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    Last Updated: 01/09/2026

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    MediFind found 24 doctor with experience in Erdheim-Chester Disease near Schleswig-Holstein, DE. Of these, 24 are Experienced.

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    24 providers found
      Bjorn Konukiewitz
      Experienced in Erdheim-Chester Disease

      Bjorn Konukiewitz
      Experienced in Erdheim-Chester Disease

      Bjorn Konukiewitz
      Kiel, SH, DE 

      Bjorn Konukiewitz practices in Kiel, Germany. Konukiewitz is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Their top areas of expertise are Neuroendocrine Tumor, Pancreatic Islet Cell Tumor, Pancreatic Cancer, Pancreatic Ductal Adenocarcinoma, and Pancreaticoduodenectomy.

      Niklas A. Gebauer
      Experienced in Erdheim-Chester Disease

      Niklas A. Gebauer
      Experienced in Erdheim-Chester Disease

      Niklas A. Gebauer
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Niklas Gebauer practices in Luebeck, Germany. Mr. Gebauer is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are B-Cell Lymphoma, Non-Hodgkin Lymphoma, Marginal Zone Lymphoma (MZL), and Diffuse Large B-Cell Lymphoma (DLBCL).

      Experienced in Erdheim-Chester Disease

      Christoph Thorns
      Experienced in Erdheim-Chester Disease

      Christoph Thorns
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Christoph Thorns practices in Luebeck, Germany. Thorns is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Their top areas of expertise are Anorchia, Non-Hodgkin Lymphoma, B-Cell Lymphoma, and Marginal Zone Lymphoma (MZL).

      Learn about our expert tiers
      Experienced in Erdheim-Chester Disease

      Anke Fahnrich
      Experienced in Erdheim-Chester Disease

      Anke Fahnrich
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Anke Fahnrich practices in Luebeck, Germany. Ms. Fahnrich is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Bullous Pemphigoid, Pemphigus and Fogo Selvagem, Erdheim-Chester Disease, and B-Cell Lymphoma.

      Experienced in Erdheim-Chester Disease

      Cyrus Khandanpour
      Experienced in Erdheim-Chester Disease

      Cyrus Khandanpour
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Cyrus Khandanpour practices in Luebeck, Germany. Mr. Khandanpour is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Multiple Myeloma, Acute Myeloid Leukemia (AML), Leukemia, Myelodysplastic Syndrome (MDS), and Bone Marrow Transplant.

      Experienced in Erdheim-Chester Disease

      Axel Kunstner
      Experienced in Erdheim-Chester Disease

      Axel Kunstner
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Axel Kunstner practices in Luebeck, Germany. Mr. Kunstner is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Marginal Zone Lymphoma (MZL), Swyer Syndrome, B-Cell Lymphoma, and Epidermolysis Bullosa Acquisita.

      Experienced in Erdheim-Chester Disease

      Jens Y. Humrich
      Experienced in Erdheim-Chester Disease

      Jens Y. Humrich
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Jens Humrich practices in Luebeck, Germany. Mr. Humrich is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Systemic Lupus Erythematosus (SLE), Lupus Nephritis, Shwartzman Phenomenon, and Glomerulonephritis.

      Experienced in Erdheim-Chester Disease

      Hauke S. Busch
      Experienced in Erdheim-Chester Disease

      Hauke S. Busch
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Hauke Busch practices in Luebeck, Germany. Busch is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Their top areas of expertise are Pemphigus and Fogo Selvagem, Pemphigus, Pemphigus Vulgaris, and Pemphigus Foliaceus.

      Experienced in Erdheim-Chester Disease

      Volker M. Tronnier
      Experienced in Erdheim-Chester Disease

      Volker M. Tronnier
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Volker Tronnier practices in Luebeck, Germany. Mr. Tronnier is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Subarachnoid Hemorrhage, Movement Disorders, Neuralgia, Deep Brain Stimulation, and Microvascular Decompression.

      Experienced in Erdheim-Chester Disease

      Peter Lamprecht
      Experienced in Erdheim-Chester Disease

      Peter Lamprecht
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Peter Lamprecht practices in Luebeck, Germany. Mr. Lamprecht is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Granulomatosis with Polyangiitis, Vasculitis, Interstitial Lung Disease, and Acute Interstitial Pneumonia.

      Experienced in Erdheim-Chester Disease

      Jutta Kirfel
      Experienced in Erdheim-Chester Disease

      Jutta Kirfel
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Jutta Kirfel practices in Luebeck, Germany. Ms. Kirfel is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Prostate Cancer, Head and Neck Squamous Cell Carcinoma (HNSCC), Familial Adenomatous Polyposis, Lung Metastases, and Prostatectomy.

      Experienced in Erdheim-Chester Disease

      Klaus Dalhoff
      Experienced in Erdheim-Chester Disease

      Klaus Dalhoff
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Klaus Dalhoff practices in Luebeck, Germany. Mr. Dalhoff is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Eosinophilic Granulomatosis with Polyangiitis (EGPA, Churg-Strauss Syndrome), Eosinophilic Asthma, Granulomatosis with Polyangiitis, and Pneumonia.

      Experienced in Erdheim-Chester Disease

      Wolfram Klapper
      Experienced in Erdheim-Chester Disease

      Wolfram Klapper
      Arnold Heller Str. 3, 
      Kiel, SH, DE 

      Wolfram Klapper practices in Kiel, Germany. Mr. Klapper is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Non-Hodgkin Lymphoma, Mantle Cell Lymphoma (MCL), Burkitt Lymphoma, B-Cell Lymphoma, and Bone Marrow Transplant.

      Experienced in Erdheim-Chester Disease

      Fabian Ott
      Experienced in Erdheim-Chester Disease

      Fabian Ott
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Fabian Ott practices in Luebeck, Germany. Mr. Ott is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Drug Induced Dyskinesia, Pemphigus and Fogo Selvagem, Total Anomalous Pulmonary Venous Return, and Focal Dystonia.

      Experienced in Erdheim-Chester Disease

      Alex Frydrychowicz
      Experienced in Erdheim-Chester Disease

      Alex Frydrychowicz
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Alex Frydrychowicz practices in Luebeck, Germany. Mr. Frydrychowicz is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Sinus of Valsalva Aneurysm, Coarctation of the Aorta, Portal Hypertension, and Hypertension.

      Experienced in Erdheim-Chester Disease

      Maxim Kebenko
      Experienced in Erdheim-Chester Disease

      Maxim Kebenko
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Maxim Kebenko practices in Luebeck, Germany. Mr. Kebenko is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Acute Myeloid Leukemia (AML), Leukemia, Angiosarcoma, Bone Marrow Transplant, and Gastrostomy.

      Experienced in Erdheim-Chester Disease

      Nikolas Von Bubnoff
      Experienced in Erdheim-Chester Disease

      Nikolas Von Bubnoff
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Nikolas Von Bubnoff practices in Luebeck, Germany. Mr. Von Bubnoff is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Mast Cell Activation Syndrome (MCAS), Hereditary Alpha-Tryptasemia, Systemic Mastocytosis, Polycythemia Vera, and Bone Marrow Transplant.

      Experienced in Erdheim-Chester Disease

      Christoph Rocken
      Experienced in Erdheim-Chester Disease

      Christoph Rocken
      Arnold Heller Str 3, 
      Kiel, SH, DE 

      Christoph Rocken practices in Kiel, Germany. Mr. Rocken is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. His top areas of expertise are Primary Amyloidosis, Stomach Cancer, Familial Transthyretin Amyloidosis, Tissue Biopsy, and Endoscopy.

      Experienced in Erdheim-Chester Disease

      Verena-wilbeth Sailer
      Experienced in Erdheim-Chester Disease

      Verena-wilbeth Sailer
      Ratzeburger Allee 160, 
      Luebeck, SH, DE 

      Verena-wilbeth Sailer practices in Luebeck, Germany. Sailer is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Their top areas of expertise are Shwartzman Phenomenon and Erdheim-Chester Disease.

      Experienced in Erdheim-Chester Disease

      Stephanie J. Fliedner
      Experienced in Erdheim-Chester Disease

      Stephanie J. Fliedner
      Luebeck, SH, DE 

      Stephanie Fliedner practices in Luebeck, Germany. Ms. Fliedner is rated as an Experienced expert by MediFind in the treatment of Erdheim-Chester Disease. Her top areas of expertise are Pheochromocytoma, Adrenal Cancer, Neuroendocrine Tumor, and Ganglioneuroma.

      While we make every effort to provide the best results possible, data is currently limited outside of the United States. Doctors listed may include both clinicians and researchers, and individuals relocate frequently. We recommend contacting doctors directly to confirm their location and areas of focus. Contact information is provided when available. Learn more about our expert tiers.
      Showing 1-20 of 24

      Last Updated: 01/09/2026

      What is the definition of Erdheim-Chester Disease?

      Erdheim-Chester disease is a rare type of slow-growing blood cancer called a histiocytic neoplasm, which results in overproduction of cells called histiocytes. Histiocytes normally function to destroy foreign substances and protect the body from infection. In Erdheim-Chester disease, the excess production of histiocytes (histiocytosis) leads to inflammation that can damage organs and tissues throughout the body, causing them to become thickened, dense, and scarred (fibrotic); this tissue damage may lead to organ failure.

      When should I see an Erdheim-Chester Disease doctor in Schleswig-Holstein, DE?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing an Erdheim-Chester Disease doctor in Schleswig-Holstein, DE?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How do I find the best Erdheim-Chester Disease doctor in Schleswig-Holstein, DE?

      You can find an Erdheim-Chester Disease doctor in any of the 10 largest U.S. cities by clicking below:

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      How does MediFind rank Erdheim-Chester Disease doctors in Schleswig-Holstein, DE?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Erdheim-Chester Disease doctors in Schleswig-Holstein, DE?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with an Erdheim-Chester Disease doctor in Schleswig-Holstein, DE?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. 

      Why is it important to get a second opinion from a different Erdheim-Chester Disease doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with an Erdheim-Chester Disease doctor in Schleswig-Holstein, DE?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Erdheim-Chester Disease doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Erdheim-Chester Disease doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Erdheim-Chester Disease doctors in Schleswig-Holstein, DE?

      Look for the filter feature on the left side of the Erdheim-Chester Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find an Erdheim-Chester Disease doctor that offers video calls?

      Look for the filter feature on the left-side of the Erdheim-Chester Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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