Filters

Specialty
Additional Specialty
Distance
    Gender
    Insurance
    Availability
    Language
    Years of Experience
    Level of Expertise

    Last Updated: 10/30/2025

    Save doctors for later
    Sign Up
    Not sure about your diagnosis?
    Check Your Symptoms
    Already have a doctor?
    Find A Second Opinion

    MediFind found 46 doctor with experience in Ehlers-Danlos Syndrome (EDS) near Philadelphia, PA. Of these, 42 are Experienced and 4 are Advanced.

    Location
    LocationClose
    46 providers found
      Experienced in Ehlers-Danlos Syndrome (EDS)
      General Surgery | Thoracic Surgery
      Experienced in Ehlers-Danlos Syndrome (EDS)
      General Surgery | Thoracic Surgery

      Main Line Healthcare

      130 S Bryn Mawr Ave, 
      Bryn Mawr, PA 
       (9.4 miles away)
      Languages Spoken:
      English

      Kareem Ibrahim is a General Surgeon and a Thoracic Surgeon in Bryn Mawr, Pennsylvania. Dr. Ibrahim is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Hiatal Hernia, Pleuropulmonary Blastoma, Lung Cancer, Lung Nodules, and Endoscopy.

      Advanced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics

      Penn Translational Medicine And Human Genetics

      3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Staci Kallish is a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Kallish is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Neurofibromatosis Type 1 (NF1), Gaucher Disease Type 1, Fabry Disease, and Neurofibromatosis. Dr. Kallish is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics

      Penn Translational Medicine And Human Genetics

      3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English

      Reed Pyeritz is a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Pyeritz is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Hereditary Hemorrhagic Telangiectasia, Arachnodactyly, Achard Syndrome, and Vascular Ehlers-Danlos Syndrome (VEDS).

      Learn about our expert tiers
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Neurology | Pediatrics
      Advanced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Neurology | Pediatrics
      3401 Civic Center Blvd, Children's Hospital Of Philadelphia - Neurology, 
      Philadelphia, PA 
       (1.6 miles away)
      Languages Spoken:
      English

      Carsten Bonnemann is a Pediatric Neurologist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Bonnemann is rated as an Advanced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Tubular Aggregate Myopathy, Congenital Fiber-Type Disproportion, X-Linked Myotubular Myopathy, Hypotonia, and Gastrostomy.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology

      Jefferson University Physicians

      111 S 11th St, 
      Philadelphia, PA 
       (0.4 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Chantel Park is a Rheumatologist in Philadelphia, Pennsylvania. Dr. Park is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Rheumatoid Arthritis (RA), Postmenopausal Osteoporosis, Osteoporosis, and Mevalonate Kinase Deficiency.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      General Surgery
      Experienced in Ehlers-Danlos Syndrome (EDS)
      General Surgery
      1100 Walnut Street, Mob 5th Floor, Suite 500, 
      Philadelphia, PA 
       (0.4 miles away)
      Languages Spoken:
      English

      Michael Weinstein is a General Surgeon in Philadelphia, Pennsylvania. Dr. Weinstein is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Vascular Ehlers-Danlos Syndrome (VEDS), Chronic Subdural Hematoma, Musculocontractural Ehlers-Danlos Syndrome (mcEDS), Subdural Hematoma, and Gastrostomy.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology

      Jefferson University Physicians

      211 S 9th St, 6th Flr Suite 600, 
      Philadelphia, PA 
       (0.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Amanda Nussdorf is a Rheumatologist in Philadelphia, Pennsylvania. Dr. Nussdorf is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Rheumatoid Arthritis (RA), Cutaneous Lupus Erythematosus (CLE), Systemic Lupus Erythematosus (SLE), and Discoid Lupus Erythematosus (DLE).

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Ophthalmology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Ophthalmology

      Retinovitreous Associates Ltd

      840 Walnut St, 1020 Mid Atlantic Retina, 
      Philadelphia, PA 
       (0.6 miles away)
      Experience:
      9+ years
      Languages Spoken:
      English
      Accepting New Patients

      Joshua Uhr is an Ophthalmologist in Philadelphia, Pennsylvania. Dr. Uhr has been practicing medicine for over 9 years and is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Retinal Detachment, Retinal Artery Occlusion, Late-Onset Retinal Degeneration, Age-Related Macular Degeneration (ARMD), and Vitrectomy. Dr. Uhr is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Family Medicine

      Bralow Medical Group

      834 S St, 
      Philadelphia, PA 
       (0.8 miles away)
      Languages Spoken:
      English

      Vicki Bralow is a primary care provider, practicing in Family Medicine in Philadelphia, Pennsylvania. Dr. Bralow is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Familial Combined Hyperlipidemia, Xanthoma, Cirrhosis, and Anemia.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery | Cardiology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Vascular Surgery | Cardiology

      Penn Heart And Vascular Center Pennsylvania Hospital

      719 Manning St, Farm Journal Building, 3rd Floor, 
      Philadelphia, PA 
       (1.2 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      J Miles is a Cardiologist and a Vascular Surgeon in Philadelphia, Pennsylvania. Dr. Miles is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are His Bundle Tachycardia, Atrial Tachycardia, Atrioventricular Nodal Reentrant Tachycardia (AVNRT), Cardiac Ablation, and Pacemaker Implantation. Dr. Miles is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Medical Genetics

      Penn Translational Medicine And Human Genetics

      3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Theodore Drivas is a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Drivas is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Retinopathy Pigmentary Mental Retardation, Hereditary Hemorrhagic Telangiectasia, Acrofacial Dysostosis Nager Type, and Acrofacial Dysostosis Catania Type. Dr. Drivas is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Rena Rowan Breast Center

      3400 Civic Center Boulevard, West Pavilion, 3rd Floor, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mersedeh Rohanizadegan is a Medical Genetics provider in Philadelphia, Pennsylvania. Dr. Rohanizadegan is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Li-Fraumeni Syndrome, HER2 Negative Breast Cancer, BRCA Positive Breast Cancer, and Myhre Syndrome. Dr. Rohanizadegan is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology

      Penn Rheumatology Perelman

      3400 Civic Center Boulevard, South Pavilion, 1st Floor, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Ethan Craig is a Rheumatologist in Philadelphia, Pennsylvania. Dr. Craig is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Psoriatic Arthritis, Psoriasis, Rheumatoid Arthritis (RA), and Ankylosing Spondylitis. Dr. Craig is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      General Surgery
      Experienced in Ehlers-Danlos Syndrome (EDS)
      General Surgery

      Penn Traumatology, Surgical Critical Care And Emergency Surgery Perelman

      3400 Civic Center Boulevard, West Pavilion, 2nd Floor & 4th Floor, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Adam Shiroff is a General Surgeon in Philadelphia, Pennsylvania. Dr. Shiroff is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Costochondritis, Gastrointestinal Fistula, Retroperitoneal Inflammation, Colostomy, and Gastrostomy. Dr. Shiroff is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)
      34th St. & Civic Center Blvd, The Children's Hospital Of Philadelphia, Room 9nw55, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English

      Amanda Ackermann is a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Ackermann is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Micrognathia, Newborn Low Blood Sugar, Ehlers-Danlos Syndrome (EDS), Exocrine Pancreatic Insufficiency, and Gastrostomy.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Pulmonology | Pediatrics | Pulmonary Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Pediatric Pulmonology | Pediatrics | Pulmonary Medicine
      3401 Civic Center Blvd, Children's Hospital Of Philadelphia - Pulmonology, 
      Philadelphia, PA 
       (1.6 miles away)
      Languages Spoken:
      English

      Hakon Hakonarson is a Pediatric Pulmonologist and a Pediatrics provider in Philadelphia, Pennsylvania. Dr. Hakonarson is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Hypotonia, Autism Spectrum Disorder, Embryonal Tumor with Multilayered Rosettes, and Type 1 Diabetes (T1D).

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      Penn Internal Medicine - Edward S. Cooper Internal Medicine

      3701 Market Street, Suite 640, 
      Philadelphia, PA 
       (1.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Oana Tomescu is a primary care provider, practicing in Internal Medicine in Philadelphia, Pennsylvania. Dr. Tomescu is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Heart Failure, Pulmonary Edema, Heart Failure with Preserved Ejection Fraction (HFpEF), and Anorexia. Dr. Tomescu is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Internal Medicine

      Penn Internal Medicine - Edward S. Cooper Internal Medicine

      3701 Market Street, Suite 640, 
      Philadelphia, PA 
       (1.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Sheila Quinn is a primary care provider, practicing in Internal Medicine in Philadelphia, Pennsylvania. Dr. Quinn is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Frequent or Urgent Urination, Perrault Syndrome, Mixed Gonadal Dysgenesis, Turner Syndrome, and Intrauterine Device Insertion. Dr. Quinn is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Experienced in Ehlers-Danlos Syndrome (EDS)

      Penn Rheumatology University City

      3737 Market Street, 8th Floor, 
      Philadelphia, PA 
       (1.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Chadwick Johr is a Rheumatologist in Philadelphia, Pennsylvania. Dr. Johr is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). His top areas of expertise are Sjogren Syndrome, Undifferentiated Connective Tissue Disease (UCTD), Interstitial Keratitis, Gout, and Pancreatectomy. Dr. Johr is currently accepting new patients.

      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology
      Experienced in Ehlers-Danlos Syndrome (EDS)
      Rheumatology

      Penn Rheumatology University City

      3737 Market Street, 8th Floor, 
      Philadelphia, PA 
       (1.7 miles away)
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Rachel Dayno is a Rheumatologist in Philadelphia, Pennsylvania. Dr. Dayno is rated as an Experienced provider by MediFind in the treatment of Ehlers-Danlos Syndrome (EDS). Her top areas of expertise are Raynaud Phenomenon, Fibromyalgia, Cutaneous Lupus Erythematosus (CLE), and Psoriasis. Dr. Dayno is currently accepting new patients.

      Showing 1-20 of 46

      Last Updated: 10/30/2025

      What is the definition of Ehlers-Danlos Syndrome (EDS)?

      Ehlers-Danlos syndrome is a group of heritable disorders that affect connective tissues supporting the skin, bones, blood vessels, and many other organs and tissues. Defects in connective tissues cause the signs and symptoms of these conditions, which range from mildly loose joints to life-threatening complications. The various forms of Ehlers-Danlos syndrome have been classified in several different ways. Originally, 11 forms of Ehlers-Danlos syndrome were named using Roman numerals to indicate the types (type I, type II, and so on). In 1997, researchers proposed a simpler classification (the Villefranche nomenclature) that reduced the number of types to six and gave them descriptive names based on their major features. In 2017, the classification was updated to include rare forms of Ehlers-Danlos syndrome that were identified more recently. The 2017 classification describes 13 types of Ehlers-Danlos syndrome. Each type is distinct and has its own common symptoms. The combined prevalence of all types of Ehlers-Danlos syndrome appears to be at least 1 in 5,000 individuals worldwide. The hypermobile and classical forms are most common; the hypermobile type may affect as many as 1 in 5,000 to 20,000 people, while the classical type probably occurs in 1 in 20,000 to 40,000 people. Other forms of Ehlers-Danlos syndrome are rare, often with only a few cases or affected families described in the medical literature. The inheritance pattern of the Ehlers-Danlos syndromes varies by type. The classical, vascular, arthrochalasia, and periodontal forms of the disorder, and likely the hypermobile type, have an autosomal dominant pattern of inheritance. Autosomal dominant inheritance means that one copy of the altered gene in each cell is sufficient to cause the disorder. In some cases, an affected person inherits the mutation from one affected parent. Other cases result from new (de novo) gene mutations and occur in people with no history of the disorder in their family. The classical-like, cardiac-valvular, dermatosparaxis, kyphoscoliotic, spondylodysplastic, and musculocontractural types of Ehlers-Danlos syndrome, as well as brittle cornea syndrome, are inherited in an autosomal recessive pattern. In autosomal recessive inheritance, two copies of a gene in each cell are altered. Most often, the parents of an individual with an autosomal recessive disorder are carriers of one copy of the altered gene but do not show signs and symptoms of the disorder. The myopathic type of Ehlers-Danlos syndrome can have either an autosomal dominant or autosomal recessive pattern of inheritance.

      When should I see an Ehlers-Danlos Syndrome (EDS) doctor near Philadelphia, PA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Ehlers-Danlos Syndrome (EDS) doctor near Philadelphia, PA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Ehlers-Danlos Syndrome (EDS) doctors near Philadelphia, PA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Ehlers-Danlos Syndrome (EDS) doctors near Philadelphia, PA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Ehlers-Danlos Syndrome (EDS) doctor near Philadelphia, PA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. 

      Why is it important to get a second opinion from a different Ehlers-Danlos Syndrome (EDS) doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Ehlers-Danlos Syndrome (EDS) doctor near Philadelphia, PA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Ehlers-Danlos Syndrome (EDS) doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Ehlers-Danlos Syndrome (EDS) doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Ehlers-Danlos Syndrome (EDS) doctors near Philadelphia, PA?

      Look for the filter feature on the left side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Ehlers-Danlos Syndrome (EDS) doctor that offers video calls?

      Look for the filter feature on the left-side of the Ehlers-Danlos Syndrome (EDS) doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy

      More Ehlers-Danlos Syndrome (EDS) Doctors by city