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    Last Updated: 10/30/2025

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    MediFind found 2941 doctor with experience in Erdheim-Chester Disease. Of these, 2674 are Experienced, 203 are Advanced, 42 are Distinguished and 22 are Elite.

    Location
    LocationClose
    2,941 providers found
      Elite in Erdheim-Chester Disease
      Elite in Erdheim-Chester Disease

      Memorial Neurology Group

      160 E 53rd St, 
      New York, NY 
      Languages Spoken:
      English
      Offers Telehealth

      Eli Diamond is a Neurologist in New York, New York. Dr. Diamond is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Erdheim-Chester Disease, Glioblastoma, Astrocytoma, Brain Tumor, and Awake Craniotomy.

      Jithma P. Abeykoon
      Elite in Erdheim-Chester Disease
      Hematology | Oncology | Hematology Oncology
      Elite in Erdheim-Chester Disease
      Hematology | Oncology | Hematology Oncology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Accepting New Patients

      Jithma Abeykoon is a Hematologist and an Oncologist in Rochester, Minnesota. Dr. Abeykoon is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Waldenstrom Macroglobulinemia, Reticulohistiocytoma, Histiocytosis, Tissue Biopsy, and Bone Marrow Transplant. Dr. Abeykoon is currently accepting new patients.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Elite in Erdheim-Chester Disease
      Elite in Erdheim-Chester Disease
      Paris, FR 

      J Haroche practices in Paris, France. Haroche is rated as an Elite expert by MediFind in the treatment of Erdheim-Chester Disease. Their top areas of expertise are Histiocytosis, Reticulohistiocytoma, Erdheim-Chester Disease, Non-Langerhans-Cell Histiocytosis, and Tissue Biopsy.

      Learn about our expert tiers
      Elite in Erdheim-Chester Disease
      Elite in Erdheim-Chester Disease
      Paris, FR 

      Fleur Aubart-Cohen practices in Paris, France. Ms. Aubart-Cohen is rated as an Elite expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Erdheim-Chester Disease, Non-Langerhans-Cell Histiocytosis, Reticulohistiocytoma, and Histiocytosis.

      Elite in Erdheim-Chester Disease
      Hematology Oncology | Hematology | Oncology
      Elite in Erdheim-Chester Disease
      Hematology Oncology | Hematology | Oncology

      University Of Alabama Health Services Foundation, PC

      619 19th St S, 
      Birmingham, AL 
      Languages Spoken:
      English
      Accepting New Patients

      Gaurav Goyal is a Hematologist Oncology specialist and a Hematologist in Birmingham, Alabama. Dr. Goyal is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Reticulohistiocytoma, Histiocytosis, Non-Langerhans-Cell Histiocytosis, Bone Marrow Transplant, and Bone Marrow Aspiration. Dr. Goyal is currently accepting new patients.

      Elite in Erdheim-Chester Disease
      Elite in Erdheim-Chester Disease
      Paris, FR 

      Zahir Amoura practices in Paris, France. Mr. Amoura is rated as an Elite expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Erdheim-Chester Disease, Non-Langerhans-Cell Histiocytosis, Reticulohistiocytoma, Histiocytosis, and Heart Transplant.

      Elite in Erdheim-Chester Disease
      Elite in Erdheim-Chester Disease
      Milan, IT 

      Lorenzo Dagna practices in Milan, Italy. Mr. Dagna is rated as an Elite expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Erdheim-Chester Disease, Adult Still's Disease, Non-Langerhans-Cell Histiocytosis, Reticulohistiocytoma, and Bone Marrow Transplant.

      Elite in Erdheim-Chester Disease
      Elite in Erdheim-Chester Disease
      Milan, IT 

      Giulio Cavalli practices in Milan, Italy. Mr. Cavalli is rated as an Elite expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Erdheim-Chester Disease, Non-Langerhans-Cell Histiocytosis, Adult Still's Disease, Heart Transplant, and Lung Transplant.

      Elite in Erdheim-Chester Disease
      Elite in Erdheim-Chester Disease
      Milan, IT 

      Corrado Campochiaro practices in Milan, Italy. Mr. Campochiaro is rated as an Elite expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Erdheim-Chester Disease, Systemic Sclerosis (SSc), Scleroderma, and Takayasu Arteritis.

      Elite in Erdheim-Chester Disease
      Elite in Erdheim-Chester Disease
      Paris, FR 

      Jean-francois Emile practices in Paris, France. Emile is rated as an Elite expert by MediFind in the treatment of Erdheim-Chester Disease. Their top areas of expertise are Reticulohistiocytoma, Histiocytosis, Non-Langerhans-Cell Histiocytosis, Hepato-Pancreato-Biliary Surgery, and Splenectomy.

      Elite in Erdheim-Chester Disease
      Elite in Erdheim-Chester Disease
      Florence, IT 

      Augusto Vaglio practices in Florence, Italy. Mr. Vaglio is rated as an Elite expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Retroperitoneal Fibrosis, Granulomatosis with Polyangiitis, Vasculitis, Kidney Transplant, and Tissue Biopsy.

      Elite in Erdheim-Chester Disease
      Elite in Erdheim-Chester Disease
      Paris, FR 

      Frederic Charlotte practices in Paris, France. Mr. Charlotte is rated as an Elite expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Erdheim-Chester Disease, Non-Langerhans-Cell Histiocytosis, Reticulohistiocytoma, Liver Transplant, and Tissue Biopsy.

      Elite in Erdheim-Chester Disease
      Elite in Erdheim-Chester Disease
      Florence, IT 

      Francesco Pegoraro practices in Florence, Italy. Mr. Pegoraro is rated as an Elite expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Erdheim-Chester Disease, Non-Langerhans-Cell Histiocytosis, Histiocytosis, Reticulohistiocytoma, and Bone Marrow Transplant.

      Elite in Erdheim-Chester Disease
      Elite in Erdheim-Chester Disease
      Milan, IT 

      Alessandro Tomelleri practices in Milan, Italy. Mr. Tomelleri is rated as an Elite expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Takayasu Arteritis, Vasculitis, Giant Cell Arteritis (GCA), and Temporal Arteritis.

      Elite in Erdheim-Chester Disease
      Elite in Erdheim-Chester Disease
      Milan, IT 

      Marina Ferrarini practices in Milan, Italy. Ms. Ferrarini is rated as an Elite expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Erdheim-Chester Disease, Non-Langerhans-Cell Histiocytosis, Reticulohistiocytoma, and Histiocytosis.

      Elite in Erdheim-Chester Disease
      Elite in Erdheim-Chester Disease
      Paris, FR 

      Jean Donadieu practices in Paris, France. Ms. Donadieu is rated as an Elite expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Severe Congenital Neutropenia, Agranulocytosis, Reticulohistiocytoma, Bone Marrow Transplant, and Lung Transplant.

      Elite in Erdheim-Chester Disease
      Elite in Erdheim-Chester Disease
      Paris, FR 

      Matthias Papo practices in Paris, France. Mr. Papo is rated as an Elite expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Erdheim-Chester Disease, Histiocytosis, Reticulohistiocytoma, and Non-Langerhans-Cell Histiocytosis.

      Elite in Erdheim-Chester Disease
      Elite in Erdheim-Chester Disease
      Tel Aviv, TA, IL 

      Roei Mazor practices in Tel Aviv, Israel. Mazor is rated as an Elite expert by MediFind in the treatment of Erdheim-Chester Disease. Their top areas of expertise are Erdheim-Chester Disease, Non-Langerhans-Cell Histiocytosis, Reticulohistiocytoma, and Histiocytosis.

      Elite in Erdheim-Chester Disease
      Hematology | Oncology | Hematology Oncology
      Elite in Erdheim-Chester Disease
      Hematology | Oncology | Hematology Oncology

      Mayo Clinic

      200 1st St Sw, 
      Rochester, MN 
      Languages Spoken:
      English
      Accepting New Patients
      Offers Telehealth

      Mithun Shah is a Hematologist and an Oncologist in Rochester, Minnesota. Dr. Shah is rated as an Elite provider by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Reticulohistiocytoma, Histiocytosis, Acute Myeloid Leukemia (AML), Bone Marrow Transplant, and Bone Marrow Aspiration. Dr. Shah is currently accepting new patients.

      Elite in Erdheim-Chester Disease
      Elite in Erdheim-Chester Disease
      Dijon, FR 

      Jerome Razanamahery practices in Dijon, France. Mr. Razanamahery is rated as an Elite expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Histiocytosis, Reticulohistiocytoma, Erdheim-Chester Disease, Rosai-Dorfman Disease, and Tissue Biopsy.

      Showing 1-20 of 2,941

      Last Updated: 10/30/2025

      What is the definition of Erdheim-Chester Disease?

      Erdheim-Chester disease is a rare type of slow-growing blood cancer called a histiocytic neoplasm, which results in overproduction of cells called histiocytes. Histiocytes normally function to destroy foreign substances and protect the body from infection. In Erdheim-Chester disease, the excess production of histiocytes (histiocytosis) leads to inflammation that can damage organs and tissues throughout the body, causing them to become thickened, dense, and scarred (fibrotic); this tissue damage may lead to organ failure.

      When should I see an Erdheim-Chester Disease doctor near me?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Erdheim-Chester Disease doctor near me?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Erdheim-Chester Disease doctors near me?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Erdheim-Chester Disease doctors near me?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Erdheim-Chester Disease doctor near me?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. 

      Why is it important to get a second opinion from a different Erdheim-Chester Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Erdheim-Chester Disease doctor near me?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Erdheim-Chester Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Erdheim-Chester Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Erdheim-Chester Disease doctors near me?

      Look for the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Erdheim-Chester Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Erdheim-Chester Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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