The 20 Best Erdheim-Chester Disease Doctors Near Me in Hesse, DE

Find the Top Erdheim-Chester Disease Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 22 doctor with experience in Erdheim-Chester Disease near Hesse, DE. Of these, 22 are Experienced.

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22 providers found
    Experienced in Erdheim-Chester Disease

    Marc T. Schmalzing
    Experienced in Erdheim-Chester Disease

    Marc T. Schmalzing
    Oberdürrbacher Str. 6, 
    Wuerzburg, BY, DE 

    Marc Schmalzing practices practicing medicine in Wuerzburg, Germany. Mr. Schmalzing is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 17 other conditions, according to our data. His clinical expertise encompasses Scleroderma, Systemic Sclerosis (SSc), Temporal Arteritis, Rheumatoid Arthritis (RA), and Bone Marrow Transplant.

    Experienced in Erdheim-Chester Disease

    Thierry M. Nordmann
    Experienced in Erdheim-Chester Disease

    Thierry M. Nordmann
    Martinsried, BY, DE 

    Thierry Nordmann practices practicing medicine in Martinsried, Germany. Mr. Nordmann is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 2 other conditions, according to our data. His clinical expertise encompasses Erythema Multiforme, Stevens-Johnson Syndrome, Granuloma Annulare, and Proteus-Like Syndrome.

    Experienced in Erdheim-Chester Disease

    Jonathan Nadjiri
    Experienced in Erdheim-Chester Disease

    Jonathan Nadjiri
    Ismaninger Str. 22, 
    Munich, BY, DE 

    Jonathan Nadjiri practices practicing medicine in Munich, Germany. Mr. Nadjiri is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His clinical expertise encompasses Arterial Embolism, Coronary Heart Disease, Aortic Regurgitation, Erdheim-Chester Disease, and Angioplasty.

    Learn about our expert tiers
    Experienced in Erdheim-Chester Disease

    Jan Portegys
    Experienced in Erdheim-Chester Disease

    Jan Portegys
    Oberdürrbacher Str. 6, 
    Wuerzburg, BY, DE 

    Jan Portegys practices practicing medicine in Wuerzburg, Germany. Portegys is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Their clinical expertise encompasses Polymyalgia Rheumatica, Rhizomelic Pseudopolyarthritis, Temporal Arteritis, and Giant Cell Arteritis (GCA).

    Experienced in Erdheim-Chester Disease

    J Knitza-Johannes
    Experienced in Erdheim-Chester Disease

    J Knitza-Johannes
    Erlangen, BY, DE 

    J Knitza-Johannes practices practicing medicine in Erlangen, Germany. Knitza-Johannes is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Their clinical expertise encompasses Antisynthetase Syndrome, Calcium Pyrophosphate Arthritis, Erdheim-Chester Disease, and Arthritis.

    Experienced in Erdheim-Chester Disease

    Eleni Kampylafka
    Experienced in Erdheim-Chester Disease

    Eleni Kampylafka
    Erlangen, BY, DE 

    Eleni Kampylafka practices practicing medicine in Erlangen, Germany. Ms. Kampylafka is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. She is also highly rated in 1 other condition, according to our data. Her clinical expertise encompasses Psoriatic Arthritis, Psoriasis, Arthritis, and Synovitis.

    Experienced in Erdheim-Chester Disease

    Anke Heidemeier
    Experienced in Erdheim-Chester Disease

    Anke Heidemeier
    Oberdürrbacher Str 6, 
    Wuerzburg, BY, DE 

    Anke Heidemeier practices practicing medicine in Wuerzburg, Germany. Ms. Heidemeier is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her clinical expertise encompasses Adrenocortical Carcinoma, Multiple Myeloma, Adrenal Cancer, and Rosai-Dorfman Disease.

    Experienced in Erdheim-Chester Disease

    Klaus Woertler
    Experienced in Erdheim-Chester Disease

    Klaus Woertler
    Ismaninger Str. 22, 
    Munich, BY, DE 

    Klaus Woertler practices practicing medicine in Munich, Germany. Mr. Woertler is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Bone Tumor, Adult Soft Tissue Sarcoma, Trochlear Dysplasia, Osteotomy, and Bone Graft.

    Experienced in Erdheim-Chester Disease

    Ioannis Anagnostopoulos
    Experienced in Erdheim-Chester Disease

    Ioannis Anagnostopoulos
    Josef Schneider Str. 2, 
    Wuerzburg, BY, DE 

    Ioannis Anagnostopoulos practices practicing medicine in Wuerzburg, Germany. Mr. Anagnostopoulos is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Non-Hodgkin Lymphoma, B-Cell Lymphoma, Mononucleosis, T-Cell Lymphoma, and Tissue Biopsy.

    Experienced in Erdheim-Chester Disease

    Martin G. Fleck
    Experienced in Erdheim-Chester Disease

    Martin G. Fleck
    Franz Josef Strauß Allee 11, 
    Regensburg, BY, DE 

    Martin Fleck practices practicing medicine in Regensburg, Germany. Mr. Fleck is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Tenosynovitis, Arthritis, Rheumatoid Arthritis (RA), Polymyalgia Rheumatica, and Tissue Biopsy.

    Experienced in Erdheim-Chester Disease

    Katja Specht
    Experienced in Erdheim-Chester Disease

    Katja Specht
    Ismaninger Str. 22, 
    Munich, BY, DE 

    Katja Specht practices practicing medicine in Munich, Germany. Ms. Specht is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. She is also highly rated in 3 other conditions, according to our data. Her clinical expertise encompasses Adult Soft Tissue Sarcoma, Osteosarcoma, Ewing Sarcoma, and Bone Tumor.

    Experienced in Erdheim-Chester Disease

    Norbert Harrasser
    Experienced in Erdheim-Chester Disease

    Norbert Harrasser
    Ismaninger Str. 22, 
    Munich, BY, DE 

    Norbert Harrasser practices practicing medicine in Munich, Germany. Mr. Harrasser is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Flat Feet, High Arch, Ledderhose Disease, Osteotomy, and Hip Replacement.

    Experienced in Erdheim-Chester Disease

    Matthias F. Frohlich
    Experienced in Erdheim-Chester Disease

    Matthias F. Frohlich
    Oberdürrbacher Str. 6, 
    Wuerzburg, BY, DE 

    Matthias Frohlich practices practicing medicine in Wuerzburg, Germany. Mr. Frohlich is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Temporal Arteritis, Giant Cell Arteritis (GCA), Vasculitis, Bone Marrow Transplant, and Knee Replacement.

    Experienced in Erdheim-Chester Disease

    Bernhard Manger
    Experienced in Erdheim-Chester Disease

    Bernhard Manger
    Erlangen, BY, DE 

    Bernhard Manger practices practicing medicine in Erlangen, Germany. Mr. Manger is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 9 other conditions, according to our data. His clinical expertise encompasses Gout, Arthritis, Rheumatoid Arthritis (RA), and Clubbing of the Fingers or Toes.

    Experienced in Erdheim-Chester Disease

    Michael Gernert
    Experienced in Erdheim-Chester Disease

    Michael Gernert
    Oberdürrbacher Str. 6, 
    Wuerzburg, BY, DE 

    Michael Gernert practices practicing medicine in Wuerzburg, Germany. Mr. Gernert is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Temporal Arteritis, Giant Cell Arteritis (GCA), Rhizomelic Pseudopolyarthritis, Polymyalgia Rheumatica, and Bone Marrow Transplant.

    Experienced in Erdheim-Chester Disease

    Georg A. Schett
    Experienced in Erdheim-Chester Disease

    Georg A. Schett
    Erlangen, BY, DE 

    Georg Schett practices practicing medicine in Erlangen, Germany. Mr. Schett is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 34 other conditions, according to our data. His clinical expertise encompasses Arthritis, Psoriatic Arthritis, Rheumatoid Arthritis (RA), Oophorectomy, and Lithotripsy.

    Experienced in Erdheim-Chester Disease

    Wolfgang Hartung
    Experienced in Erdheim-Chester Disease

    Wolfgang Hartung
    Kaiser Karl V. Allee 3, 
    Bad Abbach, BY, DE 

    Wolfgang Hartung practices practicing medicine in Bad Abbach, Germany. Mr. Hartung is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 10 other conditions, according to our data. His clinical expertise encompasses Tenosynovitis, Temporal Arteritis, Giant Cell Arteritis (GCA), Vasculitis, and Tissue Biopsy.

    Experienced in Erdheim-Chester Disease

    Leo Rasche
    Experienced in Erdheim-Chester Disease

    Leo Rasche
    Oberdürrbacher Street 6, 
    Wuerzburg, BY, DE 

    Leo Rasche practices practicing medicine in Wuerzburg, Germany. Mr. Rasche is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 4 other conditions, according to our data. His clinical expertise encompasses Multiple Myeloma, Plasmacytoma, Relapsed Refractory Multiple Myeloma (RRMM), Smoldering Multiple Myeloma, and Bone Marrow Transplant.

    Experienced in Erdheim-Chester Disease

    Andreas Toepfer
    Experienced in Erdheim-Chester Disease

    Andreas Toepfer
    Harlachinger Str. 51, 
    Munich, BY, DE 

    Andreas Toepfer practices practicing medicine in Munich, Germany. Mr. Toepfer is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 7 other conditions, according to our data. His clinical expertise encompasses Bunions, Ledderhose Disease, Hammer Toe, Osteotomy, and Bone Graft.

    Experienced in Erdheim-Chester Disease

    Andreas Rosenwald
    Experienced in Erdheim-Chester Disease

    Andreas Rosenwald
    Josef Schneider Str. 2, 
    Wuerzburg, BY, DE 

    Andreas Rosenwald practices practicing medicine in Wuerzburg, Germany. Mr. Rosenwald is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. He is also highly rated in 34 other conditions, according to our data. His clinical expertise encompasses Non-Hodgkin Lymphoma, B-Cell Lymphoma, T-Cell Lymphoma, Bone Marrow Transplant, and Tissue Biopsy.

    While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
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    Last Updated: 04/28/2026

    What is the definition of Erdheim-Chester Disease?

    Erdheim-Chester disease is a rare type of slow-growing blood cancer called a histiocytic neoplasm, which results in overproduction of cells called histiocytes. Histiocytes normally function to destroy foreign substances and protect the body from infection. In Erdheim-Chester disease, the excess production of histiocytes (histiocytosis) leads to inflammation that can damage organs and tissues throughout the body, causing them to become thickened, dense, and scarred (fibrotic); this tissue damage may lead to organ failure.

    When should I see an Erdheim-Chester Disease doctor in Hesse, DE?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing an Erdheim-Chester Disease doctor in Hesse, DE?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How do I find the best Erdheim-Chester Disease doctor in Hesse, DE?

    You can find an Erdheim-Chester Disease doctor in any of the 10 largest U.S. cities by clicking below:

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    How does MediFind rank Erdheim-Chester Disease doctors in Hesse, DE?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Erdheim-Chester Disease doctors in Hesse, DE?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with an Erdheim-Chester Disease doctor in Hesse, DE?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. 

    Why is it important to get a second opinion from a different Erdheim-Chester Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with an Erdheim-Chester Disease doctor in Hesse, DE?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Erdheim-Chester Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Erdheim-Chester Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Erdheim-Chester Disease doctors in Hesse, DE?

    Look for the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find an Erdheim-Chester Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Erdheim-Chester Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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