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    Last Updated: 10/30/2025

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    MediFind found 8 doctor with experience in EEC Syndrome near Washington, US. Of these, 7 are Experienced and 1 are Advanced.

    Location
    LocationClose
    8 providers found
      Advanced in EEC Syndrome
      Advanced in EEC Syndrome

      The Association Of Chrmc And University Physicians

      4800 Sand Point Way Ne, 
      Seattle, WA 
      Experience:
      17+ years
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Tara Wenger is a Pediatrics provider in Seattle, Washington. Dr. Wenger has been practicing medicine for over 17 years and is rated as an Advanced provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are Micrognathia, EEC Syndrome, Acromicric Dysplasia, Gastrostomy, and Myringotomy. Dr. Wenger is currently accepting new patients.

      Experienced in EEC Syndrome
      Medical Genetics
      Experienced in EEC Syndrome
      Medical Genetics

      The Association Of University Physicians

      1959 Ne Pacific St, 
      Seattle, WA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kathleen Leppig is a Medical Genetics provider in Seattle, Washington. Dr. Leppig is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are Learman Syndrome, Multiple Synostoses Syndrome 1, Coenzyme Q Cytochrome C Reductase Deficiency, and Acheiropody. Dr. Leppig is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in EEC Syndrome
      Allergy and Immunology
      Experienced in EEC Syndrome
      Allergy and Immunology

      The Association Of University Physicians

      1959 Ne Pacific St, 
      Seattle, WA 
      Languages Spoken:
      English, Arabic, Bahasa, Castilian, Danish, Hindi, Japanese, Mandarin, Polish, Punjabi, Russian, Spanish, Swedish, Telugu, Ukrainian
      Accepting New Patients
      Offers Telehealth

      Andrew Ayars is an Allergy and Immunologist in Seattle, Washington. Dr. Ayars is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Chronic Spontaneous Urticaria (CSU), Hives, Common Variable Immune Deficiency, and Vibratory Urticaria. Dr. Ayars is currently accepting new patients.

      Learn about our expert tiers
      Experienced in EEC Syndrome
      Experienced in EEC Syndrome
      4700 Pt Fosdick Dr Nw, #211, 
      Gig Harbor, WA 
      Languages Spoken:
      English, Castilian, Italian, Punjabi, Romanian, Spanish, Vietnamese
      Accepting New Patients
      Offers Telehealth

      Imka Lavinder is a Pediatrics provider in Gig Harbor, Washington. Dr. Lavinder is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are AEC Syndrome, Clouston Syndrome, Zlotogora-Ogur Syndrome, and Ectodermal Dysplasias. Dr. Lavinder is currently accepting new patients.

      Experienced in EEC Syndrome
      Family Medicine | Emergency Medicine
      Experienced in EEC Syndrome
      Family Medicine | Emergency Medicine

      Clallam County Public Hospital District No 1

      530 Bogachiel Way, Forks Comm Hosp, 
      Forks, WA 
      Languages Spoken:
      English, Castilian, Spanish
      Accepting New Patients
      Offers Telehealth

      Clinton Bliss is an Emergency Medicine provider in Forks, Washington. Dr. Bliss is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Zlotogora-Ogur Syndrome, Naegeli-Franceschetti-Jadassohn Syndrome, AEC Syndrome, and EEC Syndrome. Dr. Bliss is currently accepting new patients.

      Experienced in EEC Syndrome
      Experienced in EEC Syndrome
      1959 Ne Pacific St, C-212, Box 356340, 
      Seattle, WA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Kelly Evans is a Pediatrics provider in Seattle, Washington. Dr. Evans is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. Her top areas of expertise are Multiple Epiphyseal Dysplasia, Zlotogora-Ogur Syndrome, Ectodermal Dysplasias, and Clouston Syndrome. Dr. Evans is currently accepting new patients.

      Experienced in EEC Syndrome
      Dermatology
      Experienced in EEC Syndrome
      Dermatology
      Seattle, WA 
      Languages Spoken:
      English
      Accepting New Patients

      John Olerud is a Dermatologist in Seattle, Washington. Dr. Olerud is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Cutaneous T-Cell Lymphoma (CTCL), Epidermolysis Bullosa, Epidermolysis Bullosa Acquisita, and Parapsoriasis. Dr. Olerud is currently accepting new patients.

      Experienced in EEC Syndrome
      Experienced in EEC Syndrome

      Chesnut MD

      510 S Cowley St, 
      Spokane, WA 
      Languages Spoken:
      English, Bosnian, Hindi, Korean, Telugu, Vietnamese
      Accepting New Patients
      Offers Telehealth

      Richard Herdener is a Dermatologist in Spokane, Washington. Dr. Herdener is rated as an Experienced provider by MediFind in the treatment of EEC Syndrome. His top areas of expertise are Seborrheic Keratosis, Warts, Actinic Keratosis, and Guttate Psoriasis. Dr. Herdener is currently accepting new patients.

      Showing 1-8 of 8

      Last Updated: 10/30/2025

      What is the definition of EEC Syndrome?

      EEC syndrome (Ectrodactyly-Ectodermal Dysplasia-Cleft Lip/Palate) is a rare form of ectodermal dysplasia. The symptoms can vary from mild to severe and most commonly include missing or irregular fingers and/or toes (ectrodactyly or split hand/foot malformation); abnormalities of the hair and glands; cleft lip and/or palate; distinctive facial features; and abnormalities of the eyes and urinary tract. EEC syndrome can be divided into two different types defined by the underlying cause. More than 90% of individuals have EEC syndrome type 3 (EEC3), caused by genetic changes in the TP63 gene. The of individuals with EEC syndrome are thought to have a genetic change in a region on chromosome 7, known as EEC syndrome type 1 (EEC1). EEC syndrome is inherited in an autosomal dominant manner.

      When should I see an EEC Syndrome doctor in Washington, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an EEC Syndrome doctor in Washington, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank EEC Syndrome doctors in Washington, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by EEC Syndrome doctors in Washington, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an EEC Syndrome doctor in Washington, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the EEC Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different EEC Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an EEC Syndrome doctor in Washington, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my EEC Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my EEC Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female EEC Syndrome doctors in Washington, US?

      Look for the filter feature on the left side of the EEC Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an EEC Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the EEC Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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