The 20 Best Erdheim-Chester Disease Doctors in Germany

Find the Top Erdheim-Chester Disease Experts and Specialists

Last Updated: 06/30/2026

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MediFind found 66 doctor with experience in Erdheim-Chester Disease near Germany. Of these, 66 are Experienced.

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66 providers found
    Experienced in Erdheim-Chester Disease

    Heinz Kutzner
    Experienced in Erdheim-Chester Disease

    Heinz Kutzner
    Referral may be required
    Friedrichshafen, BW, DE 

    Heinz Kutzner practices practicing medicine in Friedrichshafen, Germany. Mr. Kutzner is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 14 other conditions, according to our data. His clinical expertise encompasses Syringocystadenoma Papilliferum, Acrospiroma, Melanoma, and Tieche-Jadassohn Nevus.

    Experienced in Erdheim-Chester Disease

    Jurgen B. Wolf
    Experienced in Erdheim-Chester Disease

    Jurgen B. Wolf
    Referral may be required
    Kerpener Str. 62, 
    Koeln, NW, DE 

    Jurgen Wolf practices practicing medicine in Koeln, Germany. Wolf is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. They are also highly rated in 6 other conditions, according to our data. Their clinical expertise encompasses Lung Cancer, Non-Small Cell Lung Cancer (NSCLC), Small Cell Lung Cancer (SCLC), Milia, and Tissue Biopsy.

    Experienced in Erdheim-Chester Disease

    Bjorn Konukiewitz
    Experienced in Erdheim-Chester Disease

    Bjorn Konukiewitz
    Referral may be required
    Kiel, SH, DE 

    Bjorn Konukiewitz practices practicing medicine in Kiel, Germany. Konukiewitz is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. They are also highly rated in 5 other conditions, according to our data. Their clinical expertise encompasses Neuroendocrine Tumor, Pancreatic Islet Cell Tumor, Pancreatic Cancer, Pancreatic Ductal Adenocarcinoma, and Pancreaticoduodenectomy.

    Learn about our expert tiers
    Experienced in Erdheim-Chester Disease

    Niklas A. Gebauer
    Experienced in Erdheim-Chester Disease

    Niklas A. Gebauer
    Referral may be required
    Ratzeburger Allee 160, 
    Luebeck, SH, DE 

    Niklas Gebauer practices practicing medicine in Luebeck, Germany. Mr. Gebauer is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses B-Cell Lymphoma, Non-Hodgkin Lymphoma, Marginal Zone Lymphoma (MZL), Diffuse Large B-Cell Lymphoma (DLBCL), and Bone Marrow Transplant.

    Experienced in Erdheim-Chester Disease

    Stephan Von Haehling
    Experienced in Erdheim-Chester Disease

    Stephan Von Haehling
    Referral may be required
    Robert Koch Str. 40, 
    Goettingen, NI, DE 

    Stephan Von Haehling practices practicing medicine in Goettingen, Germany. Mr. Von Haehling is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Heart Failure, Muscle Atrophy, Iron Deficiency Anemia, Heart Failure with Preserved Ejection Fraction (HFpEF), and Tissue Biopsy.

    Experienced in Erdheim-Chester Disease

    Marc T. Schmalzing
    Experienced in Erdheim-Chester Disease

    Marc T. Schmalzing
    Referral may be required
    Oberdürrbacher Str. 6, 
    Wuerzburg, BY, DE 

    Marc Schmalzing practices practicing medicine in Wuerzburg, Germany. Mr. Schmalzing is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Scleroderma, Systemic Sclerosis (SSc), Temporal Arteritis, Giant Cell Arteritis (GCA), and Bone Marrow Transplant.

    Experienced in Erdheim-Chester Disease

    Christoph Thorns
    Experienced in Erdheim-Chester Disease

    Christoph Thorns
    Referral may be required
    Ratzeburger Allee 160, 
    Luebeck, SH, DE 

    Christoph Thorns practices practicing medicine in Luebeck, Germany. Thorns is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. They are also highly rated in 1 other condition, according to our data. Their clinical expertise encompasses Anorchia, Marginal Zone Lymphoma (MZL), B-Cell Lymphoma, and Non-Hodgkin Lymphoma.

    Experienced in Erdheim-Chester Disease

    Wolfgang Saeger
    Experienced in Erdheim-Chester Disease

    Wolfgang Saeger
    Referral may be required
    Hamburg, HH, DE 

    Wolfgang Saeger practices practicing medicine in Hamburg, Germany. Mr. Saeger is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 13 other conditions, according to our data. His clinical expertise encompasses Pituitary Tumor, Hypothalamic Tumor, Cushing's disease, and Rathke Cleft Cyst.

    Experienced in Erdheim-Chester Disease

    Jonathan Nadjiri
    Experienced in Erdheim-Chester Disease

    Jonathan Nadjiri
    Referral may be required
    Ismaninger Str. 22, 
    Munich, BY, DE 

    Jonathan Nadjiri practices practicing medicine in Munich, Germany. Mr. Nadjiri is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His clinical expertise encompasses Coronary Heart Disease, Arterial Embolism, Aortic Regurgitation, Erdheim-Chester Disease, and Angioplasty.

    Experienced in Erdheim-Chester Disease

    Anke Fahnrich
    Experienced in Erdheim-Chester Disease

    Anke Fahnrich
    Referral may be required
    Ratzeburger Allee 160, 
    Luebeck, SH, DE 

    Anke Fahnrich practices practicing medicine in Luebeck, Germany. Ms. Fahnrich is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her clinical expertise encompasses Bullous Pemphigoid, Pemphigus and Fogo Selvagem, Erdheim-Chester Disease, and B-Cell Lymphoma.

    Experienced in Erdheim-Chester Disease

    Christine R. Rose
    Experienced in Erdheim-Chester Disease

    Christine R. Rose
    Referral may be required
    Duesseldorf, NW, DE 

    Christine Rose practices practicing medicine in Duesseldorf, Germany. Ms. Rose is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Metabolic Acidosis, Leigh Syndrome, Achalasia Microcephaly Syndrome, and Microcephaly.

    Experienced in Erdheim-Chester Disease

    Ryosuke Sato
    Experienced in Erdheim-Chester Disease

    Ryosuke Sato
    Referral may be required
    Robert Koch Str. 40, 
    Goettingen, NI, DE 

    Ryosuke Sato practices practicing medicine in Goettingen, Germany. Mr. Sato is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 1 other condition, according to our data. His clinical expertise encompasses Heart Failure, Heart Failure with Preserved Ejection Fraction (HFpEF), Muscle Atrophy, and Iron Deficiency Anemia.

    Experienced in Erdheim-Chester Disease

    Jan Portegys
    Experienced in Erdheim-Chester Disease

    Jan Portegys
    Referral may be required
    Oberdürrbacher Str. 6, 
    Wuerzburg, BY, DE 

    Jan Portegys practices practicing medicine in Wuerzburg, Germany. Portegys is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Their clinical expertise encompasses Polymyalgia Rheumatica, Rhizomelic Pseudopolyarthritis, Giant Cell Arteritis (GCA), and Temporal Arteritis.

    Experienced in Erdheim-Chester Disease

    Julia Liersch
    Experienced in Erdheim-Chester Disease

    Julia Liersch
    Referral may be required
    Duisburg, NW, DE 

    Julia Liersch practices practicing medicine in Duisburg, Germany. Ms. Liersch is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Midline Lethal Granuloma, Papular Mucinosis, Scleromyxedema, and Focal Dermal Hypoplasia.

    Experienced in Erdheim-Chester Disease

    J Knitza-Johannes
    Experienced in Erdheim-Chester Disease

    J Knitza-Johannes
    Referral may be required
    Erlangen, BY, DE 

    J Knitza-Johannes practices practicing medicine in Erlangen, Germany. Knitza-Johannes is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Their clinical expertise encompasses Antisynthetase Syndrome, Calcium Pyrophosphate Arthritis, Erdheim-Chester Disease, and Arthritis.

    Experienced in Erdheim-Chester Disease

    Vanghelita Andrei
    Experienced in Erdheim-Chester Disease

    Vanghelita Andrei
    Referral may be required
    Heidelberg, BW, DE 

    Vanghelita Andrei practices practicing medicine in Heidelberg, Germany. Andrei is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. They are also highly rated in 3 other conditions, according to our data. Their clinical expertise encompasses Chondroblastoma, Chondrosarcoma, Adult Soft Tissue Sarcoma, and Bone Tumor.

    Experienced in Erdheim-Chester Disease

    Eleni Kampylafka
    Experienced in Erdheim-Chester Disease

    Eleni Kampylafka
    Referral may be required
    Erlangen, BY, DE 

    Eleni Kampylafka practices practicing medicine in Erlangen, Germany. Ms. Kampylafka is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Psoriatic Arthritis, Psoriasis, Arthritis, and Synovitis.

    Experienced in Erdheim-Chester Disease

    Jens Y. Humrich
    Experienced in Erdheim-Chester Disease

    Jens Y. Humrich
    Referral may be required
    Ratzeburger Allee 160, 
    Luebeck, SH, DE 

    Jens Humrich practices practicing medicine in Luebeck, Germany. Mr. Humrich is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Systemic Lupus Erythematosus (SLE), Lupus Nephritis, Shwartzman Phenomenon, and Glomerulonephritis.

    Experienced in Erdheim-Chester Disease

    Cyrus Khandanpour
    Experienced in Erdheim-Chester Disease

    Cyrus Khandanpour
    Referral may be required
    Ratzeburger Allee 160, 
    Luebeck, SH, DE 

    Cyrus Khandanpour practices practicing medicine in Luebeck, Germany. Mr. Khandanpour is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 5 other conditions, according to our data. His clinical expertise encompasses Multiple Myeloma, Acute Myeloid Leukemia (AML), Leukemia, Myelodysplastic Syndrome (MDS), and Bone Marrow Transplant.

    Experienced in Erdheim-Chester Disease

    Karl-heinz Plate
    Experienced in Erdheim-Chester Disease

    Karl-heinz Plate
    Referral may be required
    Frankfurt Am Main, HE, DE 

    Karl-heinz Plate practices practicing medicine in Frankfurt Am Main, Germany. Plate is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Their clinical expertise encompasses Leukocytosis, Erdheim-Chester Disease, and Glioma.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
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    Last Updated: 06/30/2026

    What is the definition of Erdheim-Chester Disease?

    Erdheim-Chester disease is a rare type of slow-growing blood cancer called a histiocytic neoplasm, which results in overproduction of cells called histiocytes. Histiocytes normally function to destroy foreign substances and protect the body from infection. In Erdheim-Chester disease, the excess production of histiocytes (histiocytosis) leads to inflammation that can damage organs and tissues throughout the body, causing them to become thickened, dense, and scarred (fibrotic); this tissue damage may lead to organ failure.

    When should I see an Erdheim-Chester Disease doctor in Germany?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Erdheim-Chester Disease doctor in Germany?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Erdheim-Chester Disease doctor in Germany?

    You can find an Erdheim-Chester Disease doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Erdheim-Chester Disease doctors in Germany?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Erdheim-Chester Disease doctors in Germany?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Erdheim-Chester Disease doctor in Germany?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. 

    Why is it important to get a second opinion from a different Erdheim-Chester Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Erdheim-Chester Disease doctor in Germany?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Erdheim-Chester Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Erdheim-Chester Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Erdheim-Chester Disease doctors in Germany?

    Look for the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Erdheim-Chester Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Erdheim-Chester Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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