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    Last Updated: 01/09/2026

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    MediFind found 59 doctor with experience in Dyskeratosis Congenita near Boston, MA. Of these, 50 are Experienced, 6 are Advanced, 2 are Distinguished and 1 are Elite.

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    59 providers found
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      300 Longwood Ave, Children's Hospital, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Suneet Agarwal is a Pediatric Hematologist Oncology provider in Boston, Massachusetts. Dr. Agarwal is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Dyskeratosis Congenita, Aase Syndrome, Rathke Cleft Cyst, Aplastic Anemia, and Bone Marrow Transplant.

      Peter C. Chien
      Experienced in Dyskeratosis Congenita
      Dermatology
      Experienced in Dyskeratosis Congenita
      Dermatology

      Beth Israel Deaconess Medical Center

      330 Brookline Avenue, Shapiro 2, 
      Boston, MA 
       (2.7 miles away)
      Languages Spoken:
      English, Cantonese, Spanish
      Offers Telehealth

      Peter Chien is a Dermatologist in Boston, Massachusetts. Dr. Chien is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Seborrheic Keratosis, Warts, Actinic Keratosis, and Epidermoid Cyst.

      Distinguished in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      Distinguished in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English

      Akiko Shimamura is a Pediatric Hematologist Oncology provider in Boston, Massachusetts. Dr. Shimamura is rated as a Distinguished provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Shwachman-Diamond Syndrome, Aplastic Anemia, Aase Syndrome, Familial Multiple Lipomatosis, and Bone Marrow Transplant.

      Learn about our expert tiers
      Distinguished in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      Distinguished in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      44 Binney St, Dana Farber Cancer Institute, 
      Boston, MA 
       (2.9 miles away)
      Languages Spoken:
      English

      Leslie Lehmann is a Pediatric Hematologist Oncology provider in Boston, Massachusetts. Dr. Lehmann is rated as a Distinguished provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Hepatic Venoocclusive Disease with Immunodeficiency, Dyskeratosis Congenita, Chronic Graft Versus Host Disease (cGvHD), Bone Marrow Transplant, and Tissue Biopsy.

      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita

      Department Of Dermatology

      Beth Israel Deaconess Medical Center, 330 Brookline Avenue, 
      Boston, MA 
       (2.7 miles away)
      Experience:
      17+ years
      Languages Spoken:
      English, Spanish
      Offers Telehealth

      Arianne Kourosh is a Dermatologist in Boston, Massachusetts. Dr. Kourosh has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Hidradenitis Suppurativa, Actinic Keratosis, Seborrheic Keratosis, and Familial Multiple Lipomatosis.

      Elena B. Hawryluk
      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita

      Massachusetts General Physicians Organization Inc

      50 Staniford St, 
      Boston, MA 
       (0.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Elena Hawryluk is a Dermatologist in Boston, Massachusetts. Dr. Hawryluk is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Giant Congenital Melanocytic Nevus, Melanoma, Xeroderma Pigmentosum, and Nevoid Basal Cell Carcinoma Syndrome. Dr. Hawryluk is currently accepting new patients.

      Rachael A. Clark
      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita

      Brigham And Womens Physicians Organization Inc

      221 Longwood Ave, 
      Boston, MA 
       (2.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Rachael Clark is a Dermatologist in Boston, Massachusetts. Dr. Clark is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Cutaneous T-Cell Lymphoma (CTCL), T-Cell Lymphoma, Mycosis Fungoides, and Melanoma. Dr. Clark is currently accepting new patients.

      Advanced in Dyskeratosis Congenita
      Advanced in Dyskeratosis Congenita
      300 Longwood Ave, Fegan 6, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Sadaf Hussain is a Dermatologist in Boston, Massachusetts. Dr. Hussain is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Molluscum Contagiosum, Hidradenitis Suppurativa, Keratitis-Ichthyosis-Deafness Syndrome, and Urticaria Pigmentosa. Dr. Hussain is currently accepting new patients.

      Advanced in Dyskeratosis Congenita
      Advanced in Dyskeratosis Congenita

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Pierre-olivier Grenier is a Dermatologist in Boston, Massachusetts. Dr. Grenier is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Scalded Skin Syndrome, Tufted Angioma, Molluscum Contagiosum, and Hemangioma. Dr. Grenier is currently accepting new patients.

      Advanced in Dyskeratosis Congenita
      Pediatrics
      Advanced in Dyskeratosis Congenita
      Pediatrics

      Dermatology Program

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Elaine Kaye is a Pediatrics provider in Boston, Massachusetts. Dr. Kaye is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Rosacea, Actinic Keratosis, Warts, and Giant Congenital Melanocytic Nevus.

      Advanced in Dyskeratosis Congenita
      Dermatology | Pediatrics
      Advanced in Dyskeratosis Congenita
      Dermatology | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Sophia Delano is a Dermatologist and a Pediatrics provider in Boston, Massachusetts. Dr. Delano is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Incontinentia Pigmenti, Urticaria Pigmentosa, Trichothiodystrophy, and Atopic Dermatitis. Dr. Delano is currently accepting new patients.

      Advanced in Dyskeratosis Congenita
      Dermatology
      Advanced in Dyskeratosis Congenita
      Dermatology
      300 Longwood Ave, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Tina Ho is a Dermatologist in Boston, Massachusetts. Dr. Ho is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Atopic Dermatitis, Scalded Skin Syndrome, Molluscum Contagiosum, and Hermansky-Pudlak Syndrome. Dr. Ho is currently accepting new patients.

      Ruth Ann Vleugels
      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita

      Division Of Immunology

      300 Longwood Ave # 6, 
      Boston, MA 
       (2.8 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Ruth Ann Vleugels is a Pediatrics provider in Boston, Massachusetts. Dr. Ann Vleugels is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Dermatomyositis, Eosinophilic Fasciitis, Cutaneous Lupus Erythematosus (CLE), and Discoid Lupus Erythematosus (DLE).

      Suzanne E. Gleysteen
      Experienced in Dyskeratosis Congenita
      Internal Medicine
      Experienced in Dyskeratosis Congenita
      Internal Medicine

      BILHPC, Washington Square, 637 Washington Street, Brookline

      637 Washington Street, Suite 100, 
      Brookline, MA 
       (4.0 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Suzanne Gleysteen is a primary care provider, practicing in Internal Medicine in Brookline, Massachusetts. Dr. Gleysteen is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Heart Failure with Preserved Ejection Fraction (HFpEF), Anorexia, High Cholesterol, and Hypothyroidism.

      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita

      Pratt Med/surg Dermatology Associates Inc

      800 Washigton St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English

      Sandhya Deverapalli is a Dermatologist in Boston, Massachusetts. Dr. Deverapalli is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Acute Febrile Neutrophilic Dermatosis, Universal Acquired Melanosis, Liver Spots, and Actinic Keratosis.

      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita

      Pratt Med/surg Dermatology Associates Inc

      800 Washigton St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Sarah Robinson is a Dermatologist in Boston, Massachusetts. Dr. Robinson is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Comedones, Cafe-Au-Lait Spots, Molluscum Contagiosum, and Familial Multiple Nevi Flammei. Dr. Robinson is currently accepting new patients.

      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita

      Pratt Med/surg Dermatology Associates Inc

      800 Washigton St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Victoria Billero is a Dermatologist in Boston, Massachusetts. Dr. Billero is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Liver Spots, Universal Acquired Melanosis, Autosomal Recessive Hypotrichosis, and Melanoma. Dr. Billero is currently accepting new patients.

      Experienced in Dyskeratosis Congenita
      Internal Medicine
      Experienced in Dyskeratosis Congenita
      Internal Medicine
      252 Tremont St, 
      Boston, MA 
       (0.5 miles away)
      Languages Spoken:
      English

      Maria Gorbovitsky is a primary care provider, practicing in Internal Medicine in Boston, Massachusetts. Dr. Gorbovitsky is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Hemangioblastoma, Osteoporosis, Postmenopausal Osteoporosis, and Chronic Cough.

      Experienced in Dyskeratosis Congenita
      Internal Medicine
      Experienced in Dyskeratosis Congenita
      Internal Medicine
      77 Mass Ave, Medical E23-395, 
      Cambridge, MA 
       (1.9 miles away)
      Languages Spoken:
      English

      William Ruth is a primary care provider, practicing in Internal Medicine in Cambridge, Massachusetts. Dr. Ruth is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Hepatitis, Autoimmune Hepatitis, Ampullary Cancer, and Cutis Marmorata Telangiectatica Congenita.

      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita

      Brigham And Womens Physicians Organization Inc

      221 Longwood Ave, 
      Boston, MA 
       (2.6 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      William Tsiaras is a Dermatologist in Boston, Massachusetts. Dr. Tsiaras is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Actinic Keratosis, Pyoderma Gangrenosum, Seborrheic Keratosis, and Warts. Dr. Tsiaras is currently accepting new patients.

      Showing 1-20 of 59

      Last Updated: 01/09/2026

      What is the definition of Dyskeratosis Congenita?

      Dyskeratosis congenita is a disorder that can affect many parts of the body. There are three features that are characteristic of this disorder: fingernails and toenails that grow poorly or are abnormally shaped (nail dystrophy); changes in skin coloring (pigmentation), especially on the neck and chest, in a pattern often described as "lacy"; and white patches inside the mouth (oral leukoplakia).

      When should I see a Dyskeratosis Congenita doctor near Boston, MA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dyskeratosis Congenita doctor near Boston, MA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dyskeratosis Congenita doctors near Boston, MA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dyskeratosis Congenita doctors near Boston, MA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dyskeratosis Congenita doctor near Boston, MA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dyskeratosis Congenita doctor search results page. 

      Why is it important to get a second opinion from a different Dyskeratosis Congenita doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dyskeratosis Congenita doctor near Boston, MA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dyskeratosis Congenita doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dyskeratosis Congenita doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dyskeratosis Congenita doctors near Boston, MA?

      Look for the filter feature on the left side of the Dyskeratosis Congenita doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dyskeratosis Congenita doctor that offers video calls?

      Look for the filter feature on the left-side of the Dyskeratosis Congenita doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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