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    Last Updated: 10/30/2025

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    MediFind found 3643 doctor with experience in Dyskeratosis Congenita. Of these, 3197 are Experienced, 350 are Advanced, 57 are Distinguished and 14 are Elite.

    Location
    LocationClose
    3,643 providers found
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      10 Center Drive, National Institutes Of Health Clinical Center, 
      Bethesda, MD 
      Languages Spoken:
      English

      Sharon Savage is a Pediatric Hematologist Oncology provider in Bethesda, Maryland. Dr. Savage is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Dyskeratosis Congenita, Aplastic Anemia, Aase Syndrome, Bone Marrow Transplant, and Hormone Replacement Therapy (HRT).

      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      9609 Medical Center Dr, Room 6e452, 
      Rockville, MD 
      Languages Spoken:
      English

      Blanche Alter is a Pediatric Hematologist Oncology provider in Rockville, Maryland. Dr. Alter is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Aase Syndrome, Dyskeratosis Congenita, Aplastic Anemia, Bone Marrow Transplant, and Hormone Replacement Therapy (HRT).

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in Dyskeratosis Congenita
      Elite in Dyskeratosis Congenita
      Aachen, NW, DE 

      Fabian Beier practices in Aachen, Germany. Mr. Beier is rated as an Elite expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Dyskeratosis Congenita, Aplastic Anemia, Acquired Amegakaryocytic Thrombocytopenia, Anemia, and Bone Marrow Transplant.

      Learn about our expert tiers
      Elite in Dyskeratosis Congenita
      Elite in Dyskeratosis Congenita
      Aachen, NW, DE 

      Tim Brummendorf practices in Aachen, Germany. Mr. Brummendorf is rated as an Elite expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Chronic Myelogenous Leukemia (CML), Dyskeratosis Congenita, Leukemia, Myeloproliferative Neoplasms (MPN), and Bone Marrow Transplant.

      Elite in Dyskeratosis Congenita
      Elite in Dyskeratosis Congenita
      London, ENG, GB 

      Inderjeet Dokal practices in London, United Kingdom. Dokal is rated as an Elite expert by MediFind in the treatment of Dyskeratosis Congenita. Their top areas of expertise are Dyskeratosis Congenita, Hoyeraal Hreidarsson Syndrome, Aplastic Anemia, and Acute Myeloblastic Leukemia without Maturation.

      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      1600 7th Ave S, 
      Birmingham, AL 
      Languages Spoken:
      English

      Frederick Goldman is a Pediatric Hematologist Oncology provider in Birmingham, Alabama. Dr. Goldman is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Dyskeratosis Congenita, Severe Combined Immunodeficiency (SCID), Aase Syndrome, Wiskott-Aldrich Syndrome, and Bone Marrow Transplant.

      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      262 Danny Thomas Pl, 
      Memphis, TN 
      Languages Spoken:
      English

      Marcin Wlodarski is a Pediatric Hematologist Oncology provider in Memphis, Tennessee. Dr. Wlodarski is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Aase Syndrome, Pure Red Cell Aplasia, Dyskeratosis Congenita, Bone Marrow Transplant, and Splenectomy.

      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      9609 Medical Center Dr, 6e526, Msc 9772, 
      Rockville, MD 
      Languages Spoken:
      English

      Neelam Giri is a Pediatric Hematologist Oncology provider in Rockville, Maryland. Dr. Giri is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Dyskeratosis Congenita, Aase Syndrome, Aplastic Anemia, Congenital Aplastic Anemia, and Hormone Replacement Therapy (HRT).

      Elite in Dyskeratosis Congenita
      Elite in Dyskeratosis Congenita
      Aachen, NW, DE 

      Steffen Koschmieder practices in Aachen, Germany. Mr. Koschmieder is rated as an Elite expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Myeloproliferative Neoplasms (MPN), Myelofibrosis, Polycythemia Vera, Essential Thrombocythemia, and Bone Marrow Transplant.

      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      300 Longwood Ave, Children's Hospital, 
      Boston, MA 
      Languages Spoken:
      English

      Suneet Agarwal is a Pediatric Hematologist Oncology provider in Boston, Massachusetts. Dr. Agarwal is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Dyskeratosis Congenita, Aase Syndrome, Rathke Cleft Cyst, Aplastic Anemia, and Bone Marrow Transplant.

      Elite in Dyskeratosis Congenita
      Elite in Dyskeratosis Congenita
      Newark Street, 
      London, ENG, GB 

      Amanda Walne practices in London, United Kingdom. Ms. Walne is rated as an Elite expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Dyskeratosis Congenita, Hoyeraal Hreidarsson Syndrome, Acute Myeloblastic Leukemia without Maturation, and Acute Myeloblastic Leukemia with Maturation.

      Elite in Dyskeratosis Congenita
      Elite in Dyskeratosis Congenita
      Newark Street, 
      London, ENG, GB 

      Hemanth Tummala practices in London, United Kingdom. Mr. Tummala is rated as an Elite expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Dyskeratosis Congenita, Acute Myeloblastic Leukemia without Maturation, Acute Myeloblastic Leukemia with Maturation, and Aplastic Anemia.

      Elite in Dyskeratosis Congenita
      Elite in Dyskeratosis Congenita
      Aachen, NW, DE 

      Jens Panse practices in Aachen, Germany. Mr. Panse is rated as an Elite expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Paroxysmal Cold Hemoglobinuria, Paroxysmal Nocturnal Hemoglobinuria (PNH), Hemolysis, Mast Cell Activation Syndrome (MCAS), and Bone Marrow Transplant.

      Elite in Dyskeratosis Congenita
      Elite in Dyskeratosis Congenita
      Newark Street, 
      London, ENG, GB 

      Tom Vulliamy practices in London, United Kingdom. Vulliamy is rated as an Elite expert by MediFind in the treatment of Dyskeratosis Congenita. Their top areas of expertise are Dyskeratosis Congenita, Hoyeraal Hreidarsson Syndrome, Acute Myeloblastic Leukemia without Maturation, and Acute Myeloblastic Leukemia with Maturation.

      Advanced in Dyskeratosis Congenita
      Dermatology
      Advanced in Dyskeratosis Congenita
      Dermatology

      University Hospitals Medical Group Inc

      11100 Euclid Ave, 
      Cleveland, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Kord Honda is a Dermatologist in Cleveland, Ohio. Dr. Honda is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Melanoma, Erythroderma, Nakajo-Nishimura Syndrome, and Stiff Skin Syndrome. Dr. Honda is currently accepting new patients.

      Christiane S. Querfeld
      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita

      City Of Hope Medical Foundation

      1601 Avocado Ave, 
      Newport Beach, CA 
      Languages Spoken:
      English
      Offers Telehealth

      Christiane Querfeld is a Dermatologist in Newport Beach, California. Dr. Querfeld is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Mycosis Fungoides, Cutaneous T-Cell Lymphoma (CTCL), T-Cell Lymphoma, and Sezary Syndrome.

      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita

      Forefront Dermatology Sc

      801 York St, 
      Manitowoc, WI 
      Languages Spoken:
      English
      Accepting New Patients

      Kelli Hutchens is a Dermatologist in Manitowoc, Wisconsin. Dr. Hutchens is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Melanoma, Actinic Keratosis, Neurocutaneous Melanosis, and Seborrheic Keratosis. Dr. Hutchens is currently accepting new patients.

      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita

      University Of Virginia Physicians Group

      1221 Lee St, 
      Charlottesville, VA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mary-margaret Noland is a Dermatologist in Charlottesville, Virginia. Dr. Noland is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Sunburn, Actinic Keratosis, Bullous Pemphigoid, and Warts. Dr. Noland is currently accepting new patients.

      Experienced in Dyskeratosis Congenita
      Dermatology
      Experienced in Dyskeratosis Congenita
      Dermatology
      225 E Chicago Ave, 
      Chicago, IL 
      Languages Spoken:
      English, Polish, Spanish

      Lacey Kruse is a Dermatologist in Chicago, Illinois. Dr. Kruse is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Familial Multiple Nevi Flammei, Stork Bite, Linear Hamartoma Syndrome, and Vascular Birthmark.

      Experienced in Dyskeratosis Congenita
      Family Medicine
      Experienced in Dyskeratosis Congenita
      Family Medicine

      Sentara Medical Group

      4374 New Town Ave, Suite 200, 
      Williamsburg, VA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Janice Langer is a primary care provider, practicing in Family Medicine in Williamsburg, Virginia. Dr. Langer is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are High Cholesterol, Hypertension, Glucocorticoid-Remediable Aldosteronism, and Familial Hypertension. Dr. Langer is currently accepting new patients.

      Showing 1-20 of 3,643

      Last Updated: 10/30/2025

      What is the definition of Dyskeratosis Congenita?

      Dyskeratosis congenita is a disorder that can affect many parts of the body. There are three features that are characteristic of this disorder: fingernails and toenails that grow poorly or are abnormally shaped (nail dystrophy); changes in skin coloring (pigmentation), especially on the neck and chest, in a pattern often described as "lacy"; and white patches inside the mouth (oral leukoplakia).

      When should I see a Dyskeratosis Congenita doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dyskeratosis Congenita doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dyskeratosis Congenita doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dyskeratosis Congenita doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dyskeratosis Congenita doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dyskeratosis Congenita doctor search results page. 

      Why is it important to get a second opinion from a different Dyskeratosis Congenita doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dyskeratosis Congenita doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dyskeratosis Congenita doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dyskeratosis Congenita doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dyskeratosis Congenita doctors near me?

      Look for the filter feature on the left side of the Dyskeratosis Congenita doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dyskeratosis Congenita doctor that offers video calls?

      Look for the filter feature on the left-side of the Dyskeratosis Congenita doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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