The 20 Best Ehlers-Danlos Syndrome (EDS) Doctors Near Me in Pittsburgh, PA

Find the Top Ehlers-Danlos Syndrome (EDS) Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 20 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Pittsburgh, PA. Of these, 19 are Experienced.

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20 providers found
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Obstetrics and Gynecology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Obstetrics and Gynecology

    UPMC Magee Center For Medical Genetics And Genomics

    300 Halket Street, 
    Pittsburgh, PA 
     (1.9 miles away)
    Experience:
    10+ years
    Languages Spoken:
    English

    Matthew Shanahan, MD, specializes in obstetrics and gynecology and is board-certified by the American Board of Obstetrics and Gynecology. He practices at University of Pittsburgh Physicians Department of OB/GYN and is affiliated with UPMC Presbyterian. Dr. Shanahan received his medical degree from the University of Wisconsin School of Medicine and Public Health and completed his residency at Washington University School of Medicine in St. Louis, followed by a fellowship at Baylor College of Medicine. Dr. Shanahan is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Omphalocele, Umbilical Hernia, Twin-To-Twin Transfusion Syndrome, and Robinow Syndrome. Dr. Shanahan is board certified in American Board Of Obstetrics And Gynecology.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Thoracic Surgery
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Thoracic Surgery

    UPMC Heart And Vascular Institute (Center For Thoracic Aortic Disease)

    200 Lothrop Street, Suite 5B, 
    Pittsburgh, PA 
     (2.2 miles away)
    Languages Spoken:
    English, Spanish
    Accepting New Patients

    Derek Serna-Gallegos, MD, is a cardiac surgeon and is board certified in general surgery by the American Board of Surgery and is board certified in cardiothoracic surgery by the American Board of Thoracic Surgery. He is an assistant professor of surgery at the University of Pittsburgh School of Medicine. He received his medical degree from the Keck School of Medicine at the University of Southern California and completed his residency at Cedars-Sinai Medical Center followed by his fellowship at the University of Pittsburgh Medical Center. Dr. Serna is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Aortic Dissection, Thoracic Aortic Aneurysm, Aortic Valve Stenosis, Aortic Valve Replacement, and Transcatheter Aortic Valve Replacement (TAVR). Dr. Serna is board certified in American Board Of Surgery and American Board Of Thoracic Surgery. Dr. Serna is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)

    UPMC Vision Institute

    203 Lothrop Street, Floor 6, 
    Pittsburgh, PA 
     (2.2 miles away)
    Languages Spoken:
    English, Creole, French, Haitian
    Accepting New Patients
    Offers Telehealth

    Gabrielle Bonhomme, MD, specializes in neuro-ophthalmology & comprehensive ophthalmology and is certified in ophthalmology by the American Board of Ophthalmology. She practices at University of Pittsburgh Physicians, Department of Ophthalmology and is affiliated with UPMC St Margaret and UPMC Presbyterian. She completed her medical degree at University of Pennsylvania Health System. Dr. Bonhomme is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). She is also highly rated in 12 other conditions, according to our data. Her clinical expertise encompasses Papilledema, Increased Intracranial Pressure, Optic Neuritis, and Phacomatosis Pigmentokeratotica. Dr. Bonhomme is board certified in American Board Of Ophthalmology. Dr. Bonhomme is currently accepting new patients.

    Learn about our expert tiers
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Thoracic Surgery
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Thoracic Surgery

    UPMC Heart And Vascular Institute (Center For Thoracic Aortic Disease)

    200 Lothrop Street, Suite 5B, 
    Pittsburgh, PA 
     (2.2 miles away)
    Languages Spoken:
    English, Hindi, Urdu
    Accepting New Patients

    Dr. Ibrahim Sultan is a cardiac surgeon and is certified in general surgery by the American Board of Surgery and cardiothoracic surgery by the American Board of Thoracic Surgery. Dr. Sultan earned his medical degree from Cornell University and completed his residency in general surgery at the Johns Hopkins Hospital. He subsequently completed his residency in cardiothoracic surgery at the Hospital of the University of Pennsylvania, where he also served as an advanced fellow in thoracic aortic surgery and minimally invasive valve surgery. Dr Sultan serves as the Professor and Chief of Cardiac Surgery, the Executive Vice Chair of Cardiothoracic Surgery and Co-Director of the Heart and Vascular Institute at UPMC and the University of Pittsburgh School of Medicine. Dr. Sultan is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Aortic Dissection, Aortic Valve Stenosis, Thoracic Aortic Aneurysm, Aortic Valve Replacement, and Transcatheter Aortic Valve Replacement (TAVR). Dr. Sultan is board certified in American Board Of Surgery and American Board Of Surgery. Dr. Sultan is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)

    UPMC Arthritis And Autoimmunity Center

    3601 5th Avenue, Suite 2B, 
    Pittsburgh, PA 
     (2.2 miles away)
    Languages Spoken:
    English
    Accepting New Patients
    Offers Telehealth

    Chester V. Oddis, MD is a noted researcher in the clinical, epidemiological and serologic description of the idiopathic inflammatory myopathies. He has completed epidemiological studies on the incidence of polymyositis and dermatomyositis as well as longitudinal studies on functional disability in myositis patients. His focus has been in the autoantibody patterns in patients with inflammatory myopathy and their peculiar immunogenetic associations.Dr. Oddis has written extensively on the diagnosis and management of patients with myositis. He has published and lectured on the use of novel immunosuppressive agents such as tacrolimus (formerly FK506) in the treatment of patients with refractory myositis. This represents the only reported experience of this particular drug in the pharmacologic treatment of inflammatory myopathy. In collaboration with the Department of Neurology, he has assessed the efficacy and utility of outpatient needle muscle biopsy in the diagnosis of inflammatory myopathy. This is important given the cost-containment focus of the current health-care market.Dr. Oddis is the co-investigator on an important national NIH funded study on the efficacy of doxycycline in preventing the progression of knee osteoarthritis in middle-aged women. This study is the first of its kind in assessing the effect of a disease-modifying agent in osteoarthritis.Board certified in internal medicine and rheumatology, Dr. Oddis received his medical degree from Pennsylvania State University, Milton S. Hershey Medical Center and his undergraduate degree from the University of Pittsburgh. He completed his residency in internal medicine at Penn State and fellowship at the University of Pittsburgh Medical Center. Dr. Oddis is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 12 other conditions, according to our data. His clinical expertise encompasses Myositis, Dermatomyositis, Polymyositis, and Antisynthetase Syndrome. Dr. Oddis is board certified in American Board Of Internal Medicine and American Board Of Internal Medicine. Dr. Oddis is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Rheumatology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Rheumatology

    Pediatric Rheumatology In Lawrenceville

    4401 Penn Avenue, 
    Pittsburgh, PA 
     (3.0 miles away)
    Languages Spoken:
    English, French, German, Swedish
    Accepting New Patients
    Offers Telehealth

    Daniel Kietz, MD, PhD, specializes in pediatric rheumatology and is board-certified by the American Board of Internal Medicine and the American Board of Pediatrics. He practices at Pediatric Rheumatology in Lawrenceville and Lupus Center at Pediatric Rheumatology in Shadyside and is affiliated with UPMC Children's Hospital of Pittsburgh and UPMC Magee-Womens Hospital. Dr. Kietz received his medical degree from Frankfurt University Hospital and completed his residency and fellowship at Saint Louis University School of Medicine. Dr. Kietz is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His clinical expertise encompasses Congenital Femoral Deficiency, Ehlers-Danlos Syndrome (EDS), Vascular Ehlers-Danlos Syndrome (VEDS), and Musculocontractural Ehlers-Danlos Syndrome (mcEDS). Dr. Kietz is board certified in American Board Of Internal Medicine , American Board Of Internal Medicine , American Board Of Pediatrics , and American Board Of Pediatrics. Dr. Kietz is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Experienced in Ehlers-Danlos Syndrome (EDS)

    Pediatric Cardiology In Lawrenceville

    4401 Penn Avenue, 
    Pittsburgh, PA 
     (3.0 miles away)
    Languages Spoken:
    English, Hindi, Kannada
    Accepting New Patients
    Offers Telehealth

    Arvind Hoskoppal, MD, MHS, is an adult congenital and pediatric cardiologist and is certified in adult congenital cardiology, pediatric cardiology, pediatrics, and internal medicine by the American Board of Pediatrics and the American Board of Internal Medicine. He is the director of the UPMC Adult Congenital Heart Disease Program and is an associate professor of internal medicine and pediatrics at the University of Pittsburgh School of Medicine. He received his medical degree from M.S. Ramaiah Medical College and completed his residency at Creighton University, pediatric cardiology fellowship at University of California, San Francisco, and adult congenital heart disease fellowship at the Mayo Clinic.Dr. Hoskoppal joined the UPMC Heart and Vascular Institute in 2019. His clinical interests are adult congenital heart disease, pregnancy and heart disease, aortopathy, and advanced echocardiography, including transesophageal echocardiography. Dr. Hoskoppal has published numerous articles in peer-reviewed journals and is a member of the American Medical Association, American Academy of Pediatrics, American College of Cardiology, American Heart Association, Adult Congenital Heart Association and the International Society of Adult Congenital Heart Disease. When not at work Dr. Hoskoppal enjoys playing tennis, running, traveling, trying exotic cuisines and riding his bike. He recently moved to Pittsburgh with his wife and two young kids. Dr. Hoskoppal is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Congenital Heart Disease (CHD), Marfan Syndrome, Ebstein's Anomaly, Arachnodactyly, and Heart Transplant. Dr. Hoskoppal is board certified in American Board Of Internal Medicine , American Board Of Internal Medicine , American Board Of Pediatrics , and American Board Of Pediatrics. Dr. Hoskoppal is currently accepting new patients.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    UPMC General Internal Medicine

    3459 5th Avenue, UPMC Montefiore, 9 South, 
    Pittsburgh, PA 
     (2.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Sarah Tilstra, MD, specializes in interal medicine and is board-certified in internal medicine by the American Board of Internal Medicine. She is affiliated with UPMC Presbyterian, UPMC Magee-Womens Hospital and UPMC Shadyside. She completed her fellowship, residency and medical degree at the University of Pittsburgh School of Medicine. Dr. Tilstra is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Brittle Cornea Syndrome, Fecal Impaction, and Juvenile Primary Osteoporosis. Dr. Tilstra is board certified in American Board Of Internal Medicine.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    Primary Care Precision Medicine

    5140 Liberty Avenue, Suite 150, 
    Pittsburgh, PA 
     (3.3 miles away)
    Languages Spoken:
    English, French
    Offers Telehealth

    Mylynda B. Massart, M.D., Ph.D., is a board-certified Family Medicine physician at UPMC, and associate professor at the University of Pittsburgh.  She currently serves as the founder and Medical Director of the UPMC Primary Care Precision Medicine clinic and as the Associate Director of Clinical Services for the Institute for Precision Medicine.  Dr. Massart is co-director of the HUB Core over Research Inclusivity and Community Partners Core at the Clinical and Translational Science Institute (CSTI).  Her research interests are in developing education in genetics and precision medicine for primary care providers and trainees and being a research catalyst facilitating the inclusion of underrepresented populations in biomedical research.  She teaches residents and medical students in her clinic and at the hospital and serves as medical director for Bethany Hospice.  Currently, Dr. Massart is one of the co-investigators for the All of Us Pennsylvania research project working on community education and engagement. In addition, she is working as a co-investigator to create the local Discovery Biobank at the University of Pittsburgh and developing systems to return precision medicine results to providers and patients.  Dr. Massart leads the Community Engagement Alliance Consultative Resource (CEACR), a partnership between the University of Pittsburgh CTSI and Community-Campus Partnerships for Health. Dr. Massart is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Alternating Hemiplegia of Childhood, Hemiplegia, Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcus Infections, and Relapsing Multiple Sclerosis (RMS). Dr. Massart is board certified in American Board Of Family Medicine.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    Agh Internal Medicine-Federal North

    1307 Federal St Ste B300, 
    Pittsburgh, PA 
     (1.3 miles away)
    Languages Spoken:
    English

    Laith Alhuneafat is a primary care provider, practicing in Internal Medicine in Pittsburgh, Pennsylvania. Dr. Alhuneafat is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses COVID-19, Peripartum Cardiomyopathy, Pulmonary Embolism, Embolectomy, and Aortic Valve Replacement.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Gastroenterology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Pediatric Gastroenterology

    UPMC Children's Hospital Of Pittsburgh

    4401 Penn Ave, 
    Pittsburgh, PA 
     (3.0 miles away)
    Languages Spoken:
    English

    Vibha Sood is a Pediatric Gastroenterologist practicing medicine in Pittsburgh, Pennsylvania. Dr. Sood is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Gastric Dysmotility, Ehlers-Danlos Syndrome (EDS), Gastroparesis, and Indigestion.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    Allegheny Clinic

    4727 Friendship Ave Ste 200, 
    Pittsburgh, PA 
     (3.3 miles away)
    Languages Spoken:
    English

    Nada Alrifai is an Internal Medicine provider practicing medicine in Pittsburgh, Pennsylvania. Dr. Alrifai is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her clinical expertise encompasses Ehlers-Danlos Syndrome (EDS) and Systemic Lupus Erythematosus (SLE).

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    Squirrel Hill Health Center Dental

    4516 Browns Hill Rd, 
    Pittsburgh, PA 
     (4.1 miles away)
    Experience:
    18+ years
    Languages Spoken:
    English

    Jonathan Weinkle is a primary care provider, practicing in Internal Medicine in Pittsburgh, Pennsylvania. He has been practicing medicine for over 18 years. Dr. Weinkle is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Gastrointestinal Stromal Tumor, Type 2 Diabetes (T2D), Post-Traumatic Stress Disorder (PTSD), and Acute Cerebellar Ataxia.

    Medical Genetics
    Medical Genetics

    Clover Genetics

    5362 Steubenville Pike, 
    McKees Rocks, PA 
     (6.6 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Andrew Mccarty practices practicing medicine in McKees Rocks, Pennsylvania. Dr. Mccarty is rated as undefined provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His clinical expertise encompasses Ehlers-Danlos Syndrome (EDS), Hereditary Ataxia, BRCA Positive Breast Cancer, and Cardiomyopathy. Dr. Mccarty is board certified in American Board Of Genetic Counseling.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    GMA/Dayalan And Associates, Family Medicine

    3601 McKnight East Drive, 
    Pittsburgh, PA 
     (6.9 miles away)
    Languages Spoken:
    English, Spanish

    Prashan Thiagarajah, MD, specializes and is certified in internal medicine by the American Board of Internal Medicine. He practices at GMA/Dayalan and Associates, Family Medicine and is affiliated with UPMC Passavant. Dr. Thiagarajah completed his residency at Allegheny General Hospital and medical degree from Ross University School of Medicine. Dr. Thiagarajah is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 44 other conditions, according to our data. His clinical expertise encompasses Vitamin B12 Deficiency Anemia, Multiple Carboxylase Deficiency, Folate Deficiency, Endoscopy, and Pacemaker Implantation. Dr. Thiagarajah is board certified in American Board Of Internal Medicine.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    Grob, Scheri, Woodburn And Griffin Family Medicine

    1140 Perry Highway, 
    Pittsburgh, PA 
     (7.9 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Tad Scheri, MD, specializes and is certified in family medicine by the American Board of Family Medicine. He practices at Grob, Scheri, Woodburn and Griffin Family Medicine. Dr. Scheri is affiliated with UPMC Passavant. He completed his residency and medical degree at University of Pittsburgh School of Medicine. Dr. Scheri is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 86 other conditions, according to our data. His clinical expertise encompasses Cirrhosis, Xanthoma, Familial Combined Hyperlipidemia, Ureteroscopy, and Endoscopy. Dr. Scheri is board certified in American Board Of Family Medicine.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Ophthalmology

    Office

    1015 W View Park Dr, 
    Pittsburgh, PA 
     (5.7 miles away)
    Languages Spoken:
    English

    Troy Karlik is an Ophthalmologist practicing medicine in Pittsburgh, Pennsylvania. Dr. Karlik is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Glaucoma, Cataract, Fourth Cranial Nerve Palsy, and Eyelid Bump.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    Office

    140 Curry Hollow Rd Ste 2, 
    Pittsburgh, PA 
     (6.4 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Nathan Bennett is a primary care provider, practicing in Family Medicine in Pittsburgh, Pennsylvania. Dr. Bennett is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 8 other conditions, according to our data. His clinical expertise encompasses Migraine, Autonomic Neuropathy, Hyperventilation, and Generalized Anxiety Disorder (GAD).

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Family Medicine

    Whs Primary Care-Lakeside

    1001 Waterdam Plaza Dr, 
    Mcmurray, PA 
     (14.1 miles away)
    Languages Spoken:
    English

    Robert Koschik is a primary care provider, practicing in Family Medicine in Mcmurray, Pennsylvania. Dr. Koschik is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 23 other conditions, according to our data. His clinical expertise encompasses Childhood Iron Deficiency Anemia, Iron Deficiency Anemia, Generalized Anxiety Disorder (GAD), and High Cholesterol.

    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine
    Experienced in Ehlers-Danlos Syndrome (EDS)
    Internal Medicine

    Office

    3928 Washington Rd Ste 220, 
    Canonsburg, PA 
     (14.4 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Ashith Mally is a primary care provider, practicing in Internal Medicine in Canonsburg, Pennsylvania. Dr. Mally is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Diarrhea, Trichohepatoenteric Syndrome, Obesity, Subacute Combined Degeneration, and Endoscopy.

    Showing 1-20 of 20

    Last Updated: 04/28/2026

    What is the definition of Ehlers-Danlos Syndrome (EDS)?

    Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

    When should I see an Ehlers-Danlos Syndrome (EDS) doctor near Pittsburgh, PA?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor near Pittsburgh, PA?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors near Pittsburgh, PA?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors near Pittsburgh, PA?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor near Pittsburgh, PA?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

    Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor near Pittsburgh, PA?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors near Pittsburgh, PA?

    Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

    Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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