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    Last Updated: 01/09/2026

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    MediFind found 13 doctor with experience in Dyskeratosis Congenita near Lower Saxony, DE. Of these, 10 are Experienced, 2 are Advanced and 1 are Distinguished.

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    13 providers found
      Distinguished in Dyskeratosis Congenita
      Distinguished in Dyskeratosis Congenita
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Susanne Isfort practices in Hannover, Germany. Ms. Isfort is rated as a Distinguished expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Myeloproliferative Neoplasms (MPN), Dyskeratosis Congenita, Myelofibrosis, and Chronic Myelogenous Leukemia (CML).

      Advanced in Dyskeratosis Congenita
      Advanced in Dyskeratosis Congenita
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Gudrun Gohring practices in Hannover, Germany. Ms. Gohring is rated as an Advanced expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Myelodysplastic Syndrome (MDS), Acute Myeloid Leukemia (AML), Leukemia, Chromosome 7p Deletion, and Bone Marrow Transplant.

      Advanced in Dyskeratosis Congenita
      Advanced in Dyskeratosis Congenita
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Michael Heuser practices in Hannover, Germany. Mr. Heuser is rated as an Advanced expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Acute Myeloid Leukemia (AML), Leukemia, Myelodysplastic Syndrome (MDS), Bone Marrow Transplant, and Heart Transplant.

      Learn about our expert tiers
      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Kathrin Thomay practices in Hannover, Germany. Ms. Thomay is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Pulmonary Alveolar Proteinosis, Myelodysplastic Syndrome (MDS), Acute Myelomonocytic Leukemia, and Dyskeratosis Congenita.

      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Michele Proietti practices in Hannover, Germany. Proietti is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. Their top areas of expertise are Common Variable Immune Deficiency, Primary Immunodeficiency (PID), Hyper IgE Syndrome, and Autosomal Dominant Hyper IgE Syndrome.

      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Bodo Grimbacher practices in Hannover, Germany. Grimbacher is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. Their top areas of expertise are Common Variable Immune Deficiency, Hyper IgE Syndrome, Autosomal Dominant Hyper IgE Syndrome, Primary Immunodeficiency (PID), and Bone Marrow Transplant.

      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Christian Kratz practices in Hannover, Germany. Mr. Kratz is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Li-Fraumeni Syndrome, Macroglossia, Turcot Syndrome, Beckwith-Wiedemann Syndrome, and Bone Marrow Transplant.

      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Arne Trummer practices in Hannover, Germany. Mr. Trummer is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Acute Myeloid Leukemia (AML), Leukemia, Blood Clots, Dyskeratosis Congenita, and Bone Marrow Transplant.

      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita
      Ernst Grube Street 40, 
      Halle, NI, DE 

      Carsten Tidow-Muller practices in Halle, Germany. Mr. Tidow-Muller is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Acute Myeloid Leukemia (AML), Leukemia, Multiple Myeloma, Bone Marrow Transplant, and Kidney Transplant.

      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Lore Becker practices in Hannover, Germany. Ms. Becker is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Paget's Disease of Bone, Beta-Propeller Protein-Associated Neurodegeneration, Restless Legs Syndrome, and Emphysema.

      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita
      Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Andres Oteyza-Caballero practices in Hannover, Germany. Mr. Oteyza-Caballero is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Common Variable Immune Deficiency, Primary Immunodeficiency (PID), Dyskeratosis Congenita, and Spastic Paraplegia Type 2.

      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita
      Carl Neuberg Street 1, 
      Hannover, NI, DE 

      Mohamed Kenawey practices in Hannover, Germany. Mr. Kenawey is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Exstrophy of the Bladder, Exstrophy-Epispadias Complex, Epispadias, Osteotomy, and Bladder Reconstruction.

      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita
      OE 6300, Carl Neuberg Str. 1, 
      Hannover, NI, DE 

      Nataliya Di Donato practices in Hannover, Germany. Ms. Di Donato is rated as an Experienced expert by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Lissencephaly, Focal or Multifocal Malformations in Neuronal Migration, Cortical Dysplasia, and Subcortical Band Heterotopia.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-13 of 13

      Last Updated: 01/09/2026

      What is the definition of Dyskeratosis Congenita?

      Dyskeratosis congenita is a disorder that can affect many parts of the body. There are three features that are characteristic of this disorder: fingernails and toenails that grow poorly or are abnormally shaped (nail dystrophy); changes in skin coloring (pigmentation), especially on the neck and chest, in a pattern often described as "lacy"; and white patches inside the mouth (oral leukoplakia).

      When should I see a Dyskeratosis Congenita doctor in Lower Saxony, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dyskeratosis Congenita doctor in Lower Saxony, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dyskeratosis Congenita doctors in Lower Saxony, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dyskeratosis Congenita doctors in Lower Saxony, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dyskeratosis Congenita doctor in Lower Saxony, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dyskeratosis Congenita doctor search results page. 

      Why is it important to get a second opinion from a different Dyskeratosis Congenita doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dyskeratosis Congenita doctor in Lower Saxony, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dyskeratosis Congenita doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dyskeratosis Congenita doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dyskeratosis Congenita doctors in Lower Saxony, DE?

      Look for the filter feature on the left side of the Dyskeratosis Congenita doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dyskeratosis Congenita doctor that offers video calls?

      Look for the filter feature on the left-side of the Dyskeratosis Congenita doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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