Filters

Specialty
Additional Specialty
Distance
    Gender
    Insurance
    Availability
    Language
    Years of Experience
    Level of Expertise

    Last Updated: 01/09/2026

    Save doctors for later
    Sign Up
    Not sure about your diagnosis?
    Check Your Symptoms
    Already have a doctor?
    Find A Second Opinion

    MediFind found 71 doctor with experience in Erdheim-Chester Disease near Germany. Of these, 71 are Experienced.

    Location
    LocationClose
    71 providers found
      Heinz Kutzner
      Experienced in Erdheim-Chester Disease

      Heinz Kutzner
      Experienced in Erdheim-Chester Disease

      Heinz Kutzner
      Friedrichshafen, BW, DE 

      Heinz Kutzner practices in Friedrichshafen, Germany. Mr. Kutzner is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Syringocystadenoma Papilliferum, Acrospiroma, Melanoma, and Hemangioma.

      Bjorn Konukiewitz
      Experienced in Erdheim-Chester Disease

      Bjorn Konukiewitz
      Experienced in Erdheim-Chester Disease

      Bjorn Konukiewitz
      Kiel, SH, DE 

      Bjorn Konukiewitz practices in Kiel, Germany. Konukiewitz is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Their top areas of expertise are Neuroendocrine Tumor, Pancreatic Islet Cell Tumor, Pancreatic Cancer, Pancreatic Ductal Adenocarcinoma, and Pancreaticoduodenectomy.

      Jurgen L. Wolf
      Experienced in Erdheim-Chester Disease

      Jurgen L. Wolf
      Experienced in Erdheim-Chester Disease

      Jurgen L. Wolf
      Kerpener Str. 62, 
      Koeln, NW, DE 

      Jurgen Wolf practices in Koeln, Germany. Wolf is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Their top areas of expertise are Lung Cancer, Non-Small Cell Lung Cancer (NSCLC), Small Cell Lung Cancer (SCLC), Milia, and Tissue Biopsy.

      Learn about our expert tiers
      Niklas A. Gebauer
      Experienced in Erdheim-Chester Disease

      Niklas A. Gebauer
      Experienced in Erdheim-Chester Disease

      Niklas A. Gebauer
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Niklas Gebauer practices in Luebeck, Germany. Mr. Gebauer is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are B-Cell Lymphoma, Non-Hodgkin Lymphoma, Marginal Zone Lymphoma (MZL), and Diffuse Large B-Cell Lymphoma (DLBCL).

      Stephan Von Haehling
      Experienced in Erdheim-Chester Disease

      Stephan Von Haehling
      Experienced in Erdheim-Chester Disease

      Stephan Von Haehling
      Robert Koch Str. 40, 
      Goettingen, NI, DE 

      Stephan Von Haehling practices in Goettingen, Germany. Mr. Von Haehling is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Heart Failure, Muscle Atrophy, Iron Deficiency Anemia, Heart Failure with Preserved Ejection Fraction (HFpEF), and Tissue Biopsy.

      Experienced in Erdheim-Chester Disease

      Marc T. Schmalzing
      Experienced in Erdheim-Chester Disease

      Marc T. Schmalzing
      Oberdürrbacher Str. 6, 
      Wuerzburg, BY, DE 

      Marc Schmalzing practices in Wuerzburg, Germany. Mr. Schmalzing is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Systemic Sclerosis (SSc), Scleroderma, Rheumatoid Arthritis (RA), Arthritis, and Bone Marrow Transplant.

      Experienced in Erdheim-Chester Disease

      Falko Fend
      Experienced in Erdheim-Chester Disease

      Falko Fend
      Hoppe Seyler Str. 3, 
      Tuebingen, BW, DE 

      Falko Fend practices in Tuebingen, Germany. Fend is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Their top areas of expertise are Non-Hodgkin Lymphoma, Follicular Lymphoma, B-Cell Lymphoma, Tissue Biopsy, and Vitrectomy.

      Experienced in Erdheim-Chester Disease

      Christoph Thorns
      Experienced in Erdheim-Chester Disease

      Christoph Thorns
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Christoph Thorns practices in Luebeck, Germany. Thorns is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Their top areas of expertise are Anorchia, Non-Hodgkin Lymphoma, B-Cell Lymphoma, and Marginal Zone Lymphoma (MZL).

      Experienced in Erdheim-Chester Disease

      Wolfgang Saeger
      Experienced in Erdheim-Chester Disease

      Wolfgang Saeger
      Hamburg, HH, DE 

      Wolfgang Saeger practices in Hamburg, Germany. Mr. Saeger is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Hypothalamic Tumor, Pituitary Tumor, Cushing's disease, and Rathke Cleft Cyst.

      Experienced in Erdheim-Chester Disease

      Jonathan Nadjiri
      Experienced in Erdheim-Chester Disease

      Jonathan Nadjiri
      Ismaninger Str. 22, 
      Munich, BY, DE 

      Jonathan Nadjiri practices in Munich, Germany. Mr. Nadjiri is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Arterial Embolism, Coronary Heart Disease, Aortic Regurgitation, Erdheim-Chester Disease, and Angioplasty.

      Experienced in Erdheim-Chester Disease

      Andrea Urbani
      Experienced in Erdheim-Chester Disease

      Andrea Urbani
      Frankfurt Am Main, HE, DE 

      Andrea Urbani practices in Frankfurt Am Main, Germany. Ms. Urbani is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Erdheim-Chester Disease, Atrial Fibrillation, Non-Langerhans-Cell Histiocytosis, Reticulohistiocytoma, and Cardiac Ablation.

      Experienced in Erdheim-Chester Disease

      Anke Fahnrich
      Experienced in Erdheim-Chester Disease

      Anke Fahnrich
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Anke Fahnrich practices in Luebeck, Germany. Ms. Fahnrich is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Bullous Pemphigoid, Pemphigus and Fogo Selvagem, Erdheim-Chester Disease, and B-Cell Lymphoma.

      Experienced in Erdheim-Chester Disease

      Christine R. Rose
      Experienced in Erdheim-Chester Disease

      Christine R. Rose
      Duesseldorf, NW, DE 

      Christine Rose practices in Duesseldorf, Germany. Ms. Rose is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Metabolic Acidosis, Granuloma Annulare, Microcephaly, and Achalasia Microcephaly Syndrome.

      Experienced in Erdheim-Chester Disease

      Kei K. Ito
      Experienced in Erdheim-Chester Disease

      Kei K. Ito
      Zülpicher Str 47b, 
      Koeln, NW, DE 

      Kei Ito practices in Koeln, Germany. Ito is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Their top areas of expertise are Mosaic Variegated Aneuploidy Syndrome, Insulinoma, Neurohypophyseal Diabetes Insipidus, Diabetes Insipidus (DI), and Pancreaticoduodenectomy.

      Experienced in Erdheim-Chester Disease

      Ryosuke Sato
      Experienced in Erdheim-Chester Disease

      Ryosuke Sato
      Robert Koch Str. 40, 
      Goettingen, NI, DE 

      Ryosuke Sato practices in Goettingen, Germany. Mr. Sato is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Muscle Atrophy, Heart Failure with Preserved Ejection Fraction (HFpEF), Heart Failure, and Obesity.

      Experienced in Erdheim-Chester Disease

      Julia Liersch
      Experienced in Erdheim-Chester Disease

      Julia Liersch
      Duisburg, NW, DE 

      Julia Liersch practices in Duisburg, Germany. Ms. Liersch is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Midline Lethal Granuloma, Papular Mucinosis, Scleromyxedema, and Focal Dermal Hypoplasia.

      Experienced in Erdheim-Chester Disease

      J Knitza-Johannes
      Experienced in Erdheim-Chester Disease

      J Knitza-Johannes
      Erlangen, BY, DE 

      J Knitza-Johannes practices in Erlangen, Germany. Knitza-Johannes is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Their top areas of expertise are Antisynthetase Syndrome, Calcium Pyrophosphate Arthritis, Erdheim-Chester Disease, and Arthritis.

      Experienced in Erdheim-Chester Disease

      Jan Portegys
      Experienced in Erdheim-Chester Disease

      Jan Portegys
      Oberdürrbacher Str. 6, 
      Wuerzburg, BY, DE 

      Jan Portegys practices in Wuerzburg, Germany. Portegys is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Their top areas of expertise are Rosai-Dorfman Disease, Rhizomelic Pseudopolyarthritis, Polymyalgia Rheumatica, and Temporal Arteritis.

      Experienced in Erdheim-Chester Disease

      Eleni Kampylafka
      Experienced in Erdheim-Chester Disease

      Eleni Kampylafka
      Erlangen, BY, DE 

      Eleni Kampylafka practices in Erlangen, Germany. Ms. Kampylafka is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Psoriatic Arthritis, Psoriasis, Arthritis, and Synovitis.

      Experienced in Erdheim-Chester Disease

      Cyrus Khandanpour
      Experienced in Erdheim-Chester Disease

      Cyrus Khandanpour
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Cyrus Khandanpour practices in Luebeck, Germany. Mr. Khandanpour is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Multiple Myeloma, Acute Myeloid Leukemia (AML), Leukemia, Myelodysplastic Syndrome (MDS), and Bone Marrow Transplant.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 71

      Last Updated: 01/09/2026

      What is the definition of Erdheim-Chester Disease?

      Erdheim-Chester disease is a rare type of slow-growing blood cancer called a histiocytic neoplasm, which results in overproduction of cells called histiocytes. Histiocytes normally function to destroy foreign substances and protect the body from infection. In Erdheim-Chester disease, the excess production of histiocytes (histiocytosis) leads to inflammation that can damage organs and tissues throughout the body, causing them to become thickened, dense, and scarred (fibrotic); this tissue damage may lead to organ failure.

      When should I see an Erdheim-Chester Disease doctor in Germany?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Erdheim-Chester Disease doctor in Germany?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Erdheim-Chester Disease doctor in Germany?

      You can find an Erdheim-Chester Disease doctor in any of the 10 largest U.S. cities by clicking below:

      Erdheim-Chester Disease doctor near New York, NY
      Erdheim-Chester Disease doctor near Los Angeles, CA
      Erdheim-Chester Disease doctor near Chicago, IL
      Erdheim-Chester Disease doctor near Houston, TX
      Erdheim-Chester Disease doctor near Phoenix, AZ
      Erdheim-Chester Disease doctor near Philadelphia, PA
      Erdheim-Chester Disease doctor near Atlanta, GA
      Erdheim-Chester Disease doctor near Boston, MA
      Erdheim-Chester Disease doctor near Dallas, TX
      Erdheim-Chester Disease doctor near San Jose, CA

      How does MediFind rank Erdheim-Chester Disease doctors in Germany?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Erdheim-Chester Disease doctors in Germany?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Erdheim-Chester Disease doctor in Germany?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. 

      Why is it important to get a second opinion from a different Erdheim-Chester Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Erdheim-Chester Disease doctor in Germany?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Erdheim-Chester Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Erdheim-Chester Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Erdheim-Chester Disease doctors in Germany?

      Look for the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Erdheim-Chester Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Erdheim-Chester Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

      Read more about our Content Policy.