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    Last Updated: 10/30/2025

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    MediFind found 364 doctor with experience in EEC Syndrome. Of these, 213 are Experienced, 144 are Advanced and 7 are Distinguished.

    Location
    LocationClose
    364 providers found
      Advanced in EEC Syndrome
      Advanced in EEC Syndrome

      University Of Virginia Physicians Group

      1221 Lee St, 
      Charlottesville, VA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Barrett Zlotoff is a Dermatologist in Charlottesville, Virginia. Dr. Zlotoff is rated as an Advanced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Seborrheic Keratosis, Atopic Dermatitis, Pityriasis Rubra Pilaris, and Familial Multiple Nevi Flammei. Dr. Zlotoff is currently accepting new patients.

      Advanced in EEC Syndrome
      Advanced in EEC Syndrome

      Osu Eye Physicians And Surgeons, LLC

      915 Olentangy River Rd, Fl 5, 
      Columbus, OH 
      Languages Spoken:
      English
      Accepting New Patients

      Andrew Hendershot is an Ophthalmologist in Columbus, Ohio. Dr. Hendershot is rated as an Advanced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Keratoconus, Corneal Dystrophy and Perceptive Deafness, Macular Corneal Dystrophy Type 1, Fuchs Dystrophy, and Corneal Transplant. Dr. Hendershot is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in EEC Syndrome
      Dermatology | General Surgery
      Experienced in EEC Syndrome
      Dermatology | General Surgery

      Wk Dermatology Clinic

      2300 Hospital Dr, Suite 400, 
      Bossier City, LA 
      Languages Spoken:
      English
      Accepting New Patients

      Sarah Baker is a Dermatologist and a General Surgeon in Bossier City, Louisiana. Dr. Baker is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are Rosacea, Atopic Dermatitis, Actinic Keratosis, and Plaque Psoriasis. Dr. Baker is currently accepting new patients.

      Learn about our expert tiers
      Distinguished in EEC Syndrome
      Distinguished in EEC Syndrome
      Nijmegen, GE, NL 

      Huiqing Zhou practices in Nijmegen, Netherlands. Zhou is rated as a Distinguished expert by MediFind in the treatment of EEC Syndrome. Their top areas of expertise are EEC Syndrome, AEC Syndrome, Split Hand Foot Malformation, and Aplasia Cutis Congenita.

      Distinguished in EEC Syndrome
      Distinguished in EEC Syndrome
      Ankara, TR 

      Pelin Kiper-Simsek practices in Ankara, Turkey. Ms. Kiper-Simsek is rated as a Distinguished expert by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are Chondrodystrophy, Schwartz-Jampel Syndrome, X-Linked Spondyloepiphyseal Dysplasia Tarda, and Brachydactyly Mononen Type.

      Distinguished in EEC Syndrome
      Distinguished in EEC Syndrome
      Paris, FR 

      Isabelle Petit practices in Paris, France. Ms. Petit is rated as a Distinguished expert by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are EEC Syndrome, Split Hand Foot Malformation, Aplasia Cutis Congenita, and Clouston Syndrome.

      Distinguished in EEC Syndrome
      Distinguished in EEC Syndrome
      Ankara, TR 

      Gulen Utine practices in Ankara, Turkey. Utine is rated as a Distinguished expert by MediFind in the treatment of EEC Syndrome. Their top areas of expertise are Camptodactyly Syndrome Guadalajara Type 2, Camptodactyly Syndrome Guadalajara Type 1, Camptodactyly Taurinuria, and Camptodactyly Fibrous Tissue Hyperplasia Skeletal Dysplasia.

      Distinguished in EEC Syndrome
      Distinguished in EEC Syndrome
      Paris, FR 

      Daniel Aberdam practices in Paris, France. Mr. Aberdam is rated as a Distinguished expert by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Aniridia, EEC Syndrome, Split Hand Foot Malformation, and Aplasia Cutis Congenita.

      Distinguished in EEC Syndrome
      Distinguished in EEC Syndrome
      Nijmegen, GE, NL 

      Simon Van Heeringen practices in Nijmegen, Netherlands. Mr. Van Heeringen is rated as a Distinguished expert by MediFind in the treatment of EEC Syndrome. His top areas of expertise are EEC Syndrome, Split Hand Foot Malformation, Aplasia Cutis Congenita, and Clouston Syndrome.

      Distinguished in EEC Syndrome
      Pediatrics | Medical Genetics
      Distinguished in EEC Syndrome
      Pediatrics | Medical Genetics
      34th St. & Civic Center Blvd, The Children's Hospital Of Philadelphia, Room 9nw55, 
      Philadelphia, PA 
      Languages Spoken:
      English

      Elizabeth Bhoj is a Pediatrics specialist and a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Bhoj is rated as a Distinguished provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are Hardikar Syndrome, Coffin-Siris Syndrome, Acheiropody, Hypotonia, and Myringotomy.

      Rahat Saied
      Advanced in EEC Syndrome
      Pediatrics
      Advanced in EEC Syndrome
      Pediatrics
      9727 Elk Grove Florin Rd., Suite 250, 
      Elk Grove, CA 
      Languages Spoken:
      English
      Accepting New Patients

      Rahat Saied is a Pediatrics provider in Elk Grove, California. Dr. Saied is rated as an Advanced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Obesity in Children, Autism Spectrum Disorder, Viral Gastroenteritis, and Developmental Dysphasia Familial. Dr. Saied is currently accepting new patients.

      Giovanni Vento
      Advanced in EEC Syndrome
      Advanced in EEC Syndrome
      Rome, IT 

      Giovanni Vento practices in Rome, Italy. Mr. Vento is rated as an Advanced expert by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Premature Infant, Infant Respiratory Distress Syndrome, Infantile Pneumothorax, and Bronchopulmonary Dysplasia.

      Benjamin Davidson
      Advanced in EEC Syndrome
      Advanced in EEC Syndrome

      MercyOne Waterloo Pediatrics Care

      2710 St. Francis Drive, Suite 510, 
      Waterloo, IA 
      Languages Spoken:
      English

      Benjamin Davidson is a Pediatrics provider in Waterloo, Iowa. Dr. Davidson is rated as an Advanced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Anorchia, EEC Syndrome, Naegeli-Franceschetti-Jadassohn Syndrome, and Zlotogora-Ogur Syndrome.

      Experienced in EEC Syndrome
      Experienced in EEC Syndrome

      Central Arkansas Pediatrics

      3010 Fountain Drive, 
      Conway, AR 
      Languages Spoken:
      English
      Accepting New Patients

      Adam Harrell is a Pediatrics provider in Conway, Arkansas. Dr. Harrell is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Respiratory Syncytial Virus (RSV) Infection, Obesity in Children, Delayed Growth, and Croup. Dr. Harrell is currently accepting new patients.

      Experienced in EEC Syndrome
      Experienced in EEC Syndrome

      Penn Dermatology Pennsylvania Hospital

      235 South 8th Street, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Michelle Oboite is a Dermatologist in Philadelphia, Pennsylvania. Dr. Oboite is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are Ambras Syndrome, Hypertrichosis Lanuginosa Congenita, Alopecia Universalis, and Autosomal Recessive Hypotrichosis. Dr. Oboite is currently accepting new patients.

      Experienced in EEC Syndrome
      Experienced in EEC Syndrome

      Dermatology Associates Of Atlanta

      5555 Peachtree Dunwoody Rd, Suite 190, 
      Atlanta, GA 
      Languages Spoken:
      English
      Accepting New Patients

      Daniel Karempelis is a Dermatologist in Atlanta, Georgia. Dr. Karempelis is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Actinic Keratosis, Warts, Fetal Cystic Hygroma, and Kaposiform Hemangioendothelioma. Dr. Karempelis is currently accepting new patients.

      Advanced in EEC Syndrome
      Oral and Maxillofacial Surgery | General Surgery
      Advanced in EEC Syndrome
      Oral and Maxillofacial Surgery | General Surgery

      New York Comprehensive Orthognathic And Maxillofacial Surgery PC

      2001 Marcus Ave, Suite N10, 
      New Hyde Park, NY 
      Languages Spoken:
      English

      Jay Neugarten is an Oral and Maxillofacial Surgeon and a General Surgeon in New Hyde Park, New York. Dr. Neugarten is rated as an Advanced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Zlotogora-Ogur Syndrome, Naegeli-Franceschetti-Jadassohn Syndrome, AEC Syndrome, EEC Syndrome, and Osteotomy.

      Advanced in EEC Syndrome
      Medical Genetics | Pediatrics
      Advanced in EEC Syndrome
      Medical Genetics | Pediatrics
      2018 Clinch Avenue, South Tower 2nd Floor, 
      Knoxville, TN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Jared Hamm is a Medical Genetics specialist and a Pediatrics provider in Knoxville, Tennessee. Dr. Hamm is rated as an Advanced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are EEC Syndrome, Naegeli-Franceschetti-Jadassohn Syndrome, AEC Syndrome, and Clouston Syndrome. Dr. Hamm is currently accepting new patients.

      Advanced in EEC Syndrome
      Medical Genetics | Pediatrics
      Advanced in EEC Syndrome
      Medical Genetics | Pediatrics
      550 University Blvd, 
      Indianapolis, IN 
      Languages Spoken:
      English
      Accepting New Patients

      Theodore Wilson is a Medical Genetics specialist and a Pediatrics provider in Indianapolis, Indiana. Dr. Wilson is rated as an Advanced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are EEC Syndrome, Zlotogora-Ogur Syndrome, Clouston Syndrome, and AEC Syndrome. Dr. Wilson is currently accepting new patients.

      Advanced in EEC Syndrome
      Ophthalmology
      Advanced in EEC Syndrome
      Ophthalmology

      Cei Physicians Psc, LLC

      580 S Loop Rd, Suite 200, 
      Edgewood, KY 
      Languages Spoken:
      English
      Accepting New Patients

      Edward Holland is an Ophthalmologist in Edgewood, Kentucky. Dr. Holland is rated as an Advanced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Cloudy Cornea, Aniridia, Fuchs Dystrophy, Corneal Transplant, and Cataract Removal. Dr. Holland is currently accepting new patients.

      Showing 1-20 of 364

      Last Updated: 10/30/2025

      What is the definition of EEC Syndrome?

      EEC syndrome (Ectrodactyly-Ectodermal Dysplasia-Cleft Lip/Palate) is a rare form of ectodermal dysplasia. The symptoms can vary from mild to severe and most commonly include missing or irregular fingers and/or toes (ectrodactyly or split hand/foot malformation); abnormalities of the hair and glands; cleft lip and/or palate; distinctive facial features; and abnormalities of the eyes and urinary tract. EEC syndrome can be divided into two different types defined by the underlying cause. More than 90% of individuals have EEC syndrome type 3 (EEC3), caused by genetic changes in the TP63 gene. The of individuals with EEC syndrome are thought to have a genetic change in a region on chromosome 7, known as EEC syndrome type 1 (EEC1). EEC syndrome is inherited in an autosomal dominant manner.

      When should I see an EEC Syndrome doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an EEC Syndrome doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank EEC Syndrome doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by EEC Syndrome doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an EEC Syndrome doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the EEC Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different EEC Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an EEC Syndrome doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my EEC Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my EEC Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female EEC Syndrome doctors near me?

      Look for the filter feature on the left side of the EEC Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an EEC Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the EEC Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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