The 20 Best Erdheim-Chester Disease Doctors in Canada

Find the Top Erdheim-Chester Disease Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 39 doctor with experience in Erdheim-Chester Disease near Canada. Of these, 38 are Experienced and 1 are Advanced.

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39 providers found
    Advanced in Erdheim-Chester Disease

    Oussama A. Abla
    Advanced in Erdheim-Chester Disease

    Oussama A. Abla
    Referral may be required
    555 University Avenue, 
    Toronto, ON, CA 

    Oussama Abla practices practicing medicine in Toronto, Canada. Mr. Abla is rated as an Advanced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Langerhans Cell Histiocytosis, Reticulohistiocytoma, Histiocytosis, and Rosai-Dorfman Disease.

    Experienced in Erdheim-Chester Disease

    Anna Nikonova
    Experienced in Erdheim-Chester Disease

    Anna Nikonova
    Referral may be required
    Montreal, QC, CA 

    Anna Nikonova practices practicing medicine in Montreal, Canada. Ms. Nikonova is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her clinical expertise encompasses Retroperitoneal Fibrosis, Papular Mucinosis, Scleromyxedema, and Erdheim-Chester Disease.

    Experienced in Erdheim-Chester Disease

    Stephanie Quon
    Experienced in Erdheim-Chester Disease

    Stephanie Quon
    Referral may be required
    BC, CA 

    Stephanie Quon practices practicing medicine in Canada. Ms. Quon is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her clinical expertise encompasses Multicentric Castleman Disease (MCD), Erdheim-Chester Disease, Lymphofollicular Hyperplasia, and Castleman Disease.

    Learn about our expert tiers
    Experienced in Erdheim-Chester Disease

    Moezedin J. Rafiee
    Experienced in Erdheim-Chester Disease

    Moezedin J. Rafiee
    Referral may be required
    Montreal, QC, CA 

    Moezedin Rafiee practices practicing medicine in Montreal, Canada. Rafiee is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Pneumomediastinum, COVID-19, Collapsed Lung, and Erdheim-Chester Disease.

    Experienced in Erdheim-Chester Disease

    Patrick J. Martineau
    Experienced in Erdheim-Chester Disease

    Patrick J. Martineau
    Referral may be required

    St. Paul's Hospital

    Vancouver, BC, CA 

    Patrick Martineau practices practicing medicine in Vancouver, Canada. Mr. Martineau is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 3 other conditions, according to our data. His clinical expertise encompasses Sarcoidosis, Bursitis of the Heel, Accessory Navicular Bone, and Unstable Angina.

    Experienced in Erdheim-Chester Disease

    Antonio Maietta
    Experienced in Erdheim-Chester Disease

    Antonio Maietta
    Referral may be required
    Montreal, QC, CA 

    Antonio Maietta practices practicing medicine in Montreal, Canada. Mr. Maietta is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His clinical expertise encompasses Ear Cancer, Erdheim-Chester Disease, Chronic T-Cell Leukemia (CTCL), and Prolymphocytic Leukemia.

    Experienced in Erdheim-Chester Disease

    Rene E. Kanza
    Experienced in Erdheim-Chester Disease

    Rene E. Kanza
    Referral may be required
    305 Rue Saint Vallier, 
    Saguenay, QC, CA 

    Rene Kanza practices practicing medicine in Saguenay, Canada. Kanza is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Their clinical expertise encompasses Erdheim-Chester Disease, Non-Langerhans-Cell Histiocytosis, Histiocytosis, and Reticulohistiocytoma.

    Experienced in Erdheim-Chester Disease

    Ryaan Andari-El
    Experienced in Erdheim-Chester Disease

    Ryaan Andari-El
    Referral may be required
    Edmonton, AB, CA 

    Ryaan Andari-El practices practicing medicine in Edmonton, Canada. Mr. Andari-El is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 11 other conditions, according to our data. His clinical expertise encompasses Aortic Dissection, Mitral Valve Regurgitation, Coronary Heart Disease, Heart Bypass Surgery, and Coronary Artery Bypass Graft (CABG).

    Experienced in Erdheim-Chester Disease

    Wanzhen Zeng
    Experienced in Erdheim-Chester Disease

    Wanzhen Zeng
    Referral may be required
    Ottawa, ON, CA 

    Wanzhen Zeng practices practicing medicine in Ottawa, Canada. Zeng is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Alopecia Areata, Autosomal Recessive Hypotrichosis, Parathyroid Adenoma, and Pulmonary Embolism.

    Experienced in Erdheim-Chester Disease

    Luke C. Chen
    Experienced in Erdheim-Chester Disease

    Luke C. Chen
    Referral may be required
    Vancouver, BC, CA 

    Luke Chen practices practicing medicine in Vancouver, Canada. Mr. Chen is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses IgG4-Related Disease, Non-Langerhans-Cell Histiocytosis, Hemophagocytic Lymphohistiocytosis, Tissue Biopsy, and Splenectomy.

    Experienced in Erdheim-Chester Disease

    Jimmy H. Kang
    Experienced in Erdheim-Chester Disease

    Jimmy H. Kang
    Referral may be required
    Edmonton, AB, CA 

    Jimmy Kang practices practicing medicine in Edmonton, Canada. Mr. Kang is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Mitral Valve Regurgitation, Coronary Heart Disease, Constrictive Pericarditis, Heart Bypass Surgery, and Coronary Artery Bypass Graft (CABG).

    Experienced in Erdheim-Chester Disease

    Mariam H. Goubran
    Experienced in Erdheim-Chester Disease

    Mariam H. Goubran
    Referral may be required
    Vancouver, BC, CA 

    Mariam Goubran practices practicing medicine in Vancouver, Canada. Ms. Goubran is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. She is also highly rated in 5 other conditions, according to our data. Her clinical expertise encompasses Hemophagocytic Lymphohistiocytosis, Non-Langerhans-Cell Histiocytosis, Histiocytosis, and Reticulohistiocytoma.

    Experienced in Erdheim-Chester Disease

    James C. Worrall
    Experienced in Erdheim-Chester Disease

    James C. Worrall
    Referral may be required
    Ottawa, ON, CA 

    James Worrall practices practicing medicine in Ottawa, Canada. Mr. Worrall is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His clinical expertise encompasses Neurohypophyseal Diabetes Insipidus, Xanthoma, Erdheim-Chester Disease, and Diabetes Insipidus (DI).

    Experienced in Erdheim-Chester Disease

    Vishal Kukreti
    Experienced in Erdheim-Chester Disease

    Vishal Kukreti
    Referral may be required
    Toronto, ON, CA 

    Vishal Kukreti practices practicing medicine in Toronto, Canada. Mr. Kukreti is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Multiple Myeloma, Non-Hodgkin Lymphoma, Primary Amyloidosis, Bone Marrow Transplant, and Bone Marrow Aspiration.

    Experienced in Erdheim-Chester Disease

    Fatimah Ani
    Experienced in Erdheim-Chester Disease

    Fatimah Ani
    Referral may be required
    London, ON, CA 

    Fatimah Ani practices practicing medicine in London, Canada. Ms. Ani is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Venous Thromboembolism (VTE), Deep Vein Thrombosis, Paroxysmal Cold Hemoglobinuria, and Mesenteric Venous Thrombosis.

    Experienced in Erdheim-Chester Disease

    Paul S. Thorner
    Experienced in Erdheim-Chester Disease

    Paul S. Thorner
    Referral may be required
    Toronto, ON, CA 

    Paul Thorner practices practicing medicine in Toronto, Canada. Mr. Thorner is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Pleuropulmonary Blastoma, Hydrops Fetalis, Fetal Edema, and Hemolytic Disease of the Newborn.

    Experienced in Erdheim-Chester Disease

    Genevieve Gyger
    Experienced in Erdheim-Chester Disease

    Genevieve Gyger
    Referral may be required
    Montreal, QC, CA 

    Genevieve Gyger practices practicing medicine in Montreal, Canada. Ms. Gyger is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. She is also highly rated in 4 other conditions, according to our data. Her clinical expertise encompasses Scleroderma, Systemic Sclerosis (SSc), Bowel Incontinence, and Myositis.

    Experienced in Erdheim-Chester Disease

    Hans Knecht
    Experienced in Erdheim-Chester Disease

    Hans Knecht
    Referral may be required
    Montreal, QC, CA 

    Hans Knecht practices practicing medicine in Montreal, Canada. Mr. Knecht is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Hodgkin Lymphoma, Non-Hodgkin Lymphoma, B-Cell Lymphoma, and Adult T-Cell Leukemia.

    Experienced in Erdheim-Chester Disease

    Emily Leung
    Experienced in Erdheim-Chester Disease

    Emily Leung
    Referral may be required
    Vancouver, BC, CA 

    Emily Leung practices practicing medicine in Vancouver, Canada. Ms. Leung is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. She is also highly rated in 2 other conditions, according to our data. Her clinical expertise encompasses Concussion, Rosai-Dorfman Disease, Traumatic Brain Injury, Lymphofollicular Hyperplasia, and Tissue Biopsy.

    Experienced in Erdheim-Chester Disease

    Steve Mathieu
    Experienced in Erdheim-Chester Disease

    Steve Mathieu
    Referral may be required
    Quebec, QC, CA 

    Steve Mathieu practices practicing medicine in Quebec, Canada. Mr. Mathieu is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His clinical expertise encompasses Acne, Hypersensitivity Vasculitis, Erdheim-Chester Disease, and Diabetes Insipidus (DI).

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
    Showing 1-20 of 39

    Last Updated: 06/30/2026

    What is the definition of Erdheim-Chester Disease?

    Erdheim-Chester disease is a rare type of slow-growing blood cancer called a histiocytic neoplasm, which results in overproduction of cells called histiocytes. Histiocytes normally function to destroy foreign substances and protect the body from infection. In Erdheim-Chester disease, the excess production of histiocytes (histiocytosis) leads to inflammation that can damage organs and tissues throughout the body, causing them to become thickened, dense, and scarred (fibrotic); this tissue damage may lead to organ failure.

    When should I see an Erdheim-Chester Disease doctor in Canada?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Erdheim-Chester Disease doctor in Canada?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Erdheim-Chester Disease doctor in Canada?

    You can find an Erdheim-Chester Disease doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Erdheim-Chester Disease doctors in Canada?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Erdheim-Chester Disease doctors in Canada?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Erdheim-Chester Disease doctor in Canada?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. 

    Why is it important to get a second opinion from a different Erdheim-Chester Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Erdheim-Chester Disease doctor in Canada?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Erdheim-Chester Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Erdheim-Chester Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Erdheim-Chester Disease doctors in Canada?

    Look for the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Erdheim-Chester Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Erdheim-Chester Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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