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    Last Updated: 02/22/2026

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    MediFind found 122 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Pennsylvania, US. Of these, 115 are Experienced and 6 are Advanced.

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    122 providers found
      Jie Sun
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology | Pediatrics

      St. Christopher's Pediatric Associates Cardiology - E. Erie Avenue

      160 E Erie Ave, 
      Philadelphia, PA 
      Languages Spoken:
      English

      . Dr. Sun is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ventricular Septal Defects, Patent Ductus Arteriosus, Heart Murmurs, and Kawasaki Disease.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Penn Primary Care French Creek

      824 Main Street, Ste 307, 
      Phoenixville, PA 
      Languages Spoken:
      English, Spanish
      Offers Telehealth

      . Dr. Wawrzyniak is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Seasonal Affective Disorder (SAD), Type 2 Diabetes (T2D), Familial Hypertension, and Hypertension.

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics

      St. Christopher's Pediatric Associates Genetics - E. Erie Avenue

      160 E Erie Ave, 
      Philadelphia, PA 
      Languages Spoken:
      English

      . Dr. Perszyk is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Succinyl-CoA:3-Ketoacid CoA Transferase Deficiency, Maternal Hyperphenylalaninemia, Dihydropteridine Reductase Deficiency, and Mucolipidosis 3.

      Learn about our expert tiers
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics | Pediatrics
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics | Pediatrics

      St. Christopher's Pediatric Associates Genetics - E. Erie Avenue

      160 E Erie Ave, 
      Philadelphia, PA 
      Languages Spoken:
      English

      . Dr. Melnyk is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Jacobsen Syndrome, and Chromosome 6q Deletion.

      Michael J. Wolf
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Sports Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Sports Medicine

      St. Christopher's Pediatric Associates Orthopedics - E. Erie Avenue

      160 E Erie Ave, 
      Philadelphia, PA 
      Languages Spoken:
      English

      . Dr. Wolf is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Concussion, Hypermobile Joints, Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Chronic Pain.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      St. Christopher's Pediatric Associates Genetics - E. Erie Avenue

      160 E Erie Ave, 
      Philadelphia, PA 
      Languages Spoken:
      English

      . Dr. Narumanchi is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Urea Cycle Disorders (UCD), Phenylketonuria (PKU), Dihydropteridine Reductase Deficiency, and Maternal Hyperphenylalaninemia.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Collegeville Family Practice

      555 Second Ave, Ste 300, 
      Collegeville, PA 
      Languages Spoken:
      English
      Offers Telehealth

      . Dr. Doghramji is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Insomnia, Gout, High Cholesterol, and Obesity.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Ophthalmology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Ophthalmology

      Kremer Eye Center

      200 Mall Blvd, 
      King Of Prussia, PA 
      Languages Spoken:
      English

      . Dr. Cohn is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Glaucoma, Cataract, Pigment-Dispersion Syndrome, and Neuroretinitis.

      Jennifer B. Coren
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Hatboro Pediatrics PC

      483 East County Line Rd, 
      Warminster, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Jennifer Coren is a Pediatrics provider in Warminster, Pennsylvania. Dr. Coren is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Obesity in Children, Herpangina, Delayed Growth, and Autism Spectrum Disorder. Dr. Coren is currently accepting new patients.

      Alyson B. Simpson
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Allergy and Immunology | Pediatrics | Pediatric Allergy and Immunology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Allergy and Immunology | Pediatrics | Pediatric Allergy and Immunology
      704 South Broad Street, 
      Lansdale, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Alyson Simpson is a Pediatrics specialist and a Pediatric Allergy and Immunologist in Lansdale, Pennsylvania. Dr. Simpson is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Hives, Sinusitis, Allergic Rhinitis, and Primary Immunodeficiency (PID). Dr. Simpson is currently accepting new patients.

      Sharon R. Weil
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Cardiology | Pediatrics | Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Cardiology | Pediatrics | Pediatric Cardiology
      1235 Old York Road, Suite 119 - Levy Medical Plaza, 
      Abington, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Sharon Weil is a Cardiologist and a Pediatrics provider in Abington, Pennsylvania. Dr. Weil is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Interrupted Aortic Arch, Patent Ductus Arteriosus, Ventricular Septal Defects, and Heart Murmurs. Dr. Weil is currently accepting new patients.

      Robert L. Topkis
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      350 West Street Road, 
      Warminster, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Robert Topkis is a primary care provider, practicing in Family Medicine in Warminster, Pennsylvania. Dr. Topkis is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are High Cholesterol, Familial Combined Hyperlipidemia, Xanthoma, and Familial Hypertension.

      Amanda O. Nussdorf
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Jefferson Rheumatology - Honickman Center

      1101 Chestnut Street, Floor 11, 
      Philadelphia, PA 
      Experience:
      10+ years
      Languages Spoken:
      English
      Accepting New Patients

      Amanda Nussdorf is a Rheumatologist in Philadelphia, Pennsylvania. Dr. Nussdorf has been practicing medicine for over 10 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Rheumatoid Arthritis (RA), Cutaneous Lupus Erythematosus (CLE), Systemic Lupus Erythematosus (SLE), and Discoid Lupus Erythematosus (DLE). Dr. Nussdorf is currently accepting new patients.

      Andrea C. Amoia
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Hatboro Pediatrics PC

      483 East County Line Rd, 
      Warminster, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Andrea Amoia is a Pediatrics provider in Warminster, Pennsylvania. Dr. Amoia is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Obesity in Children, Developmental Dysphasia Familial, Autism Spectrum Disorder, and Herpangina. Dr. Amoia is currently accepting new patients.

      Chantel Park
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology

      Jefferson Health – Bala Cynwyd

      225 East City Avenue, 
      Bala Cynwyd, PA 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Chantel Park is a Rheumatologist in Bala Cynwyd, Pennsylvania. Dr. Park is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Rheumatoid Arthritis (RA), Postmenopausal Osteoporosis, Osteoporosis, and Mevalonate Kinase Deficiency. Dr. Park is currently accepting new patients.

      Nicole C. Chiappetta
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Advanced in Ehlers-Danlos Syndrome (EDS)

      LVH Rheumatology-Hausman Road

      798 Hausman Road, 1st Floor, 
      Allentown, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Nicole Chiappetta is a Rheumatologist in Allentown, Pennsylvania. Dr. Chiappetta is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Fibromyalgia, Rhizomelic Pseudopolyarthritis, Polymyalgia Rheumatica, and Rheumatoid Arthritis (RA).

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      UPMC Community Medicine Inc

      833 State Route 130, 
      Trafford, PA 
      Languages Spoken:
      English
      Offers Telehealth

      Sameh Anton is a primary care provider, practicing in Family Medicine in Trafford, Pennsylvania. Dr. Anton is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Ehlers-Danlos Syndrome (EDS), Lymphangitis, and Opisthotonos.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Office

      1 Medical Center Blvd Ste 402, 
      Chester, PA 
      Languages Spoken:
      English

      Ashwini Mallappa is a Pediatrics provider in Chester, Pennsylvania. Dr. Mallappa is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Adrenal Insufficiency Pediatric, Ehlers-Danlos Syndrome (EDS), Turner Syndrome, and Hormone Replacement Therapy (HRT).

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Cardiology

      Office

      205 Yorktown Plz, 
      Elkins Park, PA 
      Languages Spoken:
      English

      Zev Jacobson is a Pediatric Cardiologist in Elkins Park, Pennsylvania. Dr. Jacobson is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Interrupted Aortic Arch, Heart Murmurs, Congenital Mitral Malformation, and Bicuspid Aortic Valve.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics

      Penn Translational Medicine And Human Genetics

      3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
      Philadelphia, PA 
      Languages Spoken:
      English
      Accepting New Patients

      Theodore Drivas is a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Drivas is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Retinopathy Pigmentary Mental Retardation, Hereditary Hemorrhagic Telangiectasia, Acrofacial Dysostosis Nager Type, and Acrofacial Dysostosis Catania Type. Dr. Drivas is currently accepting new patients.

      Showing 1-20 of 122

      Last Updated: 02/22/2026

      What is the definition of Ehlers-Danlos Syndrome (EDS)?

      Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

      When should I see an Ehlers-Danlos Syndrome (EDS) doctor in Pennsylvania, US?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor in Pennsylvania, US?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors in Pennsylvania, US?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors in Pennsylvania, US?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor in Pennsylvania, US?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

      Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor in Pennsylvania, US?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors in Pennsylvania, US?

      Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

      Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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