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    Last Updated: 01/09/2026

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    MediFind found 12 doctor with experience in Erdheim-Chester Disease near Philadelphia, PA. Of these, 11 are Experienced and 1 are Advanced.

    Location
    LocationClose
    12 providers found
      Claudia M. Dourado
      Experienced in Erdheim-Chester Disease
      Hematology Oncology | Cardiology | Oncology
      Experienced in Erdheim-Chester Disease
      Hematology Oncology | Cardiology | Oncology

      Minerva And Fred Braemer Heart Center

      5501 Old York Road, Floor 1, 
      Philadelphia, PA 
       (5.9 miles away)
      Languages Spoken:
      English, Portuguese
      Accepting New Patients

      Claudia Dourado is a Cardiologist and an Oncologist in Philadelphia, Pennsylvania. Dr. Dourado is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Paget Disease of the Breast, Breast Cancer, Inflammatory Breast Cancer, Liver Embolization, and Salpingo-Oophorectomy. Dr. Dourado is currently accepting new patients.

      Experienced in Erdheim-Chester Disease
      Geriatrics | Internal Medicine
      Experienced in Erdheim-Chester Disease
      Geriatrics | Internal Medicine

      Jefferson University Physicians

      1020 Sansom St, Suite 239, 
      Philadelphia, PA 
       (0.5 miles away)
      Languages Spoken:
      English

      Lewis Deeugenio is a primary care provider, practicing in Geriatrics and Internal Medicine in Philadelphia, Pennsylvania. Dr. Deeugenio is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Erdheim-Chester Disease, Fumarase Deficiency, Multiple Symmetric Lipomatosis, and Gracile Syndrome.

      Experienced in Erdheim-Chester Disease
      Radiology | Pediatric Radiology
      Experienced in Erdheim-Chester Disease
      Radiology | Pediatric Radiology

      Jefferson University Physicians

      834 Walnut St, Suite 110, 
      Philadelphia, PA 
       (0.6 miles away)
      Languages Spoken:
      English

      Dhrumil Patel is a Radiologist and a Pediatric Radiologist in Philadelphia, Pennsylvania. Dr. Patel is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Familial Multiple Lipomatosis, Ectodermal Dysplasias, Clouston Syndrome, Aplasia Cutis Congenita, and Gastrostomy.

      Learn about our expert tiers
      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease

      University Of Penn - Medical Group

      3400 Spruce St, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English, Hebrew
      Accepting New Patients

      Ari Goldberg is a Radiologist in Philadelphia, Pennsylvania. Dr. Goldberg is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Visceromegaly, Lung Nodules, Emphysema, Chylous Ascites, and Prostatectomy. Dr. Goldberg is currently accepting new patients.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      3400 Spruce St, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English

      Nicola Schieda is a Radiologist in Philadelphia, Pennsylvania. Dr. Schieda is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Renal Cell Carcinoma (RCC), Adrenal Cancer, Abdominal Cystic Lymphangioma, Prostatectomy, and Nephrectomy.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease

      Radiology Associates Of Children's Hospital

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
       (1.5 miles away)
      Languages Spoken:
      English

      Karuna Shekdar is a Radiologist in Philadelphia, Pennsylvania. Dr. Shekdar is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Cortical Dysplasia, Neurofibromatosis, Craniopharyngioma, and Focal or Multifocal Malformations in Neuronal Migration.

      Experienced in Erdheim-Chester Disease
      Radiology | Nuclear Medicine
      Experienced in Erdheim-Chester Disease
      Radiology | Nuclear Medicine

      Radiology Associates Of Children's Hospital

      3401 Civic Ctr Blvd, 
      Philadelphia, PA 
       (1.5 miles away)
      Experience:
      16+ years
      Languages Spoken:
      English

      Mariam Aboian is a Radiologist and a Nuclear Medicine provider in Philadelphia, Pennsylvania. Dr. Aboian has been practicing medicine for over 16 years and is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Ganglioneuroma, Meningioma, Spinal Tumor, and Erdheim-Chester Disease.

      Experienced in Erdheim-Chester Disease
      Internal Medicine
      Experienced in Erdheim-Chester Disease
      Internal Medicine

      Excel Medical Center

      521 W Girard Ave, 
      Philadelphia, PA 
       (1.6 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Theodore Burden is a primary care provider, practicing in Internal Medicine in Philadelphia, Pennsylvania. Dr. Burden is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Hypertensive Heart Disease, Nephrosclerosis, Renovascular Hypertension, and Enlarged Liver.

      Experienced in Erdheim-Chester Disease
      Geriatrics | Family Medicine
      Experienced in Erdheim-Chester Disease
      Geriatrics | Family Medicine

      Philadelphia College Of Osteopathic Medicine

      4190 City Line Ave, 
      Philadelphia, PA 
       (4.5 miles away)
      Languages Spoken:
      English

      Katherine Galluzzi is a primary care provider, practicing in Geriatrics and Family Medicine in Philadelphia, Pennsylvania. Dr. Galluzzi is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Chlamydia, Multiple Symmetric Lipomatosis, Dihydropyrimidine Dehydrogenase Deficiency, and Erdheim-Chester Disease.

      Advanced in Erdheim-Chester Disease
      Internal Medicine
      Advanced in Erdheim-Chester Disease
      Internal Medicine

      Excel Medical Center

      208 W Chelten Ave, 
      Philadelphia, PA 
       (5.5 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      John Michel is a primary care provider, practicing in Internal Medicine in Philadelphia, Pennsylvania. Dr. Michel is rated as an Advanced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Hypertensive Heart Disease, Enlarged Liver, Pediatric Myocarditis, Nephrosclerosis, and Gastrostomy.

      Experienced in Erdheim-Chester Disease
      Family Medicine | General Practice
      Experienced in Erdheim-Chester Disease
      Family Medicine | General Practice

      Excel Medical Center

      5604 N Broad St, 
      Philadelphia, PA 
       (6.1 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Melvin Twersky is a primary care provider, practicing in Family Medicine and General Practice in Philadelphia, Pennsylvania. Dr. Twersky is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Hypertensive Heart Disease, Nephrosclerosis, Renovascular Hypertension, and Enlarged Liver.

      Experienced in Erdheim-Chester Disease
      Experienced in Erdheim-Chester Disease
      7810 Old York Rd, 
      Elkins Park, PA 
       (8.4 miles away)
      Languages Spoken:
      English

      Juliette Louis-Charles is a primary care provider, practicing in Family Medicine in Elkins Park, Pennsylvania. Dr. Louis-Charles is rated as an Experienced provider by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Fabry Disease, Multiple Sulfatase Deficiency, Megalencephalic Leukoencephalopathy with Subcortical Cysts, and Epidermolysis Bullosa.

      Showing 1-12 of 12

      Last Updated: 01/09/2026

      What is the definition of Erdheim-Chester Disease?

      Erdheim-Chester disease is a rare type of slow-growing blood cancer called a histiocytic neoplasm, which results in overproduction of cells called histiocytes. Histiocytes normally function to destroy foreign substances and protect the body from infection. In Erdheim-Chester disease, the excess production of histiocytes (histiocytosis) leads to inflammation that can damage organs and tissues throughout the body, causing them to become thickened, dense, and scarred (fibrotic); this tissue damage may lead to organ failure.

      When should I see an Erdheim-Chester Disease doctor near Philadelphia, PA?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Erdheim-Chester Disease doctor near Philadelphia, PA?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Erdheim-Chester Disease doctors near Philadelphia, PA?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Erdheim-Chester Disease doctors near Philadelphia, PA?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Erdheim-Chester Disease doctor near Philadelphia, PA?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. 

      Why is it important to get a second opinion from a different Erdheim-Chester Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Erdheim-Chester Disease doctor near Philadelphia, PA?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Erdheim-Chester Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Erdheim-Chester Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Erdheim-Chester Disease doctors near Philadelphia, PA?

      Look for the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Erdheim-Chester Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Erdheim-Chester Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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