Filters

Specialty
Additional Specialty
Distance
    Gender
    Insurance
    Availability
    Language
    Years of Experience
    Level of Expertise

    Last Updated: 10/30/2025

    Save doctors for later
    Sign Up
    Not sure about your diagnosis?
    Check Your Symptoms
    Already have a doctor?
    Find A Second Opinion

    MediFind found 16 doctor with experience in EEC Syndrome near Michigan, US. Of these, 14 are Experienced and 2 are Advanced.

    Location
    LocationClose
    16 providers found
      Advanced in EEC Syndrome
      Advanced in EEC Syndrome

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Jennifer Mancuso is a Dermatologist in Ann Arbor, Michigan. Dr. Mancuso is rated as an Advanced provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are DRESS Syndrome, Hidradenitis Suppurativa, Keratosis Pilaris, and Linear Hamartoma Syndrome. Dr. Mancuso is currently accepting new patients.

      Advanced in EEC Syndrome
      Medical Genetics | Pediatrics
      Advanced in EEC Syndrome
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Amanda Pritchard is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Pritchard is rated as an Advanced provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are Microcephaly Deafness Syndrome, Propionic Acidemia, Delayed Growth, and Aase Syndrome.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in EEC Syndrome
      Pediatric Otolaryngology | Pediatrics | Otolaryngology
      Experienced in EEC Syndrome
      Pediatric Otolaryngology | Pediatrics | Otolaryngology

      Regents Of The University Of Michigan

      24 Frank Lloyd Wright Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Glenn Green is a Pediatric Otolaryngologist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Green is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Tracheobronchomalacia, Acquired Tracheomalacia, CHARGE Syndrome, Adenoidectomy, and Myringotomy. Dr. Green is currently accepting new patients.

      Learn about our expert tiers
      Experienced in EEC Syndrome
      Oral and Maxillofacial Surgery | General Surgery
      Experienced in EEC Syndrome
      Oral and Maxillofacial Surgery | General Surgery

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English, Arabic, French, Hebrew, Italian, Korean, Portuguese, Spanish
      Accepting New Patients

      Sean Edwards is an Oral and Maxillofacial Surgeon and a General Surgeon in Ann Arbor, Michigan. Dr. Edwards is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Osteochondroma, Cherubism, Prognathism, Mouth Sores, and Myringotomy. Dr. Edwards is currently accepting new patients.

      Experienced in EEC Syndrome
      Medical Genetics | Pediatrics
      Experienced in EEC Syndrome
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Christina Sloan is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Sloan is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are Chromosome 8p Deletion, Chromosome 6q Duplication, Delayed Growth, and Fragile XE Syndrome.

      Experienced in EEC Syndrome
      Medical Genetics
      Experienced in EEC Syndrome
      Medical Genetics

      Regents Of The University Of Michigan

      24 Frank Lloyd Wright Dr, Umhs Domino Farms, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Offers Telehealth

      Tomoyasu Higashimoto is a Medical Genetics provider in Ann Arbor, Michigan. Dr. Higashimoto is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Nevoid Basal Cell Carcinoma Syndrome, Methylmalonic Acidemia, Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, and Propionic Acidemia.

      Experienced in EEC Syndrome
      Pediatric Allergy and Immunology | Pediatrics | Allergy and Immunology
      Experienced in EEC Syndrome
      Pediatric Allergy and Immunology | Pediatrics | Allergy and Immunology

      Henry Ford Health System

      2799 W Grand Blvd, 
      Detroit, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Elizabeth Secord is a Pediatric Allergy and Immunologist and a Pediatrics provider in Detroit, Michigan. Dr. Secord is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are Asthma, Severe Combined Immunodeficiency (SCID), Adenosine Deaminase Deficiency, and HIV/AIDS. Dr. Secord is currently accepting new patients.

      Experienced in EEC Syndrome
      Medical Genetics | Pediatrics
      Experienced in EEC Syndrome
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Offers Telehealth

      Kristen Lee is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Lee is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are Biotinidase Deficiency, Delayed Growth, Beta-Ketothiolase Deficiency, and Triple X Syndrome.

      Experienced in EEC Syndrome
      Pediatrics | Medical Genetics
      Experienced in EEC Syndrome
      Pediatrics | Medical Genetics

      Regents Of The University Of Michigan

      1500 E Medical Ctr, Suite 0331, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Offers Telehealth

      Mark Hannibal is a Pediatrics specialist and a Medical Genetics provider in Ann Arbor, Michigan. Dr. Hannibal is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Aase Syndrome, Filippi Syndrome, CHARGE Syndrome, and Smith-Kingsmore Syndrome.

      Experienced in EEC Syndrome
      Medical Genetics | Pediatrics
      Experienced in EEC Syndrome
      Medical Genetics | Pediatrics

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Shane Quinonez is a Medical Genetics specialist and a Pediatrics provider in Ann Arbor, Michigan. Dr. Quinonez is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Pompe Disease, Dihydrolipoamide Dehydrogenase Deficiency, MELAS Syndrome, and Propionic Acidemia.

      Experienced in EEC Syndrome
      Family Medicine
      Experienced in EEC Syndrome
      Family Medicine

      Ascension Medical Group Genesys

      1515 W Atherton Rd, 
      Flint, MI 
      Languages Spoken:
      English, Hindi, Punjabi, Urdu
      Accepting New Patients
      Offers Telehealth

      Bhagwan Sayal is a primary care provider, practicing in Family Medicine in Flint, Michigan. Dr. Sayal is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Cellulitis, Meige Disease, Primary Intestinal Lymphangiectasia, and Lymphangiectasis. Dr. Sayal is currently accepting new patients.

      Experienced in EEC Syndrome
      Ophthalmology
      Experienced in EEC Syndrome
      Ophthalmology

      Childrens Eye Care PC

      22731 Newman St, Suite 245, 
      Dearborn, MI 
      Languages Spoken:
      English

      Elena Gianfermi is an Ophthalmologist in Dearborn, Michigan. Dr. Gianfermi is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are Strabismus, Esotropia, X-Linked Infantile Nystagmus, and Hyperferritinemia-Cataract Syndrome.

      Experienced in EEC Syndrome
      Family Medicine | Palliative Medicine | Obstetrics and Gynecology
      Experienced in EEC Syndrome
      Family Medicine | Palliative Medicine | Obstetrics and Gynecology

      Aspirus Keweenaw

      205 Osceola St, 
      Laurium, MI 
      Languages Spoken:
      English, German
      Accepting New Patients

      Bonnie Hafeman is a Palliative Medicine specialist and an Obstetrics and Gynecologist in Laurium, Michigan. Dr. Hafeman is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are Thrush, Familial Chronic Mucocutaneous Candidiasis, Vitamin B12 Deficiency, Hernia Surgery, and Endoscopy. Dr. Hafeman is currently accepting new patients.

      Experienced in EEC Syndrome
      Plastic Surgery | General Surgery
      Experienced in EEC Syndrome
      Plastic Surgery | General Surgery

      Regents Of The University Of Michigan

      2098 S Main St, Umhs South Main Orthopaedi, 
      Ann Arbor, MI 
      Languages Spoken:
      English

      Christian Vercler is a Plastic Surgeon and a General Surgeon in Ann Arbor, Michigan. Dr. Vercler is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Metopic Ridge, Craniosynostosis, Plagiocephaly, Bone Graft, and Myringotomy.

      Experienced in EEC Syndrome
      Experienced in EEC Syndrome

      Bronson Methodist Hospital

      601 John St, Suite 100, 
      Kalamazoo, MI 
      Languages Spoken:
      English
      Accepting New Patients

      Christopher Rogers is a Cardiologist in Kalamazoo, Michigan. Dr. Rogers is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Angina, Coronary Heart Disease, Aortic Valve Stenosis, Transcatheter Aortic Valve Replacement (TAVR), and Aortic Valve Replacement. Dr. Rogers is currently accepting new patients.

      Experienced in EEC Syndrome
      Experienced in EEC Syndrome

      Regents Of The University Of Michigan

      1500 E Medical Ctr Dr, 
      Ann Arbor, MI 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Paul Talusan is an Orthopedics provider in Ann Arbor, Michigan. Dr. Talusan is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Tendinitis, Achilles Tendon Rupture, Metatarsalgia, Osteotomy, and Hip Replacement. Dr. Talusan is currently accepting new patients.

      Showing 1-16 of 16

      Last Updated: 10/30/2025

      What is the definition of EEC Syndrome?

      EEC syndrome (Ectrodactyly-Ectodermal Dysplasia-Cleft Lip/Palate) is a rare form of ectodermal dysplasia. The symptoms can vary from mild to severe and most commonly include missing or irregular fingers and/or toes (ectrodactyly or split hand/foot malformation); abnormalities of the hair and glands; cleft lip and/or palate; distinctive facial features; and abnormalities of the eyes and urinary tract. EEC syndrome can be divided into two different types defined by the underlying cause. More than 90% of individuals have EEC syndrome type 3 (EEC3), caused by genetic changes in the TP63 gene. The of individuals with EEC syndrome are thought to have a genetic change in a region on chromosome 7, known as EEC syndrome type 1 (EEC1). EEC syndrome is inherited in an autosomal dominant manner.

      When should I see an EEC Syndrome doctor in Michigan, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an EEC Syndrome doctor in Michigan, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank EEC Syndrome doctors in Michigan, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by EEC Syndrome doctors in Michigan, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an EEC Syndrome doctor in Michigan, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the EEC Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different EEC Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an EEC Syndrome doctor in Michigan, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my EEC Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my EEC Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female EEC Syndrome doctors in Michigan, US?

      Look for the filter feature on the left side of the EEC Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an EEC Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the EEC Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy

      More EEC Syndrome Doctors by city