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    Last Updated: 01/09/2026

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    MediFind found 19 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Pittsburgh, PA. Of these, 18 are Experienced.

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    19 providers found
      Sarah A. Tilstra
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      UPMC General Internal Medicine

      3459 5th Avenue, UPMC Montefiore, 9 South, 
      Pittsburgh, PA 
       (2.2 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Sarah Tilstra, MD, specializes in interal medicine and is board-certified in internal medicine by the American Board of Internal Medicine. She is affiliated with UPMC Presbyterian, UPMC Magee-Womens Hospital and UPMC Shadyside. She completed her fellowship, residency and medical degree at the University of Pittsburgh School of Medicine. Dr. Tilstra is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Brittle Cornea Syndrome, Fecal Impaction, and Juvenile Primary Osteoporosis.

      Gabrielle R. Bonhomme
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      UPMC Vision Institute

      203 Lothrop Street, Floor 6, 
      Pittsburgh, PA 
       (2.2 miles away)
      Languages Spoken:
      English, Creole, French, Haitian
      Accepting New Patients
      Offers Telehealth

      Gabrielle Bonhomme is an Ophthalmologist in Pittsburgh, Pennsylvania. Dr. Bonhomme is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Papilledema, Increased Intracranial Pressure, Optic Neuritis, and Punctate Inner Choroidopathy. Dr. Bonhomme is currently accepting new patients.

      Daniel Kietz
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Rheumatology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Rheumatology

      Pediatric Rheumatology In Lawrenceville

      4401 Penn Avenue, 
      Pittsburgh, PA 
       (3.0 miles away)
      Languages Spoken:
      English, French, German, Swedish
      Accepting New Patients
      Offers Telehealth

      Daniel Kietz, MD, PhD, specializes in pediatric rheumatology and is board-certified by the American Board of Internal Medicine and the American Board of Pediatrics. He practices at Pediatric Rheumatology in Lawrenceville and Lupus Center at Pediatric Rheumatology in Shadyside and is affiliated with UPMC Children's Hospital of Pittsburgh and UPMC Magee-Womens Hospital. Dr. Kietz received his medical degree from Frankfurt University Hospital and completed his residency and fellowship at Saint Louis University School of Medicine. Dr. Kietz is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Juvenile Idiopathic Arthritis (JIA), Congenital Femoral Deficiency, Ehlers-Danlos Syndrome (EDS), and Juvenile Dermatomyositis.

      Learn about our expert tiers
      Angela M. Garcia
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Pediatric Physical Medicine And Rehabilitation In Lawrenceville

      4401 Penn Avenue, 
      Pittsburgh, PA 
       (3.0 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Angela Garcia is a Pediatrics provider in Pittsburgh, Pennsylvania. Dr. Garcia is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Multisystem Inflammatory Syndrome in Children (MIS-C), Ehlers-Danlos Syndrome (EDS), Microcephaly, and Musculocontractural Ehlers-Danlos Syndrome (mcEDS).

      Mylynda B. Massart
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Primary Care Precision Medicine

      5140 Liberty Avenue, Suite 150, 
      Pittsburgh, PA 
       (3.3 miles away)
      Languages Spoken:
      English, French
      Offers Telehealth

      Mylynda B. Massart, M.D., Ph.D., is a board-certified Family Medicine physician at UPMC, and associate professor at the University of Pittsburgh.  She currently serves as the founder and Medical Director of the UPMC Primary Care Precision Medicine clinic and as the Associate Director of Clinical Services for the Institute for Precision Medicine.  Dr. Massart is co-director of the HUB Core over Research Inclusivity and Community Partners Core at the Clinical and Translational Science Institute (CSTI).  Her research interests are in developing education in genetics and precision medicine for primary care providers and trainees and being a research catalyst facilitating the inclusion of underrepresented populations in biomedical research.  She teaches residents and medical students in her clinic and at the hospital and serves as medical director for Bethany Hospice.  Currently, Dr. Massart is one of the co-investigators for the All of Us Pennsylvania research project working on community education and engagement. In addition, she is working as a co-investigator to create the local Discovery Biobank at the University of Pittsburgh and developing systems to return precision medicine results to providers and patients.  Dr. Massart leads the Community Engagement Alliance Consultative Resource (CEACR), a partnership between the University of Pittsburgh CTSI and Community-Campus Partnerships for Health. Dr. Massart is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Hemiplegia, Alternating Hemiplegia of Childhood, Pediatric Autoimmune Neuropsychiatric Disorders Associated with Streptococcus Infections, and Relapsing Multiple Sclerosis (RMS).

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      UPMC Arthritis And Autoimmunity Center

      3601 5th Avenue, Suite 2B, 
      Pittsburgh, PA 
       (2.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Chester Oddis is a Rheumatologist in Pittsburgh, Pennsylvania. Dr. Oddis is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Dermatomyositis, Myositis, Polymyositis, and Antisynthetase Syndrome. Dr. Oddis is currently accepting new patients.

      Brian M. Nolen
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      GMA/Heyl Family Practice

      1020 Center Avenue, 
      Pittsburgh, PA 
       (6.0 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Brian Nolen, MD, specializes in internal medicine and is board-certified by the American Board of Internal Medicine. He practices at Genesis Medical Associates: Heyl Family Practice and is affiliated with UPMC Passavant. Dr. Nolen received his medical degree and completed his residency at the University of Pittsburgh School of Medicine. Dr. Nolen is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Protein Deficiency, Malnutrition, Anemia, Endoscopy, and Hip Replacement.

      Matthew E. Macken
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Genesis Medical Associates

      1020 Center Ave, 
      Pittsburgh, PA 
       (6.1 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Matthew Macken is a primary care provider, practicing in Family Medicine in Pittsburgh, Pennsylvania. Dr. Macken is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Seasonal Affective Disorder (SAD), Obesity, Gastroesophageal Reflux Disease (GERD), and Sinusitis.

      Prashan H. Thiagarajah
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      GMA/Dayalan And Associates, Family Medicine

      3601 McKnight East Drive, 
      Pittsburgh, PA 
       (6.9 miles away)
      Languages Spoken:
      English, Spanish
      Offers Telehealth

      Prashan Thiagarajah is a primary care provider, practicing in Internal Medicine in Pittsburgh, Pennsylvania. Dr. Thiagarajah is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Multiple Carboxylase Deficiency, Folate Deficiency, Vitamin B12 Deficiency Anemia, Endoscopy, and Pacemaker Implantation.

      Tad D. Scheri
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Grob, Scheri, Woodburn And Griffin Family Medicine

      1140 Perry Highway, 
      Pittsburgh, PA 
       (7.9 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Tad Scheri is a primary care provider, practicing in Family Medicine in Pittsburgh, Pennsylvania. Dr. Scheri is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Cirrhosis, Xanthoma, Familial Combined Hyperlipidemia, Ureteroscopy, and Endoscopy.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Gastroenterology | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Gastroenterology | Pediatrics
      4401 Penn Ave, 
      Pittsburgh, PA 
       (3.0 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Vibha Sood is a Pediatric Gastroenterologist and a Pediatrics provider in Pittsburgh, Pennsylvania. Dr. Sood is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Gastric Dysmotility, Ehlers-Danlos Syndrome (EDS), Gastroparesis, and Indigestion. Dr. Sood is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | Pediatrics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Physiatry | Pediatrics
      1405 Shady Ave, 
      Pittsburgh, PA 
       (4.1 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Mary Russell is a Physiatrist and a Pediatrics provider in Pittsburgh, Pennsylvania. Dr. Russell is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Ehlers-Danlos Syndrome (EDS), Cerebral Palsy, Musculocontractural Ehlers-Danlos Syndrome (mcEDS), and Dysferlinopathy. Dr. Russell is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatrics | Internal Medicine

      Squirrel Hill Health Center

      4516 Browns Hill Rd, 
      Pittsburgh, PA 
       (4.1 miles away)
      Experience:
      18+ years
      Languages Spoken:
      English

      Jonathan Weinkle is a primary care provider, practicing in Pediatrics and Internal Medicine in Pittsburgh, Pennsylvania. Dr. Weinkle has been practicing medicine for over 18 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Gastrointestinal Stromal Tumor, Type 2 Diabetes (T2D), Post-Traumatic Stress Disorder (PTSD), and Acute Cerebellar Ataxia.

      Andrew J. Mccarty
      Medical Genetics
      Medical Genetics

      Clover Genetics

      5362 Steubenville Pike, 
      McKees Rocks, PA 
       (6.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Andrew Mccarty practices in McKees Rocks, Pennsylvania. His top areas of expertise are Ehlers-Danlos Syndrome (EDS), Hereditary Ataxia, BRCA Positive Breast Cancer, and Cardiomyopathy.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Glaucoma-Cataract Consultants Inc

      1000 Bower Hill Rd, 
      Pittsburgh, PA 
       (5.6 miles away)
      Languages Spoken:
      English

      Angela Gauthier is an Ophthalmologist in Pittsburgh, Pennsylvania. Dr. Gauthier is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Cataract, Glaucoma, Meibomianitis, and Dry Eye Syndrome.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Ophthalmology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Ophthalmology
      1015 W View Park Dr, 
      Pittsburgh, PA 
       (5.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Troy Karlik is an Ophthalmologist in Pittsburgh, Pennsylvania. Dr. Karlik is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Glaucoma, Cataract, Fourth Cranial Nerve Palsy, and Eyelid Bump. Dr. Karlik is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Preferred Primary Care Physicians, Inc.

      140 Curry Hollow Rd, Suite 2, 
      Pittsburgh, PA 
       (7.0 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Nathan Bennett is a primary care provider, practicing in Family Medicine in Pittsburgh, Pennsylvania. Dr. Bennett is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Migraine, Autonomic Neuropathy, Hyperventilation, and Generalized Anxiety Disorder (GAD).

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      Preferred Primary Care Physicians, Inc.

      3928 Washington Rd, Suite 220, 
      Mc Murray, PA 
       (13.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Ashith Mally is a primary care provider, practicing in Internal Medicine in Mc Murray, Pennsylvania. Dr. Mally is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Diarrhea, Trichohepatoenteric Syndrome, Obesity, Subacute Combined Degeneration, and Endoscopy.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Washington Physician Services

      1001 Waterdam Plaza Dr, 
      Mcmurray, PA 
       (14.1 miles away)
      Languages Spoken:
      English

      Robert Koschik is a primary care provider, practicing in Family Medicine in Mcmurray, Pennsylvania. Dr. Koschik is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Childhood Iron Deficiency Anemia, Iron Deficiency Anemia, Generalized Anxiety Disorder (GAD), and High Cholesterol.

      Showing 1-19 of 19

      Last Updated: 01/09/2026

      What is the definition of Ehlers-Danlos Syndrome (EDS)?

      Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

      When should I see an Ehlers-Danlos Syndrome (EDS) doctor near Pittsburgh, PA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor near Pittsburgh, PA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors near Pittsburgh, PA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors near Pittsburgh, PA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor near Pittsburgh, PA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

      Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor near Pittsburgh, PA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors near Pittsburgh, PA?

      Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

      Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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