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    Last Updated: 01/09/2026

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    MediFind found 95 doctor with experience in Dyskeratosis Congenita near Massachusetts, US. Of these, 83 are Experienced, 9 are Advanced, 2 are Distinguished and 1 are Elite.

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    95 providers found
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      Elite in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      300 Longwood Ave, Children's Hospital, 
      Boston, MA 
      Languages Spoken:
      English

      Suneet Agarwal is a Pediatric Hematologist Oncology provider in Boston, Massachusetts. Dr. Agarwal is rated as an Elite provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Dyskeratosis Congenita, Aase Syndrome, Rathke Cleft Cyst, Aplastic Anemia, and Bone Marrow Transplant.

      Distinguished in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      Distinguished in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English

      Akiko Shimamura is a Pediatric Hematologist Oncology provider in Boston, Massachusetts. Dr. Shimamura is rated as a Distinguished provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Shwachman-Diamond Syndrome, Aplastic Anemia, Aase Syndrome, Familial Multiple Lipomatosis, and Bone Marrow Transplant.

      Distinguished in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      Distinguished in Dyskeratosis Congenita
      Pediatric Hematology Oncology
      44 Binney St, Dana Farber Cancer Institute, 
      Boston, MA 
      Languages Spoken:
      English

      Leslie Lehmann is a Pediatric Hematologist Oncology provider in Boston, Massachusetts. Dr. Lehmann is rated as a Distinguished provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Hepatic Venoocclusive Disease with Immunodeficiency, Dyskeratosis Congenita, Chronic Graft Versus Host Disease (cGvHD), Bone Marrow Transplant, and Tissue Biopsy.

      Learn about our expert tiers
      Li Li
      Experienced in Dyskeratosis Congenita
      Internal Medicine
      Experienced in Dyskeratosis Congenita
      Internal Medicine

      BILHPC, 74 Route 6A, Sandwich

      74 Route 6A, 
      Sandwich, MA 
      Languages Spoken:
      English, Mandarin
      Offers Telehealth

      Li Li is a primary care provider, practicing in Internal Medicine in Sandwich, Massachusetts. Dr. Li is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Lymphomatoid Papulosis, T-Cell Lymphoma, Anaplastic Large Cell Lymphoma, and Hypothyroidism.

      Peter C. Chien
      Experienced in Dyskeratosis Congenita
      Dermatology
      Experienced in Dyskeratosis Congenita
      Dermatology

      Beth Israel Deaconess Medical Center

      330 Brookline Avenue, Shapiro 2, 
      Boston, MA 
      Languages Spoken:
      English, Cantonese, Spanish
      Offers Telehealth

      Peter Chien is a Dermatologist in Boston, Massachusetts. Dr. Chien is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Seborrheic Keratosis, Warts, Actinic Keratosis, and Epidermoid Cyst.

      Suzanne E. Gleysteen
      Experienced in Dyskeratosis Congenita
      Internal Medicine
      Experienced in Dyskeratosis Congenita
      Internal Medicine

      BILHPC, Washington Square, 637 Washington Street, Brookline

      637 Washington Street, Suite 100, 
      Brookline, MA 
      Languages Spoken:
      English
      Offers Telehealth

      Suzanne Gleysteen is a primary care provider, practicing in Internal Medicine in Brookline, Massachusetts. Dr. Gleysteen is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Heart Failure with Preserved Ejection Fraction (HFpEF), Anorexia, High Cholesterol, and Hypothyroidism.

      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita

      Essential Dermatology BILH PLLC

      220 North Main Street, Suite 201, 
      Natick, MA 
      Languages Spoken:
      English

      Michael Krathen is a Dermatologist in Natick, Massachusetts. Dr. Krathen is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Melanoma, Actinic Keratosis, Warts, and Psoriasis.

      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita

      Department Of Dermatology

      Beth Israel Deaconess Medical Center, 330 Brookline Avenue, 
      Boston, MA 
      Experience:
      17+ years
      Languages Spoken:
      English, Spanish
      Offers Telehealth

      Arianne Kourosh is a Dermatologist in Boston, Massachusetts. Dr. Kourosh has been practicing medicine for over 17 years and is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Hidradenitis Suppurativa, Actinic Keratosis, Seborrheic Keratosis, and Familial Multiple Lipomatosis.

      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita

      Dermcare Experts LLC

      1250 Hancock St, 505s, 
      Quincy, MA 
      Languages Spoken:
      English

      Victoria Kuohung is a Dermatologist in Quincy, Massachusetts. Dr. Kuohung is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Melanoma, Giant Congenital Melanocytic Nevus, Familial Atypical Multiple Mole Melanoma Syndrome, and Giant Congenital Nevus.

      Advanced in Dyskeratosis Congenita
      Advanced in Dyskeratosis Congenita
      300 Longwood Ave, Fegan 6, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Sadaf Hussain is a Dermatologist in Boston, Massachusetts. Dr. Hussain is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Molluscum Contagiosum, Hidradenitis Suppurativa, Keratitis-Ichthyosis-Deafness Syndrome, and Urticaria Pigmentosa. Dr. Hussain is currently accepting new patients.

      Advanced in Dyskeratosis Congenita
      Internal Medicine
      Advanced in Dyskeratosis Congenita
      Internal Medicine

      Mass General Brigham Community Physicians Inc

      260 Merrimac St, 
      Newburyport, MA 
      Languages Spoken:
      English

      Stephen Beaudoin is a primary care provider, practicing in Internal Medicine in Newburyport, Massachusetts. Dr. Beaudoin is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Vertigo, Anemia, Urinary Tract Infection in Children, and Urinary Tract Infection (UTI).

      Advanced in Dyskeratosis Congenita
      Advanced in Dyskeratosis Congenita

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Pierre-olivier Grenier is a Dermatologist in Boston, Massachusetts. Dr. Grenier is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Scalded Skin Syndrome, Tufted Angioma, Molluscum Contagiosum, and Hemangioma. Dr. Grenier is currently accepting new patients.

      Advanced in Dyskeratosis Congenita
      Pediatrics
      Advanced in Dyskeratosis Congenita
      Pediatrics

      Dermatology Program

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Offers Telehealth

      Elaine Kaye is a Pediatrics provider in Boston, Massachusetts. Dr. Kaye is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Rosacea, Actinic Keratosis, Warts, and Giant Congenital Melanocytic Nevus.

      Advanced in Dyskeratosis Congenita
      Advanced in Dyskeratosis Congenita
      60 Munson Meeting Way Ste K, 
      Chatham, MA 
      Languages Spoken:
      English

      Ann Eldridge is a Dermatologist in Chatham, Massachusetts. Dr. Eldridge is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Syringocystadenoma Papilliferum, Sebaceous Adenoma, Syringoma, and Extramammary Paget Disease.

      Advanced in Dyskeratosis Congenita
      Dermatology | Pediatrics
      Advanced in Dyskeratosis Congenita
      Dermatology | Pediatrics

      Children's Hospital Pediatric Associates, Inc

      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Sophia Delano is a Dermatologist and a Pediatrics provider in Boston, Massachusetts. Dr. Delano is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Incontinentia Pigmenti, Urticaria Pigmentosa, Trichothiodystrophy, and Atopic Dermatitis. Dr. Delano is currently accepting new patients.

      Advanced in Dyskeratosis Congenita
      Advanced in Dyskeratosis Congenita

      Newton Wellesley Dermatology Associates

      65 Walnut St, Suite 520, 
      Wellesley, MA 
      Languages Spoken:
      English
      Accepting New Patients

      David Aghassi is a Dermatologist in Wellesley, Massachusetts. Dr. Aghassi is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Actinic Keratosis, Warts, Seborrheic Keratosis, and Familial Atypical Multiple Mole Melanoma Syndrome. Dr. Aghassi is currently accepting new patients.

      Advanced in Dyskeratosis Congenita
      Dermatology
      Advanced in Dyskeratosis Congenita
      Dermatology
      300 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Tina Ho is a Dermatologist in Boston, Massachusetts. Dr. Ho is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Atopic Dermatitis, Scalded Skin Syndrome, Molluscum Contagiosum, and Hermansky-Pudlak Syndrome. Dr. Ho is currently accepting new patients.

      Advanced in Dyskeratosis Congenita
      Internal Medicine
      Advanced in Dyskeratosis Congenita
      Internal Medicine

      Worcester Internal Medicine, Inc.

      416 Belmont St, Suite 1, 
      Worcester, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Thomas Patnaude is a primary care provider, practicing in Internal Medicine in Worcester, Massachusetts. Dr. Patnaude is rated as an Advanced provider by MediFind in the treatment of Dyskeratosis Congenita. His top areas of expertise are Glucocorticoid-Remediable Aldosteronism, Familial Hypertension, Hypertension, and Dementia. Dr. Patnaude is currently accepting new patients.

      Elena B. Hawryluk
      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita

      Massachusetts General Physicians Organization Inc

      50 Staniford St, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Elena Hawryluk is a Dermatologist in Boston, Massachusetts. Dr. Hawryluk is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Giant Congenital Melanocytic Nevus, Melanoma, Xeroderma Pigmentosum, and Nevoid Basal Cell Carcinoma Syndrome. Dr. Hawryluk is currently accepting new patients.

      Rachael A. Clark
      Experienced in Dyskeratosis Congenita
      Experienced in Dyskeratosis Congenita

      Brigham And Womens Physicians Organization Inc

      221 Longwood Ave, 
      Boston, MA 
      Languages Spoken:
      English
      Accepting New Patients

      Rachael Clark is a Dermatologist in Boston, Massachusetts. Dr. Clark is rated as an Experienced provider by MediFind in the treatment of Dyskeratosis Congenita. Her top areas of expertise are Cutaneous T-Cell Lymphoma (CTCL), T-Cell Lymphoma, Mycosis Fungoides, and Melanoma. Dr. Clark is currently accepting new patients.

      Showing 1-20 of 95

      Last Updated: 01/09/2026

      What is the definition of Dyskeratosis Congenita?

      Dyskeratosis congenita is a disorder that can affect many parts of the body. There are three features that are characteristic of this disorder: fingernails and toenails that grow poorly or are abnormally shaped (nail dystrophy); changes in skin coloring (pigmentation), especially on the neck and chest, in a pattern often described as "lacy"; and white patches inside the mouth (oral leukoplakia).

      When should I see a Dyskeratosis Congenita doctor in Massachusetts, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Dyskeratosis Congenita doctor in Massachusetts, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Dyskeratosis Congenita doctors in Massachusetts, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Dyskeratosis Congenita doctors in Massachusetts, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Dyskeratosis Congenita doctor in Massachusetts, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Dyskeratosis Congenita doctor search results page. 

      Why is it important to get a second opinion from a different Dyskeratosis Congenita doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Dyskeratosis Congenita doctor in Massachusetts, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Dyskeratosis Congenita doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Dyskeratosis Congenita doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Dyskeratosis Congenita doctors in Massachusetts, US?

      Look for the filter feature on the left side of the Dyskeratosis Congenita doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Dyskeratosis Congenita doctor that offers video calls?

      Look for the filter feature on the left-side of the Dyskeratosis Congenita doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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