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    Last Updated: 10/30/2025

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    MediFind found 11 doctor with experience in EEC Syndrome near Indiana, US. Of these, 8 are Experienced and 3 are Advanced.

    Location
    LocationClose
    11 providers found
      Advanced in EEC Syndrome
      Medical Genetics | Pediatrics
      Advanced in EEC Syndrome
      Medical Genetics | Pediatrics
      550 University Blvd, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Theodore Wilson is a Medical Genetics specialist and a Pediatrics provider in Indianapolis, Indiana. Dr. Wilson is rated as an Advanced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are EEC Syndrome, Zlotogora-Ogur Syndrome, Clouston Syndrome, and AEC Syndrome. Dr. Wilson is currently accepting new patients.

      Advanced in EEC Syndrome
      Medical Genetics | Pediatrics
      Advanced in EEC Syndrome
      Medical Genetics | Pediatrics

      University Family Physicians, Inc.

      550 University Blvd, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Erin Conboy is a Medical Genetics specialist and a Pediatrics provider in Indianapolis, Indiana. Dr. Conboy is rated as an Advanced provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are Hereditary Multiple Osteochondromas, Ectodermal Dysplasias, Clouston Syndrome, and Early Infantile Epileptic Encephalopathy. Dr. Conboy is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in EEC Syndrome
      Pediatric Allergy and Immunology | Allergy and Immunology
      Advanced in EEC Syndrome
      Pediatric Allergy and Immunology | Allergy and Immunology

      Indiana Clinic Critical Care LLC

      1801 N Senate Blvd, Suite 230, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jay Jin is a Pediatric Allergy and Immunologist and an Allergy and Immunologist in Indianapolis, Indiana. Dr. Jin is rated as an Advanced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Selective Deficiency of IgA, Urticaria Pigmentosa, Primary Immunodeficiency (PID), and Common Variable Immune Deficiency. Dr. Jin is currently accepting new patients.

      Learn about our expert tiers
      Experienced in EEC Syndrome
      Medical Genetics | Pediatrics
      Experienced in EEC Syndrome
      Medical Genetics | Pediatrics

      University Family Physicians, Inc.

      550 University Blvd, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Molly Mcpheron is a Medical Genetics specialist and a Pediatrics provider in Indianapolis, Indiana. Dr. Mcpheron is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are Pompe Disease, Danon Disease, Phenylketonuria (PKU), and Maternal Hyperphenylalaninemia. Dr. Mcpheron is currently accepting new patients.

      Experienced in EEC Syndrome
      Internal Medicine | Hospital Medicine
      Experienced in EEC Syndrome
      Internal Medicine | Hospital Medicine

      Indiana University Health Care Associates Inc

      1700 W 10th St, The Indiana Clinic, 
      Indianapolis, IN 
      Experience:
      9+ years
      Languages Spoken:
      English
      Accepting New Patients

      Mitchell Mcclean is a Hospital Medicine provider in Indianapolis, Indiana. Dr. Mcclean has been practicing medicine for over 9 years and is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Febrile Neutropenia, Liver Failure, Nontuberculous Mycobacterial Lung Disease, and Chronic Inflammatory Response Syndrome (CIRS). Dr. Mcclean is currently accepting new patients.

      Experienced in EEC Syndrome
      Nurse Practitioner
      Experienced in EEC Syndrome
      Nurse Practitioner
      705 Riley Hospital Dr, Rr 208, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Donna Watkins is a Nurse Practitioner in Indianapolis, Indiana. Ms. Watkins is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are Naegeli-Franceschetti-Jadassohn Syndrome, AEC Syndrome, Zlotogora-Ogur Syndrome, and EEC Syndrome. Ms. Watkins is currently accepting new patients.

      Experienced in EEC Syndrome
      Family Medicine
      Experienced in EEC Syndrome
      Family Medicine

      Saint Joseph Regional Medical Center-South Bend Campus Inc

      611 E Douglas Rd, 407 Family Medicine Center, 
      Mishawaka, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Michele Collins is a primary care provider, practicing in Family Medicine in Mishawaka, Indiana. Dr. Collins is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are EEC Syndrome, AEC Syndrome, Zlotogora-Ogur Syndrome, Bone Graft, and Vertebroplasty. Dr. Collins is currently accepting new patients.

      Experienced in EEC Syndrome
      Dermatology | Pediatrics
      Experienced in EEC Syndrome
      Dermatology | Pediatrics

      Iu Health Medical Group LLC

      1701 N Senate Blvd, 
      Indianapolis, IN 
      Languages Spoken:
      English

      Jenna Streicher is a Dermatologist and a Pediatrics provider in Indianapolis, Indiana. Dr. Streicher is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are Hemangioma, Familial Multiple Nevi Flammei, Stork Bite, and Vascular Birthmark.

      Experienced in EEC Syndrome
      Pediatrics | Hospital Medicine
      Experienced in EEC Syndrome
      Pediatrics | Hospital Medicine
      705 Riley Hospital Dr, Ri 5868, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Henry Knouse is a Pediatrics specialist and a Hospital Medicine provider in Indianapolis, Indiana. Dr. Knouse is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Orofaciodigital Syndrome 6, Agyria Pachygyria Polymicrogyria, VLDLR-Associated Cerebellar Hypoplasia, Lissencephaly 1, and Gastrostomy. Dr. Knouse is currently accepting new patients.

      Experienced in EEC Syndrome
      Pediatric Pulmonology | Pediatrics | Pulmonary Medicine
      Experienced in EEC Syndrome
      Pediatric Pulmonology | Pediatrics | Pulmonary Medicine

      University Pediatric Associates Inc

      705 Riley Hospital Dr, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Gregory Montgomery is a Pediatric Pulmonologist and a Pediatrics provider in Indianapolis, Indiana. Dr. Montgomery is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Subglottic Stenosis, Stridor, Cerebral Hypoxia, Congenital Unilateral Pulmonary Hypoplasia, and Adenoidectomy. Dr. Montgomery is currently accepting new patients.

      Experienced in EEC Syndrome
      Infectious Disease
      Experienced in EEC Syndrome
      Infectious Disease

      Deaconess Clinic Inc

      520 Mary St, Suite 230, 
      Evansville, IN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Ethan Valinetz is an Infectious Disease provider in Evansville, Indiana. Dr. Valinetz is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Cytomegalovirus Infection, Cytomegalic Inclusion Disease, Naegeli-Franceschetti-Jadassohn Syndrome, AEC Syndrome, and Gastrostomy. Dr. Valinetz is currently accepting new patients.

      Showing 1-11 of 11

      Last Updated: 10/30/2025

      What is the definition of EEC Syndrome?

      EEC syndrome (Ectrodactyly-Ectodermal Dysplasia-Cleft Lip/Palate) is a rare form of ectodermal dysplasia. The symptoms can vary from mild to severe and most commonly include missing or irregular fingers and/or toes (ectrodactyly or split hand/foot malformation); abnormalities of the hair and glands; cleft lip and/or palate; distinctive facial features; and abnormalities of the eyes and urinary tract. EEC syndrome can be divided into two different types defined by the underlying cause. More than 90% of individuals have EEC syndrome type 3 (EEC3), caused by genetic changes in the TP63 gene. The of individuals with EEC syndrome are thought to have a genetic change in a region on chromosome 7, known as EEC syndrome type 1 (EEC1). EEC syndrome is inherited in an autosomal dominant manner.

      When should I see an EEC Syndrome doctor in Indiana, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an EEC Syndrome doctor in Indiana, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank EEC Syndrome doctors in Indiana, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by EEC Syndrome doctors in Indiana, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an EEC Syndrome doctor in Indiana, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the EEC Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different EEC Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an EEC Syndrome doctor in Indiana, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my EEC Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my EEC Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female EEC Syndrome doctors in Indiana, US?

      Look for the filter feature on the left side of the EEC Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an EEC Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the EEC Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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