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    Last Updated: 01/09/2026

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    MediFind found 36 doctor with experience in Dyskeratosis Congenita near Baden-Wuerttemberg, DE. Of these, 30 are Experienced, 4 are Advanced and 2 are Distinguished.

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    36 providers found
      Distinguished in Dyskeratosis Congenita

      Charlotte M. Niemeyer
      Distinguished in Dyskeratosis Congenita

      Charlotte M. Niemeyer
      Freiburg, BW, DE 

      Charlotte Niemeyer practices in Freiburg, Germany. Ms. Niemeyer is rated as a Distinguished expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Juvenile Myelomonocytic Leukemia (JMML), Aase Syndrome, Pure Red Cell Aplasia, Aplastic Anemia, and Bone Marrow Transplant.

      Distinguished in Dyskeratosis Congenita

      Brigitte Strahm
      Distinguished in Dyskeratosis Congenita

      Brigitte Strahm
      Freiburg, BW, DE 

      Brigitte Strahm practices in Freiburg, Germany. Ms. Strahm is rated as a Distinguished expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Juvenile Myelomonocytic Leukemia (JMML), Dyskeratosis Congenita, Myelodysplastic Syndrome (MDS), Aplastic Anemia, and Bone Marrow Transplant.

      Advanced in Dyskeratosis Congenita

      Britta Hochsmann
      Advanced in Dyskeratosis Congenita

      Britta Hochsmann
      Ulm, BW, DE 

      Britta Hochsmann practices in Ulm, Germany. Ms. Hochsmann is rated as an Advanced expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Paroxysmal Nocturnal Hemoglobinuria (PNH), Paroxysmal Cold Hemoglobinuria, Anemia, Hemolysis, and Bone Marrow Transplant.

      Learn about our expert tiers
      Advanced in Dyskeratosis Congenita

      Carsten Speckmann
      Advanced in Dyskeratosis Congenita

      Carsten Speckmann
      Freiburg, BW, DE 

      Carsten Speckmann practices in Freiburg, Germany. Mr. Speckmann is rated as an Advanced expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Severe Combined Immunodeficiency (SCID), Adenosine Deaminase Deficiency, Primary Immunodeficiency (PID), Hemophagocytic Lymphohistiocytosis, and Bone Marrow Transplant.

      Advanced in Dyskeratosis Congenita

      Melanie Boerries
      Advanced in Dyskeratosis Congenita

      Melanie Boerries
      Stefan Meier Str. 17, 
      Freiburg, BW, DE 

      Melanie Boerries practices in Freiburg, Germany. Ms. Boerries is rated as an Advanced expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Juvenile Myelomonocytic Leukemia (JMML), Anaplastic Large Cell Lymphoma, Leukemia, and T-Cell Lymphoma.

      Advanced in Dyskeratosis Congenita

      Ayami Yoshimi
      Advanced in Dyskeratosis Congenita

      Ayami Yoshimi
      Freiburg, BW, DE 

      Ayami Yoshimi practices in Freiburg, Germany. Ms. Yoshimi is rated as an Advanced expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Juvenile Myelomonocytic Leukemia (JMML), Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, RUNX1 Familial Platelet Disorder, Bone Marrow Transplant, and Bone Marrow Aspiration.

      Experienced in Dyskeratosis Congenita

      Marta Rizzi
      Experienced in Dyskeratosis Congenita

      Marta Rizzi
      Hugstetter Str. 55, 
      Freiburg, BW, DE 

      Marta Rizzi practices in Freiburg, Germany. Ms. Rizzi is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Common Variable Immune Deficiency, Granulomatosis with Polyangiitis, Vasculitis, Eosinophilic Granulomatosis with Polyangiitis (EGPA, Churg-Strauss Syndrome), and Bone Marrow Transplant.

      Experienced in Dyskeratosis Congenita

      Ulrich Pannicke
      Experienced in Dyskeratosis Congenita

      Ulrich Pannicke
      Ulm, BW, DE 

      Ulrich Pannicke practices in Ulm, Germany. Mr. Pannicke is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Severe Combined Immunodeficiency (SCID), Infantile Neutropenia, Dyskeratosis Congenita, Cerebellar Hypoplasia, and Bone Marrow Transplant.

      Experienced in Dyskeratosis Congenita

      Klaus A. Schwarz
      Experienced in Dyskeratosis Congenita

      Klaus A. Schwarz
      Ulm, BW, DE 

      Klaus Schwarz practices in Ulm, Germany. Mr. Schwarz is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Severe Combined Immunodeficiency (SCID), Primary Immunodeficiency (PID), Leukocyte Adhesion Deficiency Type 1, Dyserythropoietic Anemia and Thrombocytopenia, and Bone Marrow Transplant.

      Experienced in Dyskeratosis Congenita

      Ekkehart Lausch
      Experienced in Dyskeratosis Congenita

      Ekkehart Lausch
      Freiburg, BW, DE 

      Ekkehart Lausch practices in Freiburg, Germany. Lausch is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. Their top areas of expertise are Hyaline Fibromatosis Syndrome, Kozlowski Spondylometaphyseal Dysplasia, Achondrogenesis, and Spondyloenchondrodysplasia.

      Experienced in Dyskeratosis Congenita

      Anne Ehl-Rensing
      Experienced in Dyskeratosis Congenita

      Anne Ehl-Rensing
      Hugstetter Str. 55, 
      Freiburg, BW, DE 

      Anne Ehl-Rensing practices in Freiburg, Germany. Ms. Ehl-Rensing is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Severe Combined Immunodeficiency (SCID), Autoimmune Hemolytic Anemia, Evans Syndrome, and Gray Platelet Syndrome.

      Experienced in Dyskeratosis Congenita

      Stephan R. Ehl
      Experienced in Dyskeratosis Congenita

      Stephan R. Ehl
      Freiburg, BW, DE 

      Stephan Ehl practices in Freiburg, Germany. Mr. Ehl is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Hemophagocytic Lymphohistiocytosis, Non-Langerhans-Cell Histiocytosis, Histiocytosis, Reticulohistiocytoma, and Bone Marrow Transplant.

      Experienced in Dyskeratosis Congenita

      Fengbiao Zhou
      Experienced in Dyskeratosis Congenita

      Fengbiao Zhou
      Heidelberg, BW, DE 

      Fengbiao Zhou practices in Heidelberg, Germany. Zhou is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. Their top areas of expertise are Acute Myeloid Leukemia (AML), Leukemia, and Dyskeratosis Congenita.

      Experienced in Dyskeratosis Congenita

      Michael Karremann
      Experienced in Dyskeratosis Congenita

      Michael Karremann
      Mannheim, BW, DE 

      Michael Karremann practices in Mannheim, Germany. Mr. Karremann is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Diffuse Midline Glioma H3 K27M-Mutant, Glioma, Gliomatosis Cerebri, and Brain Tumor.

      Experienced in Dyskeratosis Congenita

      Nadezhda Ordonez-Camacho
      Experienced in Dyskeratosis Congenita

      Nadezhda Ordonez-Camacho
      Freiburg, BW, DE 

      Nadezhda Ordonez-Camacho practices in Freiburg, Germany. Ms. Ordonez-Camacho is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Common Variable Immune Deficiency, Primary Immunodeficiency (PID), Adult Immune Thrombocytopenia, and Dyskeratosis Congenita.

      Experienced in Dyskeratosis Congenita

      Klaus Warnatz
      Experienced in Dyskeratosis Congenita

      Klaus Warnatz
      Freiburg, BW, DE 

      Klaus Warnatz practices in Freiburg, Germany. Mr. Warnatz is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Common Variable Immune Deficiency, Primary Immunodeficiency (PID), X-Linked Agammaglobulinemia, Severe Combined Immunodeficiency (SCID), and Bone Marrow Transplant.

      Experienced in Dyskeratosis Congenita

      Sigune Goldacker
      Experienced in Dyskeratosis Congenita

      Sigune Goldacker
      Freiburg, BW, DE 

      Sigune Goldacker practices in Freiburg, Germany. Goldacker is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. Their top areas of expertise are Common Variable Immune Deficiency, Post-Splenectomy Syndrome, Primary Immunodeficiency (PID), and Acute Interstitial Pneumonia.

      Experienced in Dyskeratosis Congenita

      Holger Lorenz
      Experienced in Dyskeratosis Congenita

      Holger Lorenz
      Heidelberg, BW, DE 

      Holger Lorenz practices in Heidelberg, Germany. Mr. Lorenz is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. His top area of expertise is Dyskeratosis Congenita.

      Experienced in Dyskeratosis Congenita

      Andreas E. Kulozik
      Experienced in Dyskeratosis Congenita

      Andreas E. Kulozik
      Heidelberg, BW, DE 

      Andreas Kulozik practices in Heidelberg, Germany. Mr. Kulozik is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Acute Lymphoblastic Leukemia (ALL), Ependymoma, Acquired Methemoglobinemia, Medulloblastoma, and Bone Marrow Transplant.

      Experienced in Dyskeratosis Congenita

      Sven W. Sauer
      Experienced in Dyskeratosis Congenita

      Sven W. Sauer
      Heidelberg, BW, DE 

      Sven Sauer practices in Heidelberg, Germany. Mr. Sauer is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Glutaric Acidemia Type 1, Methylmalonic Acidemia, Maple Syrup Urine Disease, and Dyskeratosis Congenita.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 36

      Last Updated: 01/09/2026

      What is the definition of Dyskeratosis Congenita?

      Dyskeratosis congenita is a disorder that can affect many parts of the body. There are three features that are characteristic of this disorder: fingernails and toenails that grow poorly or are abnormally shaped (nail dystrophy); changes in skin coloring (pigmentation), especially on the neck and chest, in a pattern often described as "lacy"; and white patches inside the mouth (oral leukoplakia).

      When should I see a Dyskeratosis Congenita doctor in Baden-Wuerttemberg, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dyskeratosis Congenita doctor in Baden-Wuerttemberg, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Dyskeratosis Congenita doctor in Baden-Wuerttemberg, DE?

      You can find a Dyskeratosis Congenita doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Dyskeratosis Congenita doctors in Baden-Wuerttemberg, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dyskeratosis Congenita doctors in Baden-Wuerttemberg, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dyskeratosis Congenita doctor in Baden-Wuerttemberg, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dyskeratosis Congenita doctor search results page. 

      Why is it important to get a second opinion from a different Dyskeratosis Congenita doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dyskeratosis Congenita doctor in Baden-Wuerttemberg, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dyskeratosis Congenita doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dyskeratosis Congenita doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dyskeratosis Congenita doctors in Baden-Wuerttemberg, DE?

      Look for the filter feature on the left side of the Dyskeratosis Congenita doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dyskeratosis Congenita doctor that offers video calls?

      Look for the filter feature on the left-side of the Dyskeratosis Congenita doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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