanth Tummala practices in London, United Kingdom. Mr. Tummala is rated as an Elite expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Dyskeratosis Congenita, Acute Myeloblastic Leukemia without Maturation, Acute Myeloblastic Leukemia with Maturation, and Aplastic Anemia.

      Elite in Dyskeratosis Congenita
      Elite in Dyskeratosis Congenita
      Newark Street, 
      London, ENG, GB 

      Amanda Walne practices in London, United Kingdom. Ms. Walne is rated as an Elite expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Dyskeratosis Congenita, Hoyeraal Hreidarsson Syndrome, Congenital Radioulnar Synostosis, and Aplastic Anemia.

      Elite in Dyskeratosis Congenita
      Elite in Dyskeratosis Congenita
      Aachen, NW, DE 

      Jens Panse practices in Aachen, Germany. Mr. Panse is rated as an Elite expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Paroxysmal Cold Hemoglobinuria, Paroxysmal Nocturnal Hemoglobinuria (PNH), Hemolysis, Systemic Mastocytosis, and Bone Marrow Transplant.

      Jennifer O'reilly
      Experienced in Dyskeratosis Congenita
      Internal Medicine
      Experienced in Dyskeratosis Congenita
      Internal Medicine

      Bassett Health Center Norwich

      55 Calvary Drive, 
      Norwich, NY 
      Languages Spoken:
      English
      Offers Telehealth

      . Dr. O'reilly is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Ringworm, Maturity Onset Diabetes of the Young, Hypertension, and Familial Hypertension.

      Experienced in Dyskeratosis Congenita
      Dermatology
      Experienced in Dyskeratosis Congenita
      Dermatology

      Holladay Clinic - Dermatology

      6272 South Highland Drive, Suite 202, 
      Murray, UT 
      Experience:
      23+ years
      Languages Spoken:
      English

      Jana Parker is a Dermatologist in Murray, Utah. Dr. Parker has been practicing medicine for over 23 years and is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Sunburn, Actinic Keratosis, Melanoma, and Universal Acquired Melanosis.

      Advanced in Dyskeratosis Congenita
      Dermatology
      Advanced in Dyskeratosis Congenita
      Dermatology

      University Hospitals Medical Group Inc

      11100 Euclid Ave, 
      Cleveland, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Kord Honda is a Dermatologist in Cleveland, Ohio. Dr. Honda is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Melanoma, Erythroderma, Acrogeria, Gottron Type, and Stiff Skin Syndrome. Dr. Honda is currently accepting new patients.

      Christiane S. Querfeld
      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita

      City Of Hope Medical Foundation

      1601 Avocado Ave, 
      Newport Beach, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Christiane Querfeld is a Dermatologist in Newport Beach, California. Dr. Querfeld is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Mycosis Fungoides, Cutaneous T-Cell Lymphoma (CTCL), T-Cell Lymphoma, and Sezary Syndrome.

      Donny Mehrabi
      Advanced in Dyskeratosis Congenita
      Dermatology
      Advanced in Dyskeratosis Congenita
      Dermatology

      Donny Mehrabi, MD Private Practice

      1505 Wilson Terr, Ste 240, 
      Glendale, CA 
      Languages Spoken:
      English
      Accepting New Patients

      Donny Mehrabi is a Dermatologist in Glendale, California. Dr. Mehrabi is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Plaque Psoriasis, Keloids, Actinic Keratosis, and Kaposi Sarcoma. Dr. Mehrabi is currently accepting new patients.

      Adrianna Vlachos
      Advanced in Dyskeratosis Congenita
      Hematology | Pediatric Hematology Oncology
      Advanced in Dyskeratosis Congenita
      Hematology | Pediatric Hematology Oncology

      Johns Hopkins All Children's Outpatient Care, St. Petersburg

      Saint Petersburg, FL 
      Languages Spoken:
      English, Greek
      Offers Telehealth

      Dr. Vlachos is the chief of hematology in the Johns Hopkins All Children’s Hospital Cancer & Blood Disorders Institute in St. Petersburg, Florida, and professor of pediatrics (PAR) in the Johns Hopkins University School of Medicine. She joined the hospital staff in 2024. She was previously professor of pediatrics at Zucker School of Medicine at Hofstra/Northwell and attending physician in hematology/oncology at Cohen Children’s Medical Center/Northwell Health, where she was head of the Bone Marrow Failure Program and head of the pediatric hematology/oncology trials office. Dr. Vlachos is internationally known for clinical care and expertise in bone marrow failure syndromes and her transformational research in Diamond Blackfan anemia (DBA) syndrome, a rare inherited bone marrow failure syndrome. Dr. Vlachos is the founder and has directed the Diamond Blackfan Anemia Registry (DBAR) of North America since its inception in 1991. She is the principal investigator and co-investigator on multiple grants funded by the National Institute of Health and the Centers for Disease Control and Prevention. She has published numerous articles on her research findings and has been invited to author papers and book chapters on bone marrow failure syndromes and DBA. Dr. Vlachos is a member of the Medical and Scientific Advisory Board for the Shwachman-Diamond Syndrome Registry, is a member of the Scientific Advisory Board for the Diamond Blackfan Anemia Foundation and holds a position on the Scientific Program Committee for Bone Marrow Failure of the American Society of Hematology. She earned her medical degree from New York Medical College in Valhalla, New York. She completed her residency in pediatrics at North Shore University Hospital in Manhasset, New York. She then completed a clinical fellowship in bone marrow transplantation at North Shore University Hospital, followed by a fellowship in pediatric hematology-oncology and bone marrow transplantation at Mount Sinai Medical Center in New York. Videos Bone Marrow Failure Syndrome Expert Dr. Adrianna Vlachos at Johns Hopkins All Children’s. Dr. Vlachos is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Aase Syndrome, Pure Red Cell Aplasia, Aplastic Anemia, and Transient Erythroblastopenia of Childhood.

      Showing 1-20 of 3,651

      Last Updated: 01/09/2026

      What is the definition of Dyskeratosis Congenita?

      Dyskeratosis congenita is a disorder that can affect many parts of the body. There are three features that are characteristic of this disorder: fingernails and toenails that grow poorly or are abnormally shaped (nail dystrophy); changes in skin coloring (pigmentation), especially on the neck and chest, in a pattern often described as "lacy"; and white patches inside the mouth (oral leukoplakia).

      When should I see a Dyskeratosis Congenita doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dyskeratosis Congenita doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dyskeratosis Congenita doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dyskeratosis Congenita doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dyskeratosis Congenita doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dyskeratosis Congenita doctor search results page. 

      Why is it important to get a second opinion from a different Dyskeratosis Congenita doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dyskeratosis Congenita doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dyskeratosis Congenita doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dyskeratosis Congenita doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dyskeratosis Congenita doctors near me?

      Look for the filter feature on the left side of the Dyskeratosis Congenita doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dyskeratosis Congenita doctor that offers video calls?

      Look for the filter feature on the left-side of the Dyskeratosis Congenita doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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