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    Last Updated: 01/09/2026

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    MediFind found 36 doctor with experience in Erdheim-Chester Disease near Australia. Of these, 36 are Experienced.

    Location
    LocationClose
    36 providers found
      Elin S. Gray
      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      270 Joondalup Drive, 
      Joondalup, WA, AU 

      Elin Gray practices in Joondalup, Australia. Ms. Gray is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Melanoma, Uveal Melanoma, Metastatic Uveal Melanoma, Melanoma of the Eye, and Tissue Biopsy.

      Andrew J. Colebatch
      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      305 Grattan Street, 
      Melbourne, VIC, AU 

      Andrew Colebatch practices in Melbourne, Australia. Mr. Colebatch is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Melanoma, Familial Atypical Multiple Mole Melanoma Syndrome, Giant Congenital Melanocytic Nevus, and Tieche-Jadassohn Nevus.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      North Terrace, 
      Adelaide, SA, AU 

      Valerie Juniat practices in Adelaide, Australia. Ms. Juniat is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Lacrimal Gland Tumor, Blocked Tear Duct, Xanthoma, Orbital Pseudotumor, and Endoscopy.

      Learn about our expert tiers
      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Port Road, 
      Adelaide, SA, AU 

      Dinesh Selva practices in Adelaide, Australia. Mr. Selva is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Orbital Cellulitis, Thyroid Eye Disease, Lacrimal Gland Tumor, Endoscopy, and Vitrectomy.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      305 Grattan Street, 
      Melbourne, VIC, AU 

      Piers Blombery practices in Melbourne, Australia. Mr. Blombery is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Non-Hodgkin Lymphoma, Leukemia, Chronic Lymphocytic Leukemia (CLL), Chronic B-Cell Leukemia (CBCL), and Bone Marrow Transplant.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Murdoch, WA, AU 

      Jacqueline Bentel practices in Murdoch, Australia. Ms. Bentel is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Uveal Melanoma, Ganglioglioma, Erdheim-Chester Disease, and Melanoma of the Eye.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Adelaide, SA, AU 

      Brad Guo practices in Adelaide, Australia. Mr. Guo is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Cataract, Xanthoma, Erdheim-Chester Disease, Blocked Tear Duct, and Vitrectomy.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease

      St. Vincent's Hospital Melbourne

      Melbourne, VIC, AU 

      Penelope Mckelvie practices in Melbourne, Australia. Mckelvie is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Their top areas of expertise are Lacrimal Gland Tumor, Lymphomatoid Granulomatosis, B-Cell Lymphoma, Tissue Biopsy, and Corneal Transplant.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Herston, QLD, AU 

      Sophie Dunkerton practices in Herston, Australia. Ms. Dunkerton is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Wiedemann-Steiner Syndrome, Anton Syndrome, Erdheim-Chester Disease, Dysarthria, and Thrombectomy.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Port Road, 
      Adelaide, SA, AU 

      Yinon Shapira practices in Adelaide, Australia. Mr. Shapira is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Blocked Tear Duct, Schwannoma, Nearsightedness, Vitrectomy, and Cataract Removal.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      North Terrace, 
      Adelaide, SA, AU 

      Yong Lee practices in Adelaide, Australia. Lee is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Their top areas of expertise are Rosai-Dorfman Disease, Major Depression, Retinal Detachment, Erdheim-Chester Disease, and Vitrectomy.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      140 Clarendon Street, 
      East Melbourne, VIC, AU 

      Henry Prince practices in East Melbourne, Australia. Mr. Prince is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are T-Cell Lymphoma, Cutaneous T-Cell Lymphoma (CTCL), Sezary Syndrome, Non-Hodgkin Lymphoma, and Bone Marrow Transplant.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Perth, WA, AU 

      Jeremy Parry practices in Perth, Australia. Mr. Parry is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Nocardiosis, Pulmonary Nocardiosis, Erdheim-Chester Disease, and Osteolysis Syndrome Recessive.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      300 Grattan Street, 
      Parkville, VIC, AU 

      Alan Mcnab practices in Parkville, Australia. Mr. Mcnab is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Dacryoadenitis, Orbital Pseudotumor, Marcus Gunn Phenomenon, Lacrimal Gland Tumor, and Tissue Biopsy.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Perth, WA, AU 

      Ricardo Mancera practices in Perth, Australia. Mr. Mancera is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Primary Lateral Sclerosis, Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease), Dehydration, and Alzheimer's Disease.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Sydney, NSW, AU 

      Heidi Beadnall practices in Sydney, Australia. Ms. Beadnall is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Multiple Sclerosis (MS), Susac Syndrome, Relapsing Multiple Sclerosis (RMS), and Retinal Artery Occlusion.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Murdoch, WA, AU 

      Soraya Fermoyle practices in Murdoch, Australia. Ms. Fermoyle is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Leukemoid Reaction, Clear Cell Sarcoma, Erdheim-Chester Disease, and Langerhans Cell Histiocytosis.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Penrith, NSW, AU 

      Caroline Smith practices in Penrith, Australia. Ms. Smith is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Polycystic Ovary Syndrome, Ovarian Cysts, Anorexia, and Endometriosis.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Perth, WA, AU 

      Paul Cannell practices in Perth, Australia. Mr. Cannell is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Multiple Myeloma, Acute Lymphoblastic Leukemia (ALL), Leukemia, Chronic Graft Versus Host Disease (cGvHD), and Bone Marrow Transplant.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      Lismore, NSW, AU 

      Tien Khoo practices in Lismore, Australia. Khoo is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Their top areas of expertise are Parkinson's Disease, Movement Disorders, Myotonic Dystrophy, Myotonic Dystrophy Type 2, and Kidney Transplant.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 36

      Last Updated: 01/09/2026

      What is the definition of Erdheim-Chester Disease?

      Erdheim-Chester disease is a rare type of slow-growing blood cancer called a histiocytic neoplasm, which results in overproduction of cells called histiocytes. Histiocytes normally function to destroy foreign substances and protect the body from infection. In Erdheim-Chester disease, the excess production of histiocytes (histiocytosis) leads to inflammation that can damage organs and tissues throughout the body, causing them to become thickened, dense, and scarred (fibrotic); this tissue damage may lead to organ failure.

      When should I see an Erdheim-Chester Disease doctor in Australia?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Erdheim-Chester Disease doctor in Australia?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Erdheim-Chester Disease doctors in Australia?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Erdheim-Chester Disease doctors in Australia?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Erdheim-Chester Disease doctor in Australia?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. 

      Why is it important to get a second opinion from a different Erdheim-Chester Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Erdheim-Chester Disease doctor in Australia?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Erdheim-Chester Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Erdheim-Chester Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Erdheim-Chester Disease doctors in Australia?

      Look for the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Erdheim-Chester Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Erdheim-Chester Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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