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    Last Updated: 01/09/2026

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    MediFind found 24 doctor with experience in Dyskeratosis Congenita near Hesse, DE. Of these, 23 are Experienced and 1 are Distinguished.

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    24 providers found
      Distinguished in Dyskeratosis Congenita

      Selim K. Corbacioglu
      Distinguished in Dyskeratosis Congenita

      Selim K. Corbacioglu
      Franz Josef Strauss Allee 11, 
      Regensburg, BY, DE 

      Selim Corbacioglu practices in Regensburg, Germany. Mr. Corbacioglu is rated as a Distinguished expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Hepatic Venoocclusive Disease with Immunodeficiency, Hemoglobinopathy, Congenital Hemolytic Anemia, Bone Marrow Transplant, and Bone Graft.

      Experienced in Dyskeratosis Congenita

      Clemens Stockklausner
      Experienced in Dyskeratosis Congenita

      Clemens Stockklausner
      Garmisch, BY, DE 

      Clemens Stockklausner practices in Garmisch, Germany. Mr. Stockklausner is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Essential Thrombocythemia, Dyskeratosis Congenita, Fibrodysplasia Ossificans Progressiva, and Paroxysmal Cold Hemoglobinuria.

      Experienced in Dyskeratosis Congenita

      Detlev Schindler
      Experienced in Dyskeratosis Congenita

      Detlev Schindler
      Wuerzburg, BY, DE 

      Detlev Schindler practices in Wuerzburg, Germany. Schindler is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. Their top areas of expertise are Fanconi Anemia, Congenital Aplastic Anemia, Aplastic Anemia, and Anemia.

      Learn about our expert tiers
      Experienced in Dyskeratosis Congenita

      Axel Karow
      Experienced in Dyskeratosis Congenita

      Axel Karow
      Erlangen, BY, DE 

      Axel Karow practices in Erlangen, Germany. Mr. Karow is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Chronic Myelogenous Leukemia (CML), Leukemia, Essential Thrombocythemia, Dyskeratosis Congenita, and Bone Marrow Transplant.

      Experienced in Dyskeratosis Congenita

      Adrian Moreno-Sanz
      Experienced in Dyskeratosis Congenita

      Adrian Moreno-Sanz
      Neuherberg, BY, DE 

      Adrian Moreno-Sanz practices in Neuherberg, Germany. Mr. Moreno-Sanz is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Dyskeratosis Congenita, Microcephaly Deafness Syndrome, and Breast Cancer.

      Experienced in Dyskeratosis Congenita

      Hermann S. Fuessl
      Experienced in Dyskeratosis Congenita

      Hermann S. Fuessl
      Munich, BY, DE 

      Hermann Fuessl practices in Munich, Germany. Mr. Fuessl is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Hyperventilation, Fainting, Primary Hyperoxaluria Type 2, Colonoscopy, and Endoscopy.

      Experienced in Dyskeratosis Congenita

      Stefanie Leuchtenberger
      Experienced in Dyskeratosis Congenita

      Stefanie Leuchtenberger
      Neuherberg, BY, DE 

      Stefanie Leuchtenberger practices in Neuherberg, Germany. Ms. Leuchtenberger is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Hyperlysinemia, Dyskeratosis Congenita, and Paget's Disease of Bone.

      Experienced in Dyskeratosis Congenita

      Cornelia Kraus
      Experienced in Dyskeratosis Congenita

      Cornelia Kraus
      Erlangen, BY, DE 

      Cornelia Kraus practices in Erlangen, Germany. Ms. Kraus is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Lenz Microphthalmia Syndrome, Pitt-Hopkins Syndrome, SRD5A3-CDG, and Short Stature (Growth Disorders).

      Experienced in Dyskeratosis Congenita

      Julia Wack-Calzada
      Experienced in Dyskeratosis Congenita

      Julia Wack-Calzada
      Neuherberg, BY, DE 

      Julia Wack-Calzada practices in Neuherberg, Germany. Ms. Wack-Calzada is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Ewing Sarcoma, Methylmalonic Acidemia, Osteosarcoma, and Microcephaly Deafness Syndrome.

      Experienced in Dyskeratosis Congenita

      Claudia Seisenberger
      Experienced in Dyskeratosis Congenita

      Claudia Seisenberger
      Neuherberg, BY, DE 

      Claudia Seisenberger practices in Neuherberg, Germany. Ms. Seisenberger is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Hyperlysinemia and Dyskeratosis Congenita.

      Experienced in Dyskeratosis Congenita

      Patricia Buttkus-Da Silva
      Experienced in Dyskeratosis Congenita

      Patricia Buttkus-Da Silva
      Neuherberg, BY, DE 

      Patricia Buttkus-Da Silva practices in Neuherberg, Germany. Ms. Buttkus-Da Silva is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Hyperlysinemia, Beta-Propeller Protein-Associated Neurodegeneration, Dyskeratosis Congenita, and Hallervorden-Spatz Disease.

      Experienced in Dyskeratosis Congenita

      Birgit Rathkolb
      Experienced in Dyskeratosis Congenita

      Birgit Rathkolb

      LMU Munich

      Munich, BY, DE 

      Birgit Rathkolb practices in Munich, Germany. Ms. Rathkolb is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Laron Syndrome, Infant Hyperglycemia, Paget's Disease of Bone, and Methylmalonic Acidemia.

      Experienced in Dyskeratosis Congenita

      Oana V. Amarie
      Experienced in Dyskeratosis Congenita

      Oana V. Amarie
      Neuherberg, BY, DE 

      Oana Amarie practices in Neuherberg, Germany. Amarie is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. Their top areas of expertise are Beta-Propeller Protein-Associated Neurodegeneration, Dyskeratosis Congenita, Paget's Disease of Bone, and Hallervorden-Spatz Disease.

      Experienced in Dyskeratosis Congenita

      Heiko C. Bruns
      Experienced in Dyskeratosis Congenita

      Heiko C. Bruns
      Erlangen, BY, DE 

      Heiko Bruns practices in Erlangen, Germany. Mr. Bruns is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are B-Cell Lymphoma, Graft Versus Host Disease (GvHD), Multiple Myeloma, Chronic B-Cell Leukemia (CBCL), and Bone Marrow Transplant.

      Experienced in Dyskeratosis Congenita

      Nathalia V. Dragano
      Experienced in Dyskeratosis Congenita

      Nathalia V. Dragano
      Neuherberg, BY, DE 

      Nathalia Dragano practices in Neuherberg, Germany. Ms. Dragano is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Hyperlysinemia, Obesity, Dyskeratosis Congenita, and Non-Alcoholic Fatty Liver Disease.

      Experienced in Dyskeratosis Congenita

      Martin H. De Angelis
      Experienced in Dyskeratosis Congenita

      Martin H. De Angelis
      Garching Bei Munchen, BY, DE 

      Martin De Angelis practices in Garching Bei Munchen, Germany. Mr. De Angelis is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Obesity, Type 2 Diabetes (T2D), Coloboma of Optic Nerve, and Coloboma.

      Experienced in Dyskeratosis Congenita

      Antonio Pimentel-Aguilar
      Experienced in Dyskeratosis Congenita

      Antonio Pimentel-Aguilar
      Neuherberg, BY, DE 

      Antonio Pimentel-Aguilar practices in Neuherberg, Germany. Mr. Pimentel-Aguilar is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Beta-Propeller Protein-Associated Neurodegeneration, Dyskeratosis Congenita, Hallervorden-Spatz Disease, and Methylmalonic Acidemia.

      Experienced in Dyskeratosis Congenita

      Christiane Zweier
      Experienced in Dyskeratosis Congenita

      Christiane Zweier
      Erlangen, BY, DE 

      Christiane Zweier practices in Erlangen, Germany. Ms. Zweier is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Borjeson-Forssman-Lehmann Syndrome, Achalasia Microcephaly Syndrome, Microcephaly, and Pitt-Hopkins Syndrome.

      Experienced in Dyskeratosis Congenita

      Valerie Durner-Gailus
      Experienced in Dyskeratosis Congenita

      Valerie Durner-Gailus
      Neuherberg, BY, DE 

      Valerie Durner-Gailus practices in Neuherberg, Germany. Ms. Durner-Gailus is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Hyperlysinemia, Paget's Disease of Bone, Emphysema, and Methylmalonic Acidemia.

      Experienced in Dyskeratosis Congenita

      Andrea Kaifie
      Experienced in Dyskeratosis Congenita

      Andrea Kaifie
      Erlangen, BY, DE 

      Andrea Kaifie practices in Erlangen, Germany. Ms. Kaifie is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Myeloproliferative Neoplasms (MPN), Splenomegaly, Dyskeratosis Congenita, and Paroxysmal Cold Hemoglobinuria.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 24

      Last Updated: 01/09/2026

      What is the definition of Dyskeratosis Congenita?

      Dyskeratosis congenita is a disorder that can affect many parts of the body. There are three features that are characteristic of this disorder: fingernails and toenails that grow poorly or are abnormally shaped (nail dystrophy); changes in skin coloring (pigmentation), especially on the neck and chest, in a pattern often described as "lacy"; and white patches inside the mouth (oral leukoplakia).

      When should I see a Dyskeratosis Congenita doctor in Hesse, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dyskeratosis Congenita doctor in Hesse, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Dyskeratosis Congenita doctor in Hesse, DE?

      You can find a Dyskeratosis Congenita doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Dyskeratosis Congenita doctors in Hesse, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dyskeratosis Congenita doctors in Hesse, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dyskeratosis Congenita doctor in Hesse, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dyskeratosis Congenita doctor search results page. 

      Why is it important to get a second opinion from a different Dyskeratosis Congenita doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dyskeratosis Congenita doctor in Hesse, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dyskeratosis Congenita doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dyskeratosis Congenita doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dyskeratosis Congenita doctors in Hesse, DE?

      Look for the filter feature on the left side of the Dyskeratosis Congenita doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dyskeratosis Congenita doctor that offers video calls?

      Look for the filter feature on the left-side of the Dyskeratosis Congenita doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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