The 20 Best EEC Syndrome Doctors Near Me in Boston, MA

Find the Top EEC Syndrome Experts and Specialists

The 20 Best EEC Syndrome Doctors near Boston, MA

Last Updated: 02/22/2026

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MediFind found 12 doctor with experience in EEC Syndrome near Boston, MA. Of these, 6 are Advanced and 6 are Experienced.

Location
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12 providers found
    Experienced in EEC Syndrome
    Experienced in EEC Syndrome

    Dermatology Program

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Stephen Gellis is a Pediatrics provider in Boston, Massachusetts. Dr. Gellis is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Molluscum Contagiosum, Trichothiodystrophy, Atopic Dermatitis, and Aplasia Cutis Congenita.

    Experienced in EEC Syndrome
    Experienced in EEC Syndrome

    Dermatology Program

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Sophia Delano is a Pediatrics provider in Boston, Massachusetts. Dr. Delano is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are Incontinentia Pigmenti, Urticaria Pigmentosa, Trichothiodystrophy, and Atopic Dermatitis.

    Advanced in EEC Syndrome
    Plastic Surgery
    Advanced in EEC Syndrome
    Plastic Surgery

    Department Of Plastic And Oral Surgery

    319 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    John Mulliken is a Plastic Surgeon in Boston, Massachusetts. Dr. Mulliken is rated as an Advanced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Vascular Birthmark, Apert Syndrome, Acrocephalopolydactyly, Osteotomy, and Bone Graft.

    Learn about our expert tiers
    Advanced in EEC Syndrome
    General Surgery
    Advanced in EEC Syndrome
    General Surgery

    Cleft And Craniofacial Center

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English

    Ingrid Ganske is a General Surgeon in Boston, Massachusetts. Dr. Ganske is rated as an Advanced provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are Cleft Lip and Palate, Pierre Robin Sequence, Breast Enlargement In Males, Osteotomy, and Myringotomy.

    Advanced in EEC Syndrome
    Medical Genetics | Pediatrics
    Advanced in EEC Syndrome
    Medical Genetics | Pediatrics

    Children's Hospital Pediatric Associates, Inc

    300 Longwood Ave, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Stephanie Sacharow is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Sacharow is rated as an Advanced provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are Phenylketonuria (PKU), Maternal Hyperphenylalaninemia, Cat Eye Syndrome, and Dihydropteridine Reductase Deficiency. Dr. Sacharow is currently accepting new patients.

    Advanced in EEC Syndrome
    Medical Genetics | Pediatrics
    Advanced in EEC Syndrome
    Medical Genetics | Pediatrics
    Childrens Hospital, 300 Longwood Ave./genetics, Feg, 
    Boston, MA 
     (2.8 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Wen-hann Tan is a Medical Genetics specialist and a Pediatrics provider in Boston, Massachusetts. Dr. Tan is rated as an Advanced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Incontinentia Pigmenti, Congenital Athymia, AEC Syndrome, and EEC Syndrome. Dr. Tan is currently accepting new patients.

    Experienced in EEC Syndrome
    Oral and Maxillofacial Surgery
    Experienced in EEC Syndrome
    Oral and Maxillofacial Surgery

    Boston Medical Center

    725 Albany St, 
    Boston, MA 
     (1.6 miles away)
    Languages Spoken:
    English

    Kelly Sayre is an Oral and Maxillofacial Surgeon in Boston, Massachusetts. Dr. Sayre is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are Mouth Sores, Mouth Ulcers, Tongue Cancer, Leukoplakia, and Tissue Biopsy.

    Advanced in EEC Syndrome
    Ophthalmology
    Advanced in EEC Syndrome
    Ophthalmology

    The Boston Foundation For Sight Inc.

    464 Hillside Ave Ste 205, 
    Needham Heights, MA 
     (9.8 miles away)
    Languages Spoken:
    English

    Daniel Brocks is an Ophthalmologist in Needham Heights, Massachusetts. Dr. Brocks is rated as an Advanced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Stevens-Johnson Syndrome, Interstitial Keratitis, Erythema Multiforme, EEC Syndrome, and Corneal Transplant.

    Experienced in EEC Syndrome
    Pediatrics
    Experienced in EEC Syndrome
    Pediatrics

    Arlington Pediatric Associates PC

    5 Water St, 
    Arlington, MA 
     (6.5 miles away)
    Languages Spoken:
    English

    Alenka Zeman is a Pediatrics provider in Arlington, Massachusetts. Dr. Zeman is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are Zlotogora-Ogur Syndrome, Clouston Syndrome, AEC Syndrome, and Naegeli-Franceschetti-Jadassohn Syndrome.

    Advanced in EEC Syndrome
    Hand Surgery
    Advanced in EEC Syndrome
    Hand Surgery

    Office

    840 Winter St, 
    Waltham, MA 
     (11.8 miles away)
    Languages Spoken:
    English

    Jinsil Sung is a Hand Surgeon in Waltham, Massachusetts. Dr. Sung is rated as an Advanced provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are Carpal Tunnel Syndrome, Dupuytren Contracture, Arthritis, and Zlotogora-Ogur Syndrome.

    Experienced in EEC Syndrome
    Pediatrics
    Experienced in EEC Syndrome
    Pediatrics

    Dowd Medical Associates

    107 Woburn St, 
    Reading, MA 
     (11.9 miles away)
    Languages Spoken:
    English

    Mark Curdo is a Pediatrics provider in Reading, Massachusetts. Dr. Curdo is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Obesity in Children, Clouston Syndrome, EEC Syndrome, and Naegeli-Franceschetti-Jadassohn Syndrome.

    Experienced in EEC Syndrome
    Ophthalmology
    Experienced in EEC Syndrome
    Ophthalmology

    Lahey Medical Center Peabody

    1 Essex Center Dr, 
    Peabody, MA 
     (13.7 miles away)
    Languages Spoken:
    English

    Naveen Rao is an Ophthalmologist in Peabody, Massachusetts. Dr. Rao is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Cataract, Entropion, Uveitis, and Meibomianitis.

    Showing 1-12 of 12

    Last Updated: 02/22/2026

    What is the definition of EEC Syndrome?

    EEC syndrome (Ectrodactyly-Ectodermal Dysplasia-Cleft Lip/Palate) is a rare form of ectodermal dysplasia. The symptoms can vary from mild to severe and most commonly include missing or irregular fingers and/or toes (ectrodactyly or split hand/foot malformation); abnormalities of the hair and glands; cleft lip and/or palate; distinctive facial features; and abnormalities of the eyes and urinary tract. EEC syndrome can be divided into two different types defined by the underlying cause. More than 90% of individuals have EEC syndrome type 3 (EEC3), caused by genetic changes in the TP63 gene. The of individuals with EEC syndrome are thought to have a genetic change in a region on chromosome 7, known as EEC syndrome type 1 (EEC1). EEC syndrome is inherited in an autosomal dominant manner.

    When should I see an EEC Syndrome doctor near Boston, MA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an EEC Syndrome doctor near Boston, MA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank EEC Syndrome doctors near Boston, MA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by EEC Syndrome doctors near Boston, MA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an EEC Syndrome doctor near Boston, MA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the EEC Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different EEC Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an EEC Syndrome doctor near Boston, MA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my EEC Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my EEC Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female EEC Syndrome doctors near Boston, MA?

    Look for the filter feature on the left side of the EEC Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an EEC Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the EEC Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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